EUROTRANSFER Registry is a prospective, international, web-based European Registry on Patients with ST-Elevation MI Transferred for Mechanical Reperfusion (PCI) with a Special Focus on Upstream Use of Abciximab.. This registry is designed to collect data on approximately 1800 patients during a 12 month enrollment period in up to 20 interventional cardiology centres with hospital transfer networks from all over Europe.. Analysis of this registry should allow to monitor transfer timelines of patients arriving to the cath-lab from the regional hospital with or without upstream start of abciximab and scheduled for mechanical reperfusion (PCI) as well as to monitor regional differences across Europe in regard to the impact that time of various stages of the treatment chain may have on clinical outcomes. ...
Background-Conflicting evidence exists regarding sex-based outcomes following coronary stenting. Methods and Results-Data on 426,996 patients ≥65 years old (42.3% women) from the National Cardiovascular Data Registry® CathPCI Registry® (2004-2008) were linked to Medicare inpatient claims to compare in-hospital outcomes by sex and long-term outcomes by sex and stent type. In-hospital complications were more frequent in women than men : death (3869 [2.2%] vs. 3737 [1.6%]; adjusted odds ratio [OR] 1.41, 95% confidence interval [CI] 1.33-1.49), MI (2365 [1.3%] vs. 2858 [1.2%]; OR 1.19, 95% CI 1.11-1.27), bleeding (7860 [4.4%] vs. 5627 [2.3%]; OR 1.86, 95% CI 1.79-1.93), and vascular complications (2381 [1.3%] vs. 1648 [0.7%]; OR 1.85, 95% CI 1.73-1.99). At 20.4 months, women had lower adjusted risk of death (hazard ratio [HR] 0.92, 95% CI 0.90-0.94), but similar rates of MI, revascularization, and bleeding. Relative to bare metal stent (BMS), drug-eluting stent (DES) use was associated with ...
American Cancer Society (NAACCR Member). A validation study was conducted to compare verified self-reports of cancer diagnoses to information in population based cancer registries. Results demonstrate that linkage with the nationwide network of state cancer registries can be a highly sensitive method of identifying diagnoses of most types of cancer among participants in large nationwide research studies.. For the study, registry staff at 23 state cancer registries conducted standardized linkages with a subset of participants in Cancer Prevention Study 3 (CPS-3), a relatively new American Cancer Society (ACS) study including over 300,000 cancer-free U.S. men and women enrolled in 35 states, the District of Columbia and Puerto Rico. ACS researchers plan to follow CPS-3 participants through linkage with state cancer registries for at least 20 years in order to study how a wide range of lifestyle, nutritional, medical, genetic, environmental, and other factors are related to risk of cancer. To ...
It is difficult to maintain a registry on sex workers as they move from one place to another but the government has been able to reach out to them and HIV infection among them has gone down, the Rajya Sabha was told. In a written reply to the upper house, Minister of State for Health Dinesh Trivedi said despite not maintaining a registry, they have been able to reach out to the community. Asked whether a registry for sex workers in India exists, Trivedi said that the dynamics of sex workers operations keeps on changing. Sex workers move from one place to another and assume different names which makes it difficult to keep a registry, he said ...
The most successful outcomes-oriented patient registries incorporate direct utilization of the data within the day-to-day operations of the clinical setting. A critical component to this approach is the development of clinical reports that facilitate the efficient and accurate comprehension of data. In additional to general organization, the following design techniques are explored: color, spatial relationships, prioritization (high-frequency questions), summation, minimization, standardized timeline, clinic note generation, and key item extraction. A case example using an epilepsy patient registry in Studytrax is presented. Why A Clinical Report?. Patient registries are a common mechanism used for the advancement and understanding of the natural history and treatment of various disease states. All patient registries are both over-and-under inclusive depending on the aims which will be the topic of multiple upcoming articles. For this article, it is important to note that irrespective of whats ...
TY - JOUR. T1 - Cardiac arrest and clinical characteristics, treatments and outcomes among patients hospitalized with ST-elevation myocardial infarction in contemporary practice. T2 - A report from the National Cardiovascular Data Registry. AU - Kontos, Michael C.. AU - Scirica, Benjamin M.. AU - Chen, Anita Y.. AU - Thomas, Laine. AU - Anderson, Monique L.. AU - Diercks, Deborah B.. AU - Jollis, James G.. AU - Roe, Matthew T.. PY - 2015/4/1. Y1 - 2015/4/1. N2 - Background Cardiac arrest (CA) is a major complication of patients with ST-elevation myocardial infarction (STEMI). Its prevalence and prognostic impact in contemporary US practice has not been well assessed. Methods We evaluated STEMI patients included in the National Cardiovascular Data Registry (NCDR) Acute Coronary Treatment Intervention Outcomes Network Registry-Get With the Guidelines (ACTION Registry-GWTG) from 4/1/11 to 6/30/12. Patient clinical characteristics, treatments, and inhospital outcomes were compared by the presence or ...
IRODaT is The International Registry on Organ Donation and Transplantation. It is a database that provides worldwide information by country on donation and transplantation activity
IRODaT is The International Registry on Organ Donation and Transplantation. It is a database that provides worldwide information by country on donation and transplantation activity
A new report released by The Bravewell Collaborative finds that integrative medicine interventions produce significant improvements in patient activation and patient-reported outcomes in the treatment of chronic pain, depression, and stress. The findings are based on data collected by the Patients Receiving Integrative Medicine Interventions Effectiveness Registry (PRIMIER), the first-ever patient registry on integrative medicine. Lead author Donald Abrams, MD, an integrative oncologist at the Osher Center for Integrative Medicine at the University of California San Francisco, stated, We are encouraged by these early results, and we see tremendous potential for PRIMIER to provide evidence-based research that will improve healthcare quality by pinpointing the most effective practices in integrative medicine.. The study found that the use of integrative medicine yielded an increase in the Patient Activation Measure (PAM), which assesses the degree to which patients believe they have the ...
The Anesthesia Closed Claims Project and its Registries are scientific studies of adverse anesthetic outcomes. The Anesthesia Closed Claims Project and its Registries are collaborative, multidisciplinary projects that work to identify safety concerns in anesthesia, patterns of injury, and develop strategies for prevention in order to improve patient safety. The initiative consists of the Anesthesia Closed Claims Project, the Obstructive Sleep Apnea Death and Near Miss Registry, the Postoperative Visual Loss Registry, the Anesthesia Awareness Registry, and the Neurologic Injury after Non-Supine Shoulder Surgery (NINS) Registry. The goals of these initiatives are to increase patient safety.. Each Registry carries on its own investigations and maintains its own databases relevant to its specific area of interest and study. Cases for the Anesthesia Closed Claims Project and its Registries are collected on a continuous basis.. ...
Poor-grade aneurysmal subarachnoid hemorrhage (aSAH) is associated with very high mortality and morbidity. Our limited knowledge on predictors of long-term outcome in poor-grade patients with aSAH definitively managed comes from retrospective and prospective studies of small case series of patients in single center. The purpose of the AMPAS is to determine the long-term outcomes in poor-grade patients with different managements within different time after aSAH, and identify the independent predictors of the outcome that help guide the decision on definitive management. The AMPAS study is a prospective, multicenter, observational registry of consecutive hospitalized patients with poor grade aSAH (WFNS grade IV and V). The aim is to enroll at least 226 poor-grade patients in 11 high-volume medical centers (eg, |150 aSAH cases per year) affiliated to different universities in China. This study will describe poor grade patients and aneurysm characteristics, treatment strategies (modality and time of
Cameroon began modernising its civil registration and vital statistics system in 2009, and from 2011 as part of the Programme for the Rehabilitation of the Civil Registration System. The subordinate National Civil Registration Authority, established in 2015, is to support the implementation of the national reform. But the standards recommended by the United Nations for civil registration systems, namely the continuous, mandatory, permanent and universal collection of vital events, have not been met. The statistical function of the civil registration system has also not yet been achieved. The module target is: the Ministry of Dezentralisation and Local Development, the National Civil Registration Authority and selected municipalities are in the position to ensure the implementation of an inclusive and accountable system of civil registration and vital statistics.. The project focuses on three areas of activity:. ...
1 1J1D1ES A SPECIAL REPORT SERIES BY THE N.C. DEPARTMENT OF ENVIRONMENT, HEALTH, AND NATURAL RESOURCES STATE CENTER FOR HEALTH AND ENVIRONMENTAL STATISTICS P.O. BOX 29538, RALEIGH, N.C. 27626-0538 No. 67 June 1992 THE QUALITY OF CANCER INCIDENCE DATA IN NORTH CAROLINA An Evaluation ofthe CentralCancerRegistry 1990Database by Carol R. Dickinson and Tim E. Aid rich ABSTRACT The North Carolina Central Cancer Registry (CCR) has completed its first year of statewide data collection. During 1990, 127 of 132 facilities submitted cancer incidence data; 29 of those were tumor registries. For the facilities without tumor registries, the CCRconducted a complete review ofall incidence reports for quality assurance and completeness, and provided trainingto all new staffmembers. Thisquality control process led to two-thirds of these facilities having an accuracy rate in excess of 96 percent. For facilities with new tumor registrars, CCR offered training sessions and a 100 percent evaluation of their abstracts ...
Trauma registries are essential to trauma systems, to enable collection of the data needed to enhance clinical knowledge and monitor system performance. The King Saud Medical City (KSMC) in Riyadh, Kingdom of Saudi Arabia (KSA) is aiming to become a Level 1 Trauma Centre, and required a trauma registry in order to do so. Our objective was to establish the Saudi TraumA Registry (STAR) at the (KSMC) and ready it for national deployment. The challenge was that no formal trauma data collection had occurred previously and clinicians had no prior experience of trauma registries. To develop the registry, a novel 12 step implementation plan was created and followed at the KSMC. Registry criteria and a Minimum Dataset were selected; training was delivered; database specifications were written; operating procedures were developed and regular reporting was initiated. Data collection commenced on August 1st 2017. The registry was fully operational by April 2018, eight months ahead of schedule. During the first year
Introduction: Community ECG screening programs estimate the prevalence of long QT syndrome (LQTS) at 4/10000. Detection of individuals by such screening is controversial due to the poor sensitivity and specificity of the ECG. An alternative approach is the active identification of probands and screening of family members using a clinical registry. This analysis considers the effectiveness of such an approach in a cardiac/genetic registry in operation for 13 years.. Methods: A consent-based clinical registry for LQTS patients has been in operation in the Northern region of New Zealand (population 2.06 million) since 1999 and has been accompanied by efforts to raise awareness of LQTS. Living probands are referred by pediatric or cardiology services, and unexplained sudden death victims are referred by pathologists. Cascade clinical and genetic screening is carried out in family members to identify presymptomatic individuals at risk. Individuals were defined as either definitely affected (QTc ...
A data-driven global registry method for use to extend a framework in an object oriented programming (OOP) based computer system is provided. The method includes providing a new class defined in a shared class library which has data members and member functions related to a particular task. In addition, a new class attributes file which specifies attributes associated with the new class is generated. The new class attributes file is placed in a global registry configuration directory in a computer system such that a plurality of client applications can access the global registry configuration directory to determine if the new class has been installed in the class library. In an alternative embodiment, an object-based global registry method is provided. In addition, a storage device readable by a computer system for implementing either OOP-based global registry method and OOP-based global registries themselves are provided.
The Churg Strauss Syndrome Association encourages all patients with Churg Strauss Syndrome to register for the free Patient Registry at the Vasculitis Clinical Research Consortium.
View more ,Background and Purpose: Despite evidence to support the prescription of antihypertensive medications before hospital discharge to promote medication adherence and prevent recurrent events, many patients with stroke miss out on these medications at discharge. We aimed to examine patient, clinical, and system-level differences in the prescription of antihypertensive medications at hospital discharge after stroke. Methods: Adults with acute ischemic stroke or intracerebral hemorrhage alive at discharge were included (years 2009-2013) from 39 hospitals participating in the Australian Stroke Clinical Registry. Patient comorbidities were identified using the International Statistical Classification of Diseases and Related Health Problems (Tenth Edition, Australian Modification) codes from the hospital admissions and emergency presentation data. The outcome variable and other system factors were derived from the Australian Stroke Clinical Registry dataset. Multivariable, multilevel logistic ...
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The Registry is designed for open enrollment of all patients who meet the inclusion criteria. The function and activities of the Nuvigil/Provigil Pregnancy Registry will be publicized through direct mailings to obstetricians and pharmacists. Known prescribers identified from marketing sources will be targeted for Registry awareness. A toll-free phone line will be established for patient enrollment and a website containing information about the Registry for both physician and patient recruitment will be available. The Registry will be posted on the FDA website for pregnancy registries, with a direct link to a Nuvigil/Provigil Registry website. For ongoing awareness, information on the Registry will be included in the prescribing information and in the Medication Guides distributed by the pharmacist at the time of dispensing. In addition, patient support groups or condition-related sources of information may be targeted to raise patient awareness of the Registry ...
On February 8, 2018, the Physician Clinical Registry Coalition submitted a letter to the U.S. Department of Health and Human Services (HHS) expressing our ongoing concerns about information blocking by electronic health record (EHR) vendors.. The Coalition strongly advocated for the information blocking language included within the 21st Century Cures Act to prevent EHR vendors from blocking the transmission of clinical outcomes data to third parties, such as clinical data registries. The Cures Act prohibits EHR vendors from interfering with, preventing, or materially discouraging the access, exchange, or use of electronic health information, and grants the HHS Office of the Inspector General (OIG) the authority to investigate and impose penalties upon an EHR vendor that engages in such information blocking. The ability of clinical data registries to access patient information from EHR ...
Data on the mean age at childbearing can be obtained from three sources: civil registration systems, sample surveys and censuses. Civil registration systems are considered the best source of information on the mean age at childbearing. However, some countries, especially those in the less developed regions, either lack a civil registration system or have a registration system whose coverage is too incomplete to be utilized for statistical purposes. Civil registration systems are considered to be complete if they cover 90 per cent or more of all live births taking place within a country or area.. In countries where civil registration systems are lacking, surveys and censuses can be utilized to estimate the mean age at childbearing. Such information is generally obtained from questions regarding the number of live births that occurred in the household in the 12 months preceding the census or survey enumeration, questions on the date of birth of the last child born alive in the household or, in the ...
The MSDH Immunization Registry records immunizations received by individuals from public clinics and participating private doctors. Records for many adults and most children are available there for parents and qualified professionals. For details, see our Immunization Registry page.. ...
The MSDH Immunization Registry records immunizations received by individuals from public clinics and participating private doctors. Records for many adults and most children are available there for parents and qualified professionals. For details, see our Immunization Registry page.. ...
Congenital Hyperinsulinism International (CHI) has developed a patient-reported registry called the HI Global Registry with its partners to improve the understanding of HI, and advance research for better treatments and patient care. The registry consists of a series of online surveys that asks the participant questions about the patients experience with the disorder over his or her lifetime. The data is stored on a secure cloud-based platform and made anonymous by removing any personal details that can identify the patient. This information is then combined with patient data from around the world to produce research reports that can be studied by disease experts and researchers. The HI Global Registry is open for registration now- click here to visit the registry website.. Patients and their legally authorized representatives will be able to participate in the HI Global Registry by registering online and consenting to participate in the study. After consenting, participants will be directed to ...
Background: Research on caseload midwifery in a Danish setting is missing. This cohort study aimed to compare labour outcomes in caseload midwifery and standard midwifery care. Methods: A historical register-based cohort study was carried out using...
The researchers say that a good registry will improve outcomes by giving providers knowledge in real-time what medications work and what ones do not. They point out examples of good registries, including the National Surgical Quality Improvement Program, maintained by the American College of Surgeons, which they say have generated valuable insights on surgical infections. Also, they mention the National Cardiovascular Data Registry of the American College of Cardiology, which they say led to improvement in the rates of inpatient mortality among participating hospitals ...
Sadjadi, A., Malekzadeh, R., Derakhshan, M. H., Sepehr, A., Nouraie, M., Sotoudeh, M., Yazdanbod, A., Shokoohi, B., Mashayekhi, A., Arshi, S., Majidpour, A., Babaei, M., Mosavi, A., Mohagheghi, M. M. A. and Alimohammadian, M. (2003), Cancer occurrence in Ardabil: Results of a population-based Cancer Registry from Iran. Int. J. Cancer, 107: 113-118. doi: 10.1002/ijc.11359 ...
The Centenary Institute is a world-leading independent medical research institute with a particular focus on cancer, inflammation and cardiovascular disease.
2014. Barisic I, Boban L, Greenlees R, Garne E, Wellesley D, Calzolari E, Addor MC, Arriola L, Bergman J, Braz P, Budd JL, Gatt M, Haeusler M, Khoshnood B, Klungsoyr K, McDonnell B, Nelen V, Pierini A, Queisser-Wahrendorf A, Rankin J, Rissmann A, Rounding C, Tucker D, Verellen-Dumoulin C, Dolk H. Holt Oram syndrome: a registry-based study in Europe. Orphanet J Rare Dis 2014;9:156-165. Barisic I, Odak L, Loane M, Garne E, Wellesley D, Calzolari E, Dolk H, Addor MC, Arriola L, Bergman J, Bianca S, Doray B, Khoshnood B, Klungsoyr K, McDonnell D, Pierini A, Rankin J, Rissmann A, Rounding C, Queisser-Luft A, Scarano G, Tucker D. Prevalence, prenatal diagnosis and clinical features of oculo-auriculo-vertebral spectrum: a registry-based study in Europe. Eur J Hum Genet 2014;22:1026-33.. Basude S, McDermott L, Newell S, Wreyford B, Denbow M, Hutchinson J, Abdel-Fattah S. Fetal Hemivertebrae, associations and perinatal outcome. Ultrasound Obstet Gynecol 2014;DOI:10.1002/uog. 13401. Best KE, Addor MC, ...
TrendTerms displays relevant terms of the abstract of this publication and related documents on a map. The terms and their relations were extracted from ZORA using word statistics. Their timelines are taken from ZORA as well. The bubble size of a term is proportional to the number of documents where the term occurs. Red, orange, yellow and green colors are used for terms that occur in the current document; red indicates high interlinkedness of a term with other terms, orange, yellow and green decreasing interlinkedness. Blue is used for terms that have a relation with the terms in this document, but occur in other documents ...
BARCELONA and MADRID, Spain, Feb. 19, 2015 /PRNewswire/ -- Inflectra™ (infliximab) patient registry reports interim results in the treatment of...
So, could you save Emilys life? You may be an eligible donor.. The Australian Bone Marrow Donor Registry states that bone marrow registration requires blood, taken through a needle in the arm. They would ideally take up to 470ml, as this would constitute a blood donation as well. Your bone marrow tissue type would be determined and the details recorded on the registry. There is a 1 in 1000 chance, per year, of being identified as a potential match. If so, more blood is required to harvest stem cells. Potential donors are retired form the registry on their 60th birthday.. The recruitment and education of potential bone marrow donors is essential. New members worldwide are needed to allow sufficient genetic diversity in the donor pool to meet patient needs. Only 1 in 3 donors are found from a patients family, with 2 out of 3 relying on bone marrow from international registries. The European registries have been established over a longer period of time. It is time now to educate the Asian ...
The EORP AF General Registry was conducted by the European Society for Cardiology (ESC) within the EURObservational Research Programme (EORP) and was designed to provide information on the implemention of the current ESC guidelines in the everyday medical care of patients with atrial fibrillation and the influence of different therapies on the course of the disease. As an extension of the European registry, AFNET (Atrial Fibrillation Network) has initiated the AFNET-2 Registry (EORP) together with the ESC and the „German Society for Cardiology (DGK). In this registry the current treatment status of patients in Germany with atrial fibrillation was documented. Since the European EORP AF General Registry included cardiologic study sites, these data did not reflect the standard of treatment of atrial fibrillation in Germany. In Germany, most patients are not treated in cardiological departments or practices, but by general practitioners or specialists for internal medicine without a focus on ...
ALFIE, José et al. Relationship between neck circumference and hypertension in the National Registry on Hypertension (the RENATA study). Rev. argent. cardiol. [online]. 2012, vol.80, n.4, pp. 275-279. ISSN 1850-3748.. Relationship between neck circumference and hypertension in the National Registry on Hypertension (the RENATA study) Background Hypertension (HT) is associated with greater proportion of body fat. Neck circumference might provide additional clinical information to that of other measurements of body fat. Objective To compare the relationship between abdominal obesity, neck circumference and hypertension. Methods In the RENATA study, 4006 adults from seven cities (Buenos Aires, Córdoba, Tucumán, Mendoza, Resistencia, Corrientes and Neuquén) were randomly selected. Neck and waist circumferences were measured in 3987 subjects. Abdominal obesity (AO) was defined following the ATP III recommendations and neck obesity (NO) was considered as the upper tertile of neck circumference (=35 ...
IMPORTANCE:The Hispanic epidemiologic paradox is the phenomenon that non-US-born Hispanic mothers who immigrate to the United States have better pregnancy outcomes than their US-born counterparts. It is unknown whether this advantage extends to childhood cancer risk. OBJECTIVE:To determine whether the risk for childhood cancers among Hispanic children varies by maternal birthplace. DESIGN, SETTING, AND PARTICIPANTS:In this population-based case-control study conducted in June 2015, cohort members were identified through California birth records of children born in California from January 1, 1983, to December 31, 2011. Information on cancer diagnoses was obtained from California Cancer Registry records from 1988 to 2012. Cases (n = 13 666) were identified from among children younger than 6 years in the California Cancer Registry and matched to California birth certificates. Control children (n = 15 513 718) included all other children born in California during the same period. Maternal birthplace ...
December 16, 2016-A report from the International Consortium of Vascular Registries (ICVR), a collaboration of 11 vascular surgical quality registries, on variations in abdominal aortic aneurysm (AAA) care was published by Adam W. Beck, MD, et al in Circulation (2016;134:1948-1958). As noted in Circulation, this study was designed to evaluate international variation in the contemporary management of AAA with relation to recommended treatment guidelines from the Society for Vascular Surgery and the European Society for Vascular Surgery.. For the report, registry data for open and endovascular AAA repair (EVAR) during 2010 to 2013 were collected from 11 countries. Variations in patient selection and treatment were compared across countries and across centers within countries.. The investigators detailed that among 51,153 patients, 86% were treated for intact AAA and 14% for ruptured AAA. Women constituted 18% of the entire cohort (range, 12% in Switzerland-21% in the United States; P , .01). ...
The University of California Davis Health System announced today that it will partner with the California Department of Public Health to run the day-to-day operations of the California Cancer Registry, one of the worlds leading resources for population-based data on cancer.
Registry Analysis Finds Patients With Hematologic Malignancies Are Highly Vulnerable to COVID-19 - Blood Advances in a Different Vein, COVID-19 News, From the Blood Journals, News - ASH Clinical News
What are you really getting when you sign up for a honeymoon registry? Before you dive in, here are a few things you should know.. Pick an independent or hotel honeymoon registry.. There are two kinds of registries - ones through independent agencies like Travelers Joy and Honeymoon Wishes and those directly through resort brands like Marriott and Starwood. Both follow similar structures, allowing guests to purchase gifts from your personalized honeymoon wish list.. The agencies offer a broad selection of items, like airfare and excursions, while resort brands are usually limited to on-property selections such as meals and spa treatments.. If you already know where youre staying, ask if that resort offers a registry. Or check with the destination - Aruba offers a registry through aruba.com, with mostly activity-based options like Jeep tours and diving. Know the fees.. And now the bad news: Registries arent free. Before you commit to one, read the fine print.. Some, like Distinctive ...
New life-saving treatments for Atrial fibrillation in clinical trial on Outcomes Registry for Better Informed Treatment of Atrial Fibrillation II - ORBIT AF II - Phase II of the Outcomes Registry for Better Informed Treatment of Atrial Fibrillation (ORBIT-AF II) is designed to evaluate the utilization of target-specific antithrombotic agents, such as factor Xa (FXa) inhibitors and direct thrombin inhibitors, and associated outcomes.
Below are links to information on two mastocytosis patient registries. The European Competence Network on Mastocytosis (ECNM) Registry is a research registry coordinated and managed by the ECNM where physicians can enter patient data. The Mast Cell Connect Registry is an online patient registry where patients can enter their own information and view summarized, de-identified responses. If you would like more information on either of these registries, please follow the links below or contact the registry coordinators listed in the links. Neither of these registries is owned or managed by The Mastocytosis Society, Inc.. ...
How is Danish HIV Cohort Study (Danish National Hospital Registry) abbreviated? DHCS stands for Danish HIV Cohort Study (Danish National Hospital Registry). DHCS is defined as Danish HIV Cohort Study (Danish National Hospital Registry) rarely.
To our knowledge, this study represents the first evaluation of a tobacco use registry used in a fashion similar to other chronic disease registries and reporting positive provider behaviors. Multiple corroborating pieces of evidence demonstrate that the use of the tobacco use registry decision support tool resulted in significant changes (a 2- to 4-fold increase) in the adoption of evidenced-based tobacco use treatments (counseling and pharmacotherapy). In many cases these increases are far beyond those achieved with other system-based interventions.18 While others have reported the impact of different delivery modes in the provision of the 5 As in the primary care setting, the studies have not included the application of a chronic disease registry or the use of broad measures associated with tobacco use, such as pneumococcal vaccine.13 Our tobacco registry form included depression screening prompts, which also were included in the other chronic disease registries.14 We have not reported on ...
Oran Cancer Registry (Algeria). Algeria - Oran Cancer Registry Report 2006. Oran, Algeria: Oran Cancer Registry (Algeria), 2007 ...
Buxton AE, Calkins H, Callans DJ, et al. ACC/AHA/HRS 2006 key data elements and definitions for electrophysiological studies and procedures: a report of the American College of Cardiology/American Heart Association Task Force on Clinical Data Standards (ACC/AHA/HRS Writing Committee to Develop Data Standards on Electrophysiology). Circulation 2006;114(23):2534-2570. National Cardiovascular Data Registry. Washington: ACC; 2016. Available from: https://www.ncdr.com/webncdr/ accessed 1 December 2016. World Health Organization. 10 facts on noncommunicable diseases. Geneva: WHO; 2013. Available from: http://www.who.int/features/factfiles/noncommunicable_diseases/en/index.html accessed 1 December 2016. Registros Brasileiros Cardiovasculares. Rio de Janeiro: SBC; 2014. Available from: http://cientifico.cardiol.br/pesquisa/2014/registros/pdf/REACT_SBC_66CBC.pdf accessed 1 December 2016. World Health Organization. Cardiovascular diseases (CVDs) Geneva: WHO; 2016. Available from: ...
There is no privacy with tracking registries Texas privacy invasion will become common among the several states The article below has confirmed our worst fears about the true nature of statewide vaccine tracking registries. Dawn Richardson, founder of PROVE in Texas, initiated legislation in that state to require parental consent prior to children being placed in a vaccine data registry. When Idaho introduced its vaccine tracking registry in SB 1183, there was so much opposition that there were five pages of amendments added to the original bill, which included requiring parental consent to be placed in the registry. Our biggest concern was that despite all the amendments, there was no penalty for being placed in the registry without parental consent. After all, what good is a database of this sort statistically if you have selective participation? There also is no protection for those who choose to abstain from vaccinations as well as the registry. Discrimination against those who choose to ...
Results In total, 7.5% (95% CI 7.2 to 7.9) of all spontaneous births were preterm. The prevalence of preterm birth according to the mothers BMI was 7.3% (95% CI 6.9 to 7.7) for normal weight, 7.6% (95% CI 6.4 to 8.9) for underweight, 8.2% (95% CI 7.4 to 9.1) for overweight and 8.3% (95% CI 7.0 to 9.6) for obese women. The risk of spontaneous preterm birth was increased in overweight women compare to normal weight mothers (crude OR 1.15, 95% CI 1.13 to 1.31). After adjustment for marital status and education, increased risks of preterm delivery were found in both overweight (OR 1.18, 95% CI 1.04 to 1.34) and obese women (OR 1.21, 95% CI 1.00 to 1.45). Further adjustment for age, parity, infant sex, smoking and alcohol abuse, reduced the associations to non-significant level. ...
Public health information systems such as immunization registries are an essential component of the information infrastructure and will allow assessment of the impact of changes in health care on the population as a whole.
Michael F. Easley Governor State of North Carolina Office of the Governor Governors Press Office State Capitol, Raleigh, NC 27603-8001 (919) 733-5612 - Toll Free 1-800-662-7005 FAX (919) 733-5166 For Release: MEDIA ADVISORY Contact: Amanda Wherry Date: December 5, 2001 Phone: (919) 733-5612 ATTN: NEWS DIRECTORS/ASSIGNMENT EDITORS: EASLEY TO SIGN ORGAN, EYE AND TISSUE DONOR REGISTRY BILL RALEIGH - Gov. Mike Easley will sign Senate Bill 907, Organ, Eye and Tissue Donor Registry bill on Thursday (Dec. 6) at 11 a.m. in the Old Senate Chamber at the Capitol building. Easley will also fill out and sign a donor registration card. SB 907, sponsored by Sen. Howard Lee, ensures that the deceaseds last wishes are honored and requires the Department of Health and Human Services (DHHS) and other state agencies to study the establishment of a statewide organ, eye and tissue donor registry. Donor cards will be available at Division of Motor Vehicle offices and the donor registry will be collected and kept by ...
The Hawaii Immunization Registry is a free service of the Hawaii State Department of Health for people living in Hawaii. It is a secure, state-wide database, that stores and tracks patient immunization records and makes them available to doctors, nurses, and other healthcare workers. Doctors and nurses can store information in the registry. The information is used to make sure your immunization records are up to date. At minimum, this information will include: your name, date of birth, mailing address and immunization record.. Learn more about this program. Last reviewed December 2018. ...
Европейский регистр ведения инфекции Helicobacter pylori: особенности диагностики и лечения в Казани
Background: Various studies have produced conflicting results on whether statins increase the risk of intracerebral hemorrhage (ICH) yet many studies show a protective effect for those on statins at the time of acute ischemic stroke (AIS). This study assesses the characteristics and outcomes of patients having intracerebral hemorrhage and statin use in the Paul Coverdell National Acute Stroke Registry (PCNASR).. Methods: There were 103,491patients with AIS and 16,319 with ICH enrolled in the PCNASR during 2009-2011. Chi-square tests were used to test for association of clinical characteristics with ICH and ICH with statin use. Logistic regression analysis was used to assess factors associated with odds of ICH vs. AIS and mortality among ICH patients.. Results: Of 16,319 patients with ICH, 5,522 were on statins at the time of ICH (33.8%). Among ICH patients, mean age was 72.8 for statin users (S) and 65.3 for non-statin users (NS) (p,0.0001). Median NIHSS score was 7 for ICH on S and 9 for ICH ...
In this multiethnic population of patients with stroke with long-term follow-up, we found significant associations of SED with many provisions of acute and long-term stroke care. More indicators of stroke care seemed to be inversely related to SED in black patients than in white patients. There were more inequalities in stroke care in those whose stroke occurred before 2001.. To our knowledge the current study is the first to compare SED impact on stroke care between white patients and black patients who live in high-income countries. The SLSR data includes the largest proportion of black and minority ethnicity patients in the world. Although living in the same society in the UK, black people generally have lower levels of education and occupational class and are poorer than white people. These offered a unique opportunity for us to identify the association of SED with stroke care. A second strength is that our study covered a long time period, with meticulous follow-up of the patients with ...
Epidemiological aspects of stroke have been studied in many countries by means of stroke registries,7 8 9 10 11 12 13 14 15 16 17 18 some of which were prospective and population-based9 13 14 16 17 18 19 20 while others were hospital-based.7 10 11 12 Although the Tel Aviv Stroke Registry is a hospital-based registry, it has provided an unusual opportunity to evaluate all the segments of the Israeli population in terms of ethnic groups and origin. A much earlier multicenter study performed with the collaboration of the World Health Organization21 showed that the incidence rates for all types of stroke in Israel are similar to those in several European countries, but they are significantly less than those in Japan and Finland. The reasons for the discrepancy between Israel and other countries can only be speculated on; they apparently include genetic factors, stress, diet, lack of alcoholism, and the nature of the medical services providing treatment of risk factors such as hypertension.. As in ...
TY - JOUR. T1 - Mortality and Causes of Death in Patients With Osteogenesis Imperfecta. T2 - A Register-Based Nationwide Cohort Study. AU - Folkestad, Lars. AU - Hald, Jannie Dahl. AU - Canudas-Romo, Vladimir. AU - Gram, Jeppe. AU - Hermann, Anne Pernille. AU - Langdahl, Bente. AU - Abrahamsen, Bo. AU - Brixen, Kim. PY - 2016/12/1. Y1 - 2016/12/1. N2 - Osteogenesis imperfecta (OI) is a hereditary connective tissue disease that causes frequent fractures. Little is known about causes of death and length of survival in OI. The objective of this work was to calculate the risk and cause of death, and the median survival time in patients with OI. This study was a Danish nationwide, population-based and register-based cohort study. We used National Patient Register data from 1977 until 2013 with complete long-term follow-up. Participants comprised all patients registered with the diagnosis of OI from 1977 until 2013, and a reference population matched five to one to the OI cohort. We calculated hazard ...
Methods and analysis All adults (,18 years of age) alive and living in Denmark in 1996-2017 will be identified in The Danish Civil Registration System. Incident patients with RA are identified in the Danish National Patient Registry (DNPR) and the nationwide rheumatology registry, DANBIO, in which information on, for example, antirheumatic treatments, disease characteristics and smoking is collected prospectively in routine care. Information on comorbidities, invasive procedures and prescribed drugs are identified in the DNPR and in The Register of Medicinal Product Statistics. Socioeconomic status is evaluated in national registers on income and education. Incident cases of first-time SAB are identified in The Danish National SAB Database. All registers are linked on an individual level by unique civil registration numbers. Incidence rates and incidence rate ratios will be analysed using Poisson regression models and the impact of possible risk factors will be evaluated. ...
TY - JOUR. T1 - Low tobacco-related cancer incidence in offspring of long-lived siblings. T2 - A comparison with Danish national cancer registry data. AU - Pedersen, Jacob K.. AU - Skytthe, Axel. AU - McGue, Matt. AU - Honig, Lawrence S.. AU - Franceschi, Claudio. AU - Kirkwood, Thomas B.L.. AU - Passarino, Giuseppe. AU - Slagboom, P. Eline. AU - Vaupel, James W.. AU - Christensen, Kaare. N1 - Funding Information: This work is supported by the Danish Agency for Science, Technology and Innovation/The Danish Council for Independent Research (grant number 11-107308 ) and by the National Institute on Aging (grant number P01 AG08761 ). The LLFS study is funded by the U.S. National Institute on Aging , National Institutes of Health (NIA/NIH cooperative agreements U01AG023712 , U01AG23744 , U01AG023746 , U01AG023749 , U01AG023755 ). The work is based on the EU GEHA (Genetics of Healthy Aging) Project (contract number LSHM-CT-2004-503-270) and the Odense University Hospital AgeCare program (Academy of ...
Five-year relative survival rates are near 100 percent for individuals with stage 1 and 2 papillary thyroid cancer, according to the American Cancer Society. The five-year relative survival rate for...
Data & statistics on Incidence Rates for Major Cancer Sites by Gender: Estimated Age-Standardized Incidence Rates for Major Cancer Sites by Gender and Province, Canada, 2002, Incidence Rates for Major Cancer Sites by Gender, Estimated Age-Standardized Incidence Rates for Major Cancer Sites by Sex and Province, Canada, 2006...
We did a retrospective, case-only analysis of pancreatic cancer cases in the California Cancer Registry (CCR) database. The CCR is the largest contiguous-area, population-based cancer registry in the world, collecting ,130,000 new cancer cases per year in California, as described elsewhere (6, 14). The state of California legally mandated cancer reporting in 1988; standardized data collection procedures and quality control procedures have been in place ever since (15, 16). The CCR is part of the National Cancer Institutes Surveillance, Epidemiology and End Results (SEER) program. Case reporting is estimated at 98% for the entire state of California, and follow-up completion rates exceed 95% (17, 18). Because of data completeness, timeliness, and accuracy, CCR has received the highest level of certification from the North American Association of Central Cancer Registries (19). Data were abstracted from medical and laboratory records by trained tumor registrars according to Cancer Reporting in ...
Rather than traveling miles to a registry center or to see a specific doctor, patients who wish to enroll in the registry may do so on their own, for free, from the comfort of their own home. The registration process may be conducted entirely online or by mail. Patients provide basic contact, demographic, and clinical information, which is stored in a secure database system at Sanford. Only researchers who have secured Institutional Review Board and advisory board approval from Sanford Research and staff may view the de-identified data. If a researcher wishes to contact an enrolled patient, the researcher must first contact CoRDS. CoRDS in turn contacts the patient with the researchers information. It is up to the patient whether he or she wishes to proceed by contacting the researcher. If the patient wishes to enroll in the researchers study, the patient goes through an entirely separate consent process specific to the study. This process gives patients greater access to registry services and ...
Chambers GM, 2016, Measuring success of ART: Using national registry data to inform patients, providers and policy., in Measuring success of ART: Using national registry data to inform patients, providers and policy., European Society of Human Reproduction and Embryology (ESHRE)., Helsinki, presented at European Society of Human Reproduction and Embryology (ESHRE)., Helsinki, 04 - 07 July 2016. Chambers GM, 2016, What does ANZARD and registry data tell us about the health outcomes of IVF children. (INVITED SPEAKER), in What does ANZARD and registry data tell us about the health outcomes of IVF children. (INVITED SPEAKER), Merck Serono Scientific and Clinical Education Exchange, Sydney, presented at Merck Serono Scientific and Clinical Education Exchange, Sydney, 26 - 26 April 2016. De Mouzon J; Zegers-Hochschild F; Adamson GD; Ishihara O; Nygren KG; Mansour R; Dyer S; Banker M; Chambers G; Vanderpoel S, 2015, ICMART world report 2011, in HUMAN REPRODUCTION, OXFORD UNIV PRESS, Lisbon, ...
Age/sex registries have been examined as a method of estimating the number of individuals served by a primary care practice. These data can be used in estimating disease frequency from primary care encounter data. The experience with age/sex registries in the Ambulatory Sentinel Practice Network (ASPN) has identified three major sources of error when registry data are used to estimate disease rates: (1) studies using medical encounter data exclude those individuals who do not seek medical care, (2) visitation is not random and is a function of variables in addition to disease incidence, and (3) encounter data from primary care practices are incomplete due to reporting problems and patient-initiated visits to other health care providers. Despite these limitations, age/sex registries can provide a practical tool for estimating disease rates in appropriate settings, assessing the generalizability of results, and assessing the feasibility of studies in practice based research. Further research about ...
Canadian Cancer Statistics 2007 is prepared, printed and distributed through a collaboration of the Canadian Cancer Society, the Public Health Agency of Canada, the National Cancer Institute of Canada, Statistics Canada, provincial/territorial cancer registries, as well as university-based and provincial/territorial cancer agency-based cancer researchers.. Notes:. Five-year relative survival is the proportion of people alive five years after their diagnosis, adjusted for the deaths expected for people of the same age in the general population. Relative survival is the most often used method for analyzing the survival of cancer patients across a population.. Survival is calculated from the date of diagnosis to five years after diagnosis. In Quebec the date of diagnosis is determined differently than other provinces and, as a result, Quebec survival cannot be compared with survival data from other provinces.. Age-standardized rates refer to the number of people per 100,000 who are diagnosed, or ...
Importance With increasing prevalence of atopic dermatitis (AD) and its manifestation in most countries, together with the supporting evidence of the progression to other atopic phenotypes, AD has developed into a worldwide public health concern. The presence of the disease of has increased since the 1950s, but some recent studies suggest a stationary or decreasing trend. Objective To analyze a nationwide health register based on prescription data to determine the incidence rate (IR) of AD in an entire pediatric population. Design, Setting, and Participants All children resident in Norway younger than 6 years from January 1, 2009, through December 31, 2015, were included in this cohort study. Medical diagnoses and disease-specific medications were used as a proxy for identifying children with AD in this population-based prescription registry study. The prescription study was terminated in 2016. The total number of 295 286 disease-specific prescriptions was analyzed from August 2016 through ...
PubMed journal article: Suboptimal use of evidence-based medical therapy in patients with acute myocardial infarction from the Korea Acute Myocardial Infarction Registry: prescription rate, predictors, and prognostic value. Download Prime PubMed App to iPhone, iPad, or Android
MUNICH, January 16, 2012 /PRNewswire/ --. - For European Media Only -- Collection of real life data from 5,000 atrial fibrillation patients (AF) across seven countries will generate invaluable insights into one of Europes leading causes of stroke(1,2) -- Daiichi Sankyo Europe GmbH today announced the enrolment of the first patient into the PREvention oF thromboembolic events - European Registry in Atrial Fibrillation (PREFER in AF).(1) Taking a comprehensive approach to the patient registry, PREFER in AF will gather data on the full spectrum of AF patients including those with valvular and non valvular forms of the condition.(1) The registry will also track the impact of new anticoagulant therapies on stroke prevention, (1) in addition to collating insights into patients satisfaction with their entire AF management, the impact of AF and its management on patient quality of life, (1) and the overall health economic burden of AF across Europe.(1) In 2010, the World Heart Federation highlighted ...
A bridal registry or wedding registry, is a service provided by a website or retail store that assists engaged couples in the communication of gift preferences to wedding guests. Selecting items from store stock, the couple lists desired items and files this list with the chosen merchant. The list is then made available to wedding guests, either by the couples family or by the merchant. Upon the purchase of a listed item, the merchant updates the gift registry accordingly. In addition to providing valuable information for the buyer, the system helps prevent the receipt of duplicate or unwanted gifts, potentially saving time for both giver and recipient. The Chicago-founded department store Marshall Fields first instituted the practice of a bridal registry in 1924 at its Marshall Field and Company Building as a means for the engaged couple to indicate chosen china, silver and crystal patterns to family and friends. US-based Target stores pioneered the electronic self-service gift registry in ...
This prospective registry study investigated the effect of cetuximab on the occurrence of severe infusion reactions in metastatic colorectal cancer patients.
Your presence at our wedding is gift enough but if you do wish to buy us something, a contribution towards our dream honeymoon or dream items would be much appreciated.
Purpose of the study: Examining long-term patterns of mortality among cancer survivors compared to the general population may inform planning for surveillance and follow-up care. We investigated excess mortality after endometrial cancer using conditional relative survival estimates and standardized mortality ratios (SMRs). Methods: Women diagnosed with endometrial cancer during 2000-2017 (N = 183,153) were identified in the Surveillance, Epidemiology, and End Results (SEER) database. SMRs were calculated as observed deaths among endometrial cancer survivors over expected deaths among demographically similar women in the general U.S. population. Five-year relative survival was estimated at diagnosis and each additional year survived up to 12 years post-diagnosis, conditional on survival up to that year. Results: For the full cohort, 5-year relative survival was 87.7%, 96.2%, and 97.1% at 1, 5, and 10 years post- diagnosis. respectively. Conditional 5-year relative survival first exceeded 95%, ...
Of the death certificates issued in Sweden in 1978 and stating cancer as the underlying or contributory cause of death, 1634 cases were unrecorded in the national cancer register. In 62 per cent of the cases the criteria for cancer registration were fulfilled. The non-reported cases represented a to …
This document describes PATHs collaboration with Vietnams National Expanded Program on Immunization (EPI) and Southern EPI to implement a Digital Immunization Registry System. The new system provides many benefits over a paper-based system in that it allows for real-time access to immunization data, faster and more accurate recording and reporting of immunization details, timely delivery of services, and improved program monitoring.. Corporate author(s): World Health Organization. Publication date: December 2014. ...
The Philippine Health Research Registry (PHRR) is a publicly-available database of ongoing health and health-related researches from 2011 onwards.
07:00-09:00 EDT , 13:00-15:00 CET , 19:00-21:00 SGT , 22:00-00:00 AEST. On 20th October 2020, there will be an online conference hosted by international out-of-hospital cardiac arrest (OHCA) registry leaders from the Pan-Asian Registry Outcomes Study (PAROS), 1 the US-based Cardiac Arrest Registry to Enhance Survival, 2 the Australian Resuscitation Outcomes Consortium (AusROC) and the European Cardiac Arrest Registry (EuReCa)3. The annual meeting of these leaders was originally planned for the world-famous Utstein Abbey, Norway, 4 but having to think in an online way due to COVID-19 has created the opportunity to share the expertise and experience of the leaders with an international audience.. The two-hour conference will include short presentations by expert speakers from the US, Sweden, The Netherlands, Japan, South Korea, Australia and New Zealand. Presentations will be followed by a Q&A discussion that will include our leaders and experts.. This conference will be of interest to ...