TY - JOUR. T1 - Racial variation in the cancer caregiving experience. T2 - A multisite study of colorectal and lung cancer caregivers. AU - Martin, Michelle Y.. AU - Sanders, Sara. AU - Griffin, Joan M.. AU - Oster, Robert A.. AU - Ritchie, Christine. AU - Phelan, Sean M.. AU - Atienza, Audie A.. AU - Kahn, Katherine. AU - Van Ryn, Michelle. PY - 2012/7. Y1 - 2012/7. N2 - Background: As cancer care shifts from hospital to outpatient settings, the number of cancer caregivers continues to grow. However, little is known about the cancer caregiving experience. This gap in knowledge is especially evident for racially diverse caregivers. Objective: This study, part of a multisite study of care recipients with either lung or colorectal cancer and their caregivers, examined the caregiving experiences of African American (AA) and white caregivers. Methods: Caregivers were identified by cancer patients in the Cancer Care Outcomes Research and Surveillance consortium. Caregivers completed a ...

Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMERS CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimers disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimers Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to ...

Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMERS CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimers disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimers Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to ...

TY - JOUR. T1 - Cognitive functioning in spousal caregivers of dementia patients: findings from the prospective MAASBED study. AU - de Vugt, M.E.. AU - Jolles, J.. AU - van Osch, L.A.D.M.. AU - Stevens, F.C.J.. AU - Aalten, P.. AU - Lousberg, R.. AU - Verhey, F.R.J.. PY - 2006/1/1. Y1 - 2006/1/1. N2 - Background: spousal caregivers are usually of the same age as the dementia patient and therefore at risk of age-related cognitive decline. Suboptimal cognitive functioning in caregivers may have profound implications. Methods: fifty-four spousal caregivers of dementia patients from the Memory Clinic of the Academic Hospital Maastricht and the Regional Institute for Community Mental Health Care in the Netherlands were compared with 108 non-caregiving controls. Data were collected on patient and caregiver characteristics and caregiver cognitive functioning. Repeated measures statistical analyses were carried out to investigate the relationship between caregiver cognitive functioning at baseline and ...

Going for a walk outside, reading, listening to music - these and other enjoyable activities can reduce blood pressure for elderly caregivers of spouses with Alzheimers disease, suggests a study. Greater engagement in pleasant leisure activities was associated with lowered caregivers blood pressure over time, according to the report by Brent T. Mausbach, PhD, of University of California San Diego and colleagues. Participation in pleasant leisure activities may have cardiovascular benefits for Alzheimers caregivers. The study included 126 caregivers enrolled in the UCSD Alzheimers Caregiver Study, a follow-up study evaluating associations between stress, coping, and cardiovascular risk in Alzheimers caregivers. The caregivers were 89 women and 37 men, average age 74 years, providing in-home care for a spouse with Alzheimers disease.. Click here to read more.. ...

November is Alzheimers Awareness Month, and its an ideal time to celebrate the caregivers who care for those living with this disease-family caregivers as well as professional caregivers. Since President Reagans 1983 declaration of National Alzheimers Disease Awareness month, more cities are recognizing the importance of awareness and extending proclamations to recognize Alzheimers caregivers, too.. Caring for someone who suffers from Alzheimers disease can be difficult, draining, challenging, and rewarding. These hard-working caregivers do much to improve the lives of those with Alzeimers-so its important to show gratitude and appreciation.. Alzheimers caregivers benefit from having an understanding of sensory stimulation and how to engage Alzheimers patients. Alzheimers caregiving also involves enhancing the safety of patients living areas by placing safety measures, such as exit alarms and signs on doors to prevent wandering, for example.. Ways to recognize and celebrate the ...

TY - JOUR. T1 - Stroke survivors and informal caregivers experiences of primary care and community healthcare services - A systematic review and meta-ethnography. AU - Pindus, Dominika M.. AU - Mullis, Ricky. AU - Lim, Lisa. AU - Wellwood, Ian. AU - Rundell, A. Viona. AU - Aziz, Noor Azah Abd. AU - Mant, Jonathan. PY - 2018/2. Y1 - 2018/2. N2 - Objective To describe and explain stroke survivors and informal caregivers experiences of primary care and community healthcare services. To offer potential solutions for how negative experiences could be addressed by healthcare services. Design Systematic review and meta-ethnography. Data sources Medline, CINAHL, Embase and PsycINFO databases (literature searched until May 2015, published studies ranged from 1996 to 2015). Eligibility criteria Primary qualitative studies focused on adult community-dwelling stroke survivors and/or informal caregivers experiences of primary care and/or community healthcare services. Data synthesis A set of common ...

The objective of this multi-province randomized controlled trial will be to determine if the TIR Stroke Family Support Program delivered across the care continuum contributes to positive caregiver outcomes. Since this program targets family caregiver support, the primary outcomes of the intervention will be caregivers perception of being supported in their care-giving role and improvements in caregiver mental health outcomes (e.g., less depression and more psychological well-being). To determine the impact of the intervention on caregiver outcomes, we will compare two modes of intervention delivery with standard care: 1) repeated contact in person and by telephone with a stroke support person and 2) a self-directed program by the caregiver.. We will perform a multi-site, mixed methods RCT. Caregivers of patients who are receiving acute care for their first stroke will be recruited within the first week of hospital admission. Members of the stroke team from the participating hospitals stroke ...

Although caregiving for stroke survivors is usually long-term, most studies on caregivers have generally involved only the first year following the event. We assessed and compared the long-term level of well-being measures among stroke survivors and their caregivers at more than 1 year following the stroke event and examined the associations between well-being, survivors characteristics, and caregiver burden. We interviewed a convenience sample of 51 community-dwelling stroke survivors, at least 1 year after the last stroke event, and their primary caregivers. Disability of survivors was assessed using the Barthel index and the modified Rankin Scale; health-related quality of life by the SF-36 questionnaire; and depression and anxiety using the Hospital Anxiety Depression Scale. Caregivers filled the SF-36 questionnaire, Hospital Anxiety Depression Scale questionnaire, and the Zarit Burden Interview, which assesses caregiver burden. Caregivers reported low levels of health-related quality of ...

Brn.sagepub.com: 4/23/12.. Informal caregivers of stroke survivors experience elevated chronic stress and are at risk of developing depressive symptoms. The cumulative effects of chronic stress can increase allostatic load and dysregulate biological processes, thus increasing risk of stress-related disease. Stress-induced alterations in the pattern of cortisol secretion vary with respect to stressor onset, intensity, and chronicity. Little is known about the psychoendocrine response to stress in female caregivers Read More. ...

Family caregivers are instrumental in the care of people with chronic and disabling conditions. Family caregivers provide hands-on personal care, perform health management activities, and navigate health system demands. The availability and adequacy of support provided by family caregivers has important consequences for patients health and quality of life, the services they use, and the quality and costs of care they receive. However, family caregivers are not systematically identified in care delivery, and providers do not typically assess whether they have the requisite knowledge, understanding, or proficiency in the tasks they are expected to perform. Family caregivers describe learning how by trial and error - and being fearful of making a mistake that will cause harm. A recent National Academies of Sciences, Engineering, and Medicine (NASEM) report found that current medical practice often compounds family caregivers problems by failing to include them in treatment decisions and care ...

Most schizophrenia patients are supported by main informal caregivers at home in China. This study aims to investigate the further needs of social supports for main informal caregivers of schizophrenia patients and to analyze influencing factors on the awareness and utilization of social supports in Beijing. The results of this study could potentially act as reference for health professionals to implement appropriate and effective support programs. A mixed-methods approach was used in this study. Awareness, utilization and influencing factors of social supports for main informal caregivers were investigated using questionnaires in 6 urban districts in Beijing. Meanwhile, individual in-depth interviews with 10 main informal caregivers from the urban districts of Beijing were conducted to identify the caregivers perspective on social supports and their further needs. Quantitative results showed that although the government provided multi-channel resources for schizophrenia patients and their families,

Objectives: The capability to live well in people with dementia can be influenced by many factors, including those related to the experiences of their informal caregiver. How caregivers experience their own role can affect not only their well-being but also the way they provide care and hence the experience of the person with dementia. The aim of this study is to identify the potential impact of the caregivers perception of the caregiving experience on how people with mild to moderate dementia self-rate their QoL, well-being and satisfaction with life. Method: This study utilised time-point 1 data from 1283 informal caregiver and the 1283 people with dementia whom they provide care from the IDEAL cohort study. Multivariate modelling was used to investigate the associations between measures related to the caregivers perception of the caregiving experience (caregiving stress, perceived social restrictions, caregiving competence, positive aspects of caregiving, and coping) and the self-ratings ...

Learn more about For Alzheimers Caregivers, Patience and Compassion Are Key at Doctors Hospital of Augusta For Alzheimers Caregivers, Patience and Compassion Are...

Extensive research shows a positive relationship between family caregivers support and optimization of self-care abilities of elderly individuals experiencing chronic diseases [1-5]. Family caregivers are expected to support their chronically ill family member more due to an increasing shift from professional to informal care [6]. In the light of these developments, it is essential that nurses have attention for support offered by family caregivers of older patients with chronic conditions who are admitted to the hospital. Therefore, nurses need to address family caregiving aspects in their nursing practice on behalf of the continuity of care of the patient in the hospital. Too little attention for supporting roles of family caregivers during the hospitalization of their ill relative could lead to discontinuity of care after discharge.. The importance of family caregiver support of chronically ill elderly is a relatively new concept in the Netherlands which is receiving more attention the last ...

ASPE Research Notes INFORMATION FOR DECISION MAKERS FOCUS ON: Long-Term Care Insurance Issued August 1995 Eldercare: The Impact of Family Caregivers Employment on Formal and Informal Helper Hours PDF Version: http://aspe.hhs.gov/daltcp/reports/1995/rn14.pdf (6 PDF pages)

In this paper we compare the results in an analysis of determinants of caregivers health derived from two approaches, a structural equation model and a log-linear model, using the same data set. The data were collected from a cross-sectional population-based sample of 468 families in Ontario, Canada who had a child with cerebral palsy (CP). The self-completed questionnaires and the home-based interviews used in this study included scales reflecting socio-economic status, child and caregiver characteristics, and the physical and psychological well-being of the caregivers. Both analytic models were used to evaluate the relationships between child behaviour, caregiving demands, coping factors, and the well-being of primary caregivers of children with CP. The results were compared, together with an assessment of the positive and negative aspects of each approach, including their practical and conceptual implications. No important differences were found in the substantive conclusions of the two analyses.

This study describes patterns of caregiving experiences in partners of patients with cancer (N=148) over a 6-month period. Caregiving experiences were assessed by means of the Caregiver Reaction Assessment Scale (CRA), which consists of four negative dimensions and one positive subscale: Disrupted Schedule, Financial Problems, Lack of Family Support, Loss of Physical Strength, and Self-Esteem. Subgroup analyses were performed according to gender, age, and socioeconomic status (SES). Type, size, and direction of changes in caregiving experiences over time were analyzed both at a group level and at an individual level. Patterns of caregiver experiences appeared to vary between the subgroups; women, younger caregivers, and caregivers with a higher SES experienced caregiving more negatively or less positively. The findings illustrate the value of studying inter- and intraindividual patterns across different subgroups, and stress that caregiver experiences should be regarded as a multidimensional concept

Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregivers capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD. Data from two studies among informal caregivers of community-dwelling PwD in the Netherlands were used. The first study included 198 caregivers from a single region in the Netherlands and lasted 1 year. The second was a cross-sectional nationwide study with 166 caregivers for PwD. Questionnaires of both studies included questions regarding demographics and informal care, perseverance time, and other informal caregiver

Background: Partners of patients with heart failure provide both practical and emotional support. Many partners assume caregiving responsibilities without being aware of the burden related with this role. Objective: Our work has established that a psycho-educational intervention has benefits at 3, but not at 12 months for patients with heart failure. Further we had not described the long-term effects in caregivers. This study aimed to determine the 24-months effects of a dyadic psycho-educational intervention on caregiver burden and morbidity in partners of patients with heart failure and study factors associated with a change in caregiver burden. Design: A randomized controlled study design, with a follow-up assessment after 24 months. Setting and participants: Partners to patients with heart failure were recruited from two hospitals in the southeast of Sweden. Intervention: A three session nurse-led psycho-educational program was tested and included psychosocial support to maintain the ...

This study assessed how family caregivers for patients with Alzheimers disease (AD) or dementia in Japan differed from non-caregivers in characteristics and health outcomes (i.e., comorbidities, health-related quality of life [HRQoL], productivity, and resource use). Caregivers were hypothesized to experience significantly poorer outcomes than non-caregivers. Data were combined from the 2012 and 2013 National Health and Wellness Survey in Japan (n = 60000). Caregivers for adult relatives with AD or dementia were compared with non-caregivers on: comorbidities (including Patient Health Questionnaire (PHQ-9) cutoff scores suggesting presence/absence of major depressive disorder (MDD)), Work Productivity and Activity Impairment (WPAI), SF-36v2-based HRQoL, and healthcare resource utilization. Sociodemographic characteristics, health characteristics and behaviors, and Charlson comorbidity index (CCI) scores were compared across groups. Propensity matching, based on scores generated from a logistic

Quality of Life Foundation recently attended a launch event for an exciting new program - Operation Family Caregiver presented by Blue Star Families!. Blue Star Families is a national, nonprofit network of military families from all ranks and services, including guard and reserve, dedicated to supporting, connecting, and empowering military families. Blue Star Families Caregivers program is a multi-faceted approach that reaches military and veteran caregivers through many different channels. BSF knows the day-to-day challenges that caregivers experience, and has created a program with multiple access points, based on caregiver bandwidth. Blue Star Families CEC program provides workshops and digital resources for caregivers. Register here for a special BSF workshop for military caregivers on March 10th near Fort Belvoir, VA.. Blue Star Families is proud to present the Rosalynn Carter Institute for Caregivings signature military program, Operation Family Caregiver. Operation Family Caregiver is ...

TY - JOUR. T1 - Aspects of family caregiving as addressed in planned discussions between nurses, patients with chronic diseases and family caregivers: a qualitative content analysis. AU - Hagedoorn, Ellen. AU - Paans, Wolter. AU - Jaarsma, Tiny. AU - Keers, Joost. AU - van der Schans, Cees. AU - Luttik, Marie Louise. PY - 2017/7/15. Y1 - 2017/7/15. N2 - Background: Caregiving by family members of elderly with chronic conditions is currently intensifying in the context of an aging population and health care reform in the Netherlands. It is essential that nurses have attention for supporting roles of family caregivers of older patients and address family caregiving aspects on behalf of the continuity of care. This study aims to explore what aspects of family caregiving were addressed during planned discussions between nurses, patients and family caregivers in the hospital.Methods: Qualitative descriptive research was conducted using non-participant observation and audio-recordings of planned ...

Background. The primary purpose of this study was to investigate adult-child caregiver burden in heart failure (HF) patients. Secondary purpose of the study was to identify the possible influencing factors for caregiver burden and depressive symptoms in a young adult-child caregiver group. Methods. A total of 138 adult-child caregivers and 138 patients with HF participated in this study. Caregivers burden, depressive symptoms, and anxiety levels were assessed by using Zarit Caregiver Burden Scale (ZCBS), Beck Depression Inventory, and State-Trait Anxiety Inventory, respectively. Results. The mean ZCBS scores of the female caregivers were significantly higher than male caregivers. Approximately one-third of the adult-child caregivers had at least mild depressive symptoms. Caregivers with higher depressive symptoms had higher levels of caregiver burden. There were positive correlations between caregiving time, severity of depressive symptoms, and perceived caregiver burden. There was a negative ...

Informal care is taking an increasingly important role in our health care system, and an improvement in our understanding of caregiving experiences and outcomes has become more relevant. The Lifelines informal care add-on study (Lifelines ICAS) was initiated within the Lifelines Cohort Study to cover the large heterogeneity in the caregiver population and to investigate the complex interplay among the characteristics of the caregiver, care recipient, and care situation and positive and negative caregiver outcomes. In this paper, we discuss the study design and data collection procedures of Lifelines ICAS, provide a detailed overview of its measures, and describe the caregiver study population. Lifelines participants who participated in the 2nd Lifelines follow-up questionnaire were asked whether they provided informal care. Subsequently, they were invited to participate in Lifelines ICAS. Descriptive statistics were used to describe all informal caregivers in the 2nd Lifelines follow-up questionnaire

There is wide variation in reported impact of caring on caregiver well-being, and often a negative appraisal of caregiving. Researchers are beginning to question the robustness of the evidence base on which negative appraisals are based. The present study aimed to draw on data from a population-representative sample to describe the health, quality of life, and impact of caring of informal caregivers of people with an intellectual disability (ID). Informal carers of people with ID (N=260) were identified among 2,199 carers in the English Survey of Carers in Households 2009/10. Generalised estimating equations explored the association between socio-demographic and caring profile with quality of life, physical health status, and impact on psychological health and personal life. Compared to other caregivers, providing care to a person with ID was not associated with reduced quality of life. There was a 82% increased risk of reporting poorer health status, even though poorer health was not likely to ...

The role of family caregivers has dramatically expanded to include performing medical/nursing tasks once only provided in hospitals, says a new report by the AARP Public Policy Institute and the United Hospital Fund. The report is based on a nationally representative population-based online survey of 1,677 family caregivers to determine what medical/nursing tasks they perform. Almost half (46%) of caregivers performed medical/nursing tasks for family members with multiple chronic physical and cognitive conditions. Three out of 4 (78%) family caregivers who provided medical/nursing tasks were managing medications, including administering intravenous fluids and injections. Caregivers reported finding wound care very challenging; more than a third (38%) wanted more training. The report reveals the complexity and difficulty of specific tasks, the lack of support and training family caregivers receive, and the effect on their quality of life. It makes 10 recommendations, including:. ...

The role of family caregivers has dramatically expanded to include performing medical/nursing tasks once only provided in hospitals, says a new report by the AARP Public Policy Institute and the United Hospital Fund. The report is based on a nationally representative population-based online survey of 1,677 family caregivers to determine what medical/nursing tasks they perform. Almost half (46%) of caregivers performed medical/nursing tasks for family members with multiple chronic physical and cognitive conditions. Three out of 4 (78%) family caregivers who provided medical/nursing tasks were managing medications, including administering intravenous fluids and injections. Caregivers reported finding wound care very challenging; more than a third (38%) wanted more training. The report reveals the complexity and difficulty of specific tasks, the lack of support and training family caregivers receive, and the effect on their quality of life. It makes 10 recommendations, including:. ...

38% of caregivers report high emotional stress from the demands of caregiving.. With an average household income of $45,700, caregivers report not only emotional strain, but financial strain. Higher-hour caregivers report difficulty in finding affordable caregiving services, such as delivered meals, transportation, or in-home health services, in the community for them and their loved ones. Caregivers who live more than an hour away from their care recipient also report higher levels of financial strain (21 percent), perhaps because 4 out of 10 long-distance caregivers report the use of paid help (41 percent).. Also surprising are findings from subpopulations of caregivers. Today, nearly a quarter of Americas caregivers are millennials between the ages of 18 and 34 and are equally likely to be male or female. On the other end of the spectrum, caregivers ages 75 or older are typically the sole support for their loved one, providing care without paid help or help from relatives and friends. Men, a ...

Caregiver assessment needs to be multidimensional and reflect culturally competent practice. [19] Studies have shown that cultural beliefs play a part in influencing family emotions and concerns in the cancer experience.. In a meta-analysis of 116 empirical studies, Asian American caregivers were found to provide more caregiving hours than white, African American, and Hispanic caregivers; to use lower levels of formal support services; and to have fewer financial resources, lower levels of education, and higher levels of depression than the other subgroups. [19] These findings are important for the oncology team because caregivers with no outside help are more depressed than those who receive help. A study involving unmet needs and service barriers among Asian American caregivers found that caregivers refused outside help because they felt too proud to accept it or didnt want outsiders coming in; other reported barriers included bureaucracy too complex or cant find qualified providers. ...

This study examines racial and ethnic variations in the types and sources of support caregivers receive. We conducted telephone surveys of 1,643 randomly selected respondents in California who provided care to someone age 50 or over. African-American, Asian/Pacific Islander, Hispanic/Latino, and white caregivers were compared with regard to support received from formal and informal sources. Patterns of support use were found to vary by racial/ethnic group, with Asian and Pacific Island caregivers most likely to receive help from informal sources only, white caregivers most likely to receive help from formal sources only, and African-American caregivers most likely to rely on a combination of formal and informal support. Results from this study underscore the importance of developing culturally appropriate systems of caregiver support that reflect the needs and practices of diverse caregiver groups. Further research is needed regarding the intersection of race, ethnicity, and other personal or ...

Published in News Stories on November 19, 2015 The Schwartz Center for Compassionate Healthcare, a national nonprofit leading the movement to bring compassion to every patient-caregiver interaction, has named Dr. Rick Boyte as the Schwartz Center National Compassionate Caregiver of the Year (NCCY) Award recipient. Boyte, left, is congratulated by surgeon and author Dr. Atul Gawande. Photo courtesy of Randy Goodman.Award-winning author and surgeon Dr. Atul Gawande presented the award Nov. 18 at the 20th Annual Kenneth B. Schwartz Compassionate Healthcare Dinner, where Boyte was honored in front of 2,000 health care leaders, clinicians, patients and family members.This year marks the Schwartz Centers 20th anniversary and the national expansion of the NCCY Award program, which was established to elevate excellence in compassionate care. For the past 16 years, the Schwartz Center has honored outstanding health care providers who display extraordinary devotion and compassion in caring for patients and

The Alzheimers Association designates the month of November as National Family Caregivers Month. According to recent Connecticut statistics, in 2016, there were 177,000 dementia caregivers providing 201,000,000 total hours of unpaid care at a total value of $2,548,000,000. This also created higher direct caregiver health costs of $153,000,000. Currently in Connecticut, there are an estimated 75,000 persons aged 65 or over with Alzheimers Disease. The estimates increase in 2020 to 80,000, and by 2025 to 91,000 persons.. Nationwide, in 2017, more than 15 million family members and friends provided 18.2 billion hours of unpaid care to people with Alzheimers and other dementias, at an economic value of over $230 billion. Of the unpaid Alzheimers and dementia caregivers, 69 percent have provided care for the past year, and more than 39 percent have been providing care for four or more years.. Caring for an individual creates or aggravates the health problems of a caregiver. Nearly 60 percent of ...

Introduction. Only a few studies have been conducted to determine the level of knowledge among caregivers about Parkinsons disease (PD). The aim of the current study was to determine the knowledge of PD among caregivers at a movement disorder clinic in Turkey. Methods. We conducted a questionnaire based interview with the subjects in a tertiary care neurology facility in Turkey. The questions were divided into two parts covering the symptomatology and treatment of PD. A questionnaire consisting of 10 questions was applied to the subjects who had to mark the correct option in a stipulated time. Results. Eighty caregivers were included in the study. The caregivers mean age was 47.94 years (SD = 12.40). There were 47 female caregivers (58.8%). The most well-known question was that the number of drugs given to the patient may vary with time (76.3%), whereas the benefit noted in the patients treatment decreases over time was the least known question (11.3%). Discussion. This study is the first ...

Possible selves are personalized representations of the self in the future that may motivate individuals to strive toward desired states and avoid feared outcomes. Possible selves have been explored among many populations but have not been investigated among Alzheimers disease caregivers. In this study, the health-related possible selves of two groups were compared: individuals caring for someone with Alzheimers disease, and individuals who are not caring for anyone with Alzheimers disease. It was hypothesized that an individuals status as an Alzheimers caregiver would increase the likelihood of having possible selves related to the development of Alzheimers disease. It was also hypothesized that caregivers would engage in health behaviors at a lower rate than non-caregivers. Thirty-one non-caregivers and 18 Alzheimers disease caregivers participated in this study. Caregivers were significantly younger and tended to be White, while non-caregivers were significantly older and tended to be ...

Helping caregivers of persons with Alzheimers disease. Alzheimers disease (AD) is a serious brain disorder that causes a deterioration of memory and thinking skills, along with unpredictable behaviors. In the U.S., over 70% of the 4.5 million persons with AD remain at home, with a spouse, family member, or friend serving as an informal caregiver. Caring for someone with AD, though, can be very burdensome. The Resources for Enhancing Alzheimers Caregiver Health (REACH) (http://www.edc.pitt.edu/reach/) program taught caregivers about AD, and provided strategies to help them manage troublesome AD behaviors. REACH also emphasized ways for caregivers to manage their stress, maintain social support, and enhance their own self-care activities. In one study, compared to caregivers who received basic AD education, REACH caregivers reported better physical, emotional, and overall health, and lower depression ...

Caregiver burden is high among caregivers of PD patients (CPD). Neuropsychiatric symptoms are leading contributors to CPD burden, but whether different symptoms differentially impact domains of caregiver burden is not known. Our objective was to examine which neuropsychiatric symptoms and demographic factors contribute to different domains of caregiver burden in PD.This was a cross-sectional online survey study. Participants were recruited from the Fox Insight (FI) study and were eligible if they identified themselves as a CPD. The primary outcome was the Caregiver Burden Inventory (CBI) total score and its 5 sub-domain scores. The Neuropsychiatric Inventory Questionnaire (NPI-Q) assessed caregiver-reported neuropsychiatric symptoms in the care recipient. Multivariable linear regression models were used to characterize the associations between NPI-Q symptom severity scores and CBI scores. Covariates were caregiver age, sex, education, and caregiving duration.The sample consisted of 450 CPD, mean ...

TY - CHAP. T1 - Psychological distress, fatigue, burden of care, and quality of life in primary caregivers of patients with breast cancer undergoing autologous bone marrow transplantation.. AU - Gaston Johansson, Fannie. AU - Lachica, Evelyn M.. AU - Fall-Dickson, Jane M.. AU - Kennedy, M. John. PY - 2004/11. Y1 - 2004/11. N2 - PURPOSE/OBJECTIVES: To determine the effects of sociodemographic variables, psychological distress, fatigue, and quality of life (QOL) on burden of care in primary caregivers of patients with breast cancer undergoing autologous bone marrow transplantation (BMT). DESIGN: Descriptive, correlational, predictive. Setting: Urban National Cancer Institute-designated comprehensive cancer center in the eastern United States. SAMPLE: Convenience sample of 102 primary caregivers. METHODS: Participants completed the sociodemographic data form, Piper Fatigue Scale, Beck Depression Inventory, State-Trait Anxiety Inventory, QOL Index, and Measurement of Objective and Subjective Burden ...

The Dementia Caregivers Support Group held at Duncaster on the last Monday of each month will next meet Monday, March 27, from 10:30 a.m. to noon, in the Hospitality Room at Duncaster, 30 Loeffler Road. Facilitators are Michelle Wyman, LSW, CDP, and Sara Therion, MSW. To support those who care for a loved one with Alzheimer's or dementia, topics will include communication techniques, caregiver support, safety issues, benefits of activities and daily routine, family dynamics, stages of disease process, behavior management and more. Hartford HealthCare Center for Healthy Aging, Duncaster, and Hartford Hospital Senior Primary Care at Duncaster are sponsoring ...

The Dementia Caregivers Support Group held at Duncaster on the last Monday of each month will next meet Monday, Feb. 27, from 10:30 a.m. to noon, in the Hospitality Room at Duncaster, 30 Loeffler Road. Facilitators are Michelle Wyman, LSW, CDP, and Sara Therion, MSW. To support those who care for a loved one with Alzheimer's or dementia, topics will include communication techniques, caregiver support, safety issues, benefits of activities and daily routine, family dynamics, stages of disease process, behavior management and more. Hartford HealthCare Center for Healthy Aging, Duncaster, and Hartford Hospital Senior Primary Care at Duncaster are sponsoring ...

OBJECTIVE: This study aimed to investigate health-related quality of life of palliative care (PC) clients and their caregivers, at baseline and follow-up, following a referral to a community PC service.METHOD: Quality of life of clients and their caregivers was respectively measured using the McGill Quality of Life instrument (MQoL) and the Caregiver Quality of Life Cancer Index (CQoLC) instruments. Participants were recruited from June 8 to October 27, 2006. This study was undertaken in one zone of an Area Health Service in New South Wales, which has a diverse socioeconomic population. The zone covers an area of 6237 km2 and is divided into five sectors, each with a PC service, all of which participated in this study.RESULTS: Data were obtained from 49 clients and 43 caregivers at baseline, and 22 clients and 12 caregivers at 8 week follow-up. Twenty-one participants died and six moved out of the area during the study. At baseline, clients reported a low mean score for physical symptoms (3.3 ± ...

Background As the global population ages, support for family caregivers who provide the bulk of care to community-dwelling older people is becoming ever more important. However, in many countries, homecare-service practitioners currently do not follow a systematic approach to assessing and responding to caregiver needs. Objectives The aim of this study was to explore the experiences of caregivers and practitioners who took part in a field test of the Family Caregivers Support Agreement (FCSA) tool, a modified version of the Carers Outcome Agreement Tool (COAT) initially developed as the result of an Anglo-Swedish study. Both the COAT and the FCSA are designed to facilitate partnerships between caregivers and practitioners so that needs assessment and subsequent support services are negotiated and agreed so as to meet caregiver expectations. Design and participants A qualitative design was adopted and data were collected through focus groups with six practitioners (nurses and social workers) ...

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Depression often strikes people caring for Alzheimers patients. Learn more about the link between Alzheimers caregivers and depression at Everyday Health.

Communication difficulties between individuals with Alzheimers disease (AD) and their caregivers are commonly reported. Caregivers carry the burden of managing breakdowns in communication because people with AD are often unable to modify their communicative behavior. To assist caregivers in this endeavor, clinicians and caregiving professionals have offered a variety of strategies aimed at accommodating the individuals declining abilities. Many of these strategies are intuitively appealing, but they lack empirical support. This study investigated the effectiveness of 10 frequently recommended communication strategies when employed by family caregivers of persons with AD. In particular, we assessed (a) which strategies family caregivers report using and with what degree of success, (b) which of these strategies are used by caregivers in actual interactions with their spouses, and (c) which strategies contribute to improved communication. The study included a self-report questionnaire and ...

This study examined the effects of a 120-hour preschool training course on caregivers behavior and childrens development in early-years settings. Sixteen caregivers attending this training course and 17 comparison caregivers were assessed on a measure of caregiver sensitivity in the child-care centers in which they were employed. Sixty-eight children, two from each center, were assessed for social and cognitive competence. Both the training and comparison caregivers and children were observed before and after the former group attended the training course. Caregivers who received training made significant gains in positive relationship and decreased in levels of detachment. The children in their care made significant gains in complex social and cognitive play from pre- to post-training. The comparison group adults and children showed no significant improvements from pre- to post-test times.. ...

Men caregivers face caregiving burden, have weak support networks and are less likely to seek out programs which increase their caregiving capabilities and help them cope with this burden. Using the 2011 and 2015 National Study of Caregiving (NSOC) database and hierarchical regressions, we studied the emotional, financial, and physical burden of male caregivers as spouses, sons, and other caregivers by assessing the impact of caregiver characteristics, tasks and resources for each subgroup. We highlighted the importance of using a nationally representative database for men caregivers only and emphasized that these caregivers are not a monolithic group. We found that all caregivers experienced these three burden types, particularly elevated emotional stress, with sons reporting the highest emotional and financial strain levels. Assisting with personal care was the most stressful task and caregivers vastly under-utilized support and training. Our results suggest that burden suppressants included having

TY - JOUR. T1 - Health and frailty among older spousal caregivers:. T2 - an observational cohort study in Belgium.. AU - Potier, Florence. AU - Degryse, Jean-Marie. AU - Bihin, Benoît. AU - Chainiaux, Florence. AU - Charlet-Renard, Chantal. AU - Martens, Henri. AU - de SAINT HUBERT, Marie. PY - 2018/11/26. Y1 - 2018/11/26. N2 - Among older couples, spouses are first in line to provide care, and they are key elements in the home support of dependent older persons. In this context, ensuring the health of these older spousal caregivers should be an important issue for all of the providers who care for older adults. The aim of this study was to longitudinally assess the health of older spousal caregivers considering frailty, nutrition, cognition, physical performance and mood disorders.. AB - Among older couples, spouses are first in line to provide care, and they are key elements in the home support of dependent older persons. In this context, ensuring the health of these older spousal caregivers ...

Caregiver depression and age predicted the first two factors. Caregivers satisfaction with their relationship with the patient and patients functional independence also predicted the direct impact of caregiving upon caregivers lives. Patients behavioral problems and caregivers relationship satisfaction predicted frustration/embarrassment.. Caregiver burden has been found to be associated with poorer physical health, and increased rates of emotional distress and depression. This study shows that caregiver burden has several dimensions, each with its own predictors. The finding suggests that caregivers may benefit from interventions tailored to their specific subtype of burden.. http://www.eurekalert.org/pub_releases/2013-07/l-rhc071813.php. [3608] Springate BA, Tremont G. Dimensions of Caregiver Burden in Dementia: Impact of Demographic, Mood, and Care Recipient Variables. The American Journal of Geriatric Psychiatry [Internet]. 2014 ;22(3):294 - 300. Available from: ...

Caregiver depression and age predicted the first two factors. Caregivers satisfaction with their relationship with the patient and patients functional independence also predicted the direct impact of caregiving upon caregivers lives. Patients behavioral problems and caregivers relationship satisfaction predicted frustration/embarrassment.. Caregiver burden has been found to be associated with poorer physical health, and increased rates of emotional distress and depression. This study shows that caregiver burden has several dimensions, each with its own predictors. The finding suggests that caregivers may benefit from interventions tailored to their specific subtype of burden.. http://www.eurekalert.org/pub_releases/2013-07/l-rhc071813.php. [3608] Springate BA, Tremont G. Dimensions of Caregiver Burden in Dementia: Impact of Demographic, Mood, and Care Recipient Variables. The American Journal of Geriatric Psychiatry [Internet]. 2014 ;22(3):294 - 300. Available from: ...

As dementia progresses, caregivers increasingly have to manage the decline of food-related abilities with little outside information or input from support services The provision of food coping skills and knowledge can lessen the burden on caregivers. However, there is little research on caregivers perspectives on food-related services. This paper reports on a qualitative study to investigate informal caregivers experiences of, and views on, food-related information and support services in dementia. Twenty informal caregivers were interviewed and the transcripts from these interviews were analysed using both deductive and inductive thematic analysis. Four categories emerged. Direct food-related Information, covers written material, training, Direct food-related informal support: lunch clubs, Indirect non-food related formal support services covers respite services and domestic help at home. Finally no services required covers those who did not feel they needed any form of intervention ...

Although family caregivers of patients with lung and other cancers show high rates of psychological distress, they underuse mental health services. This qualitative study aimed to identify barriers to mental health service use among 21 distressed family caregivers of lung cancer patients. Caregivers had not received mental health services during the patients initial months of care at a comprehensive cancer centre in New York City. Thematic analysis of interview data was framed by Andersens model of health service use and Corrigans stigma theory. Results of our analysis expand Andersens model by providing a description of need variables (e.g. psychiatric symptoms), enabling factors (e.g. finances), and psychosocial factors associated with caregivers non-use of mental health services. Regarding psychosocial factors, caregivers expressed negative perceptions of mental health professionals and a desire for independent management of emotional concerns. Additionally, caregivers perceived a ...

Spinal Cord Injury (SCI) results in a devastating disability that affects not only the individual victim but also the entire family system. Many family members find themselves taking on the role of primary caregiver for their loved one living with SCI. The purpose of this study was to explore the lived experience of family caregivers of SCI survivors. The search for potential stressors affecting caregivers was explored. Findings from this study are intended to provide input into specific nursing interventions that can be used to better prepare the caregiver for that role. This study was conducted using a qualitative research design. Two singular case studies were used to explore the caregiving experience from a holistic approach. Interviews, observations, and a journaling activity comprised a triangular approach to data collection and enhanced the rigor of this study. Multiple recurrent concepts extracted from the literature provided an organizational framework to categorize, present, and interpret the

Psychotic symptoms are a common nonmotor complication in Parkinsons disease. Research exploring the impact of psychotic symptoms on coping by caregivers of people with Parkinsons disease is sparse. The aim of this study was to explore the experiences of individuals living with a partner with Parkinsons disease and psychotic symptoms. Ten female caregivers from the north west of England were interviewed and interpretative phenomenological analysis was used to identify themes within their accounts. Four themes emerged from the analysis: uncertainty and the search for understanding; adapting to symptoms over time; the contribution of psychosis to changing identities; and the use of social comparison as a coping strategy. These themes highlighted the changing identity of their partner as a person with Parkinsons disease and a number of strategies that caregivers had developed to cope with psychotic symptoms. The themes are explored in detail and clinical implications are considered.. ...

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Primary family caregivers were selected because the literature supported that 1 individual typically is responsible for caregiving, usually the wife, daughter, or daughter-in-law.20,21⇓ Primary family caregivers (1) resided within a 100-mile radius of the study hospitals (for first home skill training session); (2) had primary nonremunerative responsibility for the stroke survivor an average of at least 6 hours per day after discharge; (3) were related by blood or marriage; (4) were 18 years of age or older; (5) were oriented and able to read and speak English and hear well enough to engage in telephone contacts; (6) were agreeable to random assignment to either the treatment, sham intervention, or control group; and (7) were reachable by telephone.. The stroke survivors were 35 years of age or older and had an admitting diagnosis of ischemic stroke (includes brain infarction) caused by either thrombi or emboli, had functional independence measure (FIMSM) scores22 between 36 and 96, and were ...

U.S., Feb. 14 -- ClinicalTrials.gov registry received information related to the study (NCT03048565) titled A Trial of a Mindfulness Based Cognitive Therapy Programme for Informal Caregivers of People With Chronic Illnesses on Feb. 6. Brief Summary: This is a pilot feasibility study testing a mindfulness based intervention with caregivers of people with chronic illnesses Study Start Date: Study Type: Interventional Condition: Chronic Illness Intervention: Behavioral: MBCT Mindfulness is a skill that helps people manage their thoughts so that the stressful impact of unhelpful thoughts can be limited. The aim of the mindfulness based intervention in this study is to help caregivers manage stressful thoughts and events and help them respond to life stressors in a positive way. Recruitment Status: Not yet recruiting Sponsor: University of Dublin, Trinity College Information provided by (Responsible Party): Margarita Corry, University of Dublin, Trinity College ...

WASHINGTON, DC (PRWEB) AUGUST 31, 2017: As many as 30 million Americans are affected by a rare disease or condition, and many of these individuals receive unpaid care from friends, family, and neighbors. While much of the focus on caregiving has historically been on the aging population in America, policymakers are beginning to take notice of the impact of caring for rare disease patients on the volunteer friends and family who provide care, known as family caregivers.. The National Institutes of Health estimates that there are nearly 7,000 rare diseases, many of which are genetic and can result in life-altering disability or shortened lifespans. Many people who have rare diseases are misdiagnosed or undiagnosed, leaving their family caregivers to experience unique challenges related to access to appropriate medical care and medications, and the emotional burden associated with the uncertainty of managing the disease and its prognosis.. To study the impact of rare disease on family caregivers, ...

Challenge: Almost 20 million children lack basic immunization worldwide, and 4 million of those children live in Nigeria (WHO, 2017). In northern states in Nigeria which is the site of the proposed study, 71 percent of children are not fully vaccinated (NICS, 2018). Lack of awareness is the reason for the incomplete vaccination among almost 40 percent of caregivers who did not have their children fully vaccinated. This lack of awareness might be attributed to the lack of social norms on vaccination; lack of the consensus that caregivers take children to health clinics for vaccination a certain amount of times at specific timing, in the community. Our Target Population: End users are caregivers of young children aged 12 months old or younger. Our target is caregivers who reside in urban setting where the mobile phone service is easily accessible. Caregivers can directly benefit from improved vaccination status among their children, which can even improve their health outcomes in later life. ...

Caregivers and patients with TBI are recruited from the acute medical and inpatient rehabilitation units at Harborview Medical Center and the University of Washington Medical Center in Seattle, WA. After informed consent is obtained, information is gathered from the caregiver about his/her living situation, support systems, and the nature of the caregiving relationship. Additional information is gathered from the person with TBI about how he/she is doing cognitively, socially, and emotionally. Prior to discharge home, caregivers are randomly selected to receive either standard care (typical support and/or resources) or standard care plus problem-based telephone counseling.. The telephone follow-up group receives a telephone call from a caregiver support specialist at 2, 4, 6, 8, 10, 12, 14, and 16 weeks after discharge of the patient with TBI home with the option of two additional calls. During those calls, the caregiver support specialist provides training on problem-solving skills along with ...

While the keeping of pets has been shown to protect against childhood allergic disease and obesity, less is known regarding potential associations of prenatal pet keeping and attention deficit hyperactivity disorder (ADHD). We sought to examine the associations between prenatal dog or cat keeping with caregiver-reported ADHD in preadolescents in the Wayne County Health, Environment, Allergy and Asthma Longitudinal Study (WHEALS) birth cohort (N = 1258). At an interview with the caregiver at child age 10-12 years, caregivers reported if the WHEALS child had ever been diagnosed with ADHD. Similarly, during an interview with the mother prenatally, pet keeping (defined as dog or cat kept inside ≥1 h/day) was ascertained. Logistic regression models were fit to examine the association of prenatal pet keeping (dog keeping and cat keeping, separately) with ADHD. A subset of 627 children were included in the analyses: 93 who had ADHD and 534 with neurotypical development. After accounting for confounders and

Citation Vickery, B., Mittman, B., Connor, K., Pearson, M., Della Penna, R., Ganiats, T., DeMonte, R.,Chodosh, J., Cui, X., Vassar, S., Duan, N. & Lee, M. (2006). The effect of a disease management intervention on quality and outcomes of dementia care. Annals of Internal Medicine, 145(10), 713-726.. Design Randomized, controlled trial. Participants The participants of this study were n=408 patients with dementia age 65 and older paired with n=408 informal caregivers. Outcome / Dependent Variables The effects of the intervention were studied on 23-item list of caregiver and care receiver measures (primary outcomes: assessment, treatment, education and support, and safety). Patient / caregiver health and quality of care were secondary measures.. Procedure 238 dyads were assigned a care manager who conducted a structured home assessment and ongoing follow-up based on need and formal reassessment every 6 months. Care managers collaborated with caregivers to: prioritize problem areas, teach ...

Krista MacKinnon, a mental health specialist, developed and runs an online support and education community called FamiliesHealingTogether.Com. | Online Support for Family Caregivers Caring for Mental Health Challenges Tuesday, September 2, 2014 on Family Caregivers Unite! | VoiceAmerica - The Leader in Internet Media

The National MS Society and MS activists around the country applaud Representatives Jim Langevin (RI-2) and Cathy McMorris Rodgers (WA-5) for recently introducing the Lifespan Respite Care Reauthorization Act of 2011(H.R. 3266). This bipartisan effort is critically important for people living with MS and for their family caregivers. Up to one quarter of individuals living with MS will need long-term care services at some point. Often, a family member steps into the role of primary caregiver, becoming some of the 65 million family caregivers that provide 80% of our nations long-term care. ...

/PRNewswire/ -- At CES 2019 (Booth #44219, January 8-11, Las Vegas, NV), Royal Philips (NYSE: PHG, AEX: PHIA), a global leader in health technology, today...

The Singapore Caregiver Quality of Life Scale (SCQOLS) is a questionnaire that measures five domains of quality of life of family caregivers of patients. It was developed through qualitative research with family caregivers in Singapore and quantitative evaluation for validity and reliability in over 600 family caregivers of patients with advanced cancer in Singapore. Two short versions of the SCQOLS have also been developed and validated (SCQOLS-10 and SCQOLS-15). They have an English, a Chinese and a Malay version. The questionnaires are distributed free of charge upon receipt of a request form ...

Objective. This study examines the experiences of the caregiver involved in the placement process of an older family member into a nursing home facility. Background. The caregiving journey is both complex and challenging. Family caregivers provide many time and labor intensive tasks that have been associated with increased stress and burden. Caregivers are often unable to maintain care at home and have to consider nursing home placement. The caregivers role within the nursing home placement process and their continued responsibility post-placement has not been well explored. Methods. This qualitative descriptive study utilized the Family Management Style Framework to understand how caregivers define, manage, 33 and perceive the consequences of the nursing home placement process. 10 primary family caregivers were interviewed shortly after placement and then again 3-months post-placement. The results of the study were organized to understand the contextual influences of each individual case and to

May 6, 2015 - Do you know a pig caregiver who goes above and beyond to consistently provide superior pig care? Nominate him or her for the Honoring Caregivers award from Zoetis. Nominations for the Honoring Caregivers award - which recognizes exemplary pig caregivers and their positive contributions to the pork industry - are being accepted online at http://o.zoetisus.com/honoring-caregivers.html until Monday, June 22, 2015. Nominations also will be accepted at the Zoetis booth (#151 in the Varied Industries Building) at World Pork Expo in Des Moines, Iowa. From the nominations, five caregivers will be selected as winners and receive a trip to New York City in September 2015. They will be honored at an awards reception where they will be recognized for their dedication to the pork industry. Winners also will receive a $1,000 cash prize. Farm owners, veterinarians and others working in the pork industry are encouraged to nominate qualified farm employees. Nominated caregivers will be evaluated by ...

Coping with Cancer provides resources for cancer survivors, cancer caregivers, and cancer medical professionals. Articles and stories are presented in a warm and friendly, easy-to-use format, and provides information by specific cancer type, general knowledge about living with cancer, and wellness and inspirational topics. The resource guides are the most complete listings found anywhere. The Coping media team is constantly adding relevant articles and trustworthy resources.

What is the Family Caregiver Program at CVCOA? Family caregivers may help a spouse, partner or another relation. Family Caregivers might be the sole caregiver or have others providing additional help. CVCOA recognizes that being a caregiver is challenging and we are here to support you with resources and tools needed to care for those you love with expertise, activities, resources, education, and support. These are the caregiver program offerings here at Central Vermont Council on Aging: Cargiver Teas, retreats and training opportunities, Memory Cafes (called Memorable Times Cafe) for those with memory loss and their caregivers, Powerful Tools for Caregivers, a 6-week educational course, dementia respite grant, and a dedicated staff director, Barb Asen. Our family caregiver programs have been extended to Morrisville, Stowe, Randolph, and continue in Barre/Montpelier. Please call Barb Asen at 476-2681 or email Barb at [email protected] . ...

WHATS NEXT. 9.14.17-9.15.17 Discussed respite care needs and challenges with family caregivers and shared my Respite Care Share concept at Caring Across Generations Field Gathering.. 3.22.17: Respite Care Share is part of the poster sessions at the Aging in America Conference in Chicago. Being able to share the Respite Care Share concept with so many movers and shakers within the aging and caregiving communities is an honor. The networking done at this event will help take Respite Care Share to the next level.. 2.15.17: I attended a caregiver support group at Amys Place, a dementia cafe in metro Atlanta to introduce Respite Care Share and hand out caregiver care bags. The feedback I received was very positive and I hope to do a similar event later this year.. 1.5.17: I have reached out to a metro Atlanta memory cafe, Amys Place, and plan on presenting Respite Care Share to family caregivers at an event in February. The prototype is a caregiver care bag. The results of that test run will be ...

The findings of this study suggest that direct cost (out-of-pocket expenses) is a major source of cost of family caregivers of the elderly. The estimated average direct cost per month was US$115.72. However, with 94% of caregivers reporting monthly income of less than US$240, it is clear that at least 48% of monthly income is spent on caregiving for an elderly person in the household. This is indicative of a high financial stress and may consequently explain the high burden level reported by most caregivers in this study. Similarly, Duncan et al. [14] reported that those caregivers with less financial means have significant care-related expenses that represent a larger proportion of their household incomes compared to those caregivers with higher incomes.. Non-medical costs accounted for the larger amount of the direct cost, with cost of household supplies constituting the highest proportion of the direct cost. The estimated average monthly cost of household supplies to a family caregiver was ...

Boston, MA (March 22, 2011) - The Schwartz Center for Compassionate Healthcare, a nonprofit organization dedicated to strengthening the patient-caregiver relationship, is seeking nominations for its 2011 Schwartz Center Compassionate Caregiver Award®. For the first time since the program began in 1999, caregivers from all six New England states are eligible. The winner will receive $5,000 and be honored at the Kenneth B. Schwartz Compassionate Healthcare Dinner on November 17th at the Boston Convention Center. Last years event attracted more than 2,000 attendees. Four finalists will also be recognized and receive $1,000 each. Nominations are due May 18, 2011. Information on how to nominate a caregiver for this prestigious award is available on the Schwartz Centers website.. The center and award are named after Ken Schwartz, a Boston healthcare attorney who died of lung cancer in 1995 and came to believe that medicine is about more than performing tests and surgeries, or administering drugs. ...

The Society also supports the PCPCCs recommendation that the federal government establish a refundable tax credit for family caregivers to help families with the costs of providing care. The refundable tax credit, an enhancement to the family caregiver tax credit announced in the March federal budget, would provide a lump sum reimbursement of caregiver expenses, which would be of benefit to lower income families.. More must be done in Canada to ensure people dying from cancer and other serious illnesses have access to high-quality palliative care no matter where they live, says Demers. And it is simply unacceptable for family caregivers, who are already giving so much, to also have to deal with financial difficulties. The Society will continue to lobby the federal government to take action on these two important issues. The report - Not to be forgotten: care of vulnerable Canadians - is availableon the website for the Parliamentary Committee on Palliative and Compassionate Care: ...

The Author(s) 2019. Background: Determining the effect of caregiving and bereavement remains a challenge. To date, no study has employed a comparison group to investigate caregivers grief, quality of life and general health in relation to non-caregivers. Aim: We aimed to determine how caregivers grief, quality of life and general health changed following death compared to non-caregivers and whether pre-death grief predicted these outcomes. Design: A prospective, longitudinal study of family caregivers and a comparison group matched for age, gender and postcode was conducted. All participants completed questionnaires at four points - once pre-death and three times post-death (3-4 months, 6-7 months and 9-10 months). Setting/participants: Participants (N = 70) were family caregivers of persons receiving palliative care, mostly for cancer, recruited from three palliative care providers in Western Australia and matched comparisons recruited from advertisements. Results: There were significant ...

Adverse social factors, such as insurance status, food insecurity, lack of funds for medication and others, may lead to worse heart failure outcomes. Caregiving by family and friends of people with heart failure is increasingly complicated, is progressively more challenging and takes a financial, physical and emotional toll on caregivers.

My primary area of research is care of persons experiencing complicated grief, a persistent and disabling grief experience. We have completed randomized-controlled trials examining Complicated Grief Group Therapy (CGGT) in two populations; suicide survivors and bereaved dementia caregivers. We are beginning a study adapting CGGT into a prevention model for dementia caregivers at risk for complicated grief, funded by the National Alzheimers Association.

And more! For a full listing of speakers, agendas and registration opportunities, visit https://www.alz.org/newmexico/helping_you/caregiver-conference. Alzheimers takes a devastating toll - not just on those with the disease, but on entire families. In our own state, 43,000 New Mexicans over the age of 65 are living with Alzheimers disease and there are 108,000 unpaid dementia caregivers, many of whom are family members, contributing 123 million hours of care valued at $1.6 billion.. We know that dementia caregiving is the toughest job on earth, said Executive Director Tim Sheahan of the Alzheimers Association NM Chapter. We want to honor caregivers with this conference during National Family Caregivers Month and Alzheimers Awareness Month, but we also want to connect them with free, useful training, resources and support that they may not be aware of. We also feel like this new web-based platform allows to achieve that goal in a more direct and accessible way than ever before. Safety is ...

A new study reveals that optimism and self esteem play an important role in the development of depression among stroke survivors and their spouse caregivers.

Abstract Objective: To measure the benefits to household caregivers of a psychotherapeutic intervention for adolescents and young adults living in a war-affected area. Methods: Between July 2012 and July 2013, we carried out a randomized controlled trial of the Youth Readiness Intervention - a cognitive-behavioural intervention for war-affected young people who exhibit depressive and anxiety symptoms and conduct problems - in Freetown, Sierra Leone. Overall, 436 participants aged 15-24 years were randomized to receive the intervention (n = 222) or care as usual (n = 214). Household caregivers for the participants in the intervention arm (n = 101) or control arm (n = 103) were interviewed during a baseline survey and again, if available (n = 155), 12 weeks later in a follow-up survey. We used a burden assessment scale to evaluate the burden of care placed on caregivers in terms of emotional distress and functional impairment. The caregivers mental health - i.e. internalizing, externalizing and ...

Family caregivers may be spouses, partners, children, relatives, or friends who help the patient with activities of daily living and health care needs at home. Many cancer patients today receive part of their care at home. Hospital stays are shorter than they used to be, and there are now more treatments that dont...

As far as we are aware, this is the first literature review that has focussed on medicines management in people living in the community with dementia. Other reviews have included people living in care homes [14] and covered older people in general [8, 14]. Furthermore neither of these studies included the views of healthcare professionals or used an appraisal tool to assess the quality of the papers [8, 14]. Compared with these earlier reviews, there is limited data specifically focussed on medicines management in people living in the community with dementia. This current review also included the experiences of this population with healthcare professionals. People with dementia may lack the ability to understand and manage their medication. This increases the risk of non-adherence and results in informal carers taking on responsibility for medicines management as dementia progresses. This change in responsibility may affect the quality of life of the informal carer.. This review has identified ...

A new comprehensive resource is now available to help family caregivers of older adults cope with issues often faced when caring for a senior loved one. The Home Instead Senior Care® network has launched Caring for Your Parents: Education for the Family CaregiverSM. This family caregiver support series addresses senior resistance to care and features 17 topics of interest to caregivers such as identifying the signs that care is needed, selecting an in-home care provider, communicating with seniors and healthcare providers, and providing at-home care in a recession. Materials including workbooks and videos are available at www.caregiverstress.com.. Individuals also will find tips on coping with caregiver stress and a handy stress meter to help gauge stress levels. In a survey on the website, 58 percent of family caregivers responded they are getting ill more frequently than they did four years ago. Additionally, 81 percent said their loved ones needs are becoming overwhelming compared with ...

Bulletin Board: A Post From the Community | (Bloomingdale, IL) Eighty-five percent of all long term care services are provided by unpaid caregivers¿and one fourth of those are family members. In Illinois, there are approximately 1.2 million people who act as a family caregiver. The term caregiver refers to anyone who provides assistance to someone else who needs it. This person in need could be a husband who has Alzheimer's disease, a friend with cancer or a mother who has suffered a stroke. Family caregiving is very common, and often that caregiver is overlooked as someone who might need care too. Providing a break¿also called respite--to caregivers not ...

The first step to getting the best treatment While many caregivers are finally able to catch up on much needed rest, loneliness, health professional such as a psychiatrist, guilt and monitoring the care a loved one psychologist, or social worker. At the same receives in this new location can add new time, schedule a physical exam with your stress. Many caregivers feel depressed at the doctor. Certain medications, as well as some time of placement and some continue to feel medical conditions such as viral infection, can cause the same symptoms as depression, People assume that once caregiving is over, the stress from providing hands-on care will go away. Yet, researchers found that even lab tests and an interview that tests for three years after the death of a spouse with dementia, some former caregivers continued to experience depression and loneliness. In an effort to return their life to normal, Although its not unusual for a physician to former caregivers may need to seek out help medication ...

Objective: To explore and describe persons with stroke and their caregivers restrictions in participation in everyday occupations, i.e. occupational gaps, 3-6 months post-stroke, in relation to life satisfaction, combined life satisfaction, caregiver burden, perceived impact of stroke, and activities of daily living. Design: Cross-sectional study. Subjects: Persons with stroke and their caregivers (105 dyads). Methods: The Occupational Gaps Questionnaire, Life Satisfaction Checklist, Caregiver Burden Scale, Stroke Impact Scale and Barthel Index were used. Correlations were analysed with Spearmans rank, and regression analyses used life satisfaction as the dependent variable. Results: At least one person in 86% of the dyads perceived restrictions in participation, with the most common gap in travelling for pleasure. Correlations were low between the numbers of occupational gaps and life satisfaction (R=-0.33, R=-0.31); however, life satisfaction accounted for occupational gaps both for persons ...

Factors associated with caregiver burden among pharmacotherapy-treated children/adolescents with ADHD in the Caregiver Perspective on Pediatric ADHD survey in Europe Moshe Fridman,1 Tobias Banaschewski,2 Vanja Sikirica,3 Javier Quintero,4 M Haim Erder,3 Kristina S Chen5 1AMF Consulting, Inc., Los Angeles, CA, USA; 2Department of Child and Adolescent Psychiatry and Psychotherapy, Central Institute of Mental Health, Medical Faculty Mannheim of the University of Heidelberg, Mannheim, Germany; 3Global Health Economics Outcomes Research and Epidemiology, Shire, Wayne, PA, USA; 4Psychiatry Department, Hospital Universitario Infanta Leonor, Complutense University, Madrid, Spain; 5Global Health Economics Outcomes Research and Epidemiology, Shire, Lexington, MA, USA Background: Burden on caregivers of children/adolescents with attention-deficit/hyperactivity disorder (ADHD) is multidimensional, but incompletely understood. Objective: To analyze caregiver burden across the concepts of work, social/family life,

As the disease progresses, these deficits cause significant impairment in social and/or occupational functioning, and result in an increasing dependency on caregivers.. FTD affects an estimated 50,000 to 60,000 Americans, representing an estimated 10 to 20 percent of all dementia cases. Currently, there are no treatments to slow or stop the progression of FTD.. FTD can be a very isolating disease - for both the patient and their caregiver - unless you take active steps to develop a network of social, emotional and practical supports.. No one - not even the most capable, loving and determined person - can manage everything alone. Connecting with others who understand FTD can be a lifeline.. Please contact Angie Phelon at (804) 343-3045 if you have questions about the caregiver support group. To learn more about FTD and available resources, contact AFTD toll-free at 1-866-507-7222, or visit www.theaftd.org.. ...

Body mass and dietary intake relationships were examined between 110 primarily African American children and their caregivers from three rural counties (Bullock, Macon, and Wilcox) in Alabama. Children were 9 to 13 years of age and included 76 girls and 34 boys; 108 children were African American and two were Caucasian. Children attended schools in which over about 90% of the school children received free or reduced price lunch. Caregivers were female with an age range from 17 to 93 years. The prevalence of overweight among the children was 37.1% and when children at risk of overweight were included, the prevalence was 57.1%. The prevalence of obesity among the female caregivers was 68.6%. Significant positive correlations were found between caregivers and boys for intakes of energy, protein, fat, saturated fat, cholesterol, fiber, phosphorus, iron, magnesium, zinc, potassium, sodium, thiamin, riboflavin, niacin, folate, vitamin B6, and vitamin A. No significant correlations were found between ...

November is National Family Caregivers Month, a time to recognize family members who help support loved ones. It also provides an opportunity for the aging and physically challenged to ask for caregiving help. Why a Colonoscopy Requires a Caregiver. Even if you are in good health, youll need to ask for a caregiver for your colonoscopy. Most colonoscopy procedures include sedation or anesthesia to provide comfort and prevent pain. Sedation can make you groggy, uncoordinated and weak. It can feel similar to having too much alcohol because it impairs your ability to react quickly or even stay awake.. Doctors do not recommend patients drive, use power tools, sign legal documents, conduct business or make important decisions until at least one day after sedation. In fact, the Association of periOperative Registered Nurses (AORN) revised their guidelines for monitored sedation to say pre-op assessment must include verification of a caregiver over 18 to drive the patient home.. In our busy society, it ...

Caregivers at Elder Services of Okaloosa County offer Companionship Care Services across Fort Walton Beach. Contact our Caregivers to know more about our Services.

In a study published online this week in the Journal of the American Pharmacists Association, the researchers said, Approximately one-half of caregivers reported they are more likely to forgo their own medications than the medication needs of their caregivees, especially if cost was a problem, and that caring for their family members was more important than caring for themselves.. The researchers added, Our findings indicate caregiving status may be an important characteristic for providers to identify and that caregivers may represent a fertile target for adherence interventions to improve chronic disease management and prevent chronic disease.. More than 65 million Americans describe themselves as caregivers, and as the U.S. population ages, that number is expected to grow. The latest study is a product of CVS Caremarks three-year collaboration with Harvard University and Brigham and Womens Hospital to research pharmacy claims data to better understand patient behavior, and how the ...

In a study published online this week in the Journal of the American Pharmacists Association, the researchers said, Approximately one-half of caregivers reported they are more likely to forgo their own medications than the medication needs of their caregivees, especially if cost was a problem, and that caring for their family members was more important than caring for themselves.. The researchers added, Our findings indicate caregiving status may be an important characteristic for providers to identify and that caregivers may represent a fertile target for adherence interventions to improve chronic disease management and prevent chronic disease.. More than 65 million Americans describe themselves as caregivers, and as the U.S. population ages, that number is expected to grow. The latest study is a product of CVS Caremarks three-year collaboration with Harvard University and Brigham and Womens Hospital to research pharmacy claims data to better understand patient behavior, and how the ...

Sound Mind is an app where people with mental disabilities can interact with others with mental disabilities and caregivers can engage with other caregivers. People with disabilities and their caregivers will be able to access useful information about psychiatrists, physicians, lawyers for guardianship, clinics, etc. The stigma surrounding mental illness can make it difficult for individuals with disabilities to feel connected and integrated in society. People with mental illnesses and caregivers of these individuals can feel misunderstood. Who better to understand than fellow caregivers and people with disabilities? Sound Mind would promote a safe space and sense of community. The consolidation of helpful information will eliminate the hassle of tedious internet hunts. Over time theres been a shift from traditional to non- traditional medication. People are opting for more natural remedies. Music therapy is an effective alternative to non-traditional medicine. The mission of Sound Mind is to ...

Objective: Neurodegenerative diseases, such as dementia, have a profound impact on those with the conditions and their family carers. Consequently, the accurate measurement of family carers quality of life (QOL) is important. Generic measures may miss key elements of the impact of these conditions so using disease-specific instruments has been advocated. This systematic review aimed to identify and examine the psychometric properties of disease-specific outcome measures of QOL of family carers of people with neurodegenerative diseases (Alzheimers disease, other dementias; Huntingtons disease; Parkinsons disease; Multiple Sclerosis; and Motor Neurone Disease).. Design: Systematic review.. Methods: Instruments were identified using five electronic databases (PubMed, PsycINFO, Web of Science, Scopus and IBSS) and lateral search techniques. Only studies which reported the development and/or validation of a disease-specific measure for adult family carers, and which were written in English, were ...

On page 4 of the RFA, the project goals are outlined which include: 1.To fund innovative models to reach caregivers of individuals with AD/D, either or both of whom are members of underserved communities: 2. Long term objectives include development and sustainability of support services; 3. Improved coordination of and access to new and existing support services; 4. Expansion and enhancement of, and access to, respite services; 5. Improved health and well-being of caregivers and individuals with AD/D; and 6. Continued community residence and delayed institutionalization of individuals diagnosed with AD/D. Examples of members of underserved communities are provided that could include individuals with several characteristics, such as geographic isolation, English as a second language, cultural isolation and others.. On page 6, it describes the required services to be provided by the applicant. They include, intensive outreach efforts, intake assessments and referrals, and implementing caregiver ...