The American Association on Intellectual and Developmental Disabilities (AAIDD) has selected Katherine McDonald, assistant professor of public health in the David B. Falk College of Sport and Human Dynamics and faculty fellow at the Burton Blatt Institute (BBI), as the recipient of the 2012 Early Career Award. The Award recognizes McDonald for her achievements and many contributions to the field of developmental disabilities. She will accept the Award in June at the AAIDD Annual Meeting. AAIDD is the oldest and largest interdisciplinary organization of professionals and citizens concerned about intellectual and developmental disabilities.. McDonald joined Syracuse University in 2011. Her dual appointment reflects a unique and unprecedented partnership between SUs colleges and BBI towards infusing disability awareness across disciplines.. McDonalds current research examines the inclusion of persons with developmental disabilities in research, participation in online communities and its ...
Why does the DD Coalition care about these Measures?. The DD Coalition is comprised of nearly 30 organizations representing individuals with developmental disabilities, families, providers, and advocacy groups focused on issues of importance to people with developmental disabilities and their families. Ballot Measures 66 & 67 will affect the DD community profoundly and it is important that our voice is heard. Services for people with developmental disabilities have already been cut and additional cuts will be devastating.. The DD Coalition believes that individuals with developmental disabilities, families, and those who provide support and services have a right to know about and participate in the decisions that will affect their lives. The outcome of the vote on Measures 66 & 67 will overwhelmingly affect the DD community and the quality of life for all Oregonians.. For these reasons, the DD Coalition urges you to get informed, educate your friends and neighbors, and Vote Yes on Measures 66 ...
It is the policy of the United States that all programs, projects, and activities receiving assistance under this subchapter shall be carried out in a manner consistent with the principles that-. (1) individuals with developmental disabilities, including those with the most severe developmental disabilities, are capable of self-determination, independence, productivity, and integration and inclusion in all facets of community life, but often require the provision of community services, individualized supports, and other forms of assistance;. (2) individuals with developmental disabilities and their families have competencies, capabilities, and personal goals that should be recognized, supported, and encouraged, and any assistance to such individuals should be provided in an individualized manner, consistent with the unique strengths, resources, priorities, concerns, abilities, and capabilities of such individuals;. (3) individuals with developmental disabilities and their families are the ...
Our Approach to Research in Autism, Intellectual and other Neurodevelop-mental DisabilitiesMission Statement: (What we do)To improve the quality of life of people with neurodevelopmental disabilities and their families across the lifespan through:
The UC Davis MIND Institute holds the annual Summer Institute on Neurodevelopmental Disorders: Research to Practice on Friday, Aug. 8, from 8:30 a.m. to 5 p.m. at the UC Davis Alumni Center. The daylong conference offers nine seminars on a broad array of subjects delivered by some of the world’s leading experts on neurodevelopmental disabilities.
If you are a parent of a child with an intellectual or developmental disability between 6 and 17 years of age, you are invited to participate in an online survey conducted by Dr. Audra Sterlings Research in Developmental Disabilities Language Lab at the Waisman Center at the University of Wisconsin - Madison. The purpose of this study is to learn more about the literacy development of children with intellectual and developmental disabilities. If you decide that you would like to participate, we will ask you to complete a short survey including questions about your childs literacy skills and your home literacy practices ...
Abstract: This is part 7 of 18 in a series of videos from the National Goals in Research, Policy, and Practice meeting. The meeting aimed to advance a research agenda that influence policy and practice for and with people who have intellectual and developmental disabilities (IDD). Speaker talks about how older adults with developmental disabilities transition as they are aging, transitioning into retirement and how it is different from people without a disability, and transitions at the end of or later in life while aging in place or ones own home. She cites what is known from research already conducted and areas that still need to be researched, as well as a comprehensive geriatric assessment model that can be used for older people living in the community, with or without developmental disabilities, to age happily in the place of their choosing. Run time: 9 minutes 01second. ...
TN Department of Intellectual & Developmental Disabilities - Vision: To support all Tennesseans with intellectual and developmental disabilities in living fulfilling and rewarding lives. Mission: To become the nations most person-centered and cost effective state support system for people with intellectual and developmental disabilities.
TY - JOUR. T1 - Visual function in term infants with hypoxic-ischaemic insults. T2 - Correlation with neurodevelopment at 2 years of age. AU - Mercuri, Eugenio. AU - Haataja, Leena. AU - Guzzetta, Andrea. AU - Anker, Shirley. AU - Cowan, Frances. AU - Rutherford, Mary. AU - Andrew, Rachel. AU - Braddick, Oliver. AU - Cioni, Giovanni. AU - Dubowitz, Lilly. AU - Atkinson, Janette. PY - 1999. Y1 - 1999. N2 - Aims - To determine if there is any association between the findings of visual assessment performed at the age of 5 months and neurodevelopmental outcome at the age of 2 years in children who have sustained hypoxic- ischaemic insults. Methods - Twenty nine term infants with hypoxic-ischaemic encephalopathy and/or brain lesions on neonatal magnetic resonance imaging (MRI) were prospectively evaluated. At 5 months of age all the infants had their visual function assessed using the Atkinson Battery of Child Development for Examining Functional Vision, which includes the assessments of optokinetic ...
Breihan stands by her original account of Californias system and states that confidentiality prevents her from revealing the sources of information in her article. Yet, public information about developmental disability services is neither private nor confidential. Public officials do not have a right to confidentiality with regard to information about how public services are provided. It is also standard practice for researchers to acknowledge their sources on state surveys of developmental disability services. For example, the Research and Training Center on Community Living at the University of Minnesota, one of the most highly respected sources on national trends in developmental disabilities, whose research is frequently summarized in the Trends & Milestones section of IDD, lists its key state contacts in its annual national reports on residential services (see, e.g., Prouty, Smith, & Lakin, 2007, p. i). Jacobs has questioned Breihans information. Breihan has replied. Readers must ...
Deadline for proposals: Sunday, May 31. This annual essay award will be available to an undergraduate medical student or postgraduate medical resident at the Schulich School of Medicine & Dentistry.. The essay should describe an experience managing a patient at any stage in the lifespan with a developmental disability. This includes management of physical health, mental health or both, either in the hospital system or in the community, including family medicine.. The essay should be 1,500 to 2,000 words in length and typed double spaced with the total word count placed at the top right hand corner of the first page. Entries beyond 2,000 words will not be considered.. The award winner will receive $1,000, and their essay will be published in the Clinical Bulletin of the Developmental Disabilities Division.. Please submit essays via email attachment to Developmental Disabilities Division (DDD), Department of Psychiatry at [email protected] Contact for inquiries: 519-646-6100, ext. 47694.. ...
OBJECTIVES. The purpose of this work was to determine neurodevelopmental outcomes of preterm infants followed by a multidisciplinary team in a tertiary hospital in Bangladesh.. METHODS. Infants ,33 weeks gestational age were serially assessed for neurodevelopment by physicians and developmental psychologists. An estimate of low, moderate, or high risk for neurodevelopmental impairments was made at the first visit. At later assessments, neurodevelopmental impairments were graded by severity as none, mild, or serious.. RESULTS. Of the 159 enrolled children, 65% survived, 16% died, and 19% were lost to follow-up. Family income was lowest among those who died, and maternal and paternal literacy was highest among the survivors. At a mean age of 31 months, developmental status of the 85 children followed-up for ≥12 months was normal in 32%; 45% had mild and 23% had serious neurodevelopmental impairments. Cognitive impairment was the most common deficit (60%). Final outcome was ...
My 21 month old daughter was recently diagonsed with global developmental delay. I was wondering if I should have her tested to find out the cause or just proceed with therapy. If anyone has a child ...
GLOBAL DEVELOPMENTAL DELAY and VOMITING related symptoms, diseases, and genetic alterations. Get the complete information with our medical search engi
Results Of the 72 participants evaluated at 4-12 months corrected age (median 8 months), 59 (82%) had a least one TSFI score concerning for abnormal sensory reactivity. Lower gestational age was associated with abnormal reactivity to deep pressure and vestibular stimulation (p,0.001). Poor ocular-motor control predicted worse cognitive and motor scores in early childhood (OR 16.7; p=0.004), but was tightly correlated to the presence of severe white matter injury. Poor adaptive motor function in response to tactile stimuli predicted worse BSID III motor (p=0.01) and language scores (p=0.04) at 2 years, even after adjusting for confounders.. ...
Maureen Durkin received her undergraduate degree and PhD in anthropology from the University of Wisconsin-Madison, and her MPH and DrPH degrees in epidemiology from Columbia University. Her research interests include the epidemiology, prevention, antecedents and consequences of neurodevelopmental disabilities and childhood injuries, both globally and within the United States. She has collaborated in the development of cross-cultural methods for screening for developmental disabilities and methods for surveillance of childhood injuries, and has directed international studies of the prevalence and causes of neurodevelopmental disabilities in low-income countries. She has also directed a cohort study of neuropsychological outcomes of neonatal brain injuries associated with preterm birth and with metabolic disorders detected on newborn screening, and is currently a Waisman Center investigator and principal investigator on the Wisconsin Surveillance of Autism and Other Developmental Disabilities ...
Q. Who does The Arc help?. A. We help people with intellectual and developmental disabilities (IDD), their families and supporters. Our clients are transition age youth and adults living in El Paso County.. Q. What is IDD?. A. IDD is an acronym for Intellectual and Developmental Disability. IDD is an overarching term used to describe a life-long disability attributable to cognitive, neurological or other impairments manifested before the age of 22 and usually lasting for a lifetime. IDD affects the activities of daily living in language, learning, living independently, mobility and self-care, among other areas. Autism, Down syndrome, intellectual disabilities, epilepsy and cerebral palsy are examples of IDD.. Q. What do you call a person with a disability? A. A person. We use People First Language, which is an objective and respectful way to speak about people with disabilities by emphasizing the person first, rather than the disability. Q. How do you help your clients?. A. Currently, we ...
The Yale Developmental Disabilities Clinic serves children aged 3 and older, adolescents, and adults, and builds on decades of experience in research and clinical services for individuals with autism spectrum disorder and other neurodevelopmental disabilities.
Getting Help:. If you or your loved one has a diagnosis of an Intellectual or Developmental Disability (IDD), we can help you with getting services for both adults and children. Depending on your needs, there are several services available in the surrounding counties of Brewster, Culberson, Ector, Hudspeth, Jeff Davis, Midland, Pecos and Presidio. If you do not know if you have a diagnoses of IDD, we will help to determine your eligibility at no charge. An intellectual disability, formerly known as mental retardation, indicates below average intellectual functioning, which affects judgment, reasoning and academic learning. There are many qualifying developmental disabilities including: epilepsy, cerebral palsy, and autism.. If you are interested in the process, please call our Continuity of Care Specialist to schedule a meeting. Our Continuity of Care office is the first place you will need to go to get information about services, eligibility requirements, arranging for assessments, requesting ...
General Resources for Persons with Intellectual & Developmental Disabilities (IDD). (Not all inclusive and not in any particular order). 1. Emergence Health Network: EHN is a community-based mental health/intellectual disabilities center serving persons with IDD and mental health issues. It is the Local Mental Health and Intellectual and Developmental Disability Authority for El Paso. For a person with IDD, this should be your first stop. EHN will provide information on all services offered through EHN, including Medicaid waivers for long term services & supports, as well as other available resources in El Paso County.. Emergence Health ...
Welcome to the website for The State of the States in Intellectual and Developmental Disabilities Project, administered by the University of Colorado, and funded in part by the Administration on Disabilities. Established in 1982 to investigate the determinants of public spending for intellectual and developmental disabilities (IDD) services in the United States, the Project has established a 40-year record of revenue, spending, and programmatic trends in the 50 states, the District of Columbia, and the United States as a whole. Analysis of the rich detail of the data base demonstrates the impact over time of federal, state, and local government fiscal policy. The data illustrate important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, and Medicaid Waivers. Demographic data include general population, personal income, and total state budget. Financial and programmatic trends in the ...
TY - JOUR. T1 - Improving social understanding of individuals of intellectual and developmental disabilities through a 3D-facail expression intervention program. AU - Cheng, Yufang. AU - Chen, Shuhui. PY - 2010/11/1. Y1 - 2010/11/1. N2 - Individuals with intellectual and developmental disabilities (IDD) have specific difficulties in cognitive social-emotional capability, which affect numerous aspects of social competence. This study evaluated the learning effects of using 3D-emotion system intervention program for individuals with IDD in learning socially based-emotions capability in social contexts. The 3D-emotion system involves three stages with 24 questions with designed different social events. The experimental study was to evaluate using a single subject design on three participants with IDD for identifying the effects of 3D-emotion system intervention program; and the collected data of using this system and informal interview with the participants were involved. The results showed that ...
Childrens Intellectual and Developmental Disabilities Services (CIDDS) serves children, adolescents and young adults from birth to 21 with intellectual and developmental disabilities, including autism, as well as behavioral and emotional disorders.
Resolution of Support for Adequate Funding to meet the Mental Health, Intellectual and Developmental Disabilities, and Substance Use Disorder service needs for Citizens of Currituck County. WHEREAS, Currituck County knows that citizens dealing with mental illness and substance use disorders can achieve recovery with the appropriate services and supports and that citizens with intellectual and developmental disabilities can live productive lives in our communities with similar services and supports; and. WHEREAS, the funding needed for such services and supports is increasing due to North Carolinas increasing population and the opioid epidemic in our State; and. WHEREAS, Currituck County is a member of Trillium Health Resources, a twenty-four county LME/MCO serving eastern North Carolina; and WHEREAS, in accordance with the intent of the NC General Assembly and the NC Department of Health and Human Services, the Board of Trillium Health Resources has developed and is implementing a robust ...
Marks, B. & Sisirak, J. (2017). NPs Promoting Physical Activity: People with Intellectual and Developmental Disabilities. The Journal for Nurse Practitioners, 13(1), e1-e5. DOI: 10.1016/j.nurpra.2016.10.023. Abstract. People with intellectual and developmental disabilities (IDD) are not residing in large congregate care centers due to legislative, attitudinal, and treatment changes, and they are living longer than their peers of previous generations. With the absence of inclusive and accessible health promotion, people with IDD are experiencing a constellation of health issues related to negative determinants of health. This article aims to raise awareness among nurse practitioners that people with IDD need support from their health care providers to be physical active. A secondary aim is to discuss barriers and resources for people with IDD to be more physically active.. ...
Guideline 12 of the Primary care of adults with intellectual and developmental disabilities. 2018 Canadian consensus guidelines1 recommends preparing early for persons undergoing life-phase changes and other transitions. This entails attending to the health, psychosocial, and spiritual or existential needs associated with the persons developmental life phase, declining functioning, and context. It also entails developing a transition plan to meet the increasing needs of persons with intellectual and developmental disabilities (IDD) and their support system in a realistic and sustainable manner by continuing and offering increased health care, social, and other supports. Guideline 12 needs to be understood in the context of all 32 guidelines and the related tools, some of which this case highlights. The journeys of adults with IDD transitioning to later-life phases and those of family caregivers who accompany them can be complex. Family physicians, especially those working in a Patients ...
The District of Columbia Intellectual and Developmental Disabilities Research Center (DC-IDDRC) at Childrens National conducts multidisciplinary, translational, clinical and community research in intellectual and developmental disabilities.
Entdecken Sie Health Care for People with Intellectual and Developmental Disabilities across the Lifespan von I. Leslie Rubin und finden Sie Ihren Buchhändler. This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the rea
Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (Eds.) (2016), Health Care for People with Intellectual and Developmental Disabilities across the Lifespan Switzerland: Springer.A new book has been published that offers a unique lifespan approach on health care for people with intellectual and developmental disabilities. It addresses the clinical as well as the systems of…
The unit of Intellectual and Developmental Disabilities provides leadership, facilitation, technical assistance and funding to support children and adults who have intellectual/developmental disabilities. The Division works in partnership with the public and private organizations, at both the state and local level, to promote evidence-based practices that enable individuals to live, work and participate in their communities and with their families. The Division promotes self-determination, protects humans rights and supports services in the most integrated setting possible ...
The Developmental Disabilities Program serves eligible adults and children with intellectual and developmental disabilities that live in Clackamas County. Services include service coordination, abuse investigation, intake and eligibility, and program development.
Health care quality issues for people with developmental disabilities under managed care were explored. Health-related quality was defined in terms of four domains: structure, process, outcome, and satisfaction. Three general problems in the assessment of health care quality were identified: lack of quality measures, patient response problems, and lack of system elements. Selected current measurement systems were described in relation to their use for people with developmental disabilities. An approach to developing quality measures was outlined using Healthy People 2000, Health Plan Employer Data Information Set, and clinical practice issues. The movement toward quality improvement was examined and recommendations presented for steps in developing and measuring health care quality. ...
Book Chapters Levy, J. & van Stone, M. (2010). Ethical Foundations and Legal Issues. In S.L. Friedman & D.T. Helms (Eds.), End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Washington DC: American Association on Intellectual and Developmental Disabilities.
TY - JOUR. T1 - An evaluation of care coordination in controlling inpatient hospital utilization of people with developmental disabilities. AU - Criscione, T.. AU - Walsh, K. K.. AU - Kastner, T. A.. PY - 1995/12/1. Y1 - 1995/12/1. N2 - All admissions of people with developmental disabilities to a community hospital over 3 years were examined to evaluate the impact of a coordinated care model on length of stay and hospital charges. Admissions were divided into two groups, those receiving either coordinated care (program group) or routine care by community physicians (usual care group). The program group had shorter average lengths of stay and lower hospital charges than did the usual care group, especially when charges were adjusted for case mix. Similarity of severity across the groups was measured by number of discharge diagnoses and Medicaid case weights. Over the 3 years, for the 115 admissions in the program group, these differences amounted to more than $200,000 in potentially unnecessary ...
The Georgia Council on Developmental Disabilities is the states leader in advancing public policy on behalf of persons with developmental disabilities.
The Georgia Council on Developmental Disabilities is the states leader in advancing public policy on behalf of persons with developmental disabilities.
Vitamins and supplements have not been proven to help treat sensory-related developmental disabilities. In some cases, supplements may be harmful. For
Developmental disabilities include a complex group of disorders that cause physical impairments, intellectual disabilities, speech disorders, and medical conditions. Developmental disabilities are sometimes diagnosed at birth, but more often, are not easily identified until ages three to six. Types of Developmental Disabilities Developmental disabilities may range from mild to severe. Some of the more common developmental disabilities…
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Results Here we describe six CHD1 heterozygous missense variants in a cohort of patients with autism, speech apraxia, developmental delay and facial dysmorphic features. Importantly, three of these variants occurred de novo. We also report on a subject with a de novo deletion covering a large fraction of the CHD1 gene without any obvious neurological phenotype. Finally, we demonstrate increased levels of the closed chromatin modification H3K27me3 in fibroblasts from a subject carrying a de novo variant in CHD1. ...
Patients (N=131 enrolled; N=106 assessed) less than 3 months of age at the time of cardiac operation were prospectively enrolled (years 1999-2003) and assessed at 8, 12, and 24 months after operation. Patients with preexisting conditions independently associated with poor neurodevelopmental outcomes were excluded. Fine and gross motor development was formally assessed at all 3 visits, and parent ratings of development across several domains were obtained. Neurodevelopment was formally assessed at 24 months of age using the Bayley Scales of Infant Development, 2nd edition (BSID-II) Mental Development Index score (MDI ...
Despite the recent improvements in perinatal medical care leading to an increase in survival rates, adverse neurodevelopmental outcomes occur more frequently in preterm and/or high-risk infants. Medical risk factors for neurodevelopmental delays like male gender or intrauterine growth restriction and family sociocultural characteristics have been identified. Significant data have provided evidence of the detrimental impact of overhelming environmental sensory inputs, such as pain and stress, on the developing human brain and strategies aimed at preventing this impact. These strategies, such as free parental access or sleep protection, could be considered principles of care. Implementation of these principles do not require additional research due to the body of evidence. We review the scientific evidence for these principles here. ...
Keith English, B. Keith English, MD., Professor and Chair, Department of Pediatrics and Human Development in the College of Human Medicine, is Chair of the RAIND Internal Advisory Committee and is building a research program in developmental neurosciences in the Department of Pediatrics and Human Development, with footprints in both East Lansing and Grand Rapids.
C-RAIND serves as a coalition of scholars and researchers from throughout Michigan State University focused on meeting the needs of communities through research, training, outreach, and service. About Us ...
Kellie Dean throughout his careers has always pushed to do more, to help more, and to help everyone around him achieve more. Kellie graduated from Michigan State University with a masters degree in school administration, and began his career as an educator and administrator in the Lansing Public Schools. Ke
The use of postnatal steroids to treat evolving BPD is controversial. Although the use of PNSs has been reduced after recognition that deleterious effects may outweigh the benefits, our data and those of others have shown that ELBW infants continue to be treated with postnatal steroids, primarily dexamethasone.29-32 In this prospective study that collected detailed data on dosing and timing of open-label usage of PNSs for evolving or established BPD, we sought to determine the impact of cumulative dose, timing of exposure, and the interactions with predicted risk of BPD. We have shown that there is no safe window of development where PNS exposure is less detrimental to neurodevelopmental outcomes. In addition, increasing dosage exposure is associated with increased risk of lower MDI (loss of 2 points per 1 mg/kg of exposure) and increased risk of CP (40% risk increase for each 1 mg/kg of exposure). We hoped to examine the impact of steroid type on outcome; however, of those exposed to PNSs after ...
1 s.d. vs >1 s.d.) mental or motor development, relative to children of normal weight mothers. RESULTS Compared with children of normal weight mothers, MDI scores were lower among children of mothers of all other prepregnancy BMI categories, with the greatest adjusted difference among children of class II and III obese mothers (−2.13 (95% CI −3.32, −0.93)). The adjusted risk of delayed mental development was increased among children of underweight (risk ratio (RR) 1.36 (95% CI 1.04, 1.78)) and class II and III obese (RR 1.38 (95% CI 1.03, 1.84)) mothers. Childrens PDI scores or motor delay did not differ by maternal prepregnancy BMI. CONCLUSION In this nationally representative sample of 2-year-old US children, low and very-high maternal prepregnancy BMI were associated with increased risk of delayed mental development but not motor development ...
Source: U.S. Department of Labor (DOL) - Office of Disability Employment Policy (ODEP). Partnership Aims to Increase Employment of Individuals with Disabilities. Kathleen Martinez, assistant secretary of labor for disability employment policy, and Sharon Lewis, commissioner of the Administration on Intellectual and Developmental Disabilities (AIDD), have signed a memorandum of agreement. Together, the U.S. Department of Labors Office of Disability Employment Policy (ODEP) and AIDD, an agency within the U.S. Department of Health and Human Services Administration for Community Living, will work to expand and promote integrated employment as the first employment option for individuals with significant, including intellectual and other developmental, disabilities.. This agreement is an opportunity for ODEP and AIDD to work together to further disability employment practices and support state efforts to transform public systems so that they reflect integrated employment as a priority outcome for ...
At every well check from age 4 months to 5 years we ask parents to complete a survey called the Ages and Stages Questionnaire, which gives a detailed picture of your childs skills in five areas of development: fine motor, gross motor, speech, social, and problem solving. This provides a rich framework for discussing your childs progress and a valuable tool for early identification of developmental concerns. You can download the Ages and Stages Questionnaire from the Patient Portal and print at home, if you would like to complete it ahead of time.. Is my child developing as he/she should?. You WILL know. Every well-check visits includes a review of our developmental screening tool: Ages and Stages. At every well-check from age 4 months to 5 years you will be asked to complete a survey called the Ages and Stages Questionnaire. This survey helps you and your provider stay in touch with your childs growth and progress. What you gain is a detailed picture of your childs skills in five key ...
This past week, the HDS Foundation attended the 19th International Conference on Autism, Intellectual Disabilities and Developmental Disabilities, for Research Informed Practice, organized by the Council for Exceptional Childrens Division on Autism and Developmental Disabilities and held in Clearwater, FL. The Conference went off with a bang with several pre-conference trainings followed by an inspiring opening ceremony featuring keynote speaker Andy Gardiner, Senior Vice President of External Affairs and Community Relations, former president of the Apopka Chamber of Commerce and Former member of the Florida State Senate. Mr. Gardiner spoke of the legislative advocacy facing individuals with Developmental Disabilities in the state of Florida. He also gave notable advice on becoming involved in initiatives in our own communities helping those with developmental disabilities and insight as a parent to inspire other parents, providers, educators, and community members to do more to have an affect ...
BACKGROUND The long-term effects on neurodevelopment of the use of inhaled glucocorticoids in extremely preterm infants for the prevention or treatment of bronchopulmonary dysplasia are uncertain. METHODS We randomly assigned 863 infants (gestational age, 23 weeks 0 days to 27 weeks 6 days) to receive early (within 24 hours after birth) inhaled budesonide or placebo. The prespecified secondary long-term outcome was neurodevelopmental disability among survivors, defined as a composite of cerebral palsy, cognitive delay (a Mental Development Index score of ,85 [1 SD below the mean of 100] on the Bayley Scales of Infant Development, Second Edition, with higher scores on the scale indicating better performance), deafness, or blindness at a corrected age of 18 to 22 months. RESULTS Adequate data on the prespecified composite long-term outcome were available for 629 infants. Of these infants, 148 (48.1%) of 308 infants assigned to budesonide had neurodevelopmental disability, as compared with 165 ...
OBJECTIVES: To determine the long-term neurodevelopmental outcome for children after hypoxic-ischemic encephalopathy (HIE) without major disability, and to examine neonatal injury patterns detected on cerebral magnetic resonance imaging (MRI) in relation to later deficits. STUDY DESIGN: Prospectively enrolled children with HIE and neonatal cerebral MRI data (n = 68) were examined at a mean age of 11.2 years (range, 8.2-15.7 years). Eleven children had a major disability (ie, cerebral palsy or mental retardation). Brain injury was scored according to the region and extent of injury. RESULTS: Children without major disability (n = 57) had lower full-scale and performance IQ scores compared with norms (P = .02 and .01, respectively), and the proportion of children with an IQ ,85 was higher than expected (P = .04). Motor performance on the Zurich Neuromotor Assessment was affected in the pure motor, adaptive fine motor, and gross motor domains, as well as in the movement quality domain (all P , ...
Every child deserves to make his mark. Each should have every opportunity to reach his full potential. And you can help make that possible. With Bayley-III, you have the comprehensive tool you need to identify issues early on. To address early childhood situations before they become lifelong problems. And to give every child a chance to succeed. With Bayley-III, you have the power to make a positive impact, early and often.. This is your one stop location for information on the Bayley Scales of Infant and Toddler Development - Third Edition.. Whats new about Bayley-III?. Long known as the premier assessment for measuring developmental delays in the very young, this newest edition - the Bayley Scales of Infant and Toddler Development - Third Edition (Bayley-III) - combines the superior psychometric standards you expect with two additional scales and more clinically useful features than ever.. Plus . . . as a Bayley-III customer, you get unparalleled service and support from a highly credentialed ...
Visit findatopdoc.com for all information on Dr. Ronald L Lindsay M.D., Neurologist (Pediatric) | Neurodevelopmental Disabilities in Phoenix, AZ, 85013. Profile, Reviews, Appointments, Insurances.
TY - JOUR. T1 - Stability of Developmental Problems after School Entry of Moderately-Late Preterm and Early Preterm-Born Children. AU - Hornman, Jorijn. AU - de Winter, Andrea F. AU - Kerstjens, Jorien M. AU - Bos, Arend F. AU - Reijneveld, Sijmen A. N1 - Copyright © 2017 Elsevier Inc. All rights reserved.. PY - 2017/8. Y1 - 2017/8. N2 - OBJECTIVE: To assess the stability of developmental problems in moderately-late preterm-born children compared with early preterm and full term-born children before school entry at age 4 years and 1 year after school entry at age 5 years.STUDY DESIGN: We included 376 early preterm, 688 born moderately-late preterm, and 403 full term-born children from the Longitudinal Preterm Outcome Project (LOLLIPOP) cohort study. Developmental problems were assessed by the total score and the 5 domain scores of the Ages and Stages Questionnaire at ages 4 (ASQ-4) and 5 (ASQ-5). From the combinations of normal and abnormal ASQ-4 and ASQ-5 scores we constructed 4 categories: ...
Intellectual and developmental disabilities (IDDs) are disorders that are usually present at birth and that negatively affect the trajectory of the individuals physical, intellectual, and/or emotional development. Many of these conditions affect multiple body parts or systems. As of 2016, 7.37 million people in the United States had intellectual or developmental disabilities. Intellectual disability starts any time before a child turns 18 and is characterized by problems with both intellectual functioning or intelligence - which includes the ability to learn, reason, problem-solve, and other skills - and adaptive behavior, which includes everyday social and life skills.. The term developmental disabilities is a broader category of often lifelong disability that can be intellectual, physical, or both. IDD is the term often used to describe situations in which intellectual disability and other disabilities are present. Examples of developmental disabilities include autism, behavior disorders, ...
The Arc of Indiana advocates for people with intellectual and other developmental disabilities and their families.. Learn more about developmental disabilities by reviewing the Developmental Disabilities Definition.. The Developmental Checklist provides information on what a child may typically be doing between the ages of birth to five.. If your child is not meeting developmental milestones trust your instincts. Dont be afraid to ask questions and seek help.. The sooner a childs disability is identified, the sooner families can get the information they need to help their child reach his or her full potential.. ...
Sara Gelser, a Corvallis Democrat, is assistant majority leader of the Oregon House of Representatives.. The past three decades have brought a sea change in state policy for Oregonians with developmental disabilities. In 1981, more than 1,300 Oregonians with developmental disabilities lived at the Fairview Training Center in Salem, where for decades they were called inmates. Next month marks the 10th anniversary of the closure of Fairview. With the recent closure of the Eastern Oregon Training Center, Oregon is now the only state that serves 100 percent of its individuals with developmental disabilities in noninstitutional settings.. Our system of community-based supports is not perfect. It remains underfunded, provider wages and training are inadequate, and we must improve client safety in the system. However, Oregonians with disabilities have some things today they didnt have 30 years ago at Fairview: freedom, dignity and a sense of belonging.. Many artifacts and records from Fairview have ...
Fractures are more prevalent among people with severe and profound developmental disabilities than in the general population. In order to characterize the tendency of these people to fracture, and to identify features that may guide the development of preventive strategies, we analyzed fracture epidemiology in people with severe and profound developmental disabilities who lived in a stable environment. Data from a 23-year longitudinal cohort registry of 1434 people with severe and profound developmental disabilities were analyzed to determine the effects of age, gender, mobility, bone fractured, month of fracture, and fracture history upon fracture rates. Eighty-five percent of all fractures involved the extremities. The overall fracture rate increased as mobility increased. In contrast, femoral shaft fracture risk was substantially higher in the least mobile [relative risk (RR), 10.36; 95% confidence interval (CI), 3.29-32.66] compared with the most mobile group. Although the overall fracture rate was
PubMedID: 23300014 | NR2F1 haploinsufficiency is associated with optic atrophy, dysmorphism and global developmental delay. | American journal of medical genetics. Part A | 2/1/2013
TY - JOUR. T1 - The association of cord serum cytokines with neurodevelopmental outcomes. AU - Varner, Michael W.. AU - Marshall, Nicole E.. AU - Rouse, Dwight J.. AU - Jablonski, Kathleen A.. AU - Leveno, Kenneth J.. AU - Reddy, Uma M.. AU - Mercer, Brian M.. AU - Iams, Jay D.. AU - Wapner, Ronald J.. AU - Sorokin, Yoram. AU - Thorp, John M.. AU - Malone, Fergal D.. AU - Carpenter, Marshall. AU - OSullivan, Mary J.. AU - Peaceman, Alan M.. AU - Hankins, Gary D.V.. AU - Dudley, Donald J.. AU - Caritis, Steve N.. PY - 2015/2. Y1 - 2015/2. N2 - Objective To test whether elevated umbilical cord serum inflammatory cytokine levels predicted subsequent cerebral palsy (CP) or neurodevelopmental delay (NDD). Study Design Nested case-control analysis within a clinical trial of antenatal magnesium sulfate (MgSO4) before anticipated preterm birth (PTB) for prevention of CP, with evaluation of surviving children at the age of 2. NDD was defined as a Bayley psychomotor developmental index (PDI) and/or ...
COLUMBUS, OHIO - The U.S. Department of Health and Human Services Administration for Community Living and Administration on Intellectual and Developmental Disabilities awarded a $2.7-million, 5-year grant to The Ohio State University Nisonger Center at Wexner Medical Center. The grant will support direct services to children and adults presenting with a wide range of conditions associated with intellectual disability and neurodevelopmental disabilities.. We are excited to receive this 5-year grant to continue our clinical services, teaching, research, and dissemination. The Nisonger Center has been continuously funded for the past 50 years and this grant will support our continued research, training, and clinical care and services. We have plenty more work to do, said Marc J. Tassé, PhD, Director of the Nisonger Center, Professor of Psychology and Psychiatry and principal investigator on this award.. Since 1966, the Nisonger Center has focused on developing a highly skilled interdisciplinary ...
In 2007 Missouri identified a need to distinguish between screening, evaluation and assessment procedures conducted within First Steps, Missouris early intervention program. Furthermore, there was also a need for statewide consistency in the utilization of a standardized evaluation tool, reporting results and determining eligibility for Missouri First Steps. Missouri identified the Developmental Assessment of Young Children (DAYC) as a uniform instrument to determine eligibility.
TY - JOUR. T1 - Risk for osteopenia and osteoporosis in institution-dwelling individuals with intellectual and/or developmental disabilities. AU - Lin, Lan Ping. AU - Hsu, Shang Wei. AU - Yao, Chung Hui. AU - Lai, Wei Ju. AU - Hsu, Pei Jung. AU - Wu, Jia Ling. AU - Chu, Cordia M.. AU - Lin, Jin Ding. PY - 2015/1/1. Y1 - 2015/1/1. N2 - The purpose of this study was to investigate the prevalence of and contributing factors to osteopenia and osteoporosis among people with intellectual disabilities (ID) or/and developmental disabilities (DD) residing in a disability institution in Taiwan. The present study was conducted at one disability institution in Taiwan and recruited 184 institutionalized residents with ID and/or DD (115 men and 69 women aged 18-72 years) for analysis. For all residents with ID and/or DD, information was obtained about their age, gender, level of ID, BMI, and bone mineral density (BMD). BMD is a measurement of calcium levels in bones that can estimate the risk of osteoporosis ...
Vision Impairment The overall prevalence rate for vision impairment was 0.8 per 1,000 children 3-10 years of age. The prevalence of vision impairment increased with age up to the age of 7 years and then leveled off (Table_7). This pattern was observed for all severity levels of vision impairment. The prevalence of vision impairment was similar among the various race- and sex-specific subgroups of children (Table_8). Coexisting Developmental Disabilities Seventy-three percent of children who had vision impairment and 66% of those who had cerebral palsy met the case definition for one of the other developmental disabilities included in MADDSP (primarily mental retardation and vision impairment for children who had cerebral palsy and mental retardation and cerebral palsy for children who had vision impairment) (Table_9). In contrast, only 22% of children who had mental retardation and 23% of children who had hearing impairment had coexisting conditions (primarily cerebral palsy for children who had ...
Mild to moderate iodine deficiency during pregnancy has been associated with adverse neurodevelopmental outcomes in offspring. Few research studies to date combine assessment of urinary iodine (UIC and/or ICr), biomarkers that best reflect dietary intake, with reported dietary intake of iodine rich foods in their assessment of iodine deficiency. Thus, a systematic review was conducted to incorporate both these important measures. Using PRISMA guidelines, a comprehensive search was conducted in three electronic databases (EMBASE®, MedLine® and Web of Science®) from January 1970-March 2021. Quality assessment was undertaken using the Newcastle Ottawa Scale. Eligible studies included reported assessment of iodine status through urinary iodine (UIC and/or ICr) and/or dietary intake measures in pregnancy alongside neurodevelopmental outcomes measured in the children. Data extracted included study author, design, sample size, country, gestational age, child age at testing, cognitive tests, urinary iodine
Local Intellectual & Developmental Disabilities Authority (LIDDA) Services. LIDDA services include determining a persons eligibility for services, enrolling an individual into programs, and coordinating on-going services for an individual to improve quality of life. Other important responsibilities include placing individuals on statewide and local interest lists, providing crisis respite services in a least restrictive setting, helping students transitioning from school services, state facilities, SSLC or Nursing Facilities into community-based services, and aiding families who request residential services for children and adults.. Intake and Screening. This is the central point of entry for all Intellectual & Developmental Disabilities Services. This is where the initial screening for eligibility begins and where information is provided about all service options available in the Center, community, and state. Please Contact the Helen Farabee Centers Centralized Intake line at 1-800-669-4166 to ...
Most people with intellectual or developmental disabilities aspire to gainful employment. To assist them with this goal, state Vocational Rehabilitation (VR) agencies offer employment-development services that are based upon Individualized Plans for Employment (IPEs). A commonly used measure of outcomes is the rehabilitation rate, which is defined as the percentage of individuals who achieve employment out of all individuals whose cases were closed after receiving services. This indicator, however, neglects to consider that for various reasons not all individuals progress to receive services. This information is important because not receiving services translates directly into exiting the VR program without an employment outcome. This Data Note explores how many individuals with intellectual or developmental disabilities progressed from application to eligibility to IPE development and services, and how this figure varied across states. Based on RSA-911 data from fiscal year 2008, we found that ...
At Vinfen, our Intellectual and Developmental Disability Services are available to people who are eligible to receive support through several different partners and funders including the Massachusetts Department of Developmental Services, the Massachusetts Department of Children and Family, the Massachusetts Commission for the Blind, the Massachusetts Department of Education, Massachusetts Rehabilitation Commission and various cities and towns. Additionally, all services are eligible for private pay.. To be approved for services through DDS Services, a person must have a qualifying intellectual or developmental disability, be 18 years or older, and live in Massachusetts. Once determined eligible, DDS will coordinate referrals to Vinfen and other appropriate service providers. For more information about the DDS Eligibility Process, you can call the DDS Central Office at 617-727-5608 or visit their website.. For more information about eligibility and services, contact Marybeth at 617-441-1732 or ...
A SAMHSA sponsored webinar developed under contract by the National Federation of Families for Childrens Mental Health, will take place Thursday, August 9, 2018 at 1:30pm Eastern Time called Emerging Best Practices for People with an Intellectual/Developmental Disability Co-Occurring with Serious Mental Illness. This webinar is intended to provide information about emerging best practice in serving individuals who have serious mental illness co-occurring with an intellectual/developmental disability. The session will cover clinical practices and illustrate an inter-systems model of care for this underserved population.. The outline below is intended to provide information on the content of the webinar.. I.What is NADD. a.501(c)3 membership organization. b.Provides training, consultation, journals, book publishing, accreditation and certification. II.Clinical Practices. a.Assessment practices. i.Assessment requires gathering information from multiple sources. ii.Obtain data from family ...
Associate Professor Paul Dawson is the Mater Research Head of Education, a Principal Research Fellow and Program Leader of the Neuroscience and Cognitive Health research program at Mater Research, as well as being an Honorary Associate Professor at the University of Queensland. Paul leads the Developmental Disorders Research Group at the Mater with a team of more than 10 biomedical and clinical researchers. Paul has authored over 80 scientific publications, with a strong research interest in the developmental origins of neuro-disability.. Pauls research group collaborates very closely with neonatologists, maternal fetal medicine specialists, obstetricians, bioinformaticians and biochemical pathologists at Mater to investigate clinical, biochemical and genetic markers that predict adverse neurodevelopmental outcome. In particular, his research is focussed on cerebral palsy, non-syndromic intellectual disability, autism and adverse neurodevelopmental outcomes in preterm infants. Paul through his ...
Associate Professor Paul Dawson is the Mater Research Head of Education, a Principal Research Fellow and Program Leader of the Neuroscience and Cognitive Health research program at Mater Research, as well as being an Honorary Associate Professor at the University of Queensland. Paul leads the Developmental Disorders Research Group at the Mater with a team of more than 10 biomedical and clinical researchers. Paul has authored over 80 scientific publications, with a strong research interest in the developmental origins of neuro-disability.. Pauls research group collaborates very closely with neonatologists, maternal fetal medicine specialists, obstetricians, bioinformaticians and biochemical pathologists at Mater to investigate clinical, biochemical and genetic markers that predict adverse neurodevelopmental outcome. In particular, his research is focussed on cerebral palsy, non-syndromic intellectual disability, autism and adverse neurodevelopmental outcomes in preterm infants. Paul through his ...
Narrative Analysis of Employment Support for Students With Developmental Disabilities: Using an Objective Analysis of Free-Expression Answers: 10.4018/978-1-5225-4775-4.ch012: The text data regarding the free-expression answers on the employment support provided to students with developmental disabilities (unsure students are
The Chinese government has announced the 2013 Guidelines for developing a national system for early detection of disability among children under 6 years of age. However, given limited resources, challenges exist with developmental measures required in the 2013 Guidelines. In order to meet the needs for a more accurate and cost-efficient measure for developmental assessment, the Ages & Stages Questionnaires:INVENTORY was translated into Simplified Chinese, and validated on a regional sample of 812 Chinese children ages from 1-25 months. Psychometric properties were examined; data from previous studies on the ASQ:INVENTORY in the U.S. were compared to identify differences between the two countries. Results indicated that the Chinese ASQ:INVENTORY was an instrument with sufficient internal consistency, reliability and validity. It was well accepted by parents and professionals in China. Findings suggested that the Chinese ASQ:INVENTORY provides a promising alternative measure for screening and ...
Severe disability was defined as GMFCS grade of level 3-5, hearing impairment requiring hearing aids, bilateral cortical visual impairment with no useful vision or Bayley Mental Development Index Score less than 70. Moderate disability was defined as Bayley Mental Developmental Index Score between 70-84 and any one of the following criteria: GMFCS grade of level 2, hearing impairment with no amplification or persistent seizure disorder ...
Results 699 participants, 68.8% boys, median age at investigation 2 years 8 months (range 3 months to 11 years 5 months). 61 (8.7%) of participants had no investigations, and children with EDI∠were less likely to be investigated (χ2=12.5, p,0.05). A diagnosis was made in 166 children (23.7%) and was more frequent in EDI+ (EDI− 9.9%, EDI+ 27.3%, χ2=19.0; p,0.05). Full blood count, zinc protoporphyrin, renal or liver function, bone profile, biotinidase, creatine kinase or lead level revealed no diagnoses. The following investigations found causes for EDI: MRI (23.1%), microarray (11.5%), Fragile X (0.9%), plasma amino acids (1.2%), urine organic acids (0.9%) and thyroid function tests (0.5%). ...
Lundqvist-Persson, C. (2001), Correlation between level of self-regulation in the newborn infant and developmental status at two years of age. Acta Paediatrica, 90: 345-350. doi: 10.1111/j.1651-2227.2001.tb00316.x ...
PMID: 21248748 van Bon (2011): Multiple probands with large deletions encompassing many genes are described. The deletions were associated with developmental delay, mainly affecting speech, macrocephaly, mild facial dysmorphisms, cerebellar anomalies, cardiac defects and congenital breast aplasia. One proband (patient 7) had a 3 exon in-frame deletion in GRID1 of unknown inheritance. The authors suggest possible dominant negative effect. PMID:20345475 Alliman (2010): 6 patients with recurrent ~7 Mb deletion and dysmorphic features such as macrocephaly, hypertelorism, and arachnodactyly, and neurodevelopmental delay that includes failure to thrive, hypotonia, and feeding difficulties in the neonatal period, and receptive and expressive language delay with global neurodevelopmental delay after the neonatal period.. ...
Working within CDCs National Center on Birth Defects and Developmental Disabilities Division of Human Development and Disability, the mission of the Disability and Health Team is to promote the health, well-being, independence, productivity, and full participation in society by people with disabilities. Program activities include assessing and monitoring the prevalence of disability in the United States; assessing the health status of people with disabilities; describing the risk factors and costs associated with secondary conditions and poor health; developing health promotion interventions to reduce secondary health issues and reduce disparities between people with and without disabilities; evaluate the effectiveness and cost of health interventions; offering training to health professionals who are interested in the field of disability and public health; and supporting conferences to facilitate and stimulate dialogue, disseminate and exchange information, establish research and policy ...
Chapter Author(s): Erik W. Carter Book Title: Shaped by God: Twelve Essentials for Nurturing Faith in Children, Youth, and Adults Book Author(s): Robert Keeley Publisher: Faith Alive Date: 2010 Link: http://www.faithaliveresources.org/Products/151126/shaped-by-god.aspx Disabilities: General, Autism Spectrum Disorders, Deaf-Blindness, Developmental Disability, Intellectual Disability Categories: All Categories, Individuals with disabilities, Service systems ...
National - Developmental Disabilities - Autism spectrum disorders; metabolic and degenerative disorders, More Berks County, Pennsylvania
College graduation is a proud achievement for any student. But, for a group of Colorado students with intellectual and developmental disabilities, it is a major milestone.
The Supports Intensity Scale-Childrens Version (SIS-C) was developed to assess the support needs of children and youth aged 5 to 16 years with intellectual and developmental disabilities. Data from the standardization sample of the SIS-C were analyzed to evaluate the impact of the age cohorts (5-6, 7-8, 9-10, 11-12, 13-14, and 15-16 years) used to stratify the sample on the measurement model, as well as the latent means, standard deviations, and correlations. The findings confirmed measurement invariance across age cohorts, but suggested that at the latent level, younger children, generally, have more intensive support needs and that as students with intellectual disability age, their support needs decrease. In addition, the 15- to 16-year-old cohort displayed differences in terms of the strength of correlations between support need domains, with stronger correlations than the other age groups. Implications for future research and practice are described.
Carer Reports of Health Status Among Adults with Intellectual/Developmental Disabilities in Taiwan Living at Home and Institutions (2007). Wang, K. Y., Hsieh, K., Heller, T., Davidson, P. W. and Janicki, M. P. Journal of Intellectual Disability Research, 51(3), 173-183.
In 2019, the Center for START Services at the University of New Hampshire Institute on Disability/UCED established the National Research Consortium on Mental Health in Intellectual and Developmental Disabilities (MHIDD). The goal of this collaboration is to improve the mental health and wellbeing of individuals with IDD, their families and communities. Partnering with stakeholders in the prioritization, development and dissemination of best-practice research will uniquely allow us to improve the quality of care delivered to those with IDD across the country. The National Research Consortium on MHIDD is comprised of people with lived experiences (including self-advocates and family members), caregivers, trainees, researchers, policy experts, and clinicians from over 30 organizations across the US including several UCEDDs, medical schools, state health departments, and service providers.. This consortium is a first-of-its-kind initiative that seeks to accelerate the development and implementation ...
Over the past three decades, a trend toward deinstitutionalization has brought people of all ages and levels of disability into the fabric of our communities. Today, approximately 80 percent of those with developmental disabilities are living in community-based group residences or at home with their families. People with disabilities and their caregivers now look to providers in the community for dental services ...
Purpose: To assess motor skills Age: 0-5 years Time: 40-60 minutes The Peabody Developmental Motor Scales-Second Edition (PDMS-2) is an early childhood motor development program that provides both an in-depth assessment and training or remediation of g
Hattie Larlham is a notforprofit disability service organization providing care and support to children and adults throughout Ohio Since 1961 Hattie Larlham has been committed to providing the highest quality services and programs to people with intellectual and developmental disabilities The organization started with one dedicated woman our namesake founder...
The Autism Housing Networks goal is Bringing together the best ideas in housing for adults with autism and other intellectual / developmental disabilities.
Join Drs. Julio Martinez-Trujillo and Rob Nicolson for Developmental Disabilities Research Day as a diverse group of researchers, clinicians, postdoctoral fellows and graduate students are brought together to share update research advances and provide opportunity for networking and collaboration. Registration begins at 10:30 a.m. followed by a morning review session and a catered lunch. The afternoon includes many presentations, discussions and a chance to network with others in attendance.. The day closes with Dr. Daniel Ansari presenting the keynote lecture, Implications of Cognitive Neuroscience for Developmental Disorders. Dr. Ansari received his PhD from University College London and is presently a Professor and Canada Research Chair in Developmental Cognitive Neuroscience in the Department of Psychology and the Brain & Mind Institute at Western University, where he heads the Numerical Cognition Laboratory. Dr. Ansari and his team explore the developmental trajectory underlying both the ...
Thanks to advances in medical science and a highly developed network of specialized pediatric health care services, people with intellectual and developmental disabilities (IDD) are much more likely to live into adulthood than they were several decades ago. However, once they reach age 18, they may find a limited number of providers available to address their unique and specialized health care needs.. To improve access to quality health care for adults with IDD, thn Nov. 12 at UofL. The conference will inform physical, occupational and speech therapists, physicians, dentists, social workers, patients and their caregivers about best current practices and future treatment directions for adults with IDD and address the multidisciplinary approach needed for their care.. These are individuals with neurologically-based conditions who require interdisciplinary care from a variety of health care providers, including primary care, dentistry, cardiology, pulmonary, neurology, psychiatry and psychology, ...
The threat of a lawsuit by the Justice Department if Virginia doesnt improve its support system for people with intellectual and developmental disabilities comes at a time when the state is hurting
Introduces the FOCUS Family Resiliency Program, a brief evidence-based intervention that is among the most widely disseminated family-based programs for military populations, and will discuss general issues in adapting it with families who have a child with intellectual and developmental disabilities (IDD). This webinar discusses overall considerations in working with families and children with IDD, as well as how they may apply to the administration of FOCUS. This will be illustrated with a case description in which the FOCUS Program was adapted for a military family with a teenage daughter diagnosed with autism. The intervention was conducted several years after fathers deployment and during a period in which the family reported high levels of distress. We will discuss ways in which the family benefitted from the protocol, as well as what adjustments to the FOCUS modules proved effective in working with a child on the spectrum.. ...
As part of our Childrens Brain Initiative, the Rose F. Kennedy Intellectual and Developmental Disabilities Research Center announces the creation of a new personalized medicine program called IDD Gene Teaming.. Children seen at CHAM and CERC who are suspected of having a genetic etiology of their moderate to severe IDD are having genomic sequencing through CHAMs clinical programs as well as through the NIH funded program, NYCKidSeq (M. Wasserstein, PI). In addition to performing whole genome sequencing on several hundred children with IDD to identify causative genes, NYCKidSeq is also focused on evaluating innovative ways to share complex genomic information with families and integrate it within the medical system. For more information, see https://nyckidseq.org/.. Resulting gene discoveries believed linked to IDD will be tracked by the Rose F. Kennedy IDDRC with the goal of building basic scientist - clinical investigator collaboratives (expert panels) designed to advance understanding of ...
The Arcs Autism Now Center is the nations source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families. A national initiative of The Arc.