Patient participation. Medical search

Patient involvement in the decision-making process in matters pertaining to health.

The interactions between physician and patient.

The process of making a selective intellectual judgment when presented with several complex alternatives consisting of several variables, and usually defining a course of action or an idea.

The expected and characteristic pattern of behavior exhibited by an individual as a member of a particular social group.

Interactions between health personnel and patients.

Confidence in or reliance on a person or thing.

The degree to which the individual regards the health care service or product or the manner in which it is delivered by the provider as useful, effective, or beneficial.

Attitudes of personnel toward their patients, other professionals, toward the medical care system, etc.

The exchange or transmission of ideas, attitudes, or beliefs between individuals or groups.

Care which provides integrated, accessible health care services by clinicians who are accountable for addressing a large majority of personal health care needs, developing a sustained partnership with patients, and practicing in the context of family and community. (JAMA 1995;273(3):192)

A medical specialty concerned with the provision of continuing, comprehensive primary health care for the entire family.

Predetermined sets of questions used to collect data - clinical data, social status, occupational group, etc. The term is often applied to a self-completed survey instrument.

New abnormal growth of tissue. Malignant neoplasms show a greater degree of anaplasia and have the properties of invasion and metastasis, compared to benign neoplasms.

Involvement in community activities or programs.

Community or individual involvement in the decision-making process.

Works containing information articles on subjects in every field of knowledge, usually arranged in alphabetical order, or a similar work limited to a special field or subject. (From The ALA Glossary of Library and Information Science, 1983)

Design of patient care wherein institutional resources and personnel are organized around patients rather than around specialized departments. (From Hospitals 1993 Feb 5;67(3):14)

Process that is gone through in order for a drug to receive approval by a government regulatory agency. This includes any required pre-clinical or clinical testing, review, submission, and evaluation of the applications and test results, and post-marketing surveillance of the drug.

Messages between computer users via COMPUTER COMMUNICATION NETWORKS. This feature duplicates most of the features of paper mail, such as forwarding, multiple copies, and attachments of images and other file types, but with a speed advantage. The term also refers to an individual message sent in this way.

Mechanical food dispensing machines.

The guidelines and policy statements set forth by the editor(s) or editorial board of a publication.

The profession of writing. Also the identity of the writer as the creator of a literary production.

A publication issued at stated, more or less regular, intervals.

The functions and activities carried out by the U.S. Postal Service, foreign postal services, and private postal services such as Federal Express.

A loose confederation of computer communication networks around the world. The networks that make up the Internet are connected through several backbone networks. The Internet grew out of the US Government ARPAnet project and was designed to facilitate information exchange.

The state wherein the person is well adjusted.

Those individuals engaged in research.

Equipment that sends digital information over telephone lines. The term Modem is a short form of the phrase modulator-demodulator.

Uniform method for health care providers and medical suppliers to report professional services, procedures, and supplies. It consists of alphanumeric codes and modifiers for the use of all public and private health insurers. It is developed by the Centers for Medicare and Medicaid Services.

Theoretical representations that simulate the behavior or activity of systems, processes, or phenomena. They include the use of mathematical equations, computers, and other electronic equipment.

An enduring, learned predisposition to behave in a consistent way toward a given class of objects, or a persistent mental and/or neural state of readiness to react to a certain class of objects, not as they are but as they are conceived to be.

Works about pre-planned studies of the safety, efficacy, or optimum dosage schedule (if appropriate) of one or more diagnostic, therapeutic, or prophylactic drugs, devices, or techniques selected according to predetermined criteria of eligibility and observed for predefined evidence of favorable and unfavorable effects. This concept includes clinical trials conducted both in the U.S. and in other countries.

Public attitudes toward health, disease, and the medical care system.

The failure by the observer to measure or identify a phenomenon accurately, which results in an error. Sources for this may be due to the observer's missing an abnormality, or to faulty technique resulting in incorrect test measurement, or to misinterpretation of the data. Two varieties are inter-observer variation (the amount observers vary from one another when reporting on the same material) and intra-observer variation (the amount one observer varies between observations when reporting more than once on the same material).

An acquired organic mental disorder with loss of intellectual abilities of sufficient severity to interfere with social or occupational functioning. The dysfunction is multifaceted and involves memory, behavior, personality, judgment, attention, spatial relations, language, abstract thought, and other executive functions. The intellectual decline is usually progressive, and initially spares the level of consciousness.

An imprecise term referring to dementia associated with CEREBROVASCULAR DISORDERS, including CEREBRAL INFARCTION (single or multiple), and conditions associated with chronic BRAIN ISCHEMIA. Diffuse, cortical, and subcortical subtypes have been described. (From Gerontol Geriatr 1998 Feb;31(1):36-44)

The performance of the basic activities of self care, such as dressing, ambulation, or eating.

Long-term care facilities which provide supervision and assistance in activities of daily living with medical and nursing services when required.

Any negative tradition or behavior that is generally regarded as harmful to social welfare and forbidden within a cultural or social group.

Criteria and standards used for the determination of the appropriateness of the inclusion of patients with specific conditions in proposed treatment plans and the criteria used for the inclusion of subjects in various clinical trials and other research protocols.

Epidemics of infectious disease that have spread to many countries, often more than one continent, and usually affecting a large number of people.

Agents which improve the quality of the blood, increasing the hemoglobin level and the number of erythrocytes. They are used in the treatment of anemias.

Assistance in managing and monitoring drug therapy for patients receiving treatment for cancer or chronic conditions such as asthma and diabetes, consulting with patients and their families on the proper use of medication; conducting wellness and disease prevention programs to improve public health; overseeing medication use in a variety of settings.

Inflammation of the tongue.

Care alleviating symptoms without curing the underlying disease. (Stedman, 25th ed)

An INFLAMMATION of the MUCOSA with burning or tingling sensation. It is characterized by atrophy of the squamous EPITHELIUM, vascular damage, inflammatory infiltration, and ulceration. It usually occurs at the mucous lining of the MOUTH, the GASTROINTESTINAL TRACT or the airway due to chemical irritations, CHEMOTHERAPY, or radiation therapy (RADIOTHERAPY).

Obstruction of a vein or VEINS (embolism) by a blood clot (THROMBUS) in the blood stream.

Placement of an intravenous CATHETER in the subclavian, jugular, or other central vein.

A multicentric, malignant neoplastic vascular proliferation characterized by the development of bluish-red cutaneous nodules, usually on the lower extremities, most often on the toes or feet, and slowly increasing in size and number and spreading to more proximal areas. The tumors have endothelium-lined channels and vascular spaces admixed with variably sized aggregates of spindle-shaped cells, and often remain confined to the skin and subcutaneous tissue, but widespread visceral involvement may occur. Kaposi's sarcoma occurs spontaneously in Jewish and Italian males in Europe and the United States. An aggressive variant in young children is endemic in some areas of Africa. A third form occurs in about 0.04% of kidney transplant patients. There is also a high incidence in AIDS patients. (From Dorland, 27th ed & Holland et al., Cancer Medicine, 3d ed, pp2105-7) HHV-8 is the suspected cause.

Persons who are enrolled in research studies or who are otherwise the subjects of research.

Refusal to take part in activities or procedures that are requested or expected of an individual. This may include refusal by HEALTH PERSONNEL to participate in specific medical procedures or refusal by PATIENTS or members of the public to take part in clinical trials or health promotion programs.

Relationships between various attitudes towards self-determination in health care with special reference to an advance directive. (1/2029)

OBJECTIVES: The subject of patient self-determination in health care has gained broad interest because of the increasing number of incompetent patients. In an attempt to solve the problems related to doctors' decision making in such circumstances, advance directives have been developed. The purpose of this study was to examine relationships between public attitudes towards patient autonomy and advance directives. SUBJECTS AND MAIN OUTCOME MEASURES: A stratified random sample of 600 adults in northern Sweden was surveyed by a questionnaire with a response rate of 78.2%. The subjects were asked about their wish for control of their health care, their concerns about health care, their treatment preferences in a life-threatening situation (both reversible and irreversible), and their attitudes towards the application of advance directives. RESULTS: Numerous relationships between various aspects of self-determination in health care (desire for control, fears of over-treatment, and choice of treatment level) in general and advance directives, in particular, were found. Those who wanted to have a say in their health care (about 94%) also mainly supported the use of an advance directive. CONCLUSIONS: The fact that almost 30% of the respondents were undecided concerning their personal use of advance directives points to a lack of knowledge and to the necessity of education of the public on these issues. (+info)

Toward sensitive practice: issues for physical therapists working with survivors of childhood sexual abuse. (2/2029)

BACKGROUND AND PURPOSE: The high rates of prevalence of childhood sexual abuse in the United States and Canada suggest that physical therapists work, often unknowingly, with adult survivors of childhood sexual abuse. The purposes of this qualitative study were to explore the reactions of adult female survivors of childhood sexual abuse to physical therapy and to listen to their ideas about how practitioners could be more sensitive to their needs. The dynamics and long-term sequelae of childhood sexual abuse, as currently understood by mental health researchers and as described by the participants, are summarized to provide a context for the findings of this study. SUBJECTS AND METHODS: Twenty-seven female survivors (aged 19-62 years) participated in semistructured interviews in which they described their reactions to physical therapy. RESULTS: Survivors' reactions to physical therapy, termed "long-term sequelae of abuse that detract from feeling safe in physical therapy," are reported. Participant-identified suggestions that could contribute to the sense of safety are shared. CONCLUSIONS AND DISCUSSION: Although the physical therapist cannot change the survivor's history, an appreciation of issues associated with child sexual abuse theoretically can increase clinicians' understanding of survivors' reactions during treatment. We believe that attention by the physical therapist to the client's sense of safety throughout treatment can maximize the benefits of the physical therapy experience for the client who is a survivor. (+info)

Diabetes care: who are the experts? (3/2029)

OBJECTIVES: To identify issues that patients and professionals consider important in diabetes care and differences in their priorities for care and to determine patients' and professionals' judgements of the relative importance of their chosen priorities. DESIGN: Structured group interviews using the nominal group technique. SETTING: Five district health authorities on Tyneside. SUBJECTS: Five nominal groups: expert (seven), non-expert (seven) health care professionals; insulin dependent (four), non-insulin dependent patients (eight); and carers of diabetic patients (eight). MAIN MEASURES: Items important in diabetes care to each nominal group (themes of care), ranked into a series of "top 10" items for each group, and allocated a score according to relative importance to individual members; scores were standardised by individual weighting and group weighting for comparison within and between groups. RESULTS: Patients and professionals agreed that information given to patients, interaction between professionals and patients, patient autonomy, and access were important for good diabetes care, but the importance assigned to each differed. Thus the professionals emphasised empathy and aspects of good communication and patients the desire to know enough to live a "normal" life. Differences were also found within the patient groups; these related to changes in patients' needs at specific points in the development of their illness and in their orientations to care. CONCLUSION: Patients differ from professionals in their orientation to diabetes care, and they can, and should, be involved in setting priorities for care. Since these priorities are dynamic further work is needed to explore the nature of patient satisfaction with diabetes care. (+info)

User fees and patient behaviour: evidence from Niamey National Hospital. (4/2029)

Evidence is presented on the effects of price changes on the delay before seeking care and on referral status in a sample of hospital patients in Niger. Price changes are measured as differences across patients at one hospital in whether or not they pay for care, rather than as differences in prices across several hospitals. User fees are charged, but the fee system allows exemptions for some payor categories such as government employees, students, and indigent patients. Evidence is also presented on the effect of income on the delay before seeking care and referral status. The analysis demonstrates a technical point on whether household consumption or current income is a more appropriate measure of income. The analysis shows that user fees affect patient behaviour, but the effects are not the same for outpatients and inpatients. Outpatients who pay for care wait longer before seeking care, but inpatients do not. Inpatients who pay for care are more likely to be referred, but outpatients are not. Patients with more income wait less time to seek care and are less likely to be referred than other patients. Further, household consumption explains patient behaviour better than current income. (+info)

Knowledge, attitudes and practices during a community-level ivermectin distribution campaign in Guatemala. (5/2029)

Community acceptance and participation are essential for the success of mass ivermectin chemotherapy programmes for onchocerciasis (river blindness). To explore the local understanding of the purpose of ivermectin and willingness to continue taking the drug, we performed questionnaire surveys in four communities with hyperendemic onchocerciasis after each of three ivermectin treatment rounds. More than 100 respondents participated in each KAP survey, representing the heads of 30% of the households in each community. The respondents rarely stated that the goal of the ivermectin treatment programme was to prevent visual loss. Instead, they said they were taking the drug for their general well-being, to cure the onchocercal nodule (filaria), or to cure the microfilaria, a term newly introduced by agents of the treatment programme. The principal reason identified for refusal to take ivermectin was anxiety about drug-related adverse reactions, and there were marked differences between communities in acceptance of treatment. In one community over 50% of residents initially refused to take ivermectin, although participation rates improved somewhat after programmatic adjustments. We recommend that ivermectin distribution programmes establish surveillance activities to detect where acceptance is poor, so that timely and community-specific adjustments may be devised to improve participation. (+info)

Adapting total quality management for general practice: evaluation of a programme. (6/2029)

OBJECTIVE: Assessment of the benefits and limitations of a quality improvement programme based on total quality management principles in general practice over a period of one year (October 1993-4). DESIGN: Questionnaires to practice team members before any intervention and after one year. Three progress reports completed by facilitators at four month intervals. Semistructured interviews with a sample of staff from each practice towards the end of the year. SETTING: 18 self selected practices from across the former Oxford Region. Three members of each practice received an initial residential course and three one day seminars during the year. Each practice was supported by a facilitator from their Medical Audit Advisory Group. MEASURES: Extent of understanding and implementation of quality improvement methodology. Number, completeness, and evaluation of quality improvement projects. Practice team members' attitudes to and involvement in team working and quality improvement. RESULTS: 16 of the 18 practices succeeded in implementing the quality improvement methods. 48 initiatives were considered and staff involvement was broad. Practice members showed increased involvement in, and appreciation of, strategic planning and team working, and satisfaction from improved patients services. 11 of the practices intend to continue with the methodology. The commonest barrier expressed was time. CONCLUSION: Quality improvement programmes based on total quality management principles produce beneficial changes in service delivery and team working in most general practices. It is incompatible with traditional doctor centred practice. The methodology needs to be adapted for primary care to avoid quality improvement being seen as separate from routine activity, and to save time. (+info)

Incorporating patients' voices in the audit process. (7/2029)

Obtaining patients' views about their experiences of care should be an integral part of clinical audit. The importance of listening to patients as an aspect of quality can be attributed, in part, to the growth of consumerism in health care, and this in turn has led to the widespread use of satisfaction surveys to obtain patients' views. This paper raises some doubts about current methods for assessing patient satisfaction, and recommends the use of qualitative methods to capture patients' voices in audit. (+info)

Understanding lay perspectives: care options for STD treatment in Lusaka, Zambia. (8/2029)

Understanding lay persons' perceptions of STD care is critical in the design and implementation of appropriate health services. Using 20 unstructured group interviews, 10 focus group discussions and 4 STD case simulations in selected sub-populations in Lusaka, we investigated lay person perspectives of STD services. The study revealed a large diversity of care options for STD in the communities, including self-care, traditional healers, medicine sold in the markets and streets, injections administered in the compounds, private clinics, health centres and hospital. The factors identified as influencing care seeking behaviour are: lay referral mechanisms, social cost, availability of care options, economics, beliefs, stigma and quality of care as perceived by the users. (+info)

Wicks P, Lowe M, Gabriel S, Sikirica S, Sasane R, Arcona S (February 2015). "Increasing patient participation in drug ... It's for Patients. - Speaking of Medicine". 14 June 2012.. *^ "Update and results the patient voice analysis study". ... PatientsLikeMe is a for profit patient network and real-time research platform. Through the network, patients connect with ... "Social Networking For Medical Patients".. *^ Westly E (17 February 2010). "Fast Company's 2010 Most Innovative Companies". Fast ...

https://en.wikipedia.org/wiki/PatientsLikeMe

Public participation in environmental projects[17]. *Mediation[18]. *Treatment plans for breast cancer patients[19] ... Phalen, Kimberly Bosworth (2009-06-01). "An Invitation for Public Participation in Ecological Restoration: The Reasonable ...

https://en.wikipedia.org/wiki/Reasonable_person_model

"Family and friend participation in primary care visits of patients with diabetes or heart failure: Patient and physician ... enhancement of patient-provider communication, better prioritization of patient concerns, and emotional support for the patient ... COPD patients with a caregiver were found to have lower rates of depression and increased participation in pulmonary ... Using the device at the end of life can cause pain to the patient and distress to anyone who sees the patient experience this. ...

https://en.wikipedia.org/wiki/Caregiver

Maintain a patient- and family-centered approach; patient and family experiences are key to defining aims and assessing ... Apply disciplined participation and criteria management. These processes use decision-making tools such as SWOT analysis, ... The Patient Survey gathers information on patients' experiences with the built environment. The questions range is wide, since ... Approaches such as single-bed rooms and reduced noise have been shown to improve patient sleep. Natural daylight in patient ...

https://en.wikipedia.org/wiki/Evidence-based_design

Patient understanding of the new diagnosis is crucial for their treatment, which requires their active participation.[20] There ... Patients with FND have been shown to monitor their symptoms to the point of causing deficits in selective attention. ... Additionally, patients with FND have been shown to have abnormal beliefs and expectations about illness which often result in ... The individual does not have control of the learned reaction, but this can be retrained to allow the patient to control the ...

https://en.wikipedia.org/wiki/Psychogenic_non-epileptic_seizure

"Patient participation: Current knowledge and applicability to patient safety". Mayo Clinic Proceedings. 85 (1): 53-62. doi: ... "Patient Participation: Current Knowledge and Applicability to Patient Safety". Mayo Clinic Proceedings. 85 (1): 53-62. doi: ... In 2004, Pittet was approached by the WHO World Alliance of Patient Safety to lead the First Global Patient Safety Challenge ... "Patients' Beliefs and Perceptions of Their Participation to Increase Healthcare Worker Compliance with Hand Hygiene". Infection ...

https://en.wikipedia.org/wiki/Didier_Pittet

Consultative: Two-way participation; background information is provided - prior knowledge is not assumed. "Back-channel ... For example teacher/student, doctor/patient, or expert/apprentice. Casual: In-group friends and acquaintances; no background ... Formal: One-way participation; no interruption; technical vocabulary or exact definitions are important; includes presentations ...

https://en.wikipedia.org/wiki/Register_(sociolinguistics)

Decision aids Shared decision making Patient participation Elwyn, G.; Lloyd, A.; Joseph-Williams, N.; Cording, E.; Thomson, R ... Option Grid is the name for a tool for patients and providers to use together when they are discussing and deciding what best ... The grids do this by using questions that patients frequently ask (FAQs), and are designed for use in face-to-face clinical ... continue to use medication but do not implant an ICD for patients with heart failure (English) Optimal medical treatment vs. ...

https://en.wikipedia.org/wiki/Option_grid

Patricia Anne Wilkie, President, National Association for Patient Participation. For services to Healthcare and Patient ... Jameel Hadi, Manager, Participation Through Sport. For services to Young People in the North West of England. Ronald Sidney ... For services to Patients with Cancer and Lymphoedema in Wales. Rachel Mary, Mrs. Thompson, Project and Development Officer, The ... For services to Stroke Patients in Dorset. Dr Jean May Shields, Historian. For services to Local History in North Tawton, Devon ...

https://en.wikipedia.org/wiki/2013_Birthday_Honours

"Increased community participation. [Social Impact]. Cities Without Hunger - Community Gardens: Sao Paulo (2003-2009)". SIOR, ... In addition, it provides opportunities for health care providers to interact with their patients. Thus, making each community ... The project was conducted in the Rosary School, in Mumbai, with the participation of street children during 2004. A city farm ... There has also been an increase of 63% participation in farming by millennials from 2008-2013. US households participating in ...

https://en.wikipedia.org/wiki/City_farm

Participation in the Large Hadron Collider. A team of UF physicists has a leading role in one of the two major experiments ... Patient-care services are provided through the private, not-for-profit UF Health Shands family of hospitals and programs. UF ... Dance Marathon at UF is an annual 26.2-hour event benefiting the patients of University of Florida Health Shands Children's ... The joint oncology program offers clinical trial collaborations and comprehensive cancer services customized to the patient by ...

https://en.wikipedia.org/wiki/University_of_Florida?oldid=857280118

As the patient becomes more stable, they may move to a rehabilitation facility or remain in the acute care setting. The patient ... Community participation is an important aspect in maintaining quality of life. Body weight supported treadmill training is ... Patients waited an average of 52 days for a bed on a specialist ward in 2015-16. This meant patients were "inappropriately" ... Teaching the patient how to transfer from different positions, such as from a wheelchair into bed, is an important part of ...

https://en.wikipedia.org/wiki/Rehabilitation_in_spinal_cord_injury

Patient participation in group courses has been shown to be effective. In a meta-analysis reviewing evidence-based treatment of ... Unlike many other forms of psychotherapy, the patient is very involved in CBT. For example, an anxious patient may be asked to ... Similar to standard group-based Cognitive Behavioural Therapy, patients meet once a week in a group of 10 to 15 patients and ... the rater may not know the treatment the patient received, but neither the patients nor the therapists are blinded to the type ...

https://en.wikipedia.org/wiki/Cognitive_behavioral_therapy

Instead of passive participation, which is participation by being told what to do or what has been done, this approach proposes ... Violations of patients' rights include failure to obtain informed consent for treatment, failure to maintain the ... "Abuse, Neglect and Patient Rights by the Disability Rights Wisconsin website". Disability Rights Wisconsin. Retrieved 6 October ... The Act replaced the existing Persons With Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act ...

https://en.wikipedia.org/wiki/Disability_rights_movement

However, this treatment requires complete cooperation and participation of all family members.[80] Some studies have found that ... He states that the possibility of diagnosing and coercing a patient into prescribing medication to someone without ASPD, but is ... Therapists working with individuals with ASPD may have considerable negative feelings toward patients with extensive histories ... and may manipulate staff and fellow patients during treatment.[74][verification needed] Studies have shown that outpatient ...

https://en.wikipedia.org/wiki/Antisocial_personality_disorder

Many patients who received information at ClinLife went on to participate in the study. ClinLife expanded its services to ... The Center for Information & Study on Clinical Research Participation. 27.07.2010 .; Roan, Sahri. Medical Clinical Research ... More than 600 trials on over 60 illnesses have been published by ClinLife, and more than 30,000 patients have been put in ... "ClinLife for Patients, Investigators and Sponsors". clariness. Archived from the original on 2018-02-27. Retrieved 2018-02-27. ...

https://en.wikipedia.org/wiki/ClinLife

"Sarawak wants more participation in private healthcare sector". The Rakyat Post. 1 August 2015. Retrieved 19 December 2015. ... Johnson, K Saai (28 October 2010). "People still dump mental patients at Hospital Sentosa". The Borneo Post. Archived from the ... program for cancer patients. The non profit Sarawak Hospice Society was established in 1998 to promote this program. In ... through the participation of the United Kingdom, became joint associate members of the IMO. Sarawak is separated from ...

https://en.wikipedia.org/wiki/Sarawak

Participant recruitment and participation[edit]. Newspaper advertisements seeking patients and healthy volunteers to ... The final objective is to serve the community of patients or future patients in a best-possible and most responsible way. See ... The first such approach targets squamous cell cancer, which includes varying genetic disruptions from patient to patient. Amgen ... Researchers who treat these particular patients must participate in the trial. Then they must identify the desirable patients ...

https://en.wikipedia.org/wiki/Clinical_trials

This will lead to a more active participation from the patient's side. The tradeoff for more active walking will likely be a ... Patient in charge: The goal of the robot is to minimize the interaction forces between the patient and the robot in order for ... it has been decided to realize this by connecting the limbs of the patient to an exoskeleton so that robot and patient move in ... This mode will be active mostly for the non-paretic side of the patient and during those phases of the walking cycle that the ...

https://en.wikipedia.org/wiki/LOPES_(exoskeleton)

Physicians who encourage patient participation can help the patient make a decision that is aligned with the patients' values ... Patient participation is field related to shared decision-making but which focuses more specifically on the patient's role in ... Street RL, Gordon HS, Ward MM, Krupat E, Kravitz RL (2005). "Patient participation in medical consultations: why some patients ... Other studies have shown that the strongest predictors of patient participation are not characteristics of the patients ...

https://en.wikipedia.org/wiki/Shared_decision-making_in_medicine

"The Gift of Participation: A Patient's Perspective," NeuroMatters, Colorado Neurological Institute, 2012; "Biomedical Research ... "Patient Perspective: Patient Engagement in the Clinical Research Process" at the Medical Leaders' Meeting of Pfizer in 2014; " ... Cook is a patient consultant on a Parkinson's and exercise study with the departments of physical therapy at the University of ... Diane G. Cook (born 1943) is a Parkinson's disease patient advocate, especially well known for the use of the science of self- ...

https://en.wikipedia.org/wiki/Diane_G._Cook

This approach requires active participation from both the patient and the therapist. Depending on the patient, rehabilitation ... thereby improving participation and function. This is done through specific patient handling skills to guide patients through ... In the Bobath Concept, postural control is the foundation on which patients begin to develop their skills. Patients undergoing ... Their work focused mainly on patients with cerebral palsy and stroke. The main problems of these patient groups resulted in a ...

https://en.wikipedia.org/wiki/Bobath_concept

2018 studies in Delhi and Vadodara examined patient participation in the programme. Both studies found that about half the ... Since 2018 the patient advocacy group Survivors Against TB have publicly requested that the government increase the benefits of ... Nikshay Poshan Yojana is a government scheme in India to provide 500 rupees per month for tuberculosis patients to buy food. By ... Singh, Jyotsna (24 March 2020). "No Food on Plate for TB Patients Due to Non-implementation of Govt Aid". NewsClick. "Nikshay ...

https://en.wikipedia.org/wiki/Nikshay_Poshan_Yojana

Over the years the event has grown in stature and overall participation. By 2009, the Bellin Run was among the top 10 largest ... The program helps get orthopedic, cardiac rehab and general rehab patients active again after medical treatment. It is an ... The Bellin Run relies heavily on the participation of volunteers. Nearly 1,000 volunteers assist with the run each year. ... The companies compete to determine which businesses can post the best finish times and secure the highest participation rates. ...

https://en.wikipedia.org/wiki/Bellin_Run

"Patient-Centered Outcomes Research Institute's Advisory Panel on Patient Engagement". www.pcori.org. "Center for Information ... and Study on Clinical Research Participation (CISCRP) Board of Advisors". CISCRP. "International Alliance of Patients' ... The National Health Council represents the patient voice on various issues, such as the creation of patient-focused usability ... Patient-Centered Outcomes Research Institute's Advisory Panel on Patient Engagement, Center for Information and Study on ...

https://en.wikipedia.org/wiki/National_Health_Council

It implemented suggestions for improvements from patients and from the patient participation group. Hollinwood Medical Practice ...

https://en.wikipedia.org/wiki/Hope_Citadel_Healthcare

He also helped organize the National Committee on Patients' Rights. After leaving the association in 1978 he became the ... While at Independent Sector, he helped found Civicus: World Alliance for Civic Participation. After retiring from Independent ...

https://en.wikipedia.org/wiki/Brian_O'Connell_(advocate)

... s work with patients and families in many settings, such as inpatient units, surgical areas, outpatient ... encouraging parent presence and participation in care; showing parent(s) how to participate and be involved; talking and ... Child life specialists use child-centered interventions and pain management techniques to work with the patient and family ... Child life specialists recognize individuality in patients, and use a range of developmentally appropriate activities, ...

https://en.wikipedia.org/wiki/Child_life_specialist

Family and friend participation in primary care visits of patients with diabetes or heart failure: Patient and physician ... enhancement of patient-provider communication, better prioritization of patient concerns, and emotional support for the patient ... COPD patients with a caregiver were found to have lower rates of depression and increased participation in pulmonary ... 2014). Missed opportunity? Caregiver participation in the clinical encounter. A videographic analysis. Patient Education and ...

https://en.wikipedia.org/wiki/Caregivers

... s contain data obtained during the patient's participation in the clinical trial. Before being sent to the ... by removing the patient's name, medical record number, etc., and giving the patient a unique study number. The supervising ... The size of a CRF can range from a handwritten one-time 'snapshot' of a patient's physical condition to hundreds of pages of ... The case report form is the tool used by the sponsor of the clinical trial to collect data from each participating patient. All ...

https://en.wikipedia.org/wiki/Case_report_form

... guidelines which recommend therapy for all patients with T-cell counts of 350 or less, or in certain patients commencing at an ... State participation in Medicaid is voluntary; however, all states have participated since 1982 when Arizona formed its Arizona ... Medicaid patients had cut in half the probability of requiring loans or forgoing other bills to pay for medical costs.[114] ... 9,032).[78] Medicaid super-utilizers were more likely than other Medicaid patients to be male and to be aged 45-64 years.[78] ...

https://en.wikipedia.org/wiki/Medicaid

Data on older Medicare patients admitted to hospital in the US showed that patients treated by international graduates had ... Updated August 2010 Participation in U.S. Graduate Medical Education by Graduates of International Medical Schools By Jolly, ... The patient population consisted of those with congestive heart failure or acute myocardial infarction. We found no significant ... Our analysis of 244,153 hospitalizations in Pennsylvania found that patients of doctors who graduated from international ...

https://en.wikipedia.org/wiki/International_medical_graduate

See also: Motivations for online participation. With the growth and attention on the open-source movement, the reasons and ... OpenMRS manages features such as alerting health care workers when patients show warning signs for conditions and records ...

https://en.m.wikipedia.org/wiki/Open-source-software_movement

The Audiology Australia CPD program provides recognition and encouragement for the continuing participation of the members in ... determines that a hearing loss or vestibular abnormality is present he or she will provide recommendations to a patient as to ...

https://en.m.wikipedia.org/wiki/Audiology

"Cured' cancer patients died, court told". The Sydney Morning Herald. 20 November 2010.. ... "Unprecedented participation of a four-coordinate hydrogen atom in the cubane core of lithium and sodium phenolates". Chem. ... Sartori, H. E. (1984). "Cesium therapy in cancer patients". Pharmacol Biochem Behav. 21 (Suppl 1): 11-13. doi:10.1016/0091-3057 ... but has been linked to the deaths of over 50 patients, on whom it was used as part of a scientifically unvalidated cancer ...

https://en.m.wikipedia.org/wiki/Alkali_metal

"Pantani, a Fuentes patient too". Cyclingnews.com. Retrieved 2008-04-01.. *^ "Report: Cipollini used 25 blood bags before 2003 ... Basso's Giro participation in doubt, CyclingNews, 24 April 2007 *^ Frank Schleck admits Fuentes payment, BikeRadar, 3 October ...

https://en.wikipedia.org/wiki/Operación_Puerto_doping_case

A 2016 meta-analysis on the effects of music therapy in schizophrenic patients showed that the treatment in patients who ... Music therapists strive to engage clients in music experiences that foster trust and complete participation over the course of ... a patient may eventually be able to produce the phrase verbally without singing.[46] As the patient advances in therapy, the ... The therapist then sings the phrase with the patient, and ideally the patient is eventually able to sing the phrase on their ...

https://en.m.wikipedia.org/wiki/Neurologic_music_therapy

Addenbrooke's Hospital is where the medicine students go to learn how to cure patients. The Judge Business School is another ... "State school participation rate". BBC News. 4 June 2009. Retrieved 10 January 2013.. ...

https://simple.wikipedia.org/wiki/University_of_Cambridge

... rejected all participation in elections or parliament, and argued that workers should leave the reactionary trade unions to ... propagandist for sexual freedom going as far as opening free sex-counselling clinics in Vienna for working-class patients[29] ...

https://en.wikipedia.org/wiki/Libertarian_Marxist

... varies patient to patient and is affected by several factors including level of amputation and transplant and participation in ... "Patient makes dramatic recovery from amputation to transplanted hand". UCLA Newsroom. Retrieved 2017-05-23.. ... Those patients who are dedicated to taking the medications and performing the physical therapy following a hand transplant have ... In 2016 it was announced that NHS patients in England were to become some of the first in the world to benefit from publicly- ...

https://en.wikipedia.org/wiki/Hand_transplantation

Combat Trauma Patient Simulator. Human Patient Simulator. Patient Simulator Software. "Casualties" that occur during military ... performance and debriefing reflections are not meant to be shared outside of the simulation event can help foster participation ... "Association of Standardized Patient Educators News. Retrieved 2015-12-27.. *^ Ahmed K, Jawad M, Abboudi M, Gavazzi A, Darzi A, ... users can engage in proper medical training as if a live patient was being used without subjecting the patient to physical harm ...

https://en.m.wikipedia.org/wiki/Medical_simulation

They have to continue with community service and their participation in the program. Once phase three is complete participants ... Howard, R; McCarthy, L; Huband, N; Duggan, C (31 January 2013). "Re-offending in forensic patients released from secure care: ...

https://en.wikipedia.org/wiki/Recidivism

There was no equipment to process food for the patients. " This frail young woman [...] embraced in her solicitude the sick of ... and expanding the acceptable forms of female participation in the workforce. ... The Dickens character Sarah Gamp, who was more interested in drinking gin than looking after her patients, was only a mild ... She detailed the health conditions, physical descriptions, dietary information, and other vital details of patients whom she ...

https://en.wikipedia.org/wiki/Nightingale,_Florence

Teske, Nathan (2009). Political Activists in America: The Identity Construction Model of Political Participation. University ... these brain-damaged patients coldly came up with "end-justifies-the-means" answers, leading Damasio to conclude that the point ... Hudson, James M.; Bruckman, Amy S. (2004). "The Bystander Effect: A Lens for Understanding Patterns of Participation". Journal ... these patients appear to reach decisions without the anguish that afflicts those with normally functioning brains. According to ...

https://en.wikipedia.org/wiki/Altruists

... explained to patients, and applied to patient care. ... Participation in an approved training scheme was required by ... Some argue that it remains unclear whether patient safety is enhanced or harmed by a reduction in work hours which necessarily ... The first year of practical patient-care-oriented training after medical school has long been termed "internship." Even as late ... However, interns and residents may not assume responsibility for a new patient after 24 hours. ...

https://en.m.wikipedia.org/wiki/Resident_physician

The Human Rights Committee promotes participation with the standards of the ICCPR. The members of the committee express ... right to life and political participation), second-generation economic, social and cultural rights (right to subsistence) and ...

https://en.wikipedia.org/wiki/Human_rights

This made him realise that the vector of the disease were lice that were discarded with the patient's own clothes.[3] Nicolle ... without the participation of the phagocytes. Not even this study was able to shake Metchnikoff's belief and faith in his theory ... Since in the beginning it was provided with only 120 beds, every patient was so well isolated in his private room that each ... His insight into the mode of transmission occurred while he was visiting the hospital: patients were washed and given clean ...

https://en.m.wikipedia.org/wiki/Pasteur_Institute

... featuring primarily male patients coming out to doctors, or staff members coming out to other staff members. These shows ... welcomed lesbian participation, and a surge of lesbian-themed writing and political activism in the German feminist movement ... A patient's complete history helps medical professionals identify higher risk areas and corrects assumptions about the personal ... and drinking is an activity that correlates to community participation for lesbians and bisexual women.[215] ...

https://en.wikipedia.org/wiki/Lesbians

Instead of passive participation, which is participation by being told what to do or what has been done, this approach proposes ... "Abuse, Neglect and Patient Rights by the Disability Rights Wisconsin website". Disability Rights Wisconsin. Retrieved 6 October ... Violations of patients' rights include failure to obtain informed consent for treatment, failure to maintain the ... The Act replaced the existing Persons With Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act ...

https://en.m.wikipedia.org/wiki/Disability_rights_movement

"18 weeks patient pathway" (PDF). Retrieved November 30, 2016.. *^ Smee, Clive (October 2000). "Department of Health Special ... It provided for compulsory participation by all industrial wage earners (i.e., manual laborers) in factories, ironworks, mines ... real competition for patients is rare leaving most patients with little or no effective choice of insurer, and in many places, ... the provider later negotiates payment with the patient or the patient's insurer. If actually unable to pay, it is covered by ...

https://en.m.wikipedia.org/wiki/List_of_countries_with_universal_health_care

The Canadian Forces and overall civilian participation in the First World War and Second World War helped to foster Canadian ... Michael Ondaatje became the first Canadian to win the Man Booker Prize for The English Patient.[129] Margaret Atwood won the ...

https://en.wikipedia.org/wiki/Canadian_popular_culture

Care of the adult patient after sexual assault". The New England Journal of Medicine 365 (9): 834-41. PMID 21879901. doi: ... "Follow up of Thai Adult Volunteers With Breakthrough HIV Infection After Participation in a Preventive HIV Vaccine Trial" ... 1983). "Isolation of a T-lymphotropic retrovirus from a patient at risk for acquired immune deficiency syndrome (AIDS)". ... 1983). "Isolation of a T-lymphotropic retrovirus from a patient at risk for acquired immune deficiency syndrome (AIDS)". ...

https://gl.m.wikipedia.org/wiki/Síndrome_de_inmunodeficiencia_adquirida

Patient participation. *Decision aids. *Doctor-patient relationship. *E-patient. *Health 2.0. *Health education ...

https://en.wikipedia.org/wiki/PubMed_Identifier

... and the active participation of both patient and therapist in carrying out that ritual or procedure.[10] ... strengthening of the patient's expectation of help; (e) providing the patient with success experiences; and (f) facilitation of ... the therapeutic bond between therapist and patient, the patient's and therapist's states of self-relatedness, and therapeutic ... Eysenck found that psychotherapy generally did not seem to lead to improved patient outcomes.[13] A number of studies after ...

https://en.wikipedia.org/wiki/Common_factors_theory

... which has been used by the UM students and faculty to provide patient care for many years.[88] ... African Americans were also allowed full participation in student activities and sports teams.[31] After President Stanford ...

https://en.m.wikipedia.org/wiki/University_of_Miami

... giving it to the patient, and observing the patient for signs or symptoms of an allergic reaction.[medical citation needed] ... participation in sports, blood transfusions, cosmetics, and alcohol.[61] ... If a person's RAST score is higher than the predictive value for that food, over a 95% chance exists that patients will have an ... Lactose intolerance generally develops later in life, but can present in young patients in severe cases. It is due to an enzyme ...

https://en.wikipedia.org/wiki/Food_allergy

How the patient copes with the injury has been found to influence the level at which they experience the emotional ... Bedell, Gary, M.; Helene M. Dumas (January 2004). "Social participation of children and youth with acquired brain injuries ... Following acquired brain injury it is common for patients to experience memory loss;[6] memory disorders are one of the most ... Corkin, Suzanne (February 2002). "What's new with the amnesic patient H.M.?". Nature Reviews Neuroscience. 3 (2): 153-160. doi: ...

https://en.m.wikipedia.org/wiki/Acquired_brain_injury

... and other staff that can promote patient interests and better patient care.[47] Nurses especially can learn about patient ... such as the Nuremberg Code which stressed the importance of voluntary participation in medical research. It is believed that ... to increase patient autonomy, however, may not be promoting what is best for the patient. In this argument, contrary to ... The manner in which a patient is handled may undermine or support the autonomy of a patient and for this reason, the way a ...

https://en.wikipedia.org/wiki/Autonomy

Gary McCleane and Howard Smith, editors, Clinical Management of the Elderly Patient in Pain (CRC Press, 2006). 150. ... Participation in organized religion is not a good indicator of religiosity because transportation and health problems often ... patients aged 65+ had the highest percentage of hospital stays for adults with multiple chronic conditions but the second ... the rate of emergency department visits was consistently highest among patients ages 85 years and older in 2006-2011 in the ...

https://en.m.wikipedia.org/wiki/Elderly

... patient participation is also often used to include the participation of patient groups, patient advocates, and patients ... Patient participation in health technology assessment (HTA) is an approach to HTA which aims to include patients in the process ... Patient participation, as it pertains to the formation of health policy, is a process that involves patients as stakeholders, ... Patient participation in care coordination has also lead to the utilization of electronic medical records that patients can ...

https://en.wikipedia.org/wiki/Patient_participation

Patient participation groups. BMJ 2011; 342 doi: https://doi.org/10.1136/bmj.d2333 (Published 21 April 2011) Cite this as: BMJ ...

https://www.bmj.com/content/342/bmj.d2333/peer-review

Set up a patient participation group. Br Med J (Clin Res Ed) 1987; 295 :828 ... Set up a patient participation group.. Br Med J (Clin Res Ed) 1987; 295 doi: https://doi.org/10.1136/bmj.295.6602.828 ( ...

http://www.bmj.com/content/295/6602/828

In order to understand why patients may or may not agree to participate in PGx research, a study tracked 8,500 cancer ... Institutional Diversity May Impact Patient Participation in PGx Research, Study Finds. Aug 04, 2015 ... Home » Institutional Diversity May Impact Patient Participation in PGx Research, Study Finds ... NCI-MATCH Patients With AKT1-Mutated Cancers Respond Well to AstraZeneca Drug. Premium ...

https://www.genomeweb.com/cancer/institutional-diversity-may-impact-patient-participation-pgx-research-study-finds

This study explored reasons for non-participation in breast cancer screening among previous cancer patients, who have... ... Non-participation among subgroups of cancer patients. A total of 5850 previous cancer patients were not undergoing treatment or ... Non-participation among previous cancer patients. Women with previous cancer were 21% less likely to participate in screening ... The aim of this study was to explore the increased likelihood of non-participation among previous cancer patients other than ...

https://link.springer.com/article/10.1007%2Fs00432-018-2734-1

484.50 Condition of participation: Patient rights.. The patient and representative (if any), have the right to be informed of ... i) Investigate complaints made by a patient, the patients representative (if any), and the patients caregivers and family, ... the patients representative may exercise the patients rights. (3) If a patient has been adjudged to lack legal capacity to ... The HHA may only transfer or discharge the patient from the HHA if: (1) The transfer or discharge is necessary for the patient ...

https://www.law.cornell.edu/cfr/text/42/484.50

Effect of Patient Participation in Mental Health Care. This study has been completed. ... Patient activation (Patient Activation Measure) [ Time Frame: Baseline, 6 weeks, 6 months & 12 months ]. *Alliance (Inpatient ... long-term effect on mental health symptoms and patient activation of using patient feedback scales in mental health out-patient ... Patient satisfaction (Client Satisfaction Questionnaire) [ Time Frame: Baseline, 6 weeks, 6 months & 12 months ]. *Quality of ...

https://clinicaltrials.gov/ct2/show/NCT01083225

Referrals from doctors for DSMES allow patients with diabetes to receive the critical care they need from diabetes care and ... Referrals from doctors for DSMES allow patients with diabetes to receive the critical care they need from diabetes care and ... Referrals from doctors for DSMES via telehealth allow patients to receive the critical care they need from diabetes care and ... Hannah worked with Aprils pharmacist, connected April to a patient assistance program, and provided coupons to help lower the ...

https://www.cdc.gov/diabetes/dsmes-toolkit/referrals-participation/dsmes-telehealth/index.html

Patients advice about relevance, feasibility and patient involvement • (former) cancer patients → Learn more about PACO ... Patient involvement: the PACO members will also look at the involvement of patients in the design and execution of the project ... Review by the Patients Advisory Committee (PACO). During the review process, the Patients Advisory Committee (PACO) will be a ... Patients are the primary parties benefiting from KWFs activities, and they have first-hand experience with undergoing cancer ...

https://www.kwf.nl/english/poi-english/Pages/paco.aspx

Exploring patient participation in reducing health-care-related safety risks World Health Organization. Regional Office for ... Patients rights have been formulated in a number of documents and guidelines from various international bodies. Laws and ... declarations on patients rights do not automatically make health care safer, but can help to empower ... ...

https://extranet.who.int/iris/restricted/handle/10665/107132/browse?locale-attribute=es&authority=Patient+Participation&type=mesh

... patient participation in studies has more than doubled. This initiative won the Clinical Research Nursing category in the 2017 ... This has enhanced patient experience and increased participation in clinical trials.. We wanted to create a distinct identity ... We have created new opportunities for patients, but there is still some way to go before we can offer research participation to ... Since the research teams at Mid Essex Hospital Services Trust were merged in 2013, patient participation in studies has more ...

https://www.nursingtimes.net/roles/specialist-nurses/strengthening-the-research-team-to-increase-patient-participation/7022675.article?blocktitle=Opinion,-analysis-and-debate&contentID=27867

Institutional discourse, Patient involvement, Patient participation, Patient· professional communication, Postoperative ... The issues studied relate to patient participation and influence in face-to-face encounters with professionals, and to patient ... Being involved: Patient participation in health care. Sätterlund Larsson, Ullabeth Linköping University, The Tema Institute, ... These results are discussed in terms of patient and health care professionals prevailing expectancies with respect to patient ...

http://liu.diva-portal.org/smash/record.jsf?pid=diva2:256192

This research project from The University of Western Australia is a clinical investigation of the effectiveness of group singing for people with Alzheimers.

https://www.uwa.edu.au/projects/musical-participation-in-the-care-of-patients-with-alzheimers

... from the Medicare program next month if it doesnt explain how it has corrected problems related to an incident where a patient ... from the Medicare program next month if it doesnt explain how it has corrected problems related to an incident where a patient ... of its ability to care for Medicare patients because a patient died after receiving a large dose of the wrong medication. ... The patient died in December 2017 but surveyors said they did not find evidence that Vanderbilt had put procedures in place to ...

https://www.modernhealthcare.com/article/20181128/NEWS/181129938/cms-threatens-to-revoke-vanderbilt-s-medicare-participation-after-patient-death

Of these patients 66 were previous or current participants in clinical trials (group A), 12 had declined participation in a ... In order to assess attitudes of patients to participation in therapeutic trials 197 patients underwent structured interviews ... 1. In order to assess attitudes of patients to participation in therapeutic trials 197 patients underwent structured interviews ... Patients attitudes to participation in clinical trials Br J Clin Pharmacol. 1993 Feb;35(2):204-7. ...

https://pubmed.ncbi.nlm.nih.gov/8443040/?dopt=Abstract

The SCUs context also affected patient participation (I-IV).. Patient participation must be given attention by leaders and be ... Nursing personnel can enhance patient participation by promoting relatives partaking in the participation process, as this has ... not necessarily a high level of patient participation (II-III). The level of participation had to be adjusted to the residents ... 3. Patient participation in special care units for persons with dementia: A losing principle?. Open this publication in new ...

http://www.diva-portal.org/smash/record.jsf?pid=diva2:651778

Patient Participation Groups are a feature of Primary Care in the United Kingdom. They offer patients an opportunity to be ... secretary of Litchdon Patient Participation Group". North Devon Journal. 5 March 2016. Retrieved 9 March 2016. "Second patient ... The Patient Participation Group is angry that they have not been consulted about this and is considering the possibility of ... Members of Patient Participation Groups are not always consulted about plans for their local services as they expect to be. ...

https://en.wikipedia.org/wiki/Patient_Participation_Group

... showed patients who participated in sports before total knee arthroplasty were able to participate in sports postoperatively ... and in some cases, patients were more active in sports after surgery.Caroline Hepperger, MD, presented results of a prospective ... we conclude that patients should be motivated toward sport participation following total knee replacement," Hepperger said. - ... we conclude that patients should be motivated toward sport participation following total knee replacement," Hepperger said. - ...

https://www.healio.com/orthopedics/knee/news/online/%7Bc1d30bb8-1f36-423a-9969-221bc18977e4%7D/prospective-study-showed-tka-not-detrimental-to-patient-participation-in-sports

Decentralized Clinical Trials Offer New Ways to Broaden Patient Participation Blog. May 3, 2021. ... to increase participation by making it easier for patients to engage and remain involved for the duration of the trial. ... She sees the volume of home visits as part of clinical trials increasing, but notes some patients may prefer to go to a site or ... "We need to work on giving patients more choice in clinical trials, even at the protocol level," says Agnieszka Gackowska, MD, ...

https://acrpnet.org/2021/05/03/decentralized-clinical-trials-offer-new-ways-to-broaden-patient-participation/

To ensure that patient participation is included in person-centred research.. For patient and family/carer organisations:. • To ... To support patient participation at a system level.. • To ensure that the patient perspective is included in the development, ... Innovative standard for patient participation in person-centred care now available A European standard initiated by GPCC is now ... To strengthen patient and user participation in procurements, routines and guidelines within healthcare. ...

https://www.gu.se/en/gpcc/innovative-standard-for-patient-participation-in-person-centred-care-now-available

Patient Guides. Guides for Patients are designed to assist patients, their relatives and caregivers to better understand the ... Patient Advocacy Track. The ESMO Patient Advocacy Track encourages communication between patients, families, oncologists and ... Now available in Romanian, our Guide for Patients with Advanced Cancer is designed for patients, their family members and ... RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2017 *ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers ...

http://www.esmo.org/Conferences/Past-Conferences/ESMO-2012-Patient-Seminar/Industry-Participation

Factors Affecting Patient Participation in AIDS Malignancy Clinical Trials Consortium Clinical Trials. The safety and ... This pilot research trial studies factors affecting patient participation in Acquired Immune Deficiency Syndrome (AIDS) ... I. To describe the socio-demographic characteristics for participation and non-participation in AMC clinical trials among all ... Socio-demographic characteristics for participation and non-participation in AMC clinical trials among all approached ...

https://clinicaltrials.gov/ct2/show/NCT01946217?term=%22+August+21%2C++2013%22%3A%22+September+20%2C++2013%22%5BFIRST-RECEIVED-DATE%5DAND+HIV%5BCONDITION%5D&rank=10

... though most physicians perceive barriers to increasing companion participation. ... A study of family and friend participation in physician visits of adults with chronic diseases found that both patients and ... Both patients and physicians reported positively on companion participation. Forty-eight percent of patients reported that ... and participation was most likely among patients with complex management issues and likelihood of worse outcomes. Patients were ...

https://www.rwjf.org/en/library/research/2011/01/family-and-friend-participation-in-primary-care-visits-of-patien.html

Patient perspectives in COPD: activities, social participation and pulmonary rehabilitation ... Research project: Patient perspectives in COPD: activities, social participation and pulmonary rehabilitation - Dormant - ...

https://www.southampton.ac.uk/healthsciences/research/projects/patient_perspectives_in_copd.page

... patient clinician communication, patient engagement, and patient access to medical information. Patients who voluntarily seek ... Review the role of technology in facilitating patient engagement and participation, describe some of the barriers to patient ... Three concerns are consistently raised when considering increasing patient engagement and participation. Untrained patients and ... Introduction to Patient Engagement and Participation. To view this video please enable JavaScript, and consider upgrading to a ...

https://www.coursera.org/lecture/hi-five-clinical/introduction-to-patient-engagement-and-participation-vyYY8

Heart failure; Home care services; Multi-disciplinary care; Patient education; Patient involvement; Patient participation; Self ... Structured heart failure home-care facilitated participation both for patients and their partners. Patient participation with ... However, how patients with heart failure view participation and which factors may be associated with participation is not known ... Patient participation in patients with heart failure receiving structured home care - a prospective longitudinal study. ...

http://www.diva-portal.org/smash/record.jsf?pid=diva2:791871

A Longitudinal Study of Function and Participation in Patients With Stroke. The safety and scientific validity of this study is ... A Longitudinal Study of Function and Participation in Patients With Stroke Official Title A Longitudinal Study of Function and ... The aim of this study is to investigate the function and participation in patients with stroke evaluated by clinical measures, ... A longitudinal study of function and participation in patients with stroke: An integrated brain imaging and biomechanical ...

https://www.clinicaltrials.gov/ct2/show/record/NCT02377453

8m cost of patient surveys would be better spent on practices setting up patient participation groups, the GPC chairman is ... The £8m cost of patient surveys would be better spent on practices setting up patient participation groups, the GPC chairman is ... Dr Buckman will argue patient participation groups are a good way to get genuine patient involvement and would be better than ... 8m patient survey cost should be spent on participation groups. 11 June 2009 ...

https://www.gponline.com/8m-patient-survey-cost-spent-participation-groups/article/935418

1. National Association for Patient Participation. Best Practice in Patient Participation study. Available from: http://www. ... National Association for Patient Participation. A former business consultant turned academic turned NHS manager, Graham is now ... Patients need to understand that the PPG is there to reflect the views of the wider patient body and that there are other ... The breadth of activity, captured in the (soon to be published) National Association for Patient Participation booklet More to ...

http://www.managementinpractice.com/featured-articles/patient-participation-groups-moaners-or-bonus

... patients and members of staff to provide feedback and insight to make LOROS the best place it can be for everyone, all the time ... Patient and Carer Participation Group. The Patient and Carer Participation Group (PCPG) was set up in 2012 and brings together ... Patient and Carer Participation Group. The group discusses a wide range of topics including support for carers and the ... It provides feedback and insight from patients and carers experience to make LOROS the best place it can be for everyone, all ...

https://loros.co.uk/our-care/patient-and-carer-participation-group

The practice of engaging patients in health policy originated from the consumer advocacy movement, which prioritized consumer safety, access to information and public participation in public health programs. (wikipedia.org)
They offer patients an opportunity to be involved with and support their local General Practice. (wikipedia.org)
Patients feel safer and likely are safer when they receive a surgical safety checklist and request that their healthcare providers use it, suggests a pilot study being presented at the American Society of Anesthesiologists PRACTICE MANAGEMENT 2014. (infectioncontroltoday.com)
Dr Buckman will also urge practices at the London event to concentrate on quality front-of-house services with the launch of a good practice guide called Developing general practice: Listening to patients. (gponline.com)
These have tended to be about engaging with patients in commissioning activities or in the broader life of the practice. (managementinpractice.com)
In some cases, they have undertaken research with the wider practice population so that future services are well designed to meet patient needs. (managementinpractice.com)
It's definitely a "best practice" to include patients in Lean improvement work. (leanblog.org)
Using conversation analysis, we analyse a practice patients use early in the medical visit to show that relatively benign or commonplace interpretations of their symptoms are implausible. (wiley.com)
In this practice, which we term pre-emptive resistance, patients raise candidate explanations for their symptoms and then report circumstances that undermine these explanations. (wiley.com)
A Patient Participation Group (PPG) is a group of patients, working in partnership with their GP practice to improve services and to enable patients to look after their own health. (healthwatch.co.uk)
Eight practices in the north Leeds area were selected by Leeds North CCG to give a good variety of size of practice, demographic of patients and geographic spread for this project. (healthwatch.co.uk)
ASCO Practice Central helps oncology professionals navigate a complicated and ever-changing practice environment-while providing high-quality patient care. (asco.org)
One important feature of general practice teaching is patient-based learning. (sapc.ac.uk)
Finally, participants would like ways in which the general practice space can share and make explicit its teaching role with patients (e.g. written info about students and how patients can help). (sapc.ac.uk)
This study will shape recommendations for developing resources to communicate with patients about participation in general practice teaching encounters. (sapc.ac.uk)
Dicker A, Armstrong D. Patients' views of priority setting in health care: an interview survey in one practice. (ijhpm.com)
Engaging nurse-patient relationships, inclusive of knowledge sharing, is required in practice to empower patients to participate. (edu.au)
All eligible patients will have received an invitation letter from the practice. (vauxhallpractice.co.uk)
To create and improve two-way communication between patients, the Practice and the community it serves. (vauxhallpractice.co.uk)
To bring a sense of partnership between Practice and patients. (vauxhallpractice.co.uk)
To collect patient opinions and experiences to help the practice to evaluate its services. (vauxhallpractice.co.uk)
The Practice has an active group which liaises with the Practice on planning new services, providing information on healthcare, involvement in patient surveys and providing a communication link between the practice and the public. (ifieldmedicalpractice.co.uk)
In addition we have a virtual Patient Reference Group, who we contact by e-mail from time-to-time to ask their opinion about some of the decisions within the Practice. (ifieldmedicalpractice.co.uk)
This is a group of patients who wish to become more involved in practice decision making, supporting the Practice and facilitating communication between you, the patients, and the practice team. (almondroadsurgery.org.uk)
To help us with this, we have a patient participation group which meets 4 times per year to discuss what is going well at the practice, and what needs to be improved. (armadapractice.co.uk)
ANY patient or their relative who use threatening or offensive behaviour, either verbal or physical, in person or via the telephone or social media could be removed from the practice in order to protect our staff and other patients. (moorlandmedicalcentre.co.uk)
The PPG is a group of patients who work with practice staff and meet at regular intervals to decide ways of making a positive contribution to the services and facilities offered by the practice to our patients. (southessexcare.co.uk)
The aim is to promote the active engagement of patients and to seek views from Practice patients through surveys and discussions with patients. (albanyhousemedicalcentre.co.uk)
This Practice has a diverse patient population with patients of different ages and a wide variety of different needs. (albanyhousemedicalcentre.co.uk)
HE asked for locality news, i.e. staffing issues, building and services changes and matters directly affecting Albany House practice patients. (albanyhousemedicalcentre.co.uk)
JL gave example of a confused patient who turned up at the wrong practice (Albany House). (albanyhousemedicalcentre.co.uk)
This is so all patients can be screened to make sure they are not at risk of having the virus before they come to the practice. (mustersmedicalpractice.co.uk)
Patient Participation Groups are established in the majority of the practices in Milton Keynes with the aim to bring patients together to discuss what could improve their practice, as well as health issues that affect them. (miltonkeynesccg.nhs.uk)
Anyone interested in becoming a member of their GP practice's Patient Participation Group is encouraged to contact the practice manager at their surgery for more information. (miltonkeynesccg.nhs.uk)
As a patient registered with the practice you can give feedback after each and every contact if you want to. (newmiltonhealthcentre.co.uk)
We want to hear from all patients registered with the practice about the care they have received. (newmiltonhealthcentre.co.uk)
We are an active group of volunteer patients who meet regularly with staff from the practice to provide views from a patient's perspective. (ludlowhillsurgery.co.uk)

Increased patient participation in health policy can lead to improvements in patient satisfaction, quality and safety, cost savings and population health outcomes. (wikipedia.org)
Since subjective scores, such as the OKS and the VAS for pain, improved significantly over preoperative [measures] and no detrimental effects on short-term clinical outcomes occurred, we conclude that patients should be motivated toward sport participation following total knee replacement," Hepperger said. (healio.com)
Forty-eight percent of patients reported that companions, at least sometimes, participated in their PCP visits, and participation was most likely among patients with complex management issues and likelihood of worse outcomes. (rwjf.org)
Background: Patient participation is important for improving outcomes, respect for self-determination and legal aspects in care. (diva-portal.org)
We can now incorporate these key insights as we design clinical trials, to measure clinical outcomes that are meaningful to patients and families. (worldpharmanews.com)
The study demonstrated a beneficial effect of training on all the outcomes, suggesting that the functional limb overloading training can be a useful tool in the management of gait problems in chronic stroke patients. (hindawi.com)
Association of hospital participation in a surgical outcomes monitoring program with inpatient complications and mortality. (ahrq.gov)
Similar to another study published in the same issue of the Journal of the American Medical Association , this retrospective study found no association between participation in the National Surgical Quality Improvement Program and surgical outcomes over time. (ahrq.gov)
Association of hospital participation in a quality reporting program with surgical outcomes and expenditures for Medicare beneficiaries. (ahrq.gov)
National and international policy and research recognise the positive influence of patient participation in advancing healthcare quality and patient safety, 1-3 containing healthcare costs 4 5 and improving population health outcomes. (bmj.com)
The secondary objective was to explore the association between PA and patient reported outcomes (PROs), specifically health-related quality of life (HRQOL), anxiety and depression symptoms. (queensu.ca)
Variables associated with a PT consult, PT participation, and subsequent outcomes were evaluated with multivariate models. (jabfm.org)
To explore the effect of early spondyloarthritis (SpA) on worker participation and to investigate variables associated with work outcomes as well as the effect on resource use. (jrheum.org)
Associations of CR participation with outcomes were tested after adjustment for differences in participation propensity. (minervamedica.it)
Importantly, the IVI has the potential to assess QoL outcomes across a range of visual acuity loss in patients with AMD. (arvojournals.org)
Decisions made in multidisciplinary tumor conferences (MTC) that consider patient preferences result in better patient outcomes. (biomedcentral.com)

Patient and Public Involvement (PPI) and Engagement (PPIE) [7] in the sense of the older term coproduction (public services) . (wikipedia.org)
the PACO members will also look at the involvement of patients in the design and execution of the project proposal based on such questions as: have (organisations and/or representatives of) patients been involved in the design and execution of the study? (kwf.nl)
In the epidemiological studies, the results reveal that ofl the whole the patients seem satisfied with their involvement in the decision to have an operation and report having the influence they expected. (diva-portal.org)
The standard is entitled Patient involvement in healthcare - Minimum requirements for person-centred care, and it is the first in Europe in its field. (gu.se)
Dr Buckman will argue patient participation groups are 'a good way to get genuine patient involvement' and would be better than the current 'sham' measure of patient satisfaction with access. (gponline.com)
Although I understand why priorities are perceived in this way, it strengthens my conviction that we need far more patient and public involvement at a local level, far more PPGs. (managementinpractice.com)
Patient advocacy group involvement is critical to the success of Patient Advisory Boards and other engagement initiatives, given their intimate knowledge of the needs and preferences of the broader patient population. (ciscrp.org)
This Article presents an account and critical appraisal of the role that patients and their advocates played in securing eteplirsen's approval, using the case to understand FDA's attempts to meet congressional demands over the past few decades for greater patient involvement and expanded expedited review programs. (fdli.org)
In light of the 21st Century Cures Act's recent directive to FDA to significantly develop both its patient involvement and expedited approval programs, the lessons of the eteplirsen approval are particularly timely. (fdli.org)
This project aims to explore what information patients would find helpful when considering involvement and how this might best be made available to them. (sapc.ac.uk)
These findings will be used to inform development of a resource for patients considering involvement in primary care based undergraduate teaching. (sapc.ac.uk)
Patients want to be included in the teaching and feel their involvement (in addition to their 'disease') matters. (sapc.ac.uk)
Targeted interventions aiming to facilitate patients' involvement in health policy decision-making processes and to increase its impact are greatly needed in Cyprus. (ijhpm.com)
Measuring the involvement of patients in shared decision-making: a systematic review of instruments. (ijhpm.com)
Physicians' and nurses' perceptions of patient involvement in myocardial infarction care. (ijhpm.com)
Patient involvement in treatment decision-making: the case for a broader conceptual framework. (ijhpm.com)
Objectives Patient involvement in palliative care research is a desirable if challenging goal. (bmj.com)
Current evidence suggests that patients and families would appreciate greater involvement in palliative care research. (bmj.com)
1-3 A patient-centred approach is at the heart of palliative care, and research methods should, where possible, reflect this, though concerns about patient vulnerability sometimes prohibit such involvement. (bmj.com)
We have the involvement of lay members and use focus groups to aid us in listening to patients and carers to understand their issues with medicines and through this we are working to support the development and use of a Medicines Communication Charter. (hee.nhs.uk)
This work actively encourages public involvement in decision making, service provision and quality, through participation in for example, Patient Assurance Groups (PAG), or GP Patient Participation Groups (PPG), and also includes Patient Champion/Ambassador Programmes and local networking groups. (hee.nhs.uk)
The Involvement Hub supports patients, carers, staff and the public who want to find out more about participation - both how to do it and how to get involved. (hee.nhs.uk)
The meaning of patient involvement and participation in health care consultations: A taxonomy. (ijhpm.com)

Methods: The study had a prospective pre-post longitudinal design evaluating the influence of structured home care on participation in patients at four different home care units. (diva-portal.org)
Methods: We used the Yale Physical Activity Survey (YPAS) to assess participation in postoperative PA 1-4 years following total knee or hip replacement. (harvard.edu)
Alternative methods, such as home-based programs, may be needed to improve participation rates. (acc.org)
Methods: In the first part, patients' values and preferences and medical oncologists' views hereupon will be explored in interviews and focus groups to build a first prototype OnVaCT using digital communication (serious gaming). (eur.nl)
Methods Thirteen co-researchers (six patients and seven household carers, mean age 47 years) receiving community-based palliative care, attended nine half-day group sessions over a 4-month period. (bmj.com)
5 In the palliative care literature, Horsfall and Noonan utilised Photovoice alongside other participatory methods to explore the impact of caring for dying patients on the wider community in Australia. (bmj.com)

Conclusions Participation in ward rounds was similar for patients irrespective of control preference. (bmj.com)
Conclusions In this Photovoice study, patients and family members receiving palliative care engaged in an exploration of household well-being using photography, participatory analysis and an advocacy event. (bmj.com)
Conclusions: Participation in society improves in patients undergoing CR. (uu.nl)
CONCLUSIONS: Patients were motivated to participate and valued participation. (edu.au)

The National Association for Patient Participation was established in 1978. (wikipedia.org)
A former business consultant turned academic turned NHS manager, Graham is now part-time Chief Executive of the National Association for Patient Participation. (managementinpractice.com)
1) On average, two PPGs have been set up each week since the National Association for Patient Participation (NAPP) was formed in 1978. (managementinpractice.com)
The breadth of activity, captured in the (soon to be published) National Association for Patient Participation booklet More to Offer, is rather impressive. (managementinpractice.com)
Some work has been undertaken nationally by the National Association for Patient Participation to review how PPGs work but locally only limited work has been carried out. (healthwatch.co.uk)

2016 ). However, Danish studies have found that non-participation is not equally distributed as a higher proportion of non-participation has been found in specific population groups, e.g. women with lower socio-economic position (SEP) or chronic disease (Jensen et al. (springer.com)
From 1st April 2016, it has been a contractual requirement for all English practices to form a Patient Participation Group. (healthwatch.co.uk)
Healthwatch Leeds conducted 52 face to face or telephone interviews with staff and patients between August and November 2016. (healthwatch.co.uk)
2016 ). These studies tend to primarily enroll non‐Hispanic white patients with a high education level and annual income, both as a function of geography and because these populations tend to be early adopters of research and new technology (Facio et al. (pubmedcentralcanada.ca)
We reviewed the electronic medical record of patients who were referred for CR after MI from July 2015 to December 2016. (koreamed.org)
In April 2016, the patient groups were divided into 9-month periods: pre- and post-CP revision. (koreamed.org)
Ninety-two patients were recruited from July 2015 to March 2016. (koreamed.org)
From April 2016 to December 2016, 107 patients were recruited. (koreamed.org)

State surveyors made an unannounced visit to the academic medical center late last month and learned that a patient died after receiving not only the wrong medication, but a high dose of the errant drug as well, according to a report given exclusively to Modern Healthcare by the CMS. (modernhealthcare.com)
To ensure that the patient perspective is included in the development, implementation and evaluation of services, research and policies in healthcare. (gu.se)
To ensure patient participation in quality indicators and improvement work at all operational and strategic levels within healthcare. (gu.se)
To strengthen patient and user participation in procurements, routines and guidelines within healthcare. (gu.se)
This course is one of three related courses in the HI-FIVE training program, which has topics on population health, care coordination and interoperability, value-based care, healthcare data analytics, and patient-centered care. (coursera.org)
Healthcare professionals need to raise awareness of patients' responsibilities for participation in their own recovery and care. (diva-portal.org)
Healthcare professionals and patients need to be aware of each other's responsibilities. (diva-portal.org)
What does participation look like in a healthcare setting? (helium.ie)
Clinical Commissioning Groups (CCG's) across Yorkshire and the Humber have a number of initiatives to encourage patient and carer participation in the healthcare offered in their areas. (hee.nhs.uk)
Health literacy (HL) has been shown to be predictive for individual health behavior and is an important prerequisite for patient participation in healthcare. (biomedcentral.com)
Among them are multidisciplinary care as a process aiming to foster cooperation between professionals from a range of disciplines [ 2 ] as well as patient centered care as a healthcare process aiming to achieve socially and psychologically integrated care [ 3 ]. (biomedcentral.com)
MK CCG is encouraging patients to join their GP practice's Patient Participation Group (PPG) to help influence healthcare decisions. (miltonkeynesccg.nhs.uk)

Does the Patient Information Form (PIF) contain all the relevant information for potential participants in order to be able to make an informed decision about participation in this study, and is the PIF written in language that is easy to understand and read? (kwf.nl)
Of these patients 66 were previous or current participants in clinical trials (group A), 12 had declined participation in a trial (group B), and 119 had never been invited to participate in research (group C). 2. (nih.gov)
Participants complete the Improving Participation in AMC Clinical Trials (IMPACTS) survey comprising questions about socio-demographic information and clinical trial participation. (clinicaltrials.gov)
The generalizeability of these results is limited by the sample used because all participants came from one health system with a relatively homogenous patient population. (rwjf.org)
There are various ways of understanding how the participants make sense of patients' health problems. (wiley.com)
StudyKIK's Patient Engagement & Retention Application provides a user-friendly technology for clinical trial participants that are randomized into clinical trials. (medindia.net)
Research sites will be able to directly interface with patients as they progress through their trial, allowing them to build trust, address concerns, and raise compliance rates among participants. (medindia.net)
Through this new application, our goal is to simplify the participation of patients and researchers during the entire clinical trial while improving access to data for the benefit of future trials and participants. (medindia.net)
By including more-and more diverse-participants in our research studies, we expand our ability to care for all patients. (asco.org)
We assessed 310 participants' motivations for receiving genome sequencing for expanded carrier screening and experiences with familial genetic conditions that may relate to study participation. (pubmedcentralcanada.ca)
Social media, they say, "adds another layer of communication to optimize patient adherence and may provide a friendly competition among participants. (acc.org)
For the fi rst study, 10 patients were interviewed, with a narrative approach, about their experience of participation and non-participation, as defi ned by the participants. (diva-portal.org)
There was no robust evidence that any of the interventions investigated led to an increase in cancer patient participation in RCTs, though one good quality RCT found that urologists and nurses were equally effective at recruiting participants to a treatment trial for prostate cancer. (biomedcentral.com)
Conclusion: Among those with MSKCs, participation in CR is associated with survival benefit and better physical quality-of-life compared to non-participants. (minervamedica.it)
We used a topic guide to facilitate discussions, exploring what patient participants thought would be useful to know prior to being involved in undergraduate medical student teaching. (sapc.ac.uk)
In a first step unadjusted crude participation rates (participants/invited persons) were estimated for cancer patients (CaPts) and non-cancer persons (NonCaPers), followed by logistic regression analyses with adjustment for age and sex. (biomedcentral.com)
Participants were recruited from an umbrella organization, the Pancyprian Federation of Patient Associations and Friends (PFPA). (ijhpm.com)
Participants completed online a self-reported questionnaire, encompassing the 9-item index and questions enquiring about the type and impact of participation in various facets of health policy decisionmaking. (ijhpm.com)

Presence of nursing personnel in body, mind and morality was found to be the prerequisite for patient participation (I). This required personnel with high competence in dementia care, commitment to and interest in the resident, and continuity in their work (I, III). (diva-portal.org)

ABSTRACT The attitudes of dental patients towards participation in research and the independent socioeconomic factors associated with these attitudes are not known. (who.int)

The intervention consists of patients completing a self-report symptom and problem questionnaire and reviewing it with a clinician. (clinicaltrials.gov)
Patients completed a questionnaire documenting participation in pre-defined activities outside ofpulmonary rehabilitation during the 2 weeks prior to each visit. (nih.gov)
Patients who submitted an activity questionnaire at week 4 and on at least one subsequent visit were included in the analysis. (nih.gov)
Contents of activity questionnaire administered to COPD patients participating in the trial. (nih.gov)
A total of 133 Dutch patients with breast cancer filled out a baseline (T0) and a follow-up (T1, 6 months later) questionnaire assessing intensity of online participation within the online support community, emotional approach coping (ie, actively processing and expressing emotions), and psychological well-being (depression, emotional well-being, and breast cancer-related concerns). (jmir.org)
For this study, a questionnaire was used to collect work participation and work transition data. (ugent.be)
A self-administered questionnaire was distributed to 120 patients attending dental clinics in Amman, Jordan. (who.int)
Patients included in an early SpA cohort completed a questionnaire comprising items on employment status, sick leave, presenteeism, and resource use. (jrheum.org)
Design: Prospective and observational study in which patients were administered a questionnaire in the hospital and 1 year later. (minervamedica.it)
CR participation, quality-of-life, depressive symptoms, functional status, and physical activity behavior were measured 1 year later by questionnaire. (minervamedica.it)
Main Outcome Measures: Participation in society was assessedwith theUtrecht Scale for Evaluation of Rehabilitation-Participation and HRQOL with theMacNewHeart Disease health-related quality of life questionnaire.Allmeasurementswere performed pre-CR, post-CR, and 1 year after the start ofCR. (uu.nl)

Our study demonstrates that race alone does not explain participation" in correlative studies, researchers led by Moffitt Cancer Center's Howard McLeod wrote in the paper. (genomeweb.com)
It can be used in a number of different ways by health and care actors, patient organisations, researchers, businesses and other actors. (gu.se)
Seeking ways to boost compliance of the SSC, researchers at Tulane University Hospital and Clinic decided to involve patients. (infectioncontroltoday.com)
Researchers found surgical teams were more likely to use the checklist when patients were informed of the list and asked their providers to be sure to follow it. (infectioncontroltoday.com)
Although Tulane uses a slightly modified version to include the addition of a section on pre-procedure check-in (when the patient is in the holding area, prior to being taken to the OR), researchers focused the study on compliance of the items on the WHOs version of the list. (infectioncontroltoday.com)
Conquer Cancer, the ASCO Foundation, raises funds to support the world's leading researchers who are improving treatments and discovering cures for every cancer, every patient, everywhere. (asco.org)
Clinical trials are essential for evaluating the safety and efficacy of new cancer treatments, but cancer researchers have seen consistently low patient participation levels-especially among underserved patient populations-in part due to the financial burdens facing many patients with cancer," said ASCO President Monica M. Bertagnolli, MD, FACS, FASCO. (asco.org)
The researchers conducted online electronic surveys in two patient cohorts. (worldpharmanews.com)
Falk added that "these study results tell researchers and clinicians that we have more work to do in terms of patient education - we need to effectively explain how to best design rigorous, effective clinical trials, while at the same time responding to patient priorities and needs. (worldpharmanews.com)
One important factor in both patient education and meeting patient needs, she added, is forming strong partnerships among researchers, patients and patient advocacy organizations. (worldpharmanews.com)
On this specific platform the pharmaceutical industry, researchers and their networks, regulatory and academic bodies can meet with representatives of the interests of patients. (bmj.com)
Using data from the ACC's ACTION Registry-GWTG linked with Centers for Medicare and Medicaid Services data between January 2007 and December 2010, researchers examined records from 58,269 eligible patients age 65 or older. (acc.org)
To enhance recruitment, researchers should be aware of people's perspectives regarding participation in research. (who.int)
How are researchers helping to facilitate participation by minorities in clinical trials? (patientpower.info)
Co-researchers engaged with the Photovoice process with enthusiasm, although frailty and physical disability (poor sight) limited participation for some older adults. (bmj.com)

The goal of this study was to determine demographic, medical, and psychosocial predictors of outpatient cardiac rehabilitation participation in hospitalized older post--coronary event patients. (nih.gov)
Demographic, medical, and psychosocial data, collected in hospitalized post-coronary event patients are powerful predictors of subsequent participation in cardiac rehabilitation. (nih.gov)
Furthermore, patients are extremely dependent on treatment and the treatment itself - dialysis in particular - places substantial behavioral and psychosocial demands on the patient. (highbeam.com)
Aim: To compare all-cause mortality, major acute cardiovascular events (MACEs), quality-of-life and psychosocial well-being in patients with CAD and coexisting MSKCs by CR participation. (minervamedica.it)
The purpose of this study was to describe psychosocial barriers to clinical trial participation among oncologists and their cancer patients. (jnccn.org)
Relevant background information and assessment of practical and psychosocial barriers to clinical trial participation were assessed. (jnccn.org)
Patients identified fear of side effects as the greatest barrier to clinical trial participation, whereas oncologists ranked this psychosocial barrier as least important to their patients. (jnccn.org)
Overall, the study found that although oncologists and patients are aware of clinical trials and have favorable attitudes toward them, psychosocial barriers exist for patients that may impact participation in clinical trials. (jnccn.org)
Furthermore, important discrepancies exist between the perceptions of oncologists and those of patients regarding what the psychosocial barriers are. (jnccn.org)
Cette étude vise l'identification d'un profil psychosocial des patients acceptant l'ETP en amont d'une chirurgie bariatrique, l'hypothèse étant que des déterminants psychosociaux influencent la participation. (etp-journal.org)
This study aims at identifying of a profile of patients accepting TPE before bariatric surgery, the hypothesis being that psychosocial determinants influence participation. (etp-journal.org)
Psychosocial differences in behavioral patterns, psychological distress, BMI and perceptions play a role in participation in an ETP program. (etp-journal.org)

Set up a patient participation group. (bmj.com)
In group A, 62% stated their motivation for participation was to help others and 39% to improve their own treatment, but in 38% participation was to comply with the doctor's request. (nih.gov)
3. Of the 12 patients who had declined entry into a study (group B) three did not want to alter their current therapy, three had insufficient time to participate in the particular trial, and in three cases relatives objected to their participation. (nih.gov)
Group C patients who stated they would not participate in trials gave being too ill (22%), not wanting to change treatment (22%), and fear of side-effects (17%) as the commonest reasons for declining. (nih.gov)
4. In group A, 83% felt they had adequate time to consider their participation. (nih.gov)
Payment for running a Patient Participation Group was built into the GP contract in England from 2011 until 2015. (wikipedia.org)
The Patient Participation Group is angry that they have not been consulted about this and is considering the possibility of legal action against NHS England. (wikipedia.org)
For example, allergies were confirmed in 95 percent of the informed patient group vs. 69 percent of the uninformed group. (infectioncontroltoday.com)
Of course, I am talking about having a Patient Participation Group (PPG). (managementinpractice.com)
The Patient and Carer Participation Group (PCPG) was set up in 2012 and brings together carers, patients and members of staff representing a range of LOROS services. (loros.co.uk)
If you are part of a patient advocacy group and are interested in learning more about collaborating with CISCRP on a Patient Advisory Board, please contact us at [email protected] or 617-725-2750 ext. 400. (ciscrp.org)
The patients were randomly assigned to either the functional limb overloading (FLO) or Limb Overloading Resistance Training (LORT) group and provided four weeks of training. (hindawi.com)
To help us with this, we have a virtual patient representation group so that you can have your say. (mysurgerywebsite.co.uk)
In my role as executive director at the European AIDS Treatment Group (EATG) I was often being called upon to provide this patient voice, yet I did not have the personal resources to follow all the invitations. (bmj.com)
In this longitudinal study, we hypothesize that mixed findings in previous research are partly caused by individual differences in coping with emotions, which may moderate the effects of online support group participation on patients' well-being. (jmir.org)
Online support group participation increased emotional well-being over time for patients who scored low on emotional approach coping at T0, provided that they were highly active online. (jmir.org)
Learn the ins and outs of clinical trial participation for Medicare and Medicaid patients in this informative panel discussion between Patient Power Lung Cancer Community Manager Laura Levaas, Dr. Mark Fleury of the American Cancer Society Cancer Action Network, Jeanne Regnante of the Diverse Cancer Communities Working Group, Sustainable Healthy Communities, LLC, and Nurse Navigator Laura McHugh from the Baptist Cancer Center in Memphis, Tenn. (patientpower.info)
The first and second studies involved a group of patients living with chronic heart failure. (diva-portal.org)
Patients with a recent diagnosis of SpA according to the European Spondylarthropathy Study Group criteria 8 and inflammatory back pain 9 were consecutively enrolled in the prospective early SpA cohort in the Jan van Breemen Research Institute/Reade, a large outpatient rheumatology clinic in Amsterdam. (jrheum.org)
Patient perspectives on maintaining and improving work participation and reasons to stop working are gathered through semi-structured interviews in a sub-group of patients. (springer.com)
Similarly, a survey of 278 pediatric hematologists revealed that 54% of respondents would treat children with immune thrombocytopenia (ITP) to allow sports participation, and over three-quarters of hematologists were comfortable allowing participation in group A activities with platelet counts below 25,000/mm 3 (Kumar M, et al. (aappublications.org)
Contact the Patient Group with your feedback, suggestion, comment or question. (ifieldmedicalpractice.co.uk)
We have recently established a Patient Participation Group. (almondroadsurgery.org.uk)
Notice is given that the Annual General Meeting of the Patient Participation Group will be held virtually via Microsoft Teams on Tuesday 7th September 2021 via the internet as we are still unable to hold the meeting face to face due to the staged removal of restrictions on NHS premises as a result of Covid 19. (moorlandmedicalcentre.co.uk)
What is the role of the Patient Participation Group (PPG)? (moorlandmedicalcentre.co.uk)
What is a Patient Participation Group (PPG)? (southessexcare.co.uk)
Wider participation in the Group is also sought by becoming a "virtual" member of the Group where opinions and suggestions are captured via email. (southessexcare.co.uk)
The group comprises of patients of the surgery who wish to work together with the staff and doctors to help them to meet the needs of their patients, to further improve services and share an understanding of issues and opportunities. (gfmc.org.uk)
We are always happy to accept new members from registered patients if you are interested in joining us, the group meets periodically at the surgery on a scheduled date for roughly 60 minutes. (gfmc.org.uk)
The purpose of the Patient Participation Group is to involve patients in decisions about the range and quality of services and facilities provided. (albanyhousemedicalcentre.co.uk)
The Milton Keynes Guide to Patient Participation Groups is a step-by-step guide to setting up a Patient Participation Group (PPG) offering some support and practical guidance to General Practices and patients who are interested in getting more involved. (miltonkeynesccg.nhs.uk)
If you want to keep up to date with our Patient Participation Group then sign up today! (newmiltonhealthcentre.co.uk)
We need patients from as broad a spectrum as possible to get a truly representative group. (ludlowhillsurgery.co.uk)
The Virtual Group is made up of the members of the existing forum and other patients who have more recently declared their interest in being a member. (ludlowhillsurgery.co.uk)

This study explored reasons for non-participation in breast cancer screening among previous cancer patients, who have high risk of developing a new primary cancer. (springer.com)
2008 ). In a previous study, we found that women with a history of cancer (excluding breast cancer) had an up to 50% increased likelihood of non-participation in breast cancer screening (Jensen et al. (springer.com)
The aim of this study was to explore the increased likelihood of non-participation among previous cancer patients other than breast cancer. (springer.com)
Will relevant feedback be given to the patients about the results of the study? (kwf.nl)
At a general level, the central concern of the study is one of making visiblethe patients' reactions and of scrutinizing their possibilities of making themselves heard. (diva-portal.org)
and in the latter three articles an epidemiological approach to the study of patient perceptions of various aspects of health care is used. (diva-portal.org)
Over half of these patients (54%) disliked no aspect of the study in which they participated. (nih.gov)
The aim of this study was to explore 'patient participation' in everyday activities for persons with dementia living in special care units in nursing homes. (diva-portal.org)
BARCELONA - Results of a study presented at European Society of Sports Traumatology, Knee Surgery and Arthroscopy Congress, here, showed patients who participated in sports before total knee arthroplasty were able to participate in sports postoperatively and in some cases, patients were more active in sports after surgery. (healio.com)
Caroline Hepperger, MSc, presented results of a prospective study she and her colleagues conducted to evaluate sports behavior preoperatively and postoperatively in 180 patients who underwent cemented cruciate-retaining total knee arthroplasty (TKA). (healio.com)
This study documented that patients were not only able to maintain, but to increase activity following surgery. (healio.com)
A study of nonprofessional family and friend ("companion") participation in physician visits of adults with chronic diseases found that both patients and physicians report positively on companions' presence, though most physicians perceive barriers to increasing companion participation. (rwjf.org)
The aim of this study was therefore to describe the influence of structured home care on patient participation over time in patients diagnosed with heart failure, and to explore factors associated with participation in care. (diva-portal.org)
This study shows that patient participation may need to be further focused upon, and that the association with self-care may be interesting to target in future interventions. (diva-portal.org)
The study compared compliance of the SSC in 61 patients who were not informed about the list, and 43 patients who were told about the list and given a copy, which included a place for providers to sign agreeing they would follow it. (infectioncontroltoday.com)
The aim of this study is to investigate the function and participation in patients with stroke evaluated by clinical measures, biomechanical, psychological, physiological and multimodal brain image. (clinicaltrials.gov)
The primary goal of this study is to establish, evaluate and follow-up biomechanical- and image-based biomarkers for the impairment of function and participation information processing present in patients with stroke. (clinicaltrials.gov)
This study shows that the ERAS conversation was experienced as being structured and individually tailored, but the information must apply to the patients throughout the period of care. (diva-portal.org)
A separate consent form must be completed for EACH study participant (For example, 3 consent forms should be submitted for participation of a child and both parents. (uclahealth.org)
This patient centric mobile application is expected to have up to 73% increase in patient study retention and over 200% increase in patient engagement through the application. (medindia.net)
This technology has been built to strengthen StudyKIK's quest in being able support clinical trials in a single platform from the earliest moment when a patient begins to learn about a clinical trial, to their Screening & Consent, and now from Randomization all the way through Study Completion. (medindia.net)
StudyKIK's Patient Engagement & Retention application is designed to increase engagement by providing randomized patients with tools such as, a study progress meter, medication reminders, Uber & Lyft transportation integrations, around-the-clock live phone support from StudyKIK's in-house Patient Support Call Center, study document access, patient payment tracker, e-diary, and any partner integrations needed. (medindia.net)
Patient support, trial adherence, and study completion rates will increase from patients being regularly engaged and connected to their clinical trial with this new technology. (medindia.net)
This HIPAA and GDPR compliant Patient Engagement & Retention App further advances StudyKIK's core mission of ensuring that patients feel as supported as possible when going through the clinical trial process all while speeding up patient recruitment and study completion. (medindia.net)
ASCO's Targeted Agent and Profiling Utilization Registry (TAPUR) Study is a non-randomized clinical trial aiming to describe the performance of commercially available, targeted anticancer drugs prescribed for treatment of patients with advanced cancer with a potentially actionable genomic variant. (asco.org)
As clinical trials gear up with the aim of attaining the first FDA-approved treatments for mitochondrial disease, a new study reports for the first time what patients and families say would motivate them for or against participating in such research trials. (worldpharmanews.com)
The inherent complexity of mitochondrial disease gave rise to our central finding: the need to understand patients' perspectives in identifying their most prevalent and disabling symptoms," said study leader Marni J. Falk, MD, executive director of the Mitochondrial Medicine Frontier Program at Children's Hospital of Philadelphia (CHOP). (worldpharmanews.com)
When asked to rate factors that would likely motivate them to participate in a clinical trial, patients preferred a study drug that could be self-administered, such as pills, vitamins, antioxidants, and natural or plant-derived compounds. (worldpharmanews.com)
They also preferred daily treatment, guaranteed access to the treatment during and after the study, short travel distances to the study site, and participation in late-stage (phase 3) clinical trials. (worldpharmanews.com)
Factors that would make patients less likely to participate were taking a new study drug not previously studied in people, having to discontinue their current medications, experiencing disease progression, needing to undergo daily phlebotomy, requiring intravenous infusions and requiring patient payment for trial participation. (worldpharmanews.com)
The study showed that patients are not intuitively invested in important elements of robust research study design such as including a placebo control, blinding everyone to which therapy is being given and randomizing patients to treatment or placebo. (worldpharmanews.com)
Study design of 25-week randomized, controlled trial of tiotropium in COPD patients receiving pulmonary rehabilitation. (nih.gov)
To the best of our knowledge, this is the first study that has evaluated the effects of functional limb overloading training on symmetric weight bearing, walking ability, and perceived mobility and participation in chronic hemiplegic population. (hindawi.com)
This study demonstrates the need to better understand clinician roles in supporting strategies that promote patient participation in day-to-day hospital care. (bmj.com)
The objective of the present study was to explore barriers and promoting factors influencing patients' decisions to enroll or not in early phase clinical trials (EPCTs) and identify areas for intervention to increase minority enrollment into clinical research. (omicsonline.org)
This study, one of the first to identify South Texas patients' barriers to enroll in EPCTs, highlights potential focal areas to increase participation of both minority and non-minority patients in clinical research. (omicsonline.org)
Culturally tailored interventions promoting patient-centered care and bilingual, culturally competent study teams could solve language barriers and enhance Latinos' likelihood of joining clinical trials. (omicsonline.org)
Results from a Dutch study showed that patients mainly drop out the labor market before the start with dialysis treatment: at the start of the treatment only 35% of the patients, aged 18 to 64 years, had a paid job compared to 61% in the general population in 1997, the year the study was carried out [14]. (highbeam.com)
A Swedish study among pre-dialysis patients and patients on dialysis demonstrated that around 30% of the pre-dialysis patients and more than 50% of the dialysis patients reported stressors with respect to work and leisure time [15]. (highbeam.com)
This study evaluates the amount of postoperative participation in PA in low-income patients who received total joint replacement in the Dominican Republic and identifies preoperative predictors of postoperative PA level. (harvard.edu)
The objectives of this study were to 1) Examine differences among newly consulting patients with LBP who received a PT referral and those who did not, 2) examine differences between patients who participated in PT to those who did not, and 3) compare the impact of a PT referral and PT participation on LBP-related health care utilization and costs over 1 year. (jabfm.org)
The study faces challenges such as timely including patients within the short period between referral and first consultation. (eur.nl)
This study included patients visiting the Scleroderma Clinic of the Ghent University Hospital, who regularly undergo an extensive evaluation. (ugent.be)
Decuman S, Smith V, Verhaeghe S, Deschepper E, Vermeiren F, De Keyser F. Work participation and work transition in patients with systemic sclerosis: a cross-sectional study. (ugent.be)
TY - JOUR UR - http://lib.ugent.be/catalog/pug01:3061439 ID - pug01:3061439 LA - eng TI - Work participation and work transition in patients with systemic sclerosis: a cross-sectional study PY - 2012 JO - (2012) RHEUMATOLOGY SN - 1462-0324 PB - 2012 AU - Decuman, Saskia GE01 002004510454 AU - Smith, Vanessa GE01 001991257729 AU - Verhaeghe, Sofie GE12 001993354848 AU - Deschepper, Ellen GE12 GE51 001995097111 AU - Vermeiren, Frans AU - De Keyser, Filip AB - Objectives. (ugent.be)
For the second study, 11 visits by three patients at a nurse-led outpatient clinic were observed, and consecutive interviews were performed with the patients and the nurses, investigating what they experience as patient participation and non-participation. (diva-portal.org)
The purpose of this retrospective study was to investigate the effect of revised cardiac rehabilitation Clinical Pathways (CPs) on the Cardiac Rehabilitation (CR) participation rate of patients with Myocardial Infarction (MI) undergoing Percutaneous Coronary Intervention (PCI). (koreamed.org)
One hundred forty patients participated in our study. (jrheum.org)
The [email protected] study examines various factors that may influence work participation in relapsing-remitting MS patients, including disease-related factors, the working environment and personal factors. (springer.com)
The [email protected] study is a multicenter, 3-year prospective observational study on work participation in patients with relapsing-remitting MS. We aim to include 350 patients through 15-18 MS outpatient clinics in the Netherlands. (springer.com)
The [email protected] study provides a 3-year follow-up on various factors that may influence work participation in patients with relapsing-remitting MS. We aim to identify factors that relate to job loss and to provide information about preventative measures for physicians, psychologists and other professionals working in the field of occupational health. (springer.com)
The high prevalence of unemployment among MS patients and the large personal and societal costs involved underline the need to study factors associated with unemployment and work absence in MS. (springer.com)
There have been few prospective observational studies which recruited older newly-diagnosed cancer patients, and of these only some have reported information on the number needed to screen to recruit their study sample, and the number and reasons for refusal and drop-out. (biomedcentral.com)
This paper reports on strategies to recruit older newly-diagnosed cancer patients prior to treatment into an observational prospective pilot study and to retain them during a six-month period. (biomedcentral.com)
Ninety-one patients participated in the six-month follow-up (retention 81.3%), seven patients refused follow-up (6.2%) and fourteen patients died (12.5%) during the course of the study. (biomedcentral.com)
In this study, we assessed if the Impact of Vision Impairment (IVI) was a valid instrument to measure participation in daily activities and QoL in patients with AMD with varying levels of visual impairment. (arvojournals.org)
We studied participation rates among persons with and without cancer in a large population based study, the Nord-Trøndelag Health Study (HUNT). (biomedcentral.com)
To this end, the present study aimed to validate further a previously developed instrument as well as to investigate the degree of PA participation in health policy decision-making in Cyprus. (ijhpm.com)
A convenient sample of 114 patients-members of patients associations took part in the study. (ijhpm.com)
Assessing Patient Organization Participation in Health Policy: A Comparative Study in France and Italy', International Journal of Health Policy and Management , 7(1), pp. 48-58. (ijhpm.com)
RESULTS: Twenty patients participated in the study. (edu.au)
In a prospective, multicenter cohort study, newly diagnosed breast cancer patients were surveyed directly after surgery (T1) as well as 10 weeks (T2) and 40 weeks (T3) after surgery. (biomedcentral.com)

They will share learnings and actionable steps on how to successfully execute a DCT and ensure the best results from site, patient, and sponsor perspectives. (acrpnet.org)
In future research on patient participation in MTCs and HL, questions concerning the organization, communication and decision-making in MTCs with and without patient participation have to be addressed, and patient and provider perspectives must be equally considered. (biomedcentral.com)

An in-hospital-guided interview was performed by the clinical research nurse of the cardiac rehabilitation program with 226 hospitalized patients, aged 62 years and older, who had recently suffered a myocardial infarction or coronary bypass surgery. (nih.gov)
Although current guidelines recommend cardiac rehabilitation following acute myocardial infarction (MI), rates of participation are low even among those referred to these programs, according to a research letter published Aug. 3 in JAMA: Internal Medicine . (acc.org)

I. To describe the socio-demographic characteristics for participation and non-participation in AMC clinical trials among all approached volunteers across AMC sites. (clinicaltrials.gov)
Repeated measure ANOVA was used to describe change over time, and stepwise regression analyses were used to explore factors associated with patient participation. (diva-portal.org)
To identify and describe patients' experiences of a preoperative information session with a nurse, as part of the enhanced recovery after surgery (ERAS) concept, and its impact on patient participation in their own care. (diva-portal.org)
Objective Describe participation of patients, with differing preferences for participation, during ward rounds in acute medical inpatient services. (bmj.com)
Modified Poisson regression was used to estimate the prevalence ratio (PRs) and 95% confidence intervals (CIs) to describe the association between patient characteristics and the prevalence of meeting PA guidelines. (queensu.ca)
To describe work participation and work transition due to health in patients with SSc. (ugent.be)
An additional aim was to understand patients' experience of non-participation and to describe the conditions for patient participation and non-participation, in order to understand the prerequisites for patient participation. (diva-portal.org)

The American Society of Clinical Oncology (ASCO) today issued a set of recommendations for overcoming financial barriers to patient participation in cancer clinical trials. (asco.org)
ASCO's policy statement, " Addressing Financial Barriers to Patient Participation in Clinical Trials ," stresses the importance of increasing participation in clinical research, especially for patients from particular ethnic/racial, geographic, age, socioeconomic, and other underserved demographic subgroups. (asco.org)
There are many barriers to patient participation in randomised controlled trials of cancer treatments. (biomedcentral.com)
Our aim was to assess the effectiveness of interventions to overcome barriers to patient participation in randomised controlled trials (RCTs) of cancer treatments. (biomedcentral.com)

1. In order to assess attitudes of patients to participation in therapeutic trials 197 patients underwent structured interviews conducted by a single observer. (nih.gov)
We need to work on giving patients more choice in clinical trials, even at the protocol level," says Agnieszka Gackowska, MD, senior director for Global Site Solutions with Parexel. (acrpnet.org)
She's a big proponent of leveraging technology and concepts surrounding decentralized clinical trials (DCTs) to increase participation by making it easier for patients to engage and remain involved for the duration of the trial. (acrpnet.org)
This pilot research trial studies factors affecting patient participation in Acquired Immune Deficiency Syndrome (AIDS) Malignancy Clinical Trials Consortium clinical trials. (clinicaltrials.gov)
Determining how patients makes decisions about participating in a clinical trial may help doctors plan clinical trials in which more patients are willing to participate and are satisfied with their decision to participate. (clinicaltrials.gov)
IRVINE, Calif. , Dec. 16, 2019 /PRNewswire-PRWeb/ -- StudyKIK, a clinical trial patient recruitment and technology company that owns hundreds of digital patient communities and provides technology solutions for clinical trials, has announced its Patient Engagement & Retention Mobile Application that is fully-customizable per protocol. (medindia.net)
More about StudyKIK: StudyKIK is a patient recruitment and technology platform that was founded on patient communities on all major social media channels to increase awareness for clinical trials. (medindia.net)
Servicing over 3,600 research sites, StudyKIK owns hundreds of social media patient and caregiver communities across Instagram, Snapchat, Facebook, Twitter, and Pinterest to connect patients to clinical trials. (medindia.net)
and limited available research data on financial hardship that patients might incur by participating in clinical trials. (asco.org)
What would help or hinder patient participation in mitochondrial disease clinical trials? (worldpharmanews.com)
One surprising finding was that more severely affected patients - those at higher risk of stroke, kidney failure and death - were not necessarily more tolerant of risk in clinical trials than patients with less severe disease. (worldpharmanews.com)
These interventions may simultaneously increase opportunities to involve patients and physicians in clinical trials, while ensuring the benefits of participation are equitably distributed to all patients. (omicsonline.org)
Cancer patients are living longer as a result of clinical trials that test new treatments, therapies, procedures, or new ways of using known treatments. (patientpower.info)
however, no controlled trials have longitudinally evaluated the effect of exercise on survival or the risk of aortic dissection in TAD patients. (eur.nl)
Guest clinical trials expert Dr. Richard Schilsky, from the American Society of Clinical Oncology, discusses why, especially in the age of precision medicine, trial participation is critical to getting reliable data and making treatment research developments. (patientpower.info)
So, first of all, if we don't get enough participation in trials how does that slow drug development? (patientpower.info)
And most clinical trials in order to produce a reliable result are going to require a minimum of 50 to 100 patients. (patientpower.info)
Background: Patients with advanced cancer for whom standard systemic treatment is no longer available may be offered participation in early phase clinical trials. (eur.nl)
Since patients report decisional conflict after deciding on participation in these trials, improving the decision making process is essential. (eur.nl)
18 years) with advanced cancer for whom standard systemic therapy is no longer available, and who are referred for participation in early phase clinical trials. (eur.nl)
Discussion: This project aims to support the discussion of patient values when considering participation in early phase clinical trials. (eur.nl)
To increase participation in trials, strategies need to be identified to overcome these barriers. (biomedcentral.com)
There is not a strong evidence-base for interventions that increase cancer patient participation in randomised trials. (biomedcentral.com)
Further research is required to evaluate the effectiveness of strategies to increase participation in cancer treatment trials. (biomedcentral.com)
In 2000, the NHS Plan set the target of doubling the total proportion of cancer patients entering clinical trials within three years. (biomedcentral.com)
Of 333 public and charity funded cancer randomised controlled trials (RCTs), conducted in the UK between 1971 and 2000, one fifth recruited at least 75% of the planned sample, just over one half did not reach the planned sample size, while one fifth recruited less than 25% of the planned number of patients. (biomedcentral.com)
Physician and organisation related barriers include lack of time, poor organisational infrastructure, trials competing for the same patients, identifying eligible patients, lack of awareness of ongoing trials and preference for a particular treatment arm. (biomedcentral.com)
However, the listing of barriers to participation in cancer trials belies a complex situation. (biomedcentral.com)
This systematic review is the second part of a project, funded by the National Cancer Research Network, which considers how participation rates in cancer trials might be improved. (biomedcentral.com)
The first part of the project was a systematic review of the literature relating to the barriers to participation in cancer trials as perceived by patients and clinicians. (biomedcentral.com)
Patient advocate and the longest living #Gleevec survivor Mel Mann also shares why it's critical for patients to research clinical trials and explore all of their treatment options. (patientpower.info)
Lower levels were documented with regard to participation in hospital boards, ethics committees in clinical trials and health technology assessment (HTA) procedures. (ijhpm.com)
Among 137 oncologists and 170 patients who completed the surveys, 84% of patients were aware of clinical trials, and oncologists and patients generally agreed that clinical trials are important to improving cancer treatment. (jnccn.org)
However, oncologists and patients were more likely to consider clinical trials in advanced or refractory disease. (jnccn.org)
When considering 7 potential barriers to clinical trials, random assignment and fear of receiving a placebo were ranked highly by both patients and oncologists. (jnccn.org)
We concluded that characterizing oncologist and patient perceived barriers can help improve communication and decision making about clinical trials, such that participation may be optimized. (jnccn.org)

Pre-dialysis patients' perceived autonomy, self-esteem and labor participation: associations with illness perceptions and treatment perceptions. (highbeam.com)
a href="https://www.highbeam.com/doc/1G1-246208554.html" title="Pre-dialysis patients' perceived autonomy, self-esteem and labor participation: associations with illness perceptions and treatment perceptions. (highbeam.com)
Sex and education level were significantly associated with patients' perceptions for several of items. (who.int)
Les régressions logistiques multiples et les analyses textuelles mettent en avant le rôle des tendances comportementales et des perceptions des patients dans l'acceptabilité du programme. (etp-journal.org)
AIMS AND OBJECTIVES: To explore hospitalised medical patients' perceptions of participating in nursing care, including the barriers and facilitators for this activity. (edu.au)

This originally consisted of a Cabinet of 8 members, made up of two people from each of the old PPGs, plus a wider forum of 20 patients to include the remaining members who wished to stay involved. (ludlowhillsurgery.co.uk)

The former warn that clinicians, delivery systems, and policy makers cannot assume that patients have certain capabilities, interests, or goals, nor can they dictate the pathway to achieving a patient's goals. (wikipedia.org)
Its objective is to discover biomarkers that will allow clinicians to know which depression treatments will be most effective for each individual patient. (vchri.ca)
and passive control where the patient prefers clinicians make decisions. (bmj.com)
Wide-scale change," they emphasize, "will require patients, clinicians, insurers, and health systems to adopt and catch up with what is already digitally achievable. (acc.org)

participatory medicine , [2] health consumerism , [3] and patient-centered care . (wikipedia.org)
Patient participation, as it pertains to the formation of health policy, is a process that involves patients as stakeholders , advisors and shared decision makers. (wikipedia.org)
[9] Depending on the context, patient participation in health policy can refer to informed decision making, health advocacy, program development, policy implementation, and evaluation of services. (wikipedia.org)
[9] Patient participation in health policy can affect many different levels of the health care system. (wikipedia.org)
[9] [10] Involving patient participation in health policy research can also ensure that public health needs are accurately incorporated into policy proposals. (wikipedia.org)
[11] When solicited for participation by policymakers and industry leaders, patients can influence health policy, and both groups benefit from collaboration on goal setting and outcome measurement. (wikipedia.org)
By providing feedback in the form of survey responses, patients give community health officials and hospital leaders helpful feedback on the perceived quality and accessibility of health care services. (wikipedia.org)
Patient participation has driven the development of a variety of health policies, ranging from the expansion of hospital visitation hours to the implementation of patient-centered bedside rounding by hospital medical teams. (wikipedia.org)
1) If a patient has been adjudged to lack legal capacity to make health care decisions as established by state law by a court of proper jurisdiction, the rights of the patient may be exercised by the person appointed by the state court to act on the patient 's behalf. (cornell.edu)
2) If a state court has not adjudged a patient to lack legal capacity to make health care decisions as defined by state law, the patient 's representative may exercise the patient 's rights. (cornell.edu)
3) If a patient has been adjudged to lack legal capacity to make health care decisions under state law by a court of proper jurisdiction, the patient may exercise his or her rights to the extent allowed by court order. (cornell.edu)
The HHA must advise the patient and representative (if any), of these changes as soon as possible, in advance of the next home health visit. (cornell.edu)
Rise MB, Eriksen L, Grimstad H, Steinsbekk A. The long-term effect on mental health symptoms and patient activation of using patient feedback scales in mental health out-patient treatment. (clinicaltrials.gov)
The problem focussed on concerns interaction in health and medical settings between patients and health care professionals. (diva-portal.org)
The issues studied relate to patient participation and influence in face-to-face encounters with professionals, and to patient evaluation of selected aspects of their experiences of modem health care. (diva-portal.org)
These results are discussed in terms of patient and health care professionals' prevailing expectancies with respect to patient influence. (diva-portal.org)
It is also shown that there is considerable discrepancy between patient reports and health care professionals' registration of complications after surgery. (diva-portal.org)
Transformative health care delivery programs depend heavily on health information technology to improve and coordinate care, maintain patient registries, support patient engagement, develop and sustain data infrastructure necessary for multi-payer value-based payment, and enable analytical capacities to inform decision making and streamline reporting. (coursera.org)
I knew the health region was committed to making things better for patients and families. (leanblog.org)
Patients may also show how they have made sense of their health problems and may press doctors to interpret their problems in certain ways. (wiley.com)
A cutting-edge health information technology platform, CancerLinQ® enables practitioners to learn from individual patients. (asco.org)
Cancer.Net brings the expertise and resources of ASCO to people living with cancer and those who care for and about them to help patients and families make informed health care decisions. (asco.org)
When we asked patients to specify how many health problems they had, they reported an average of 16 major clinical symptoms, and some had as many as 35," said Falk. (worldpharmanews.com)
Patients participating in the shared benefits of publicly funded health care enjoy the benefits of treatments tested on previous patients. (bmj.com)
Patient participation requires a change of attitude in health care Ingrid Hage Enehaug 2000-07-01 00:00:00 A partnership is founded on equality and mutual respect. (deepdyve.com)
In health care there is no balance of power between the patient and the health‐care professional. (deepdyve.com)
in 34 (74%) out of 46 patients this was attributed to health issues. (ugent.be)
Work participation is limited in patients with SSc and a majority make a work transition because of health problems. (ugent.be)
Patients who reported sick leave show a higher (health-related) resource use. (jrheum.org)
National and international strategies have increasingly promoted chronic patient participation at different levels of the health care system, building the image of an 'active' chronic patient engaged for example in his/her daily self-care and within associations dealing with service delivery and/or policy advocacy. (springermedizin.de)
Despite the image of chronic active patients conveyed by national and international public health strategies, patient participation is not straightforward. (springermedizin.de)
Assessing Patient Participation in Health Policy Decision-Making in Cyprus', International Journal of Health Policy and Management , 5(8), pp. 461-466. (ijhpm.com)
Although the importance of patient participation in the design and evaluation of health programs and services is well-documented, there is scarcity of research with regard to patient association (PA) participation in health policy decision-making processes. (ijhpm.com)
PA participation in health policy decision-making was assessed with the Health Democracy Index (HDI), an original 8-item tool. (ijhpm.com)
To explore its psychometric properties, Cronbach α was computed as regards to its internal consistency, while its convergent validity was tested against a self-rated question enquiring about the degree of PA participation in health policy decision-making. (ijhpm.com)
Health settings pose unique challenges to participation. (helium.ie)
If you'd like to find out more about the ways in which health and care staff are helping patients become more involved in their own care, please visit the Better Conversations Better Health website here . (hee.nhs.uk)
Conversations with patients, their family members and carers reveal that all too often patients leave a consultation or other health professional encounter with unresolved medicines related issues. (hee.nhs.uk)
Even though there are many patient organizations across Europe, their role in impacting health policy decisions and reforms has not been well documented. (ijhpm.com)
To this end, it aims to validate further a previously developed instrument (the Health Democracy Index - HDI) measuring patient organization participation in health policy decision-making. (ijhpm.com)
CPOs participation is low in Italy and France and concerted efforts should be made on upgrading their role in health policy decision-making. (ijhpm.com)
Second, exchanging intelligence was a way of participating where patients' knowledge was built and shared with health professionals. (edu.au)

The results in the first two articles focus on salient features of the interaction patterns of patient-physician dialogues. (diva-portal.org)
The results also show that the more satisfied the patients were with the outcome of the operation and the post-operative care process, the more inclined they were to state that they had been actively involved in the decision to have surgery. (diva-portal.org)
Similarly, these results might not apply to patients with other chronic conditions. (rwjf.org)
Results: One hundred patients receiving structured heart failure home care were included. (diva-portal.org)
The results show that patients feel confirmed in the ERAS conversation. (diva-portal.org)
Results Of the 52 patients observed over 133 ward rounds, 30.8% (n=16) reported an active control preference for participation in decision-making during ward rounds, 25% (n=13) expressed shared control preference and 44.2% (n=23) expressed low control preference. (bmj.com)
Results showed 3-way interactions of time, online intensity of participation, and emotional approach coping on emotional well-being ( F 1,89 =4.232, P =.04, η 2 ρ =.045) and depression ( F 1,88 =8.167, P =.005, η 2 ρ =.085). (jmir.org)
Results: 64 patients out of 170 eligible subjects (52/128 TKR and 14/42 THR) who received TJR between 2009-2012 returned for an annual follow-up visit in 2013, with a mean treatment-to-follow-up time of 2.1 years. (harvard.edu)
Restrictions in labor force participation are not only important for the individual patient and his or her family, but also for society because it results in loss of productivity and societal productivity costs. (jrheum.org)
Results: Frequency of participation did not change during and after CR. (uu.nl)
Descriptive results show that 6.8% of breast cancer patients took part in a MTC. (biomedcentral.com)

Patient participation in care coordination has also lead to the utilization of electronic medical records that patients can access and edit. (wikipedia.org)
Hospitals promote patient participation by empowering patients to serve as advisers and decision makers, including on quality improvement teams, patient safety committees, and family-centered care councils. (wikipedia.org)
Referrals from doctors for DSMES allow patients with diabetes to receive the critical care they need from diabetes care and education specialists. (cdc.gov)
Our subscription package is aimed at qualified nurses to help support CPD and improve the quality and delivery of care given to patients. (nursingtimes.net)
The CMS is threatening to strip Vanderbilt University Medical Center in Nashville, of its ability to care for Medicare patients because a patient died after receiving a large dose of the wrong medication. (modernhealthcare.com)
The failure of the hospital to mitigate risks associated with medication errors and ensure all patients received care in a safe setting … placed them in immediate jeopardy and risk of serious injuries or death," the CMS said in the report. (modernhealthcare.com)
Patient participation must be given attention by leaders and be prioritised in dementia care. (diva-portal.org)
Nursing personnel can enhance patient participation by promoting relatives' partaking in the participation process, as this has potential for further contributing to quality of care. (diva-portal.org)
Studies about how 'patient participation' appears in the context of special care units for persons with dementia are lacking. (diva-portal.org)
Patient Participation Groups are a feature of Primary Care in the United Kingdom. (wikipedia.org)
To enable patients to manage their daily lives and strengthen them in the care process. (gu.se)
Self-care behavior, knowledge, symptoms of depression, socio-demographic and clinical characteristics were measured to explore factors associated with patient participation. (diva-portal.org)
Better self-care behavior was associated with all four scales measuring different aspects of participation. (diva-portal.org)
Conclusion: Patients experienced a fairly high level of satisfaction with participation in care at baseline, and there was a significant improvement over time for participation with regard to received information after being admitted to structured home care. (diva-portal.org)
Higher level of patient participation was consistently associated with better self-care behavior. (diva-portal.org)
Empowering patients to participate in their own care creates a culture of safety and makes them feel safer and rightly so. (infectioncontroltoday.com)
I want to ensure we are consistently responsive to our patients and to praise the GPs who just get on with it - who deliver care in difficult areas, with hard-to-reach patients, with the unemployed or the poor. (gponline.com)
Every year donations help provide care and support to hundreds of our patients and their families. (loros.co.uk)
The ERAS concept is initiated for patients a week before surgery when the patient receives detailed information about the care process during a meeting with a nurse. (diva-portal.org)
Reliance on caregivers is important for patients to feel safe and to participate in their own care. (diva-portal.org)
Some shortcomings have been revealed, which should enable improvement in the care of patients. (diva-portal.org)
Background Meaningful partnering with patients is advocated to enhance care delivery. (bmj.com)
Little is known about how this is operationalised at the point of care during hospital ward rounds, where decision-making concerning patient care frequently occurs. (bmj.com)
Patients' participation was observed in 75% (n=85) of ward rounds, but few rounds (18%, n=20) involved patient contribution to decisions about their care. (bmj.com)
By combining professional knowledge with systematic input from experienced consumers the hospital organization can get access to valuable knowledge and insight to improve the care for the patients. (deepdyve.com)
Collaboration in improving care for patients: how can we find out what we haven't been able to figure out yet? (deepdyve.com)
In general, patient participation is regarded as being informed and partaking in decision making regarding one's care and treatment. (diva-portal.org)
Zurück zum Zitat Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. (springermedizin.de)
But, again, what helps a lot more is to have members of the care team who look like the patient. (patientpower.info)
BACKGROUND: Patient participation benefits the patient and is a core concept of patient-centred care. (edu.au)
Third, on the lookout was a type of participation where patients monitored their care, showing an attentive approach towards their own safety. (edu.au)
From April 2015 all practices are required to provide their patients with a named GP who will have overall responsibility for the care and support that the surgery provides to them. (lislecourt.co.uk)
The survey provides information on patients' overall experience of primary care services and their overall experience of accessing these services. (moorlandmedicalcentre.co.uk)
Certain batches are affected and patients are advised to the NovoNordisk Customer Care Line on 0845 600 5055 to check their device and/or to request a replacement. (ludlowhillsurgery.co.uk)
Despite mounting evidence on the value of pharmacists as patient care providers (5), legal, policy, and reimbursement frameworks have not kept pace nor adequately recognized pharmacists as providers. (cdc.gov)

Patients (n = 46) had mean age of 67 years, mean baseline FEVJ of 0.84 L (33% predicted). (nih.gov)

Among women with previous cancer ( n = 6638), 25.3% did not participate in breast cancer screening compared to 20.9% of women with no registrations of previous cancer, thus previous cancer patients were 21% less likely not to participate in breast cancer screening (PRR 1.21, 95% CI 1.16-1.27). (springer.com)
2011 ). Participation in breast cancer screening is generally high in Denmark (~ 80%) (Mikkelsen et al. (springer.com)
Patients are the primary parties benefiting from KWF's activities, and they have first-hand experience with undergoing cancer treatments and living with cancer. (kwf.nl)
PACO members are (former) cancer patients with a variety of indications and stages of the disease and higher education qualifications or experience. (kwf.nl)
does the objective of the project proposal match the needs/wishes of cancer patients or the public? (kwf.nl)
Translational genomic sequencing research has mostly focused on patients with a disease or a strong family history of a disorder, such as adult or pediatric cancer, childhood developmental disabilities, or cardiac conditions (Biesecker et al. (pubmedcentralcanada.ca)
Does the Recall by the General Practitioner Improve Patients' Participation in Colorectal Cancer Screening? (knowcancer.com)
An interviewer-administered survey was conducted with 100 cancer patients in the predominantly Latino region of South Texas. (omicsonline.org)
Previous research on the effects of online peer support on psychological well-being of patients with cancer showed mixed findings. (jmir.org)
How patients cope with emotions that come along with the cancer diagnosis might influence effectiveness of online participation. (jmir.org)
Tune in to hear patient advocate Diane Mapes shares her diagnosis story of a breast cancer type that's difficult to detect. (patientpower.info)
Patient advocates accomplish amazing feats that transcend the ordinary-like running 1,200 miles to raise cancer awareness. (patientpower.info)
Produced by Patient Power in collaboration with The US Oncology Network, Compass Oncology, and Willamette Valley Cancer Institute and Research Center. (patientpower.info)
Count on us for updates on the coronavirus and guidance for cancer patients and family members. (patientpower.info)
Can Low Clinical Trial Participation Inhibit Cancer Research and Innovation? (patientpower.info)
My name is Laura Levaas, and I'm the Lung Cancer Community Manager for Patient Power. (patientpower.info)
Studies of any interventions to improve cancer patient participation in RCTs, which reported the change in recruitment rates, were eligible for inclusion. (biomedcentral.com)
3 ] However, this remains a small proportion of all cancer patients. (biomedcentral.com)
While the research literature fails to identify in a clear, reliable and consistent way the barriers involved in cancer trial participation, themes can be identified. (biomedcentral.com)
Medical charts of all patients in the Segal Cancer Centre aged 65 and over were screened and evaluated for inclusion. (biomedcentral.com)
It was feasible to recruit newly-diagnosed cancer patients prior to treatment although it required considerable time and effort. (biomedcentral.com)
Once patients were included, the retention rate was high despite the fact that most were undergoing active cancer treatment. (biomedcentral.com)
The magnitude of participation bias due to non-participation should be considered for cancer patients invited to population-based surveys. (biomedcentral.com)
The invitation files with data on sex, invitation date and participation were linked to the Cancer Registry of Norway. (biomedcentral.com)
Although clinical trial research is required for the development of improved treatment strategies, very few cancer patients participate in these studies. (jnccn.org)
Potential impact of clinical trial (CT) participation on survival of patients with metastatic non-small cell lung cancer (NSCLC). (thinklab.com)
In addition, by utilizing this tool, it aims to provide a snapshot of the degree and impact of cancer patient organization (CPO) participation in Italy and France. (ijhpm.com)
Furthermore, it has been shown that in some breast cancer centers in Germany, patients participate in MTCs and that participation is associated with sociodemographic and breast cancer center-related factors. (biomedcentral.com)
To close this gap in research, we analyzed which patient characteristics affect participation in MTCs and whether participation varies between breast cancer centers. (biomedcentral.com)
After descriptive analysis, t-tests were conducted, correlations for independent variables were run, and logistic multilevel regression analysis was applied to estimate the association between patient participation in MTCs at T1 and HL (HLS-EU-Q16 [1]), sociodemographic and disease-related characteristics ( n = 863 patients) and the variation between breast cancer centers ( n = 43 centers). (biomedcentral.com)
The logistic multilevel regression model revealed that patients with an inadequately HL are less likely to participate in MTCs (OR = 0.31, 95%-CI = 0.1-0.9, Pseudo-R 2 = 0.06), and participation is dependent on the breast cancer center (ICC = 0.161). (biomedcentral.com)
These findings are the first to show significant differences in HL and patient participation in MTCs in a large sample of breast cancer patients. (biomedcentral.com)

The argument was a device to provoke students into attacking its conclusion from the now orthodox outraged defence of patient autonomy. (bmj.com)
Conclusion: The TJR patients in the Dominican cohort participate in less PA than recommended by the CDC/WHO. (harvard.edu)

We also analyzed preoperative determinants of postoperative participation in aerobic PA in bivariate and multivariate analyses. (harvard.edu)
Few studies assess the barriers or determinants of participation in TPE. (etp-journal.org)

While older coronary patients have a lower exercise capacity than younger coronary patients and have been demonstrated to improve exercise capacity to a degree similar to younger coronary patients, they are less likely to be referred to an outpatient cardiac rehabilitation program. (nih.gov)
Patients with chronic stroke were recruited from outpatient rehabilitation unit at Department of Neurology & Neurosurgery, All India Institute of Medical Sciences, having a history of first stroke at least six months before recruitment, with unilateral motor deficits affecting gait. (hindawi.com)

Experiencing lower degree of symptoms of depression, having better knowledge, being of male sex, being of lower age, cohabiting and having home help services were associated with one or two of the four scales measuring different aspects of participation. (diva-portal.org)
The 28-item IVI is an appropriate and valid scale to assess overall and three specific aspects of participation in daily activities in patients with AMD. (arvojournals.org)
Because experienced restrictions and dissatisfaction are related to changes in HRQOL it is important to address these aspects of participation during CR. (uu.nl)

However, similar systematic recommendations for the much larger population of patients with GCVD who are not trained athletes, but nevertheless wish to participate in any of a variety of recreational physical activities and sports, have not been available. (ahajournals.org)
Do I not therefore have an obligation to bear the feet of future patients by allowing my treatment to be included in systematic research? (bmj.com)
We aimed to provide an up-to-date systematic review of the available evidence on risks and benefits of exercise and sports participation in TAD patients. (eur.nl)

Neural network in patients with brain damage could also be used to determine their clinical behavior by identifying altered neural network associated with behavioral improvement. (clinicaltrials.gov)

How Do Medicare and Medicaid Impact Clinical Trial Participation? (patientpower.info)
He's going to share with us what he's learned about barriers in clinical trial participation and solutions to overcome some of those options. (patientpower.info)
Is Clinical Trial Participation Parallel to the Pace of Drug Development? (patientpower.info)
How Can Experts Overcome Language and Cultural Barriers to Increase Clinical Trial Participation? (patientpower.info)

StudyKIK now offers pharmaceutical companies a patient-designed and research site-focused engagement & retention mobile application for patients that randomize into a clinical trial to address the concern of patients dropping out of a trial or losing interest. (medindia.net)
The Patient Retention & Engagement application is developed on both iOS and Android platforms, fully compliant with ESIGN, HIPAA, GDPR, and completely secure with all data being encrypted. (medindia.net)
StudyKIK's Chief Strategy Officer Sam Haiden stated, "StudyKIK's new patient retention & engagement app will revolutionize the way patients and research sites interact during a clinical trial. (medindia.net)
Drawing upon examples of the fight against diabetes and HIV/AIDS in Mali, this article explores the factors that influence the engagement of patient associations at policy level. (springermedizin.de)

We compared the amount of aerobic PA reported by postoperative TJR patients with the levels of PA recommended by the CDC and WHO. (harvard.edu)
Multivariate analyses including data from 56 individuals identified that patients who were both younger than 65 and at least two years postoperative had an adjusted mean activity dimensions summary index (ADSI) 22.9 points higher than patients who were 65 or older and one year postoperative. (harvard.edu)

[10] By engaging with patients and patient advocacy groups, policymakers can support patients to shape public policy. (wikipedia.org)
Members of Patient Participation Groups are not always consulted about plans for their local services as they expect to be. (wikipedia.org)
The £8m cost of patient surveys would be better spent on practices setting up patient participation groups, the GPC chairman is expected to tell the LMCs conference today. (gponline.com)
Patient Participation Groups: moaners or bonus? (managementinpractice.com)
There was no difference in trial preferences reported between the adult and pediatric patient groups. (worldpharmanews.com)
Find out about Patient Participation Groups as well as relevant policy changes, publications or projects. (napp.org.uk)
Resource use across patient groups with different employment status was investigated with linear regression analyses. (jrheum.org)
We conducted two patient focus groups. (sapc.ac.uk)
We are committed to developing strong and constructive relationships with patient and public audiences, such as individual patients, carers, users of medicines and of pharmacy services and the groups that represent them. (hee.nhs.uk)

Patient participation has contributed to improvements in the nurse-to-nurse handoff process by engaging with staff to discuss change-of-shift information at the patient's bedside. (wikipedia.org)
Hello, and welcome to this Patient Empowerment Network Clinical Trial MythBusters program on a very, very important topic, what impact does Medicaid or Medicare have on a patient's ability to participate in a clinical trial? (patientpower.info)
The issue of participation should be raised as a means of attaining concordance and to facilitate patient participation with education specifically tailored to the individual patient's needs. (diva-portal.org)

Prospective studies with long-term follow-up on work participation in MS are rare, or take into account a limited number of factors. (springer.com)

The single-center discovery cohort comprised mitochondrial disease patients at CHOP, evenly divided between children and adults, with 30 respondents out of 67 invited. (worldpharmanews.com)
An independent replication cohort consisted of patients with primary mitochondrial disease from an NIH-supported national contact registry, the Rare Disease Clinical Research Network, with 290 respondents out of 1,119 invited. (worldpharmanews.com)

Join Gackowska and members of Parexel's Patient and Site Advisory Councils during ACRP 2021 this month. (acrpnet.org)

The Therapeutic Education of the Patient (ETP) has proved its effectiveness in the management of several pathologies. (etp-journal.org)

Preoperative[ly], 78% of the patients participated in sports in comparison to 83% after 24 months," Hepperger said. (healio.com)
Patients who had the most optimistic preoperative expectations of outcome had adjusted mean ADSI scores that were 19.8 points higher than those who were less optimistic. (harvard.edu)

Work participation and work transition in patie. (ugent.be)
Alertness to work participation even in patients with a short disease duration is urgently needed. (jrheum.org)
It is well known that patients with AS have restrictions in work participation, ranging from reduced levels of productivity at work (presenteeism) to absence from work because of sick leave, and eventual withdrawal from the workforce because of disability 1 , 2 , 3 . (jrheum.org)
This seems odd because work participation is important for patients' quality of life, and the effect of the disease lasts most of their lives. (jrheum.org)
Therefore, we studied employment status, sick leave, and presenteeism in patients with a recently diagnosed SpA (the majority had axial complaints), and we investigated the association between work participation and clinical disease-related factors and resource use. (jrheum.org)
Work participation is important for a person's sense of self-respect, social contacts and providing a feeling of usefulness and satisfaction. (springer.com)

nonetheless, the following description shall subdivide it into several areas where patients and/or their advocates have a role. (wikipedia.org)
In other areas, patients act as advocates by serving as members of organizational and governmental policy committees. (wikipedia.org)
He is the author of two nationally recognized books for patients and their advocates including The Gift of Participation , and the recipient of several awards for innovation and scholarship. (ciscrp.org)
Just five months earlier, FDA's scientific advisory committee had voted against approval over the objections of a crowd of more than one thousand patients and advocates who had arrived to observe and provide testimony during the committee's public hearing. (fdli.org)
Yet, in the face of significant pressure from patients and their advocates, FDA reversed the negative recommendations of the advisory committee and its internal review team and approved the drug. (fdli.org)

Although not significantly different by statistical analysis, patients receiving tiotropium reported approximately 216 minutes more physical activity as compared with patients receiving placebo at week 25. (nih.gov)
Early research on these innovations shows significantly higher rates of participation and completion than for traditional programs. (acc.org)
Dave's activation as a patient changed his outlook so significantly that he decided he wanted to help others facing similar challenges. (hee.nhs.uk)

FPN has collaborated with CISCRP's Research Services on several Patient Advisory Board meetings by helping to identify eligible patients to participate and by contributing directly to the discussion. (ciscrp.org)
3060 medical charts were screened and 156 eligible patients were identified. (biomedcentral.com)

Patients also display their ability to recognise and weigh the evidence for common, easily remedied causes of their symptoms. (wiley.com)

Patient Educ Couns. (clinicaltrials.gov)

With appropriate planning, Photovoice can be adapted to a range of settings to enhance patient participation. (bmj.com)

To assess whether and how the activation of the renin-angiotensin system that occurs in response to changes in posture contributes to the maintenance of blood pressure, we measured blood pressure, heart rate, plasma noradrenaline and plasma active and inactive renin in patients with essential hypertension in the supine, sitting and standing positions, (each sustained for 30 min), before and after administration of captopril. (ovid.com)
Objectives: To assess changes in participation in society (frequency, restrictions, satisfaction) during and after cardiac rehabilitation (CR) and to assess associations between participation and heath-related quality of life (HRQOL). (uu.nl)

Patients who participated in at least one session tended to be younger, male, white, and nonsmokers, with fewer comorbidities. (acc.org)

Thematic analysis of qualitative observation and patient interview data revealed two themes, supporting patient capability and clinician-led opportunity , that contributed to patient participation or non-participation in ward rounds. (bmj.com)

To support patient participation at a system level. (gu.se)
There were 109 patients who visited an online support community at both points in time. (jmir.org)
This improved sharing of values is hypothesized to support medical oncologists in tailoring their information to individual patients' needs and, consequently, to support patients in taking decisions in line with their values and reduce decisional conflict. (eur.nl)
Education improves uptake of self-management strategies yet knowledge is lacking about support of patients' own resources in CHF. (diva-portal.org)
We will ensure the patient and public voice is at the heart of decision making in the medicines optimisation education that we support and advise on. (hee.nhs.uk)

Brain damage may lead to various motor deficits, which further influence the function and participation. (clinicaltrials.gov)
Finally, we discuss how the scope and duration of a pilot implementation influence the conditions for participation. (ruc.dk)
ConclusionConflicting values of patients and nurses, which were interpreted with respect to participation and non-participation, presumably might influence patient information and education negatively. (diva-portal.org)

It provides feedback and insight from patients and carers' experience to make LOROS the best place it can be for everyone, all the time. (loros.co.uk)

Similarly, foundations, nonprofit organizations, and government agencies can create funding mechanisms requiring and supporting patient participation in societal decisions and priority setting. (wikipedia.org)

However, how patients with heart failure view participation and which factors may be associated with participation is not known. (diva-portal.org)
Medical factors such as cardiac diagnosis and left ventricular ejection fraction did not predict participation. (nih.gov)
Exploratory factor analysis was conducted to identify underlying dimensions, and multiple logistic regressions assessed significant factors that promote or deter patients' enrollment to EPCTs. (omicsonline.org)
Three political factors explain this difference: focus and extent of the commitment of public authorities, existing policy-making processes, and how the law frames patients' roles. (springermedizin.de)
Rather, political, economic, and cognitive factors underpin the presence of political opportunities that enable patient participation. (springermedizin.de)
The role of new longer-acting factors has not been evaluated in-depth in patients with severe hemophilia who wish to take part in soccer or other moderate-high risk sports, and most hematologists still dose their patients with regular factor to a level of 100% prior to such activity. (aappublications.org)

Wellbeing and dignity in the resident's everyday life was found to be the most important goal, not necessarily a high level of patient participation (II-III). (diva-portal.org)
Relatives had an important role in the participation process by interacting, and exchanging information, with the personnel. (diva-portal.org)
Having a patient participate in Lean improvement work not only gets the direct patient perspective, but they can also play the role of "fresh eyes," which is an important role in process improvement. (leanblog.org)
It is important to confirm the patient in order for them to participate and take responsibility. (diva-portal.org)
Some social scientists have also argued that it is important to examine social interactions between doctors and patients to see why certain interpretations of illness prevail. (wiley.com)
Endpoint data such as laboratory values or biomarkers are important, but not particularly meaningful as a primary outcome measure to the FDA or to patients' sense of well-being. (worldpharmanews.com)
In contrast, non-enrolled patients were less likely (OR=0.14, 95% CI=0.05-0.44, p 0.001) to consider fatalistic beliefs as an important barrier. (omicsonline.org)
In the decision making process, both medical-technical information and patient values and preferences are important. (eur.nl)

Diseases7

Chemicals and Drugs2

Analytical, Diagnostic and Therapeutic Techniques and Equipment9

Psychiatry and Psychology13

Disciplines and Occupations1

Anthropology, Education, Sociology and Social Phenomena5

Technology, Industry, Agriculture1

Humanities1

Information Science10

Named Groups2

Health Care20

Relationships between various attitudes towards self-determination in health care with special reference to an advance directive. (1/2029)

Toward sensitive practice: issues for physical therapists working with survivors of childhood sexual abuse. (2/2029)

Diabetes care: who are the experts? (3/2029)

User fees and patient behaviour: evidence from Niamey National Hospital. (4/2029)

Knowledge, attitudes and practices during a community-level ivermectin distribution campaign in Guatemala. (5/2029)

Adapting total quality management for general practice: evaluation of a programme. (6/2029)

Incorporating patients' voices in the audit process. (7/2029)

Understanding lay perspectives: care options for STD treatment in Lusaka, Zambia. (8/2029)

Patient Participation

Physician-Patient Relations

Decision Making

Role

Professional-Patient Relations

Trust

Patient Satisfaction

Attitude of Health Personnel

Communication

Primary Health Care

Family Practice

Questionnaires

Neoplasms

Social Participation

Consumer Participation

Encyclopedias as Topic

Patient-Centered Care

Drug Approval

Electronic Mail

Food Dispensers, Automatic

Editorial Policies

Authorship

Periodicals as Topic

Postal Service

Internet

Mental Health

Research Personnel

Modems

Healthcare Common Procedure Coding System

Models, Theoretical

Attitude

Clinical Trials as Topic

Attitude to Health

Observer Variation

Dementia

Dementia, Vascular

Activities of Daily Living

Residential Facilities

Taboo

Dicarboxylic Acids

Patient Selection

Pandemics

Philosophy, Medical

Hematinics

Medication Therapy Management

Glossitis

Palliative Care

Mucositis

Venous Thromboembolism

Catheterization, Central Venous

Sarcoma, Kaposi

Research Subjects

Refusal to Participate

Relationships between various attitudes towards self-determination in health care with special reference to an advance directive. (1/2029)

Toward sensitive practice: issues for physical therapists working with survivors of childhood sexual abuse. (2/2029)

Diabetes care: who are the experts? (3/2029)

User fees and patient behaviour: evidence from Niamey National Hospital. (4/2029)

Knowledge, attitudes and practices during a community-level ivermectin distribution campaign in Guatemala. (5/2029)

Adapting total quality management for general practice: evaluation of a programme. (6/2029)

Incorporating patients' voices in the audit process. (7/2029)

Understanding lay perspectives: care options for STD treatment in Lusaka, Zambia. (8/2029)

Nurses views of patient participation in nursing care

Patient Participation Groups

Patient Participation Group

Patient participation in patients with heart failure receiving structured home care - a prospective longitudinal study

Patient participation - Wikipedia

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Patient Participation Group

Patient Participation Group

Patient Participation Group

Patient Participation Group

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PPO.23 Top 15 research priorities for preterm birth with clinicians and service users involvement - outcomes from a James Lind...

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Factors Affecting Patient Participation in AIDS Malignancy Clinical Trials Consortium Clinical Trials - Full Text View -...

Involvement in Mental Health and Substance Abuse Work: Conceptions of Service Users

Public and Patient Participation - NHS Stafford and Surrounds CCG