Loading...
*  UMDF Grant Recipients Awarded - UMDF
... collecting important standardized information on patients, and facilitating the participation of patients in research on ... Without patient participation, clinical trials cannot proceed and treatments and potential cures are stalled. Funding provided ... Walker is working on the development of a blood test that will measure mitochondrial activity in a patient. Her preliminary ... Mitochondrial Disease Coummunity Registry - Patients, Family Members and Caregivers: Enroll now in the Mitochondrial Disease ...
http://www.umdf.org/umdf-grant-recipients-awarded/
*  Regional Symposium - Pacific - UMDF
The new program will offer a full day CME activity on Friday and a half day of sessions for patients/families on the following ... Physicians should claim only the credit commensurate with the extent of their participation in the activity. ... Patient/Family Sessions: Saturday, February 24, 2018. University of California San Diego, Department of Neurosciences. Center ... Linguistic competency is defined as the ability of a physician or surgeon to provide patients who do not speak English or who ...
https://www.umdf.org/symposium/pacific/
*  What Would Help or Hinder Patient Participation in Mitochondrial Disease Clinical Trials? - UMDF
What Would Help or Hinder Patient Participation in Mitochondrial Disease Clinical Trials?. CHOP Researchers: Patient-Centric ... patients and patient advocacy organizations.. "Clinical trials are still a new experience for many patients with mitochondrial ... One important factor in both patient education and meeting patient needs, she added, is forming strong partnerships among ... Finally, said Falk, the findings on patient preferences and motivations in mitochondrial medicine may be relevant to patients ...
https://www.umdf.org/what-would-help-or-hinder-patient-participation-in-mitochondrial-disease-clinical-trials/