• MDCC
  • The MD-CARE Act directed the Committee to develop a plan for conducting and supporting research and education on muscular dystrophy through the national research institutes, and to submit this plan to Congress within the first year of the establishment of the MDCC. (wikipedia.org)
  • This formed the basis for a subsequent, more intensive planning process that produced the January 2006 MDCC Action Plan for the Muscular Dystrophies. (wikipedia.org)
  • The Action Plan contains specific research objectives that are appropriate to the missions of all MDCC member agencies and organizations and thus serves as a central focus for coordination of research in muscular dystrophy. (wikipedia.org)
  • Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy. (wikipedia.org)
  • The bill would require the MDCC to develop a plan to expedite the evaluation and approval of emerging therapies and personalized medicines that have the potential to decrease fatal disease progression across the various forms of muscular dystrophy. (wikipedia.org)
  • affects
  • Emery-Dreifuss muscular dystrophy (EDMD), which affects young boys, causing contractures and weakness in the calves, weakness in the shoulders and upper arms, and problems in the way electrical impulses travel through the heart to make it beat (heart conduction defects). (encyclopedia.com)
  • therapies
  • With access to the most advanced technologies, therapies and medications for muscular dystrophy available, your child will receive comprehensive care delivered by compassionate Nemours doctors, nurses and therapists who treat every child as they would their own. (nemours.org)
  • revise
  • 113th Congress), a bill that would amend the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). (wikipedia.org)
  • Pub.L. 113-166) is a United States public law that amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). (wikipedia.org)
  • The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2013 would amend the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). (wikipedia.org)
  • diagnose
  • Other tests that can be done are chest X-ray, echocardiogram, CT scan, and magnetic resonance image scan, which via a magnetic field can produce images whose detail helps diagnose muscular dystrophy. (wikipedia.org)
  • centers
  • Notice of Intent to Publish a Funding Opportunity Announcement (FOA) for the Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers (U54). (nih.gov)
  • The purpose of this Funding Opportunity Announcement (FOA) is to publicize the re-competition of Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers (MDCRCs). (nih.gov)
  • These Centers promote collaborative basic, translational and clinical research and provide important resources that can be used by the national muscular dystrophy research communities. (nih.gov)
  • The centers also provide an outstanding environment for the training and career development of new scientists electing to pursue careers conducting research in high priority areas of muscular dystrophy. (nih.gov)
  • One provision of the MD-CARE Act was that the NIH establish centers of excellence for research on muscular dystrophy. (nih.gov)
  • individuals
  • By law the committee's composition is 2/3s governmental agencies and 1/3 public membership, including a broad cross section of persons affected with muscular dystrophies including parents or legal guardians, affected individuals, researchers, and clinicians. (wikipedia.org)