• HIV on the Frontlines of Communities in the United States (FOCUS) was launched in 2010 to provide an environment for testing innovative approaches to routine HIV screening and linkage to care. (researchprotocols.org)
  • The FOCUS program is a unique model that will identify best practices for HIV screening and linkage to care. (researchprotocols.org)
  • Incidence of disease after vasectomy: a record linkage retrospective cohort study. (bmj.com)
  • Using the population-based resources of the Rochester Epidemiology Project (REP) medical records linkage system, we performed a retrospective cohort study. (bmj.com)
  • Characteristics associated with acceptance of dataset linkages and health data linkage data quality were analyzed. (biomedcentral.com)
  • Background: Probabilistic record linkage is a process used to bring together person-based records from within the same dataset (de-duplication) or from disparate datasets using pairwise comparisons and matching probabilities. (edu.au)
  • Howard Borden Newcombe then laid the probabilistic foundations of modern record linkage theory in a 1959 article in Science. (wikipedia.org)
  • These were formalized in 1969 by Ivan Fellegi and Alan Sunter, in their pioneering work "A Theory For Record Linkage", where they proved that the probabilistic decision rule they described was optimal when the comparison attributes were conditionally independent. (wikipedia.org)
  • Methods: Using a large subset of Australian hospital admission data, we tested the performance of an innovative PPRL technique (CLKs using multibit trees) against a gold-standard derived from clear-text probabilistic record linkage. (edu.au)
  • Results: Clear text probabilistic linkage resulted in marginally higher precision and recall than CLKs. (edu.au)
  • Estimating parameters for probabilistic linkage of privacy-preserved datasets. (edu.au)
  • To demonstrate the use of a mixed deterministic-probabilistic method of secure and private record linkage (SAPREL) - to describe selection bias in subjects chosen for in-depth evaluation. (whiterose.ac.uk)
  • though incorporating some elements of probabilistic linkage. (whiterose.ac.uk)
  • Participants from the 2011 Taiwan Longitudinal Study on Aging were asked to link their epidemiological data with concurrent and future medical claim datasets. (biomedcentral.com)
  • However, to our knowledge, few studies have been conducted to investigate differences in attributes between middle-aged and elderly respondents who are willing to or unwilling to accept linkage to epidemiological data and medical records. (biomedcentral.com)
  • Confidential medical records and epidemiological research. (bmj.com)
  • Participants will be followed for 6 months with objective assessment of outcomes (using medical records and biomarkers). (biomedcentral.com)
  • With an increasing awareness of the prevalence of medical injuries 6 and a desire to deliver patient centred care, 7 knowing if patients spontaneously identify and complain about adverse outcomes might support a more active solicitation of patient reporting. (bmj.com)
  • However, the depression and medical comorbidity and SUD patient groups also diverged in terms of other outcomes. (medscape.com)
  • Middle-aged adults with worse functional health accepted data linkage. (biomedcentral.com)
  • To explore this question, investigators analyzed medical records in the Rochester Epidemiology Program, a medical records-linkage system in southern Minnesota and western Wisconsin. (medscape.com)
  • Other examples include linking all records by the same author in bibliographic databases so as to allow funding agencies to better understand the impact of researchers, and linking consumer products and their descriptions in online comparison-shopping sites (where different online shops often have somewhat different names and descriptions of the same consumer product) to allow customers see all offers for the same product across different online shops. (mit.edu)
  • In smaller-scale surveys where women's reports were compared to their medical records, researchers have also found underreporting, ranging from 29% of abortions reported among New Jersey welfare recipients in 1994 (Jagannathan 2001) to 81%-90% reported among women aged 27-30 who were participants in a lifelong, longitudinal healthcare study (Udry et al. (cdc.gov)
  • Researchers assessed 20 common psychiatric and medical conditions other than schizophrenia. (medscape.com)
  • While they share similar names, record linkage and Linked Data are two separate approaches to processing and structuring data. (wikipedia.org)
  • In 2010, the National Institute on Drug Abuse (NIDA) at the National Institutes of Health called for research on new approaches to seek out persons with undiagnosed HIV, provide them with HIV counseling and testing, and then link those found to be HIV infected into medical care with high retention, which are referred to as "Seek, Test, Treat, and Retain" (STTR) studies (e.g. (biomedcentral.com)
  • Approaches for improving linkage to HIV care among HIVST individuals include counselling and support, innovative HIV care service delivery models, peer navigation, health information systems and community mobilisation and engagement. (bmj.com)
  • Characteristics associated with acceptance of data linkage, data consistency, under-reporting, and over-reporting of disease conditions were identified. (biomedcentral.com)
  • Consistency between self-reports and medical data was very good to satisfactory (Kappa = 0.80 and 0.67, respectively, for diabetes and hypertension). (biomedcentral.com)
  • 16 , - , 18 In brief, this system allows ready access to the complete inpatient and outpatient medical records of Olmsted County, Minnesota residents from all healthcare providers from the Mayo Clinic, its affiliated hospitals and the Olmsted Medical Center. (bmj.com)
  • We used medical record linkage of inpatient data from the Patient Episode Database for Wales (PEDW) and mortality data from the National Health Service (NHS) Welsh Administrative Register. (ersjournals.com)
  • A recent study presented at the American Association for Geriatric Psychiatry Conference 2022 ( AAGP 2022 ) analyzed healthcare records and data linkages from 82,858 US veterans aged 50 years and older with a diagnosis of schizophrenia and at least one inpatient or two outpatient encounters related to that diagnosis within the previous 2 years. (medscape.com)
  • Evaluating privacy-preserving record linkage using cryptographic long-term keys and multibit trees on large medical datasets. (edu.au)
  • Record linkage is the process of bringing together data relating to the same individual within and between different datasets. (edu.au)
  • Record linkage (also known as data matching, data linkage, entity resolution, and many other terms) is the task of finding records in a data set that refer to the same entity across different data sources (e.g., data files, books, websites, and databases). (wikipedia.org)
  • We extracted, pseudonymised and used fuzzy logic to link multiple health records without the researcher knowing the patient's identity. (whiterose.ac.uk)
  • Along with the patient narrative, the OPA records the patient's medical record number, complaint date, and location of the complaint. (bmj.com)
  • A study evaluating a linkage-to-care initiative for those experiencing homelessness in New Orleans, LA during the COVD-19 Pandemic found effective strategies in connecting HIV and HCV patients with follow-up care. (natap.org)
  • The present protocol describes a creative "hybrid" STTR approach that uses anonymous HIV testing followed by confidential care linkage, focused on heterosexuals at high risk (HHR) for HIV, who do not test as frequently as, and are diagnosed later, than other risk groups. (biomedcentral.com)
  • While anonymous HIV testing is an important part of the HIV testing portfolio, it does not typically include linkage to care. (biomedcentral.com)
  • POSITION SUMMARY: The Peer Linkage and Re-Engagement intervention is designed to best serve Women of Color (WoC) who are newly diagnosed with HIV or who have fallen out of HIV primary care. (howardbrown.org)
  • DATA1 DATA2 DATA3 SRC DATA PURCHASE AND USE AGREEMENT For Use with the 1987 National Medical Expenditure Survey Data Individual identifiers have been removed from the micro-data tapes available from the Agency for Health Care Policy and Research through NTIS. (cdc.gov)
  • ABSTRACT This documentation describes one in a series of public use tapes issued by the Agency for Health Care Policy and Research with data from the National Medical Expenditure Survey. (cdc.gov)
  • The National Medical Expenditure Survey (NMES) is a research project of the Center for General Health Services Intramural Research, Agency for Health Care Policy and Research. (cdc.gov)
  • The first series of studies (NMES-1) employed data collected in the 1977 National Medical Care Expenditure Survey. (cdc.gov)
  • Routine screenings for cholesterol and triglyceride levels are commonly done as part of the standard of medical care," study investigator Suzette Bielinski, PhD, a genetic epidemiologist at the Mayo Clinic in Rochester, Minnesota, said in a press release. (medscape.com)
  • Despite the potential benefits of HIV self-testing (HIVST), several challenges contribute to poor linkage to HIV care among HIVST individuals in sub-Saharan Africa. (bmj.com)
  • The challenges to linkage to HIV care among HIVST individuals are complex and require a multifaceted approach that addresses both individual-level and systemic-level barriers to care. (bmj.com)
  • 1 Despite significant progress in scaling up HIV testing and treatment services in the region, linkage to HIV care remains a significant challenge. (bmj.com)
  • 2 Poor linkage to HIV care is a major barrier to achieving the UNAIDS 95-95-95 targets, which aim to diagnose 95% of people living with HIV, put 95% of those diagnosed on ART and achieve viral suppression in 95% of those on ART by 2030. (bmj.com)
  • 9 A community-based prospective study conducted in Blantyre, Malawi, to determine the uptake, accuracy, safety and linkage into care revealed that 76.5% of the participants self-tested during a 12-month period. (bmj.com)
  • Much of this human experimentation occurred in populations either exposed to near lethal amounts of radiation, or to "control" populations who were told they would receive medical "care" for participating in these studies to help their fellow citizens. (wagingpeace.org)
  • In the health system, data linkage has consolidated patient records from diverse health care providers, or collected over time (for example, to identify all records of births from the same mother). (mit.edu)
  • Electronic medical and pharmacy claims data are collected as a result of clinical care, primarily for billing and reimbursement purposes. (jmir.org)
  • To identify opportunities for HIV diagnosis in young males, CDC analyzed data from the 2009-2012 National Ambulatory Medical Care Survey (NAMCS) and U.S. Census data to estimate rates of health care use at U.S. physicians' offices and HIV testing at these encounters. (cdc.gov)
  • For each patient contact, one primary and optional secondary diagnoses are recorded according to the International Classification of Diseases. (nih.gov)
  • Outcome data was collected on seropositive patients' electronic medical record to assess patient progression through the treatment cascade. (natap.org)
  • Establishing EMR data-based phenotyping is essential for setting up the operational framework toward pursuing precision medicine, which aims to tailor medical decisions and treatments to each patient in a timely manner. (jmir.org)
  • Patient complaints are associated with increased malpractice risk but it is unclear if complaints might be associated with medical complications. (bmj.com)
  • The Office of Patient Affairs (OPA) at Vanderbilt University Medical Center collects and electronically records unsolicited patient complaints. (bmj.com)
  • In the framework for FDA's Real World Evidence Program, real-world data (RWD) includes longitudinal electronic health records, medical claims and billing data, and patient-generated data ( 2 ). (diabetesjournals.org)
  • Patient-reported data were anonymously matched and compared to IMS Health medical and pharmacy claims data with dates of service between December 2009 and December 2014. (jmir.org)
  • Comparisons between data from clinical encounters (captured in electronic medical records, claims, or administrative records) and patient-reported data (captured via telephone interviews, in person interviews [ 2 ], mailed surveys, and in-clinic surveys [ 3 , 4 ]) have been undertaken in previous research. (jmir.org)
  • METHODS Patient collection methods Family members studied for this project were from the collection of individuals with SLE from your Lupus Family Registry and Repository (LFRR) centered in the Oklahoma Medical Study Basis (OMRF) (7,19,20). (bioinf.org)
  • A patient is definitely recruited following a telephone interview and an extensive review of medical records by a reviewer having a medical background. (bioinf.org)
  • They grouped the participants into three distinct patient classes: those with minimal morbidity, depression and medical comorbidity, and SUDs and related conditions. (medscape.com)
  • Please do not use this form to submit personal or patient medical information or to report adverse drug events. (medscape.com)
  • Each selected physician was randomly assigned a 1-week data reporting period, and data collectors abstracted medical records from a systematic random sample of patient visits ( 10 ). (cdc.gov)
  • BMC Medical Informatics and Decision Making. (edu.au)
  • BMC Medical Informatics and Decision Making, 11. (whiterose.ac.uk)
  • Linkage time and linkage quality (recall, precision and F-measure) were evaluated. (edu.au)
  • School of Dentistry Dean Mike Reddy, Precision Medicine Platform Committee member, has led UCSF to be one of the first institutes to incorporate dental data into the larger medical record system. (constantcontact.com)
  • Methods: For this retrospective study, patients injured as a result of contact with law enforcement personnel were identified using ICD-9 external cause of injury codes from medical record databases of patients treated in all hospitals and trauma units in Illinois between 2000 and 2009. (cdc.gov)
  • METHODS: We analysed a database of linked statistical records of hospital admissions and death certificates for the whole of England (1999-2011). (ox.ac.uk)
  • METHODS: Observational and narrative data relating to acceptability, adoption, and use of a personally controlled health record were collected and analyzed within a formative evaluation of a PCHR demonstration. (medfloss.org)
  • and by expectation of linkages between self-report and clinical data. (medfloss.org)
  • Investigators recorded participants' total cholesterol, triglycerides, low-density lipoprotein cholesterol (LDL), and high-density lipoprotein cholesterol (HDL) on at least three different days in the 5 years before the start of the study in January 2006. (medscape.com)
  • Informed consent is definitely from all participants before collection of relevant materials including medical charts and blood samples. (bioinf.org)
  • Comorbidities were common risk factors resulting in inconsistency between self-reports and medical data (OR = 1.58 and 1.27, respectively, for diabetes and hypertension). (biomedcentral.com)
  • Conclusions: Although medical record data do not explain the detailed circumstances of the face-to-face encounters between law enforcement personnel and civilians, the data provide valuable information regarding who may be at risk of injury and the clinical features of injuries that are suffered following a legal intervention. (cdc.gov)
  • Light meters positioned within the infant's cot will be used to ensure daylight lux targets are achieved and maintained (intervention group) or level of ambient lighting recorded (control group). (who.int)
  • For example, the Taiwan Longitudinal Study on Aging (TLSA) began inquiring if respondents were willing to accept linkage of their personal data in the National Health Insurance Research Database (NHIRD) in 2007. (biomedcentral.com)
  • In Taiwan, although the National Health Insurance Research Database covers medical records for more than 99% of the general public and offers abundant clinical diagnosis information, the content might vary owing to differences in accessibility to medical services and individual behavior related to the use of such services. (biomedcentral.com)
  • All requests to conduct research using the data linkage files are carefully scrutinized for potential disclosure risks. (cdc.gov)
  • Background: Integrating medical data using databases from different sources by record linkage is a powerful technique increasingly used in medical research. (edu.au)
  • BACKGROUND: Consumer-centered health information systems that address problems related to fragmented health records and disengaged and disempowered patients are needed, as are information systems that support public health monitoring and research. (medfloss.org)
  • Personal health records (PHRs) have emerged as an important tool with which patients can electronically communicate with their doctors and doctor's offices. (jmir.org)
  • PCHRs are a special class of personal health records (PHRs) distinguished by the extent to which users control record access and contents. (medfloss.org)
  • The data came from a territory-wide diabetes cohort identified from the Hong Kong Hospital Authority electronic medical record system. (diabetologia-journal.org)
  • Embase (Excerpta Medica database) and MEDLINE (Medical Literature Analysis and Retrieval System Online) were searched using keywords developed in the following 3 domains: terms related to EMR, terms related to case finding, and disease-specific terms. (jmir.org)
  • As in the dementia study, the women were followed through death or end of study with direct or proxy interviews, plus the addition of neurologic examinations, medical records in a records-linkage system, and death certificates. (medpagetoday.com)
  • The establishment of a national screening database supported either by an electronic medical records system platform or a detailed paper-based client details capture form can improve tracking of screened clients. (who.int)
  • Transmission of cancer screening data from the facility to Kenya Health Information System can also be improved through continuous mentorship of both clinical as well as health records teams on utility of surveillance data right from the facility level. (who.int)
  • Many key identifiers for the same entity can be presented quite differently between (and even within) data sets, which can greatly complicate record linkage unless understood ahead of time. (wikipedia.org)
  • For example, key identifiers for a man named William J. Smith might appear in three different data sets as so: In this example, the different formatting styles lead to records that look different but in fact all refer to the same entity with the same logical identifier values. (wikipedia.org)
  • Under many jurisdictions, unique personal identifiers needed for linking the records are unavailable. (edu.au)
  • As a result, data scientists can employ so-called quasi-identifiers (QIDs) to identify and link records about the same entity. (mit.edu)
  • Record linkage is highly sensitive to the quality of the data being linked, so all data sets under consideration (particularly their key identifier fields) should ideally undergo a data quality assessment prior to record linkage. (wikipedia.org)
  • In 2008, an ecological birth cohort assessment of Thimerosal exposure in infants and neurodevelopment disorders within the computerized medical records of the Vaccine Safety Datalink (VSD) database was undertaken [ 7 ]. (springer.com)
  • Subsequently, in 2013, a case-control assessment of organic Hg from Thimerosal-containing hepatitis B vaccination in infants who were diagnosed autism in the computerized medical records within the VSD database was undertaken [ 8 ]. (springer.com)
  • Individuals were invited by letter to attend for assessment of their medical history, risk factor status, cognitive function and psychological profile, morbidity, and carotid intima-media thickness and plaque count as indices of atherosclerosis. (biomedcentral.com)
  • This survey represents an effort to understand public opinions and knowledge of the FSS, specifically, trust in the FSS, the credibility of federal statistics, and attitudes toward and knowledge of the statistical uses of survey linkage to administrative records. (cdc.gov)
  • Traditionally, national statistical agencies have used such techniques to link census records of persons or households over time. (mit.edu)
  • Duplicate detection, or deduplication, is when records about the same entity need to be identified in a single data set (such as in longitudinal data sets) ( Naumann & Weiss, 2010 ). (mit.edu)
  • 8 ]. A total of 1116 records were identified as having a relevant diagnostic code within the study period. (nature.com)
  • Commenting on the study for Medscape Medical News , Christopher Weber, PhD, Alzheimer's Association Director of Global Science Initiatives, noted the strong relationship between heart health and brain health. (medscape.com)
  • Anonymous linkage using SAPREL provides insight into the representativeness of a study population and possible adjustment for selection bias. (whiterose.ac.uk)
  • A hypothesis testing case-control study evaluated automated medical records in the Vaccine Safety Datalink (VSD) for organic Hg exposure from Thimerosal in Haemophilus influenzae type b (Hib)-containing vaccines administered at specific times within the first 15 months of life among subjects diagnosed with pervasive developmental disorder (PDD) ( n = 534) in comparison to controls. (springer.com)
  • The scientists and military officials involved in the testing program picked and chose their study subjects, recognized certain communities as exposed when it served their interests, and denied monitoring and medical attention to subgroups within the Marshall Islands. (wagingpeace.org)
  • Data will be collected prospectively via study-specific survey and confirmed via data-linkage to medical records. (who.int)
  • Number of hospitalisations for respiratory illnesses collected prospectively via study-specific survey and confirmed via data-linkage to medical records. (who.int)
  • Among the 3727 respondents, 3601 (96.6%) accepted data linkage. (biomedcentral.com)
  • In other words, for NCHS survey respondents enrolled in one or more of these programs, either at the time of the survey, and in some cases prior to or after the survey, their survey responses are linked to their information from these administrative records. (cdc.gov)
  • The goal of the questions is to measure respondents' attitudes toward the federal government linking to various administrative records such as medical records, credit card records, and records from the Social Security Administration. (cdc.gov)
  • The DNPR provides a data source to identify diseases, examinations, certain in-hospital medical treatments, and surgical procedures. (nih.gov)
  • Electronic medical records (EMRs) contain large amounts of rich clinical information. (jmir.org)
  • Interventions such as opt-out testing, standing laboratory orders for HIV testing, and electronic medical record reminders could be implemented in physicians' offices to increase testing coverage. (cdc.gov)
  • To increase the capacity of studying genetic linkage or association, grandparents, parents, and siblings without lupus will also be recruited. (bioinf.org)
  • Older adults (65+) with better health behavior and social support were more likely to accept data linkage. (biomedcentral.com)
  • The initial idea of record linkage goes back to Halbert L. Dunn in his 1946 article titled "Record Linkage" published in the American Journal of Public Health. (wikipedia.org)
  • Oral health may also predict and exacerbate the development and severity of medical conditions throughout the body. (constantcontact.com)
  • At the conclusion of all these studies, the United States still maintained that no positive linkage can be established between the tests and the health status of the Marshallese. (wagingpeace.org)
  • Acceptability of a personally controlled health record in a community-based setting: implications for policy and design. (medfloss.org)
  • Personally controlled health records (PCHRs) represent one response to these needs. (medfloss.org)
  • Diagnoses of CRC in adult (age ≥18 years) offspring were ascertained through 2021 by linkage with the California Cancer Registry. (deepdyve.com)
  • Record linkage" is the term used by statisticians, epidemiologists, and historians, among others, to describe the process of joining records from one data source with another that describe the same entity. (wikipedia.org)
  • One of NCHS's major linkage projects combines various NCHS surveys with enrollment and claims data from the Centers for Medicare & Medicaid Services (CMS), and Retirement, Survivor, and Disability Insurance and Supplemental Security Income benefit data from the Social Security Administration (SSA). (cdc.gov)
  • A separate Medicare Records Component provides claims data on all Medicare beneficiaries included in the household and institutional samples. (cdc.gov)
  • Over the last decade, the demand for linking records about people across databases has increased in various domains. (edu.au)
  • Other informal linkages include the Pueblo County Department of Social Services, providing entitlement and eligibility assistance, as well as the YWCA, a domestic violence shelter which schedules informational sessions about homeless-related issues for their clients. (nhchc.org)
  • The generally accepted biologically non-plausible linkage between Thimerosal exposure and subsequent diagnosis of febrile seizure ( n = 5886) was examined as a control outcome. (springer.com)
  • Ms. Dalton noted that public comments regarding the minutes can be shared at subsequent meetings and will thus be part of the public record. (cdc.gov)
  • Asthma is an important disorder worldwide, as a major cause of hospital admissions, medical consultations, prescriptions and impaired quality of life. (ersjournals.com)
  • Those who test negative should be linked to prevention services such as voluntary medical male circumcision and HIV pre-exposure prophylaxis, where indicated. (bmj.com)
  • We provide services for all who live in Alert Bay (Cormorant Island) These services are funded through the Medical Services Branch and are at no cost to you. (namgis.bc.ca)
  • We searched PubMed and the Danish Medical Journal to create a bibliography of validation studies. (nih.gov)
  • These studies also involve a major data collection effort - the 1987 National Medical Expenditure Survey. (cdc.gov)
  • Risk of subarachnoid haemorrhage in people admitted to hospital with selected immune-mediated diseases: record-linkage studies. (ox.ac.uk)
  • Data linkage techniques are also of crucial importance in crime and fraud detection, as well as national security. (mit.edu)
  • It has recorded information on all patients discharged from Danish nonpsychiatric hospitals since 1977 and on psychiatric inpatients and emergency department and outpatient specialty clinic contacts since 1995. (nih.gov)
  • NCHS's record linkage program is designed to maximize the scientific value of the Center's population-based surveys. (cdc.gov)
  • The Department is responsible for teaching psychiatry and psychology to medical students at King's College London School of Medicine, one of the largest schools of medicine in the UK. (kcl.ac.uk)
  • A retrospective analysis of 16 713 surgical admissions was conducted over a 54 month period at a single academic medical center. (bmj.com)
  • The corresponding set of techniques for privacy-preserving record linkage (PPRL) has received widespread attention. (edu.au)
  • Diagnosed conditions and all prescribed medications were abstracted from mothers' medical records beginning 6 months prior to pregnancy through delivery. (deepdyve.com)
  • Record linkage is necessary when joining different data sets based on entities that may or may not share a common identifier (e.g., database key, URI, National identification number), which may be due to differences in record shape, storage location, or curator style or preference. (wikipedia.org)
  • The other two steps are schema matching or mapping (identifying which attributes/fields across database tables contain the same type of information), and data fusion (merging a set of linked records that correspond to the same entity into a single coherent, complete, and up-to-date record that represents that entity). (mit.edu)
  • Although the potential advantages of data linkage and integration of existing sources are tantalizing (eg, rapid, economical access), rigorous scrutiny is required to assure the resultant data, and analyses provide meaningful and valid insights. (jmir.org)
  • Record linkage can be done entirely without the aid of a computer, but the primary reasons computers are often used to complete record linkages are to reduce or eliminate manual review and to make results more easily reproducible. (wikipedia.org)
  • Commenting is limited to medical professionals. (medscape.com)