Barriers to organizing information during cancer care: "I don't know how people do it.".
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Patients need support to help them organize and manage the vast amount of health information they now receive, particularly in their increasingly active roles. Clinicians can be frustrated by the perceived failure of patients to use the information given to them, and patients express frustrations with the daunting organizational task of their health information. Yet, few studies have examined the barriers that patients face in organizing and thus effectively retrieving and using their health information. In this paper, we report on a qualitative, longitudinal field study of cancer patients in-situ organizing behavior where we uncovered four types of barriers to organizing: emotional, scalable, temporal, and functional. We provide detailed suggestions for how these barriers could be reduced by either technological or social changes. Our analysis of barriers provides empirical guidance for health-information providers, technology designers as well as patients and their caregivers. (+info)
eHealth trends in Europe 2005-2007: a population-based survey.
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Health information systems and physician quality: role of the American board of pediatrics maintenance of certification in improving children's health care.
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Policy and system strategies in promoting child health information systems, including the role of Medicaid, the state children's health insurance program, and public financing.
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Advancing patient-centered pediatric care through health information exchange: update from the American Health Information Community Personalized Health Care Workgroup.
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