*  Genetic and Rare Diseases Information Center (GARD) - an NCATS Program | Providing information about rare or genetic diseases.
Diseases expand submenu for Diseases * Browse A-Z * Find Diseases By Category expand submenu for Find Diseases By Category * ... contact gard Office of Rare Disease Research Facebook Page Office of Rare Disease Research on Twitter ... The Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational ... Genetic and Rare Diseases Information Center (GARD) - PO Box 8126, Gaithersburg, MD 20898-8126 - Toll-free: 1-888-205-2311 ...
  https://rarediseases.info.nih.gov/
*  Necrotizing Fasciitis | Features | CDC
Although the media commonly calls it a "flesh-eating infection," more than one type of bacterium can cause this rare disease. ... While Rare, Some People Are More Likely to Get Necrotizing Fasciitis. Necrotizing fasciitis is rare. Your chances of getting it ... National Center for Immunization and Respiratory Diseases, Division of Bacterial Diseases. *Page maintained by: Office of the ... The first line of defense against this disease is strong antibiotics given through a needle into a vein (IV antibiotics). ...
  https://www.cdc.gov/Features/NecrotizingFasciitis/
*  Identifying rare diseases - European Commission
Orphanet is the most important database in the EU for rare diseases and orphan drugs for the general public. It contains ... Other databases on rare diseases. The US Office of Rare Diseases (ORD) was established in 1993 within the Office of the ... Diagnosing Rare Diseases. Rare diseases (RD) are still poorly known both by the general public and by most health professionals ... The Swedish National Board of Health and Welfare is developing a database on rare diseases. Rare diseases are defined as: " ...
  https://ec.europa.eu/health/rare_diseases/orphanet/identification_en
*  HON - List of Rare Diseases
Others rare diseases or genetic conditions with:. ORPHANET is a database dedicated to information on rare diseases and orphan ... Glycogen Storage Disease Type I. Glycogen Storage Disease Type II. Glycogen Storage Disease Type IV. Glycogen Storage Disease ... HONselect/RareDiseases/index.html last modified: Dec 12 2017 copyright HON 2017. ...
  http://www.hon.ch/HONselect/RareDiseases/index.html
*  crps - Rare Diseases - MedHelp
... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  https://www.medhelp.org/posts/Rare-Diseases/crps/show/1397645
*  CIPA Disease - Rare Diseases - MedHelp
CIPA Disease. I am looking for help for two little kids in Morocco. They have CIPA. It is unheard of in Morocco. They lost ... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  http://www.medhelp.org/posts/Rare-Diseases/CIPA-Disease/show/778421
*  Today is Rare Disease Day
Rare Disease Day is meant to draw attention for the approximately 7000 diseases with fewer than 200,000 patients. - David Sell ... They are rare diseases and today is Rare Disease Day.. In the United States, a rare diseases is generally defined as one that ... Today is Rare Disease Day Updated: February 29, 2012 - 6:52 AM EST * ... But rare diseases are not exempt from the national debate on health care costs. Because there are few patients - and often few ...
  http://www.philly.com/philly/blogs/phillypharma/Today-is-Rare-Disease-Day.html
*  Rare Diseases | National Eye Institute
Diagram of Eye Rare Diseases that Affect the Eye Anophthalmia and Microphthalmia Bietti's Crystalline Dystrophy Behçet's ... Rare Diseases. Some eye diseases are rare. A rare disease is generally considered to have a prevalence of fewer than 200,000 ... NIH Rare Diseases Resources. *National Center for Advancing Translational Sciences (NCATS). *Genetic and Rare Disease ... NIH spotlights research for rare eye diseases during Rare Disease Day Posted on Feb 1, 2012 ...
  https://www.nei.nih.gov/health/rare/
*  Rare Diseases</span...
Rare diseases may not be common, but they are no less painful or difficult than conditions you've heard of. Learn about some ... Diseases & Conditions / Rare Diseases. Top 10 Rare Diseases We'll look at the top 10 rare diseases, some of which you may never ... Diseases & Conditions / Rare Diseases. What are the world's rarest diseases? What if you were the only person in the world with ... Diseases & Conditions / Rare Diseases. 10 Diseases Named After People Naming a disease after a person makes it more memorable ...
  https://health.howstuffworks.com/diseases-conditions/rare
*  Recurring blood blisters - Rare Diseases - MedHelp
Even Raynaud's disease needs an evaluation. For blood blisters, elevate the hand, give rest to the part, apply cold compresses ... Even Raynaud's disease needs an evaluation. For blood blisters, elevate the hand, give rest to the part, apply cold compresses ... Recurrent blood blisters may be found in diabetes and since you are having other symptoms also peripheral vascular disease ... Recurrent blood blisters may be found in diabetes and since you are having other symptoms also peripheral vascular disease ...
  https://www.medhelp.org/posts/Rare-Diseases/Recurring-blood-blisters/show/1511355
*  Rare Disease - Microcephaly | HubPages
It's a rare condition that is noticed immediately after birth or even before that. The baby's head is smaller than a normal ... Cyclic Vomiting Syndrome (CVS) Is a Rare Disease in Adults and Children - Parents May Want to Read Our Story. by Lisa. 28 ... Respiratory Diseases & Conditions. Living with Costochondritis one reason which could explain your chest pains. by Sp Greaney. ... It's a rare condition that is noticed immediately after birth or even before that. The baby's head is smaller than a normal ...
  https://hubpages.com/health/Rare-Disease-Microcephaly
*  HON - List of rare diseases
Others rare diseases or genetic conditions with:. ORPHANET is a database dedicated to information on rare diseases and orphan ... HONselect/RareDiseases//index_de.html Letzte Änderung: 15 avril 2015 copyright HON 2015. ...
  https://www.healthonnet.org/HONselect/RareDiseases/index_de.html
*  Aegerion Pharma raises rare disease awareness
Home , Aegerion Pharma raises rare disease awareness. Aegerion Pharma raises rare disease awareness. Ira Kantor Thursday, ... a biopharmaceutical company focused on developing and commercializing drugs to treat debilitating and often fatal rare diseases ... Source URL: http://www.bostonherald.com/business/business_markets/2012/09/aegerion_pharma_raises_rare_disease_awareness ... resulting in elevated cholesterol levels that can lead to complications such as heart disease and stroke. ...
  http://www.bostonherald.com/print/1061161799
*  Orphan Drugs & Rare Diseases : Pharmaceuticals : All
Rare Diseases will provide an exclusive opportunity to network with these leading experts on not only rare diseases research ... Richard Philipson, Disease Area Head for Immuno / Inflammation, GlaxoSmithKline, Neurosciences MDC. *Rare disease ... Orphan Drugs & Rare Diseases. 8th October to 9th October 2012, London, United Kingdom. ... The call to treat rare diseases has become louder around the world in recent years than ever before. Supportive organisations ...
  http://www.smi-online.co.uk/pharmaceuticals/archive/10-2012/conference/orphan-drugs-rare-diseases
*  European Call on Rare Diseases - SNF
The ERA-Net for Research Programmes on Rare Diseases (E-RARE) aims at maximising the efficiency and impact of research on rare ... The E-Rare network launches its 10th call for funding transnational research projects on Rare Diseases. ... multi-omic integrated approaches for discovery of disease causes and/or functional validation in the context of rare diseases. ... diseases on a European scale.. The aim of the call is to enable scientists in different countries to build an effective ...
  http://www.snf.ch/en/researchinFocus/newsroom/Pages/news-171215-call-for-proposals-european-call-on-rare-diseases.aspx
*  What do I have? - Rare Diseases - MedHelp
... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  https://www.medhelp.org/posts/Rare-Diseases/What-do-I-have/show/1897030
*  Trapped air in stomach - Rare Diseases - MedHelp
But if it is not relieved by these methods a check for severe gastritis, peptic disease and tracheo-esophageal fistula should ... But if it is not relieved by these methods a check for severe gastritis, peptic disease and tracheo-esophageal fistula should ... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  https://www.medhelp.org/posts/Rare-Diseases/Trapped-air-in-stomach/show/954835
*  Intractable & Rare Diseases Research
... Published by International Research and Cooperation Association for Bio & Socio-Sciences ... Microglia express ABI3 in the brains of Alzheimer's disease and Nasu-Hakola disease Jun-ichi Satoh, Yoshihiro Kino, ...
  https://www.jstage.jst.go.jp/browse/irdr
*  Orphan Drugs and Rare Diseases : Pharmaceuticals : All
11:30 Developing a state of art telemedicine rare disease service. Kay Parkinson, CEO, Cambridge Rare Disease Network (CRDN). ... Challenges of Rare Diseases faced by people affected by rare diseases & co-design of centre with children & families. ... In 2015 Kay joined the steering group of Cambridge Rare Disease Network as she believes all rare diseases need to work together ... In 2015 Kay joined the steering group of Cambridge Rare Disease Network as she believes all rare diseases need to work together ...
  http://www.smi-online.co.uk/pharmaceuticals/archive/10-2017/conference/orphan-drugs-rare-diseases-uk?o=login&dl=cc&p1=5258&p2=885
*  Rare Disease Forces Popular Teacher to Retire - ABC News
A rare disease called Multiple Systems Atrophy forced popular elementary school teacher to retire. But his town has shown ... But when a rare disease derailed his teaching career and forced him to retire from his job at Maple Hills Elementary School in ... Or the disease could strike the same part of the brain as Parkinson's disease, which causes "Rigidity, people walk with tiny ... Sandroni said the disease is typically not genetic. But once diagnosed with the disease, doctors say they can only ease ...
  http://abcnews.go.com/Health/MensHealthNews/rare-disease-forces-popular-teacher-retire/story?id=10429408&page=2
*  Sick looking skin & twisted hairs - Rare Diseases - MedHelp
... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ... What if it's also something rare and nobody knows what it is? ... Communities>Rare Diseases>Sick looking skin & twisted hairs. Aa ... What if it's also something rare and nobody knows what it is? ...
  http://www.medhelp.org/posts/Rare-Diseases/Sick-looking-skin--twisted-hairs/show/1894825
*  Dercums Disease with Generalized Swelling - Rare Diseases - MedHelp
Herbst for people with rare adipose diseases? If you would like any contact, also to other groups and DD people, I would be ... Herbst for people with rare adipose diseases? If you would like any contact, also to other groups and DD people, I would be ... Dercums Disease with Generalized Swelling HeatherShow This is a bit long and complicated, but I beg you, please read and help ... Dercums Disease with Generalized Swelling. This is a bit long and complicated, but I beg you, please read and help if you can ...
  https://www.medhelp.org/posts/Rare-Diseases/Dercums-Disease-with-Generalized-Swelling/show/1022937
*  Scard, need help.. Unknown diagnostics.. - Rare Diseases - MedHelp
... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  https://www.medhelp.org/posts/Rare-Diseases/Scard--need-help-Unknown-diagnostics/show/1417782
*  Leg pain - only at night - Rare Diseases - MedHelp
I never asked my doctor about the leg pains, but I now realize they could have been a symptom of peripheral artery disease (PAD ... This can happen in a matter or days or weeks; has no negative side effects; and reduces the risk of other chronic diseases. " ... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ... "You can reverse peripheral artery disease, and open up coronary arteries, with a whole-food, plant-based diet. This is the same ...
  https://www.medhelp.org/posts/Rare-Diseases/Leg-pain---only-at-night/show/951084
*  excessive sweating for no reason. - Rare Diseases - MedHelp
I occasionally take benadryl for my pollen/dust allergies, and on very rare occasions advil for pain. I consume alcohol maybe ... I occasionally take benadryl for my pollen/dust allergies, and on very rare occasions advil for pain. I consume alcohol maybe ... condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or ...
  https://www.medhelp.org/posts/Rare-Diseases/excessive-sweating-for-no-reason/show/1951516