Patient Participation
Decision Making
Role
Patient Satisfaction
Attitude of Health Personnel
Communication
Primary Health Care
Family Practice
Questionnaires
Neoplasms
Relationships between various attitudes towards self-determination in health care with special reference to an advance directive. (1/2029)
OBJECTIVES: The subject of patient self-determination in health care has gained broad interest because of the increasing number of incompetent patients. In an attempt to solve the problems related to doctors' decision making in such circumstances, advance directives have been developed. The purpose of this study was to examine relationships between public attitudes towards patient autonomy and advance directives. SUBJECTS AND MAIN OUTCOME MEASURES: A stratified random sample of 600 adults in northern Sweden was surveyed by a questionnaire with a response rate of 78.2%. The subjects were asked about their wish for control of their health care, their concerns about health care, their treatment preferences in a life-threatening situation (both reversible and irreversible), and their attitudes towards the application of advance directives. RESULTS: Numerous relationships between various aspects of self-determination in health care (desire for control, fears of over-treatment, and choice of treatment level) in general and advance directives, in particular, were found. Those who wanted to have a say in their health care (about 94%) also mainly supported the use of an advance directive. CONCLUSIONS: The fact that almost 30% of the respondents were undecided concerning their personal use of advance directives points to a lack of knowledge and to the necessity of education of the public on these issues. (+info)Toward sensitive practice: issues for physical therapists working with survivors of childhood sexual abuse. (2/2029)
BACKGROUND AND PURPOSE: The high rates of prevalence of childhood sexual abuse in the United States and Canada suggest that physical therapists work, often unknowingly, with adult survivors of childhood sexual abuse. The purposes of this qualitative study were to explore the reactions of adult female survivors of childhood sexual abuse to physical therapy and to listen to their ideas about how practitioners could be more sensitive to their needs. The dynamics and long-term sequelae of childhood sexual abuse, as currently understood by mental health researchers and as described by the participants, are summarized to provide a context for the findings of this study. SUBJECTS AND METHODS: Twenty-seven female survivors (aged 19-62 years) participated in semistructured interviews in which they described their reactions to physical therapy. RESULTS: Survivors' reactions to physical therapy, termed "long-term sequelae of abuse that detract from feeling safe in physical therapy," are reported. Participant-identified suggestions that could contribute to the sense of safety are shared. CONCLUSIONS AND DISCUSSION: Although the physical therapist cannot change the survivor's history, an appreciation of issues associated with child sexual abuse theoretically can increase clinicians' understanding of survivors' reactions during treatment. We believe that attention by the physical therapist to the client's sense of safety throughout treatment can maximize the benefits of the physical therapy experience for the client who is a survivor. (+info)Diabetes care: who are the experts? (3/2029)
OBJECTIVES: To identify issues that patients and professionals consider important in diabetes care and differences in their priorities for care and to determine patients' and professionals' judgements of the relative importance of their chosen priorities. DESIGN: Structured group interviews using the nominal group technique. SETTING: Five district health authorities on Tyneside. SUBJECTS: Five nominal groups: expert (seven), non-expert (seven) health care professionals; insulin dependent (four), non-insulin dependent patients (eight); and carers of diabetic patients (eight). MAIN MEASURES: Items important in diabetes care to each nominal group (themes of care), ranked into a series of "top 10" items for each group, and allocated a score according to relative importance to individual members; scores were standardised by individual weighting and group weighting for comparison within and between groups. RESULTS: Patients and professionals agreed that information given to patients, interaction between professionals and patients, patient autonomy, and access were important for good diabetes care, but the importance assigned to each differed. Thus the professionals emphasised empathy and aspects of good communication and patients the desire to know enough to live a "normal" life. Differences were also found within the patient groups; these related to changes in patients' needs at specific points in the development of their illness and in their orientations to care. CONCLUSION: Patients differ from professionals in their orientation to diabetes care, and they can, and should, be involved in setting priorities for care. Since these priorities are dynamic further work is needed to explore the nature of patient satisfaction with diabetes care. (+info)User fees and patient behaviour: evidence from Niamey National Hospital. (4/2029)
Evidence is presented on the effects of price changes on the delay before seeking care and on referral status in a sample of hospital patients in Niger. Price changes are measured as differences across patients at one hospital in whether or not they pay for care, rather than as differences in prices across several hospitals. User fees are charged, but the fee system allows exemptions for some payor categories such as government employees, students, and indigent patients. Evidence is also presented on the effect of income on the delay before seeking care and referral status. The analysis demonstrates a technical point on whether household consumption or current income is a more appropriate measure of income. The analysis shows that user fees affect patient behaviour, but the effects are not the same for outpatients and inpatients. Outpatients who pay for care wait longer before seeking care, but inpatients do not. Inpatients who pay for care are more likely to be referred, but outpatients are not. Patients with more income wait less time to seek care and are less likely to be referred than other patients. Further, household consumption explains patient behaviour better than current income. (+info)Knowledge, attitudes and practices during a community-level ivermectin distribution campaign in Guatemala. (5/2029)
Community acceptance and participation are essential for the success of mass ivermectin chemotherapy programmes for onchocerciasis (river blindness). To explore the local understanding of the purpose of ivermectin and willingness to continue taking the drug, we performed questionnaire surveys in four communities with hyperendemic onchocerciasis after each of three ivermectin treatment rounds. More than 100 respondents participated in each KAP survey, representing the heads of 30% of the households in each community. The respondents rarely stated that the goal of the ivermectin treatment programme was to prevent visual loss. Instead, they said they were taking the drug for their general well-being, to cure the onchocercal nodule (filaria), or to cure the microfilaria, a term newly introduced by agents of the treatment programme. The principal reason identified for refusal to take ivermectin was anxiety about drug-related adverse reactions, and there were marked differences between communities in acceptance of treatment. In one community over 50% of residents initially refused to take ivermectin, although participation rates improved somewhat after programmatic adjustments. We recommend that ivermectin distribution programmes establish surveillance activities to detect where acceptance is poor, so that timely and community-specific adjustments may be devised to improve participation. (+info)Adapting total quality management for general practice: evaluation of a programme. (6/2029)
OBJECTIVE: Assessment of the benefits and limitations of a quality improvement programme based on total quality management principles in general practice over a period of one year (October 1993-4). DESIGN: Questionnaires to practice team members before any intervention and after one year. Three progress reports completed by facilitators at four month intervals. Semistructured interviews with a sample of staff from each practice towards the end of the year. SETTING: 18 self selected practices from across the former Oxford Region. Three members of each practice received an initial residential course and three one day seminars during the year. Each practice was supported by a facilitator from their Medical Audit Advisory Group. MEASURES: Extent of understanding and implementation of quality improvement methodology. Number, completeness, and evaluation of quality improvement projects. Practice team members' attitudes to and involvement in team working and quality improvement. RESULTS: 16 of the 18 practices succeeded in implementing the quality improvement methods. 48 initiatives were considered and staff involvement was broad. Practice members showed increased involvement in, and appreciation of, strategic planning and team working, and satisfaction from improved patients services. 11 of the practices intend to continue with the methodology. The commonest barrier expressed was time. CONCLUSION: Quality improvement programmes based on total quality management principles produce beneficial changes in service delivery and team working in most general practices. It is incompatible with traditional doctor centred practice. The methodology needs to be adapted for primary care to avoid quality improvement being seen as separate from routine activity, and to save time. (+info)Incorporating patients' voices in the audit process. (7/2029)
Obtaining patients' views about their experiences of care should be an integral part of clinical audit. The importance of listening to patients as an aspect of quality can be attributed, in part, to the growth of consumerism in health care, and this in turn has led to the widespread use of satisfaction surveys to obtain patients' views. This paper raises some doubts about current methods for assessing patient satisfaction, and recommends the use of qualitative methods to capture patients' voices in audit. (+info)Understanding lay perspectives: care options for STD treatment in Lusaka, Zambia. (8/2029)
Understanding lay persons' perceptions of STD care is critical in the design and implementation of appropriate health services. Using 20 unstructured group interviews, 10 focus group discussions and 4 STD case simulations in selected sub-populations in Lusaka, we investigated lay person perspectives of STD services. The study revealed a large diversity of care options for STD in the communities, including self-care, traditional healers, medicine sold in the markets and streets, injections administered in the compounds, private clinics, health centres and hospital. The factors identified as influencing care seeking behaviour are: lay referral mechanisms, social cost, availability of care options, economics, beliefs, stigma and quality of care as perceived by the users. (+info)Neoplasm refers to an abnormal growth of cells that can be benign (non-cancerous) or malignant (cancerous). Neoplasms can occur in any part of the body and can affect various organs and tissues. The term "neoplasm" is often used interchangeably with "tumor," but while all tumors are neoplasms, not all neoplasms are tumors.
Types of Neoplasms
There are many different types of neoplasms, including:
1. Carcinomas: These are malignant tumors that arise in the epithelial cells lining organs and glands. Examples include breast cancer, lung cancer, and colon cancer.
2. Sarcomas: These are malignant tumors that arise in connective tissue, such as bone, cartilage, and fat. Examples include osteosarcoma (bone cancer) and soft tissue sarcoma.
3. Lymphomas: These are cancers of the immune system, specifically affecting the lymph nodes and other lymphoid tissues. Examples include Hodgkin lymphoma and non-Hodgkin lymphoma.
4. Leukemias: These are cancers of the blood and bone marrow that affect the white blood cells. Examples include acute myeloid leukemia (AML) and chronic lymphocytic leukemia (CLL).
5. Melanomas: These are malignant tumors that arise in the pigment-producing cells called melanocytes. Examples include skin melanoma and eye melanoma.
Causes and Risk Factors of Neoplasms
The exact causes of neoplasms are not fully understood, but there are several known risk factors that can increase the likelihood of developing a neoplasm. These include:
1. Genetic predisposition: Some people may be born with genetic mutations that increase their risk of developing certain types of neoplasms.
2. Environmental factors: Exposure to certain environmental toxins, such as radiation and certain chemicals, can increase the risk of developing a neoplasm.
3. Infection: Some neoplasms are caused by viruses or bacteria. For example, human papillomavirus (HPV) is a common cause of cervical cancer.
4. Lifestyle factors: Factors such as smoking, excessive alcohol consumption, and a poor diet can increase the risk of developing certain types of neoplasms.
5. Family history: A person's risk of developing a neoplasm may be higher if they have a family history of the condition.
Signs and Symptoms of Neoplasms
The signs and symptoms of neoplasms can vary depending on the type of cancer and where it is located in the body. Some common signs and symptoms include:
1. Unusual lumps or swelling
2. Pain
3. Fatigue
4. Weight loss
5. Change in bowel or bladder habits
6. Unexplained bleeding
7. Coughing up blood
8. Hoarseness or a persistent cough
9. Changes in appetite or digestion
10. Skin changes, such as a new mole or a change in the size or color of an existing mole.
Diagnosis and Treatment of Neoplasms
The diagnosis of a neoplasm usually involves a combination of physical examination, imaging tests (such as X-rays, CT scans, or MRI scans), and biopsy. A biopsy involves removing a small sample of tissue from the suspected tumor and examining it under a microscope for cancer cells.
The treatment of neoplasms depends on the type, size, location, and stage of the cancer, as well as the patient's overall health. Some common treatments include:
1. Surgery: Removing the tumor and surrounding tissue can be an effective way to treat many types of cancer.
2. Chemotherapy: Using drugs to kill cancer cells can be effective for some types of cancer, especially if the cancer has spread to other parts of the body.
3. Radiation therapy: Using high-energy radiation to kill cancer cells can be effective for some types of cancer, especially if the cancer is located in a specific area of the body.
4. Immunotherapy: Boosting the body's immune system to fight cancer can be an effective treatment for some types of cancer.
5. Targeted therapy: Using drugs or other substances to target specific molecules on cancer cells can be an effective treatment for some types of cancer.
Prevention of Neoplasms
While it is not always possible to prevent neoplasms, there are several steps that can reduce the risk of developing cancer. These include:
1. Avoiding exposure to known carcinogens (such as tobacco smoke and radiation)
2. Maintaining a healthy diet and lifestyle
3. Getting regular exercise
4. Not smoking or using tobacco products
5. Limiting alcohol consumption
6. Getting vaccinated against certain viruses that are associated with cancer (such as human papillomavirus, or HPV)
7. Participating in screening programs for early detection of cancer (such as mammograms for breast cancer and colonoscopies for colon cancer)
8. Avoiding excessive exposure to sunlight and using protective measures such as sunscreen and hats to prevent skin cancer.
It's important to note that not all cancers can be prevented, and some may be caused by factors that are not yet understood or cannot be controlled. However, by taking these steps, individuals can reduce their risk of developing cancer and improve their overall health and well-being.
Patient participation
Patient Participation Group
Diagnosis of hearing loss
Patient engagement in Canada
Patient advocacy
Patient-reported outcome
Caregiver
Patient choice
Bioethics
Didier Pittet
Register (sociolinguistics)
Option grid
2013 Birthday Honours
Barrie R. Cassileth
E-patient
Rehabilitation in spinal cord injury
Cognitive behavioral therapy
Disability rights movement
Sarawak
LOPES (exoskeleton)
Shared decision-making in medicine
Diane G. Cook
Bobath concept
Nikshay Poshan Yojana
Controversies about psychiatry
National Health Council
Patient Safety and Quality Improvement Act
Doctor-patient relationship
Hope Citadel Healthcare
Telehomecare
Uridine monophosphate synthase
Black genocide
Cauliflower ear
Employee Retirement Income Security Act of 1974
Tuskegee, Alabama
Rural health clinic
Coronavirus nucleocapsid protein
Eugene Stepanenko
Psychology of religion
Rehabilitation psychology
Childbirth
Single Convention on Narcotic Drugs
Q Camp
2022 monkeypox outbreak
Pelvic massage
American Board of Medical Specialties
Diseases of poverty
Goal setting
Stonewall riots
Kiran Mazumdar-Shaw
History of Madeira
Yang Yongxin
Medicaid
International medical graduate
Kari Ann Peniche
Housing First
Simone Veil
Mikheyev v. Russia
Igor Tuleya
Internet of things
Patient Success With DSMES Through Telehealth | Increasing Referrals and Overcoming Barriers to Participation | DSMES Toolkit ...
Browsing Publications by Subject "Patient Participation"
Patient participation in decision-making - PubMed
Participation in Patient Registry Advances Important Research - Pancreatic Cancer Action Network
Measuring participation: the Patient-Reported Outcomes Measurement Information System experience - PubMed
Determinants of decision-making and patient participation in paediatric clinical trials: A literature review
NOT-HL-18-641: Notice of NHLBI Participation in PA-18-722 "Improving Patient Adherence to Treatment and Prevention Regimens to...
Patient participation during discharge medication counselling: observing real-life communication between healthcare...
NHS England » Bite-size guides to support patient and public participation in the NHS
WHO EMRO | Attitudes of dental patients towards participation in research | Volume 20, issue 2 | EMHJ volume 20, 2014
Family burden and participation in care. A study of relatives to voluntarily and compulsorily admitted patients | Lund...
Patient participation | Medical Informatics Initiative
Reprint of:Patient participation in nursing bedside handover: A systematic mixed-methods review - UEA Digital Repository
Examining the viewpoints and decision-making process of Sickle Cell Disease patients, parents, and physicians towards...
Patient Participation Groups
Subjects: Patient Participation - Digital Collections - National Library of Medicine Search Results
Recognizing and Referring Patients With Retinal Vein Occlusion
Patient Participation Group
Patient Participation Group
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Patient participation in medical student teaching: A survey of hospital patients<...
About the Patient Participation Group
Results of search for 'su:{Patient participation.}'
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WHO HQ Library catalog
Shared decision making in patients with low risk chest pain: prospective randomized pragmatic trial | The BMJ
PPGs5
- Patient Participation Groups (PPGs) became a contract requirement for GP practices in England from April 2016. (sheffieldccg.nhs.uk)
- Sheffield Clinical Commissioning Group (CCG) hold quarterly Sheffield Patient Participation Network meetings that provide an opportunity for members of PPGs from across Sheffield to come together, network, and find out about and contribute to projects happening across the City. (sheffieldccg.nhs.uk)
- We engage patients through the use of Patient Participation Groups (PPGs) and seek views from wider groups of surgery patients through local surgery surveys. (jubileehealthcarecoventry.nhs.uk)
- Patient participation groups (PPGs) are used to establish a means of both the Clinical Commissioning Group and the medical practice communicating with patients. (sheringhammedical.nhs.uk)
- Members of PPGs should be mindful of wider patient interest and not personal concerns when serving on the PPG. (kegworth.net)
Practice14
- If you are interested in joining the Patient Participation Group at your GP Practice, please contact the Practice Manager directly. (sheffieldccg.nhs.uk)
- Offering Evening & Weekend appointments k through your GP practice, patients registered at this practice are able to access additional routine appointments during evenings and weekends through the new GP+ service. (deerpark.nhs.uk)
- Discuss any issues regarding the practice and its relationship with their patients. (deerpark.nhs.uk)
- Provide a dialogue between patients and the practice team to promote patient involvement in the practice. (deerpark.nhs.uk)
- If you have any general comments, views or observations on any aspect of your experiences as a patient of our practice and would like these to be considered and discussed by your PPG, please feel free to write a brief note to the Practice Manager who will pass it onto the group. (deerpark.nhs.uk)
- Patient participation groups, working with GP practice staff and patients, help to improve the patient experience for all. (beechwoodsurgery.nhs.uk)
- The NHS Fylde and Wyre Clinical Commissioning Group (CCG) - of which our practice is a member - Public and Patient Engagement Group meets monthly and includes representation from disadvantaged groups, the faith and voluntary sector, disability representatives and older people. (beechwoodsurgery.nhs.uk)
- Background: Despite the common practice of involving in-patients in the teaching of medical students little is known about the experience for patients. (elsevier.com)
- Advises the practice on patients' views. (sheringhammedical.nhs.uk)
- Influences the practice or the wider NHS to improve patient services. (sheringhammedical.nhs.uk)
- At Sheringham we are a group of patient members and practice members and we meet at the practice on a monthly basis. (sheringhammedical.nhs.uk)
- For the medical practice we offer our opinion, advice and assistance on how we can provide the best possible service to patients. (sheringhammedical.nhs.uk)
- They are a route for patients to advise the Practice on what matters most to patients and to help identify solutions to problems. (kegworth.net)
- They are run by volunteer members (Practice patients) who represent the collective patient voice. (kegworth.net)
Patient's4
- We propose that methods be developed to evaluate a patient's level of "readiness" to participate in decision-making and that interventions that match the patient's level of readiness be applied to increase participation. (nih.gov)
- HCPs used cues to increase patient participation, e.g. inquired about patient's preferences, showed empathy and support, and verified understanding of information shared. (nivel.nl)
- A low frequency of relatives expressed a sufficient participation in the patient's treatment and a high proportion of relatives experienced needs for care and support from the psychiatric services. (lu.se)
- Once segregated findings were configured, we discovered that the patient's role in bedside handover involves contributing clinical information related to their care or progress, which may influence patient safety. (uea.ac.uk)
Group12
- The focus group participants also explored the types of information desired before making a decision to participate/recommend participation in a gene-editing trial, as well as credible sources of this information. (nih.gov)
- You can find information on Patient Participation Group Network Meetings here . (sheffieldccg.nhs.uk)
- Sign up to receive information about the Sheffield Patient Participation Group Network here . (sheffieldccg.nhs.uk)
- Then join our online Virtual Patient Group now. (greensidemedicalpractice.nhs.uk)
- That is why we have created a patient participation group, which is open to everyone registered with us. (beechwoodsurgery.nhs.uk)
- Register for our patient participation group, using our online form . (sheringhammedical.nhs.uk)
- The group were involved in the recent patient survey. (sheringhammedical.nhs.uk)
- If you need help a patient group member will guide you. (sheringhammedical.nhs.uk)
- What is a Patient Participation Group? (kegworth.net)
- To help us with this, we are setting up a virtual Patient Participation Group so that you can have your say. (islingtoncentralmedicalcentre.org)
- We will ask the members of this participation group some questions from time to time, such as what you think about our opening times or the quality of the care or service you received. (islingtoncentralmedicalcentre.org)
- Contact the Patient Group with your feedback, suggestion, comment or question. (islingtoncentralmedicalcentre.org)
Sickle Cell Di3
- The audience included researchers, health professionals, and patients and their families, and most were acutely familiar with the problem of diversity in clinical trials generally, and for sickle cell disease patients, in particular. (nih.gov)
- Panelist Shirley Miller, sickle cell disease patient and advocate. (nih.gov)
- Marlene Peters-Lawrence, BSN, RN, RRT, the organizer of the Promoting Diversity in Clinical Trials and Recruitment in Sickle Cell Disease session, said this dearth of participation stymies medical progress more than people realize. (nih.gov)
Conclusions1
- Conclusions Use of a decision aid in patients at low risk for acute coronary syndrome increased patient knowledge about their risk, increased engagement, and safely decreased the rate of admission to an observation unit for cardiac testing. (bmj.com)
Surgery3
- At Church Lane Surgery our patients views are important to us. (churchlanesurgerynewromney.nhs.uk)
- Jubilee Healthcare is committed to ensuring that patients are involved in decisions about the range and quality of services provided by our surgery. (jubileehealthcarecoventry.nhs.uk)
- Rectal cancer patients with a clinical complete response (cCR) after neo-adjuvant treatment may be spared the surgical morbidity and mortality of radical surgery without oncological compromise. (mdpi.com)
Bedside2
- OBJECTIVES: To explore how patient participation in nursing shift-to-shift bedside handover can be enacted. (uea.ac.uk)
- This study investigated inpatients' willingness, motivations and experience with participation in medical student bedside teaching. (elsevier.com)
Outcomes7
- Good nutritional care improves outcomes and is critical for pancreatic cancer patients' quality of life. (pancan.org)
- To describe the lessons learned in the initial development of Patient-Reported Outcomes Measurement Information System social function item banks. (nih.gov)
- Previous studies on hospital discharge showed limited patient involvement, despite its positive outcomes. (nivel.nl)
- The outcomes of the engagement and the views of our patients are then published on this website. (jubileehealthcarecoventry.nhs.uk)
- secondary outcomes were involvement in the decision to be admitted, proportion of patients admitted for cardiac testing, and the 30 day rate of major adverse cardiac events. (bmj.com)
- Each year, the Clinic releases an "Outcomes Book" that documents key clinical outcomes, by institute, and is designed as a tool for clinicians to provide transparency to patients. (nih.gov)
- https://my.clevelandclinic.org/about-cleveland-clinic/quality-patient-safety/treatment-outcomes. (nih.gov)
Willingness2
- Thanks to patients' and caregivers' willingness to share their experiences via our Patient Registry, we learned key information about the ways that doctors are prescribing pancreatic enzymes, as well as what happens when patients do - and don't - heed their advice," said Amy Westermann, MPH, Patient Registry manager at PanCAN, who will be presenting the poster at the meeting. (pancan.org)
- Approximately 150 experts in ethics, law, research and patient organisations discussed the willingness of patients to participate in medical research. (medizininformatik-initiative.de)
Involvement2
- Clinical trial-exogenous stressors and involvement burden, stage of life (age) of prospective participant, the capacity of gene-editing to improve quality of life, an assessment of risk and benefit, especially related to off-target events, long-term consequences, and the sustainability of the therapy, were dominant factors in the decision-making process to participate/recommend participation for all three groups. (nih.gov)
- Patient involvement is now high priority in the NHS. (sheringhammedical.nhs.uk)
Trial participation2
Transforming1
- These guides are linked to the Transforming participation in Health and Social Care guidance (published September 2013) . (england.nhs.uk)
Meetings2
- All meetings are held at one of our sites, last no more than an hour/hour & half and the days/times are changed regularly to allow all patients to attend. (greensidemedicalpractice.nhs.uk)
- Break the informed consent conference into two separate meetings if your patient would prefer this or if you think two sessions would help enhance understanding. (nih.gov)
Physicians3
- We conclude that patient participation in decision-making is justified on humane grounds alone and that physicians should endeavor to engage patients in decision-making, albeit at varying degrees, when more than one effective treatment option exists. (nih.gov)
- 17 years) with a primary complaint of chest pain who were being considered for admission to an observation unit for cardiac testing (451 were allocated to the decision aid and 447 to usual care), and 361 emergency clinicians (emergency physicians, nurse practitioners, and physician assistants) caring for patients with chest pain. (bmj.com)
- The Glickman Urological and Kidney Institute's has over 100 physicians and scientists that provided care to nearly 15,000 patients in 2013. (nih.gov)
Dialogue1
- Based on the results of this first MII workshop on the topic of patient participation, the MII launched the interactive online event series "Medical Informatics Initiative in dialogue with patient representatives" in September 2020 to actively engage in an exchange with patient advocacy groups and patient representatives in Germany. (medizininformatik-initiative.de)
Groups8
- They aim to support Clinical Commissioning Groups and others to plan and deliver good patient and public participation. (england.nhs.uk)
- The guides were developed to support Clinical Commissioning Groups with their patient and public participation work, but they are also useful for other NHS staff to consider, including NHS England teams undertaking direct commissioning. (england.nhs.uk)
- It would also be of future scientific and clinical interest more specifically to identify high-risk groups of patients with regard to family burden, and also to identify high-risk groups of relatives amenable for interventions from the psychiatric services. (lu.se)
- Participants include patient advocacy groups, policy makers, government agencies funding organisations, research centres and other scientific institutions, and healthcare IT industry organisations. (medizininformatik-initiative.de)
- Two other major themes, found across the patient/parent focus groups, but absent from the physician groups, include the potential to help others with SCD, as well as one's spiritual beliefs and relationship with God. (nih.gov)
- Patient Participation Groups (PPG) also known as Patient Reference Groups (PRG) are a route to which patients can advise General Practices on topics that truly matter to them and to help identify and resolve problems on wide patient interests. (sheffieldccg.nhs.uk)
- You can find resources for Patient Participation Groups here . (sheffieldccg.nhs.uk)
- Patient Participation Groups (PPG) within General Practices have existed since 1972. (kegworth.net)
Health8
- Should patient decision aids (‎PtDAs)‎ be introduced in the health care system? (who.int)
- This is a Health Evidence Network (‎HEN)‎ report on the use of patient decision aids (‎PtDAs)‎, interventions designed to help patients discuss treatment options with their clinicians and make specific, deliberative choices. (who.int)
- The purpose of this Notice is to inform potential applicants that the National Heart, Lung, and Blood Institute (NHLBI) will participate, effective immediately, in PA-18-722 "Improving Patient Adherence to Treatment and Prevention Regimens to Promote Health (R01 Clinical Trial Optional)" issued by the National Institutes of Health. (nih.gov)
- NHLBI is particularly interested in applications that a) focus on adherence as a strategy for reducing health disparities, b) integrate an understanding of the multi-level determinants of adherence and social and economic contextual factors, c) incorporate advances in behavioral science, mobile and connected health technology, and healthcare informatics, and/or d) focus on identifying and overcoming the barriers and facilitators for adherence to evidence-based guidelines by patients and practitioners. (nih.gov)
- Workshop 2019: "Health data for medical research: How can patients participate? (medizininformatik-initiative.de)
- We searched MEDLINE , Embase, PsychINFO, Cumulative Index to Nursing and Allied Health Literature and the Cochrane Kidney and Transplant register to August 2019 for all studies that used a measure to report life participation in children with CKD. (bvsalud.org)
- This report summarizes the findings of a cognitive interviewing study designed to evaluate questions on adult participation that are included in the National Health Interview Survey (NHIS. (cdc.gov)
- Promote health improvement, wellness, and disease prevention in cooperation with patients, communities, at-risk populations, and other members of an interprofessional team of healthcare providers. (cdc.gov)
Practices1
- A Locally Commissioned Services (LCS) review has taken place to make sure that services offered to patients via practices are consistent, equitable, sustainable and most importantl. (sheringhammedical.nhs.uk)
Discomfort2
- Enzyme insufficiency can cause immense discomfort and weight loss, symptoms that can dramatically affect patients' quality of life and their ability to tolerate treatment. (pancan.org)
- Barriers related to nurses' discomfort encouraging patient participation and worries for sharing confidential and sensitive information. (uea.ac.uk)
Perceptions1
- Sex and education level were significantly associated with patients' perceptions for several of items. (who.int)
Caregiver1
- Give a patient, a caregiver, a researcher, the power of hope with one simple act. (pancan.org)
Proportion of patients1
- The prevalence of patients with minor children was rather stable throughout the period, but the proportion of patients who had the custody of their children was decreasing. (lu.se)
Research13
- We review the research both for and against patient participation in decision-making and conclude that (a) patients want to be informed of treatment alternatives, (b) they, in general, want to be involved in treatment decisions when more than one treatment alternative exists, and (c) the benefits of participation have not yet been clearly demonstrated in research studies. (nih.gov)
- Join our Patient Registry today to accelerate pancreatic cancer research by sharing your experiences. (pancan.org)
- ABSTRACT The attitudes of dental patients towards participation in research and the independent socioeconomic factors associated with these attitudes are not known. (who.int)
- To enhance recruitment, researchers should be aware of people's perspectives regarding participation in research. (who.int)
- The aim of the Medical Informatics Initiative (MII), funded by the German Federal Ministry of Education and Research (BMBF), is to enhance research and patient care through innovative IT solutions. (medizininformatik-initiative.de)
- How can and do patients want to participate in data-driven medical research? (medizininformatik-initiative.de)
- These questions were the focus of an MII workshop on patient participation organised by the TMF - Technology, Methods, and Infrastructure for Networked Medical Research, which took place on 27 August 2019 in Berlin, Germany. (medizininformatik-initiative.de)
- The aim of the format is to provide transparent information about the use of data and research in the framework of the MII and to integrate ideas and feedback from patient organisations at an early stage. (medizininformatik-initiative.de)
- However, there is limited research on patient, parent, and physician perspectives, within this community, towards clinical research related to the use of gene-editing technologies. (nih.gov)
- To be included, papers had to either be research or quality improvement (QI) projects focusing on the patient role. (uea.ac.uk)
- The development of new therapies and cures would be impossible without patients volunteering for clinical research studies. (nih.gov)
- Participation includes interviews, research testing, and brain imaging scans conducted over one to ten outpatient visits. (nih.gov)
- Talk about how disease treatments have improved over time due to clinical research and participation of patients in clinical trials. (nih.gov)
Explain2
Clinicians1
- Clinicians play a critical role in evaluating and supporting patients in their return to work. (cdc.gov)
Barriers1
- The way nurses approach patients, and how patient-centred they are, constitute further potential barriers. (uea.ac.uk)
20191
- Results: During July and August of 2019, 111 patients aged 19-93 years completed the survey. (elsevier.com)
NHLBI1
- The following changes and updates are made to PA-18-722 (shown in italics) to reflect NHLBI participation in this FOA. (nih.gov)
Nurse1
- patient-centred handover and nurse-centred handover. (uea.ac.uk)
Outcome2
- Patient- and parent proxy-reported outcome measures for life participation in children with chronic kidney disease: a systematic review. (bvsalud.org)
- The registry includes demographic information, critical parameters, and outcome measurements for more than 95,000 patients and allows tracking of CKD management across the entire spectrum of care. (nih.gov)
Search1
- Results of search for 'su:{Patient participation. (who.int)
Care8
- Referrals from doctors for DSMES allow patients with diabetes to receive the critical care they need from diabetes care and education specialists. (cdc.gov)
- Where are the patients in decision-making about their own care? (who.int)
- Family burden and participation in care. (lu.se)
- Important aspects of family burden, participation in care and needs for support among a total of 422 relatives to severely mentally ill patients, voluntarily and compulsorily admitted to hospital, were investigated in a study performed between 1986-1997. (lu.se)
- There were only marginal differences in family burden, participation in care and needs for support between relatives to voluntarily and compulsorily admitted patients. (lu.se)
- Our main aim is to promote the well being of our patients and provide high-quality care and service at all times. (beechwoodsurgery.nhs.uk)
- Objective To compare the effectiveness of shared decision making with usual care in choice of admission for observation and further cardiac testing or for referral for outpatient evaluation in patients with possible acute coronary syndrome. (bmj.com)
- Interventions Patients were randomly assigned (1:1) by an electronic, web based system to shared decision making facilitated by a decision aid or to usual care. (bmj.com)
Methods1
- Methods: In-patients at a tertiary hospital who participated in medical student teaching answered a 22 question survey. (elsevier.com)
Eligible1
- Other eligible patients will get theirs this Saturday. (jubileehealthcarecoventry.nhs.uk)
Medication5
- PERT was prescribed to 90 percent of the patients who filled out this survey - but only 64 percent of patients were appropriately instructed to take the medication with meals. (pancan.org)
- Patient participation during discharge medication counselling: observing real-life communication between healthcare professionals and patients. (nivel.nl)
- In this study, provider-patient communication used to enhance patient participation during discharge medication counselling was examined. (nivel.nl)
- A central component in discharge medication counselling was the transmission of information from HCPs to patients. (nivel.nl)
- Some patients participated in discharge medication counselling. (nivel.nl)
Questions4
- Patient participation occurred through asking questions, and expressing concerns. (nivel.nl)
- Seven (11%) were designed to assess ability to participate in life , with 56 (89%) designed to assess other constructs (e.g. quality of life ) with a subscale or selected questions on life participation. (bvsalud.org)
- Respondents were recruited based on inclusion criteria for the testing of the child disability questions that were tested at the same time as the participation questions. (cdc.gov)
- Check that questions were answered to your patients' satisfaction. (nih.gov)
Study2
- The aim of this study was to identify the characteristics, content and psychometric properties of existing measures for life participation used in children with CKD. (bvsalud.org)
- Missing a single ophthalmology appointment over a two-year period was associated with decreased visual acuity for patients with macular degeneration according to a new Penn Medicine study. (nih.gov)
Review2
- Our review showed the tension between standardising handovers and making them predictable for patient participation, while promoting tailored and flexible handovers. (uea.ac.uk)
- During this COCA Call, presenters will review some of the complex symptoms specific to Long COVID, discuss medical considerations for recommending return to work, and review accommodations to support patients returning to the workplace. (cdc.gov)
Important3
- Participation in the Pancreatic Cancer Action Network's (PanCAN's) Patient Registry has provided important insight into the prescription of, and patient compliance with, pancreatic enzymes . (pancan.org)
- Personal benefit and altruistic motives were two important reasons for participation. (scirp.org)
- Tailored support and workplace accommodations are an important part of caring for patients with Long COVID. (cdc.gov)
Clinical Trial1
- Children and their families should be empowered to address their needs in the process of considering participation in a clinical trial. (scirp.org)
Assess2
- From 128 studies, we identified 63 different measures used to assess life participation in children with CKD. (bvsalud.org)
- Describe how to assess current functional abilities and establish functional goals for patients with Long COVID. (cdc.gov)
Healthcare2
- Among the 218 Patient Registry respondents who completed the Enzymes survey, 84 percent reported having spoken with their healthcare professionals about enzymes. (pancan.org)
- Ineligible companies are organizations whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients. (medscape.com)
Participate5
- The patient-physician partnership: decision making, problem solving and the desire to participate. (nih.gov)
- Development and testing of 2 item pools within a general population to create item banks that measure ability to participate and satisfaction with participation in social activities. (nih.gov)
- Measures of ability to participate and satisfaction with participation in social activities. (nih.gov)
- Several HCP cues were detected inviting patients to participate in consultations. (nivel.nl)
- Ninety-six percent of patients felt like they could have said no if they had not wanted to participate in medical student teaching. (elsevier.com)
Results2
- And, even more alarmingly, the results showed that only 38 percent of patients complied with their doctor's recommendation of when to take PERT. (pancan.org)
- Now, we can disseminate these results and aim to improve doctors' and patients' education around the proper administration of pancreatic enzymes. (pancan.org)
Support1
- We are always looking for new recruits to support the aim of the PPG which is to be representative of our a patient population and community. (deerpark.nhs.uk)
Soins1
- Un autoquestionnaire a été distribué à 120 patients consultant dans des centres de soins dentaires à Amman (Jordanie). (who.int)
Registry5
- The data generated from the Patient Registry will be presented at the upcoming American Pancreatic Association (APA) Annual Meeting , on Nov. 10, in San Diego. (pancan.org)
- Our Patient Registry data show a statistically and - more importantly - clinically significant improvement in patient symptoms when they take PERT with meals," said Westermann. (pancan.org)
- Westermann continued: "These learnings were made possible by patients and caregivers taking the time to fill out surveys within our Patient Registry. (pancan.org)
- Cleveland Clinic's EHR has been used to create and maintain a CKD registry with patients qualifying for inclusion since 2005 to the present. (nih.gov)
- In developing the registry the team developed and validated criteria to identify CKD patients. (nih.gov)
Teaching1
- Preceptors in undergraduate medical education should prioritize a quality informed consent process and understand that the teaching experience can be mutually productive for patients and students. (elsevier.com)
Survey1
- The survey examined the motivations, impact and overall experience for these patients. (elsevier.com)
Populations1
- Studies to improve adherence in the implementation of evidence-based guidelines by practitioners, patients, and/or organizations across diverse populations and settings for heart, lung, blood, and sleep conditions. (nih.gov)
Appointments1
- There is a huge demand for appointments, often because patients are discharged from hospital too soon in order to bring hospital numbers down. (jubileehealthcarecoventry.nhs.uk)
Time1
- Ninety percent of patients valued the time they spent with students. (elsevier.com)
Medical1
- The Physician and the hopelessly ill patient : legal, medical, and ethical guidelines. (who.int)
Treatments1
- Spark the scientific breakthroughs that innovate treatments to improve the lives of patients. (pancan.org)
Diagnosis1
- One member works very hard at fundraising to provide additional equipment for the benefit of patient treatment and diagnosis. (sheringhammedical.nhs.uk)
Treatment1
- The physician-patient encounter: the physician as a perfect agent for the patient versus the informed treatment decision-making model. (nih.gov)
Improve1
- Strategies to improve patient participation in handover include training nurses, making handovers predictable for patients and increasing the interpersonal approach during handover. (uea.ac.uk)
Researchers1
- researchers] to be transparent about successes and failures, so the patient knows what to expect," said Jennifer Nsenkyire, 44, who in 2009 received an experimental bone marrow transplant that transformed her life. (nih.gov)
Informed consent1
- Informed consent : patient autonomy and physician beneficence within clinical medicine / Stephen Wear. (who.int)
Provide1
- This includes involving our patients in decisions that lead to changes to the services we provide, either directly or in our capacity as gatekeeper to other services. (jubileehealthcarecoventry.nhs.uk)