The American Association on Intellectual and Developmental Disabilities (AAIDD) has selected Katherine McDonald, assistant professor of public health in the David B. Falk College of Sport and Human Dynamics and faculty fellow at the Burton Blatt Institute (BBI), as the recipient of the 2012 Early Career Award. The Award recognizes McDonald for her achievements and many contributions to the field of developmental disabilities. She will accept the Award in June at the AAIDD Annual Meeting. AAIDD is the oldest and largest interdisciplinary organization of professionals and citizens concerned about intellectual and developmental disabilities.. McDonald joined Syracuse University in 2011. Her dual appointment reflects a unique and unprecedented partnership between SUs colleges and BBI towards infusing disability awareness across disciplines.. McDonalds current research examines the inclusion of persons with developmental disabilities in research, participation in online communities and its ...
Why does the DD Coalition care about these Measures?. The DD Coalition is comprised of nearly 30 organizations representing individuals with developmental disabilities, families, providers, and advocacy groups focused on issues of importance to people with developmental disabilities and their families. Ballot Measures 66 & 67 will affect the DD community profoundly and it is important that our voice is heard. Services for people with developmental disabilities have already been cut and additional cuts will be devastating.. The DD Coalition believes that individuals with developmental disabilities, families, and those who provide support and services have a right to know about and participate in the decisions that will affect their lives. The outcome of the vote on Measures 66 & 67 will overwhelmingly affect the DD community and the quality of life for all Oregonians.. For these reasons, the DD Coalition urges you to get informed, educate your friends and neighbors, and Vote Yes on Measures 66 ...
Our Approach to Research in Autism, Intellectual and other Neurodevelop-mental DisabilitiesMission Statement: (What we do)To improve the quality of life of people with neurodevelopmental disabilities and their families across the lifespan through:
The UC Davis MIND Institute holds the annual Summer Institute on Neurodevelopmental Disorders: Research to Practice on Friday, Aug. 8, from 8:30 a.m. to 5 p.m. at the UC Davis Alumni Center. The daylong conference offers nine seminars on a broad array of subjects delivered by some of the world’s leading experts on neurodevelopmental disabilities.
TN Department of Intellectual & Developmental Disabilities - Vision: To support all Tennesseans with intellectual and developmental disabilities in living fulfilling and rewarding lives. Mission: To become the nations most person-centered and cost effective state support system for people with intellectual and developmental disabilities.
TY - JOUR. T1 - Visual function in term infants with hypoxic-ischaemic insults. T2 - Correlation with neurodevelopment at 2 years of age. AU - Mercuri, Eugenio. AU - Haataja, Leena. AU - Guzzetta, Andrea. AU - Anker, Shirley. AU - Cowan, Frances. AU - Rutherford, Mary. AU - Andrew, Rachel. AU - Braddick, Oliver. AU - Cioni, Giovanni. AU - Dubowitz, Lilly. AU - Atkinson, Janette. PY - 1999. Y1 - 1999. N2 - Aims - To determine if there is any association between the findings of visual assessment performed at the age of 5 months and neurodevelopmental outcome at the age of 2 years in children who have sustained hypoxic- ischaemic insults. Methods - Twenty nine term infants with hypoxic-ischaemic encephalopathy and/or brain lesions on neonatal magnetic resonance imaging (MRI) were prospectively evaluated. At 5 months of age all the infants had their visual function assessed using the Atkinson Battery of Child Development for Examining Functional Vision, which includes the assessments of optokinetic ...
Breihan stands by her original account of Californias system and states that confidentiality prevents her from revealing the sources of information in her article. Yet, public information about developmental disability services is neither private nor confidential. Public officials do not have a right to confidentiality with regard to information about how public services are provided. It is also standard practice for researchers to acknowledge their sources on state surveys of developmental disability services. For example, the Research and Training Center on Community Living at the University of Minnesota, one of the most highly respected sources on national trends in developmental disabilities, whose research is frequently summarized in the "Trends & Milestones" section of IDD, lists its key state contacts in its annual national reports on residential services (see, e.g., Prouty, Smith, & Lakin, 2007, p. i). Jacobs has questioned Breihans information. Breihan has replied. Readers must ...
Deadline for proposals: Sunday, May 31. This annual essay award will be available to an undergraduate medical student or postgraduate medical resident at the Schulich School of Medicine & Dentistry.. The essay should describe an experience managing a patient at any stage in the lifespan with a developmental disability. This includes management of physical health, mental health or both, either in the hospital system or in the community, including family medicine.. The essay should be 1,500 to 2,000 words in length and typed double spaced with the total word count placed at the top right hand corner of the first page. Entries beyond 2,000 words will not be considered.. The award winner will receive $1,000, and their essay will be published in the Clinical Bulletin of the Developmental Disabilities Division.. Please submit essays via email attachment to Developmental Disabilities Division (DDD), Department of Psychiatry at [email protected] Contact for inquiries: 519-646-6100, ext. 47694.. ...
My 21 month old daughter was recently diagonsed with global developmental delay. I was wondering if I should have her tested to find out the cause or just proceed with therapy. If anyone has a child ...
Results Of the 72 participants evaluated at 4-12 months corrected age (median 8 months), 59 (82%) had a least one TSFI score concerning for abnormal sensory reactivity. Lower gestational age was associated with abnormal reactivity to deep pressure and vestibular stimulation (p,0.001). Poor ocular-motor control predicted worse cognitive and motor scores in early childhood (OR 16.7; p=0.004), but was tightly correlated to the presence of severe white matter injury. Poor adaptive motor function in response to tactile stimuli predicted worse BSID III motor (p=0.01) and language scores (p=0.04) at 2 years, even after adjusting for confounders.. ...
Maureen Durkin received her undergraduate degree and PhD in anthropology from the University of Wisconsin-Madison, and her MPH and DrPH degrees in epidemiology from Columbia University. Her research interests include the epidemiology, prevention, antecedents and consequences of neurodevelopmental disabilities and childhood injuries, both globally and within the United States. She has collaborated in the development of cross-cultural methods for screening for developmental disabilities and methods for surveillance of childhood injuries, and has directed international studies of the prevalence and causes of neurodevelopmental disabilities in low-income countries. She has also directed a cohort study of neuropsychological outcomes of neonatal brain injuries associated with preterm birth and with metabolic disorders detected on newborn screening, and is currently a Waisman Center investigator and principal investigator on the Wisconsin Surveillance of Autism and Other Developmental Disabilities ...
Q. Who does The Arc help?. A. We help people with intellectual and developmental disabilities (IDD), their families and supporters. Our clients are transition age youth and adults living in El Paso County.. Q. What is IDD?. A. IDD is an acronym for Intellectual and Developmental Disability. IDD is an overarching term used to describe a life-long disability attributable to cognitive, neurological or other impairments manifested before the age of 22 and usually lasting for a lifetime. IDD affects the activities of daily living in language, learning, living independently, mobility and self-care, among other areas. Autism, Down syndrome, intellectual disabilities, epilepsy and cerebral palsy are examples of IDD.. Q. What do you call a person with a disability? A. A person. We use "People First Language," which is an objective and respectful way to speak about people with disabilities by emphasizing the person first, rather than the disability. Q. How do you help your clients?. A. Currently, we ...
The Yale Developmental Disabilities Clinic serves children aged 3 and older, adolescents, and adults, and builds on decades of experience in research and clinical services for individuals with autism spectrum disorder and other neurodevelopmental disabilities.
Getting Help:. If you or your loved one has a diagnosis of an Intellectual or Developmental Disability (IDD), we can help you with getting services for both adults and children. Depending on your needs, there are several services available in the surrounding counties of Brewster, Culberson, Ector, Hudspeth, Jeff Davis, Midland, Pecos and Presidio. If you do not know if you have a diagnoses of IDD, we will help to determine your eligibility at no charge. An intellectual disability, formerly known as mental retardation, indicates below average intellectual functioning, which affects judgment, reasoning and academic learning. There are many qualifying developmental disabilities including: epilepsy, cerebral palsy, and autism.. If you are interested in the process, please call our Continuity of Care Specialist to schedule a meeting. Our Continuity of Care office is the first place you will need to go to get information about services, eligibility requirements, arranging for assessments, requesting ...
General Resources for Persons with Intellectual & Developmental Disabilities (IDD). (Not all inclusive and not in any particular order). 1. Emergence Health Network: EHN is a community-based mental health/intellectual disabilities center serving persons with IDD and mental health issues. It is the Local Mental Health and Intellectual and Developmental Disability Authority for El Paso. For a person with IDD, this should be your first stop. EHN will provide information on all services offered through EHN, including Medicaid waivers for long term services & supports, as well as other available resources in El Paso County.. Emergence Health ...
Welcome to the website for The State of the States in Intellectual and Developmental Disabilities Project, administered by the University of Colorado, and funded in part by the Administration on Disabilities. Established in 1982 to investigate the determinants of public spending for intellectual and developmental disabilities (IDD) services in the United States, the Project has established a 40-year record of revenue, spending, and programmatic trends in the 50 states, the District of Columbia, and the United States as a whole. Analysis of the rich detail of the data base demonstrates the impact over time of federal, state, and local government fiscal policy. The data illustrate important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, and Medicaid Waivers. Demographic data include general population, personal income, and total state budget. Financial and programmatic trends in the ...
Childrens Intellectual and Developmental Disabilities Services (CIDDS) serves children, adolescents and young adults from birth to 21 with intellectual and developmental disabilities, including autism, as well as behavioral and emotional disorders.
Resolution of Support for Adequate Funding to meet the Mental Health, Intellectual and Developmental Disabilities, and Substance Use Disorder service needs for Citizens of Currituck County. WHEREAS, Currituck County knows that citizens dealing with mental illness and substance use disorders can achieve recovery with the appropriate services and supports and that citizens with intellectual and developmental disabilities can live productive lives in our communities with similar services and supports; and. WHEREAS, the funding needed for such services and supports is increasing due to North Carolinas increasing population and the opioid epidemic in our State; and. WHEREAS, Currituck County is a member of Trillium Health Resources, a twenty-four county LME/MCO serving eastern North Carolina; and WHEREAS, in accordance with the intent of the NC General Assembly and the NC Department of Health and Human Services, the Board of Trillium Health Resources has developed and is implementing a robust ...
Guideline 12 of the "Primary care of adults with intellectual and developmental disabilities. 2018 Canadian consensus guidelines"1 recommends preparing early for persons undergoing life-phase changes and other transitions. This entails attending to the health, psychosocial, and spiritual or existential needs associated with the persons developmental life phase, declining functioning, and context. It also entails developing a transition plan to meet the increasing needs of persons with intellectual and developmental disabilities (IDD) and their support system in a realistic and sustainable manner by continuing and offering increased health care, social, and other supports. Guideline 12 needs to be understood in the context of all 32 guidelines and the related tools, some of which this case highlights. The journeys of adults with IDD transitioning to later-life phases and those of family caregivers who accompany them can be complex. Family physicians, especially those working in a Patients ...
Entdecken Sie Health Care for People with Intellectual and Developmental Disabilities across the Lifespan von I. Leslie Rubin und finden Sie Ihren Buchhändler. This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the rea
Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (Eds.) (2016), Health Care for People with Intellectual and Developmental Disabilities across the Lifespan Switzerland: Springer.A new book has been published that offers a unique lifespan approach on health care for people with intellectual and developmental disabilities. It addresses the clinical as well as the systems of…
Health care quality issues for people with developmental disabilities under managed care were explored. Health-related quality was defined in terms of four domains: structure, process, outcome, and satisfaction. Three general problems in the assessment of health care quality were identified: lack of quality measures, patient response problems, and lack of system elements. Selected current measurement systems were described in relation to their use for people with developmental disabilities. An approach to developing quality measures was outlined using Healthy People 2000, Health Plan Employer Data Information Set, and clinical practice issues. The movement toward quality improvement was examined and recommendations presented for steps in developing and measuring health care quality. ...
Book Chapters Levy, J. & van Stone, M. (2010). Ethical Foundations and Legal Issues. In S.L. Friedman & D.T. Helms (Eds.), End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Washington DC: American Association on Intellectual and Developmental Disabilities.
TY - JOUR. T1 - An evaluation of care coordination in controlling inpatient hospital utilization of people with developmental disabilities. AU - Criscione, T.. AU - Walsh, K. K.. AU - Kastner, T. A.. PY - 1995/12/1. Y1 - 1995/12/1. N2 - All admissions of people with developmental disabilities to a community hospital over 3 years were examined to evaluate the impact of a coordinated care model on length of stay and hospital charges. Admissions were divided into two groups, those receiving either coordinated care (program group) or routine care by community physicians (usual care group). The program group had shorter average lengths of stay and lower hospital charges than did the usual care group, especially when charges were adjusted for case mix. Similarity of severity across the groups was measured by number of discharge diagnoses and Medicaid case weights. Over the 3 years, for the 115 admissions in the program group, these differences amounted to more than $200,000 in potentially unnecessary ...
The Georgia Council on Developmental Disabilities is the states leader in advancing public policy on behalf of persons with developmental disabilities.
The Georgia Council on Developmental Disabilities is the states leader in advancing public policy on behalf of persons with developmental disabilities.
Thank you for your interest in spreading the word about The British Journal of Psychiatry.. NOTE: We only request your email address so that the person you are recommending the page to knows that you wanted them to see it, and that it is not junk mail. We do not capture any email address.. ...
Results Here we describe six CHD1 heterozygous missense variants in a cohort of patients with autism, speech apraxia, developmental delay and facial dysmorphic features. Importantly, three of these variants occurred de novo. We also report on a subject with a de novo deletion covering a large fraction of the CHD1 gene without any obvious neurological phenotype. Finally, we demonstrate increased levels of the closed chromatin modification H3K27me3 in fibroblasts from a subject carrying a de novo variant in CHD1. ...
Patients (N=131 enrolled; N=106 assessed) less than 3 months of age at the time of cardiac operation were prospectively enrolled (years 1999-2003) and assessed at 8, 12, and 24 months after operation. Patients with preexisting conditions independently associated with poor neurodevelopmental outcomes were excluded. Fine and gross motor development was formally assessed at all 3 visits, and parent ratings of development across several domains were obtained. Neurodevelopment was formally assessed at 24 months of age using the Bayley Scales of Infant Development, 2nd edition (BSID-II) Mental Development Index score (MDI ...
Despite the recent improvements in perinatal medical care leading to an increase in survival rates, adverse neurodevelopmental outcomes occur more frequently in preterm and/or high-risk infants. Medical risk factors for neurodevelopmental delays like male gender or intrauterine growth restriction and family sociocultural characteristics have been identified. Significant data have provided evidence of the detrimental impact of overhelming environmental sensory inputs, such as pain and stress, on the developing human brain and strategies aimed at preventing this impact. These strategies, such as free parental access or sleep protection, could be considered principles of care. Implementation of these principles do not require additional research due to the body of evidence. We review the scientific evidence for these principles here. ...
Keith English, B. Keith English, MD., Professor and Chair, Department of Pediatrics and Human Development in the College of Human Medicine, is Chair of the RAIND Internal Advisory Committee and is building a research program in developmental neurosciences in the Department of Pediatrics and Human Development, with footprints in both East Lansing and Grand Rapids.
C-RAIND serves as a coalition of scholars and researchers from throughout Michigan State University focused on meeting the needs of communities through research, training, outreach, and service. About Us ...
Kellie Dean throughout his careers has always pushed to do more, to help more, and to help everyone around him achieve more. Kellie graduated from Michigan State University with a masters degree in school administration, and began his career as an educator and administrator in the Lansing Public Schools. Ke
The use of postnatal steroids to treat evolving BPD is controversial. Although the use of PNSs has been reduced after recognition that deleterious effects may outweigh the benefits, our data and those of others have shown that ELBW infants continue to be treated with postnatal steroids, primarily dexamethasone.29-32 In this prospective study that collected detailed data on dosing and timing of open-label usage of PNSs for evolving or established BPD, we sought to determine the impact of cumulative dose, timing of exposure, and the interactions with predicted risk of BPD. We have shown that there is no safe window of development where PNS exposure is less detrimental to neurodevelopmental outcomes. In addition, increasing dosage exposure is associated with increased risk of lower MDI (loss of 2 points per 1 mg/kg of exposure) and increased risk of CP (40% risk increase for each 1 mg/kg of exposure). We hoped to examine the impact of steroid type on outcome; however, of those exposed to PNSs after ...
Source: U.S. Department of Labor (DOL) - Office of Disability Employment Policy (ODEP). Partnership Aims to Increase Employment of Individuals with Disabilities. Kathleen Martinez, assistant secretary of labor for disability employment policy, and Sharon Lewis, commissioner of the Administration on Intellectual and Developmental Disabilities (AIDD), have signed a memorandum of agreement. Together, the U.S. Department of Labors Office of Disability Employment Policy (ODEP) and AIDD, an agency within the U.S. Department of Health and Human Services Administration for Community Living, will work to expand and promote integrated employment as the first employment option for individuals with significant, including intellectual and other developmental, disabilities.. "This agreement is an opportunity for ODEP and AIDD to work together to further disability employment practices and support state efforts to transform public systems so that they reflect integrated employment as a priority outcome for ...
At every well check from age 4 months to 5 years we ask parents to complete a survey called the Ages and Stages Questionnaire, which gives a detailed picture of your childs skills in five areas of development: fine motor, gross motor, speech, social, and problem solving. This provides a rich framework for discussing your childs progress and a valuable tool for early identification of developmental concerns. You can download the Ages and Stages Questionnaire from the Patient Portal and print at home, if you would like to complete it ahead of time.. Is my child developing as he/she should?. You WILL know. Every well-check visits includes a review of our developmental screening tool: Ages and Stages. At every well-check from age 4 months to 5 years you will be asked to complete a survey called the Ages and Stages Questionnaire. This survey helps you and your provider stay in touch with your childs growth and progress. What you gain is a detailed picture of your childs skills in five key ...
A developmental disability is a disability diagnosed as a mental or physical condition or a combination of mental and physical conditions resulting in significant impairments to daily functioning. The disability:. ...
Described people with intellectual and/or developmental disabilities who live in their own homes or with their families, examining: 1) demographic, functional and health characteristics; 2) in-home services and supports; 3) access to healthcare; 4) services, devices and technology; 5) households with parents who have disabilities; 6) social roles and experiences of adults; and 7) the impact of recent changes in the DD Act definitions of disability on prevalence estimates.. This project was archived on ...
AAIDD provides leadership in the field of intellectual and developmental disabilities promoting progressive policies, research, practices and human rights for people with these disabilities.. ...
There exists an already substantive and still growing literature base pertaining to self- determination and people with disabilities. The intent of this slide show is to provide a synthesis of major findings in the area of self- determination pertaining to youth and adults with intellectual and developmental disabilities.. http://www.aucd.org/docs/SD-WhatDoWeKnow.pdf. ...
Developmental Disabilities Resource Center (DDRC) | Health Care/Maintenance Organizations | Disability Services | Associations & Organizations
may include an Intelligence Quotient Scale (IQ) of below 70 but is not limited to this in the larger definition of Developmental Disabilities.. This definition would include, but is not limited to, the following of types of diagnosis:. ...
Phelan-McDermid syndrome (PMS (MIM 606232)), also known as 22q13 deletion syndrome, is a rare syndrome characterised by developmental delay, absent or impaired speech, neonatal hypotonia, autistic traits and mild dysmorphic features.1-8 Affected individuals have deletions ranging in size from 100 kb to over 9 Mb.5 Because PMS is considered to be underdiagnosed, the true prevalence is unknown.1 In an evaluation of more than 11 000 cases with developmental disabilities, 22q was the second most frequent subtelomeric rearrangement, identified in 0.2% of those evaluated.9 Simple terminal deletions account for approximately 75% of PMS cases.10 The other cases have been comprised of translocations in the 22q13 region,2 11-13 ring chromosome 221 2 14-16 and mosaics.17 18. Until recently, diagnostic technologies relied upon cytogenetic banding and fluorescence in situ hybridisation or bacterial artificial chromosome comparative genomic hybridisation (CGH), which are not always able to detect smaller ...
Aims - Adults with intellectual and developmental disabilities (IDD) are a vulnerable population with significant health issues and barriers to health care. Despite this, few studies have studied diabetes prevalence and incidence or how well the disease is managed among this population. The purpose of the current study, therefore, is to describe and compare population-level aspects of diabetes and diabetes primary care among persons with and without IDD. Methods - Administrative health data accessed from the Institute for Clinical Evaluative Sciences was used to identify a cohort of Ontarians with and without IDD between the ages of 30 and 69 (N=28,567). These individuals were compared to a random sample of individuals without IDD (N=2,261,919) according to diabetes prevalence, incidence, age, sex, rurality, neighbourhood income, and morbidity. To measure diabetes primary care, we also studied hospitalizations for diabetes related ambulatory care sensitive (ACS) conditions. Results - Adults with ...
... is an exploration of how to create the ideal conditions to facilitate community living and participation for people with IDD. The book addresses the complex and ever-evolving dimensions related to both the place of community and the feeling of community, including living arrangements, work, other daytime activities, financial resources, relationships, personal interests, health and well-being, faith, opportunities for learning and personal growth, self-determination and informed decision making, and rights and responsibilities as a citizen. The following topics are addressed specifically: using person-centered and positive support practices, housing, employment, social inclusion and relationships, self-determination and self-advocacy, supported decision making, health and wellness, planning for healthy and engaged aging, practices that promote quality outcomes, and the direct support workforce.. Each ...
Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports while living with their families. Thus, it is important that researchers, practitioners, and policy makers understand how to best support families who provide at-home support to children and adults with IDD. This article summarizes (a) the status of research regarding the support of families who provide support at home to individuals with IDD, (b) present points of concern regarding supports for these families, and (c) associated future research priorities related to supporting families. ...
Giving executives the strategies and tools needed to navigate and thrive in todays changing Intellectual & Developmental Disabilities (I/DD) landscape.
Learn what is plain language, how to create accessible written materials and meetings. You will learn about persons with intellectual and developmental disabilities. This training will give you information that can help you with your work at The Arc.. Please watch the training and complete the SurveyMonkey linked below the video. You will need to complete the SurveyMonkey to show that you completed this training.. ...
Curbs on childrens daily screen time and delaying the age at which they start watching television and screen media are urgently needed to stave off the risk of serious health and developmental problems. Increased screen time increases the risk of obesity, disrupts food and hunger cues, and may reduce attention span.
State of the Science Conference on Lifespan Health and Function of Adults with Intellectual and Developmental Disabilities: Translating Research into Practice