Research with patient. Medical search. Frequent questions

Capturing patients' perspectives includes various stakeholders, and within the concept of patient engagement the term "patient" may also encompass the patient's family, caregivers or patient representatives. (lionbridge.com)
The aim of this systematic review of qualitative studies was to understand the factors considered important by patients, caregivers and health care providers in contributing to TB medication adherence. (nih.gov)
Select "Patients / Caregivers / Public" or "Researchers / Professionals" to filter your results. (aacr.org)
Respecting and understanding the patient perspective is a core pillar of The Novartis Commitment to Patients and Caregivers, which outlines our ambition to embrace the perspective of patients and caregivers more firmly and embed it deeply in our daily work. (novartis.com)
As part of its Commitment to Patients and Caregivers, Novartis actively seeks out and listens to insights from the patient community to inform decision-making throughout the development and commercialization process for medicines. (novartis.com)
Patient-centered outcomes research involves questions and outcomes that are "meaningful and important to patients and caregivers" in order to help those individuals make informed decisions for their own care. (wikipedia.org)
Cancer Research Institute Immunotherapy Patient Summits are free online virtual events that connect cancer patients and caregivers with scientific and medical experts to learn about emerging breakthroughs in cancer immunotherapy and clinical trials. (cancerresearch.org)
Held November 11-12, 2022, the summit welcomed patients and caregivers from across the country to participate in a two-day event offering the most current research and treatment updates from leading immunotherapy experts. (cancerresearch.org)

HOUSTON , Oct. 31, 2022 /PRNewswire/ -- DM Clinical Research , a national network of clinical trial sites, has earned the Society for Clinical Research Sites (SCRS) 2022 Excellence in Patient Centricity Award. (prnewswire.com)
DM Clinical Research has earned the Society for Clinical Research Sites (SCRS) 2022 Excellence in Patient Centricity Award. (prnewswire.com)
NEW YORK, December 8, 2022 - The Cancer Research Institute (CRI), a nonprofit organization that funds immunotherapy research to create a world immune to cancer, continues its commitment to the cancer patient and caregiver community by providing free, on-demand access to the 2022 CRI Virtual Immunotherapy Patient Summit. (cancerresearch.org)

About $1.6 billion (79%) of its commitments through fiscal 2017 were for research awards. (wikipedia.org)
New research published today, 10 July 2017, online in the journal Oncogene could offer hope to the thousands of, mainly young, people affected by the hereditary condition Neurofibromatosis 2 (NF2). (plymouth.ac.uk)

PCORI is funded through the Patient-Centered Outcomes Research Trust Fund (PCORTF), which was authorized by the United States Congress as part of the Patient Protection and Affordable Care Act of 2010 and reauthorized through the Further Consolidated Appropriations Act, 2020. (wikipedia.org)

He said he hopes to see more decentralization of trials, so that patients who live far away from major medical centers can participate, perhaps with the help of technology such as wearable devices. (aacr.org)
Led by Keele's Professor Mamas Mamas, the researchers analysed 20 years' worth of data from the US Centers for Disease Control and Prevention (CDC) Wide-Ranging Online Data for Epidemiologic Research (CDC WONDER) Multiple Cause of Death database, which recorded the cause of death of every US resident who died in the period 1999-2019. (keele.ac.uk)

DM also launched a Patient Advocates training program which ensured dedicated personnel at each site solely focused on patient satisfaction. (prnewswire.com)
Today, DM Clinical Research is focused on making all of our employees and partners patient advocates. (prnewswire.com)
Part 3 of 7) Neurologist Neal Hermanowicz, and Alzheimer's patient advocates, Susan Franklin and Serge Morales, spoke at "Synapses Firing: Connections Made", a patient advocacy event hosted by the California stem cell funding agency (CIRM). (ca.gov)
The 100+ people in attendance heard from patient advocates about living with neurodegenerative disease and from scientists about recent progress in stem cell research that may lead to new treatments. (ca.gov)
Global Oncology Patient Insights Panels (GOPIPs) are giving patients and advocates a critical voice in advancing lung cancer trials. (novartis.com)
These panels are made up of patient advocates and experts in different disease areas. (novartis.com)
Through the GOPIPs, Novartis hears directly from advocates on topics ranging from clinical trial protocols and educational resources, to how patients would prefer to receive their treatment. (novartis.com)
Now we know that we're designing the trial, and the drug, with the patient in the forefront," she says, adding that bringing advocates in earlier rather than later allows for necessary study protocol modifications, which can be key to efficient drug discovery and regulatory review. (novartis.com)
In addition, patients and advocates participated in candid fireside chats regarding issues impacting Black, Latino, and other communities facing limited access to health care, fewer cancer screenings, diagnoses at later stages of cancer, fewer treatment options offered - all barriers that make it difficult for patients in these communities to receive the best care possible. (cancerresearch.org)

Organizations such as the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Patient-Centered Outcomes Research Institute (PCORI), International Consortium for Health Outcomes Measurement (ICHOM) and others recognize the benefits of patient engagement in their research activities and actively support various engagement initiatives. (lionbridge.com)
The Patient-Centered Outcomes Research Institute (PCORI) is a United States-based non-profit institute created through the 2010 Patient Protection and Affordable Care Act. (wikipedia.org)
2018 Annual Report: Patient-Centered Outcomes Research Institute" (PDF). (wikipedia.org)
journal= (help): 5 Methodology Committee of the Patient-Centered Outcomes Research Institute (PCORI) (April 2012). (wikipedia.org)
The fee funds the Patient-Centered Outcomes Research Institute (PCORI) and applies to issuers of specified health insurance policies and plan sponsors of applicable self-insured health plans . (eidebailly.com)

Direct patient advocate engagement is helping us keep patients at the center of our decisions in more ways than ever before," says Susan Hayes, who led recent GOPIP lung cancer advocacy initiatives and serves currently as Global Patient Engagement Director for melanoma and gastrointestinal cancers. (novartis.com)
It was abundantly clear to this intelligent, articulate pioneer that advocacy and knowledge translation for and by patients was clearly a priority. (arthritisresearch.ca)

DM Clinical Research adopted patient-centricity as a measurable and strategic goal for its organization. (prnewswire.com)
A patient survey was instituted that allowed their organization to establish a baseline, benchmark between sites and study teams, track progress over time, and continually solicit areas of improvement. (prnewswire.com)
As the Organization for Economic Co-operation and Development put it in a recent report on patient-reported indicators for assessing health system performance: "That medicine has become quite successful at treating disease should be celebrated. (lionbridge.com)
The Melanoma Research Foundation is a 501(c)(3) non-profit organization. (melanoma.org)
It is a government-sponsored organization charged with funding Comparative Effectiveness Research (CER) that assists consumers, clinicians, purchasers, and policymakers to make informed decisions intended to improve health care at both the individual and population levels, according to the Institute of Medicine. (wikipedia.org)
people usually say yes, reported Friend, president of the nonprofit biomedical research organization Sage Bionetworks . (stanford.edu)

The FDA approved the use of erythropoietin-stimulating agents in cancer patients receiving chemotherapy 15 years ago, but only recently has significant attention forced a re-examination of the controversy over ESA use in these patients. (cancernetwork.com)
Some of the trials included cancer patients not receiving chemotherapy (not an approved ESA indication). (cancernetwork.com)

Our leadership in patient services research is reliant upon the continued investment in key individuals who will pursue research on a full-time basis, core resources and partnerships, and the education and mentorship of the next generation of patient services researchers. (cincinnatichildrens.org)
Simon said that while researchers focus on developing new drugs and improving responses to existing drugs, they should involve patients to the greatest possible extent. (aacr.org)
Count Me In is aimed at making it possible for patients anywhere in the country to share their medical information and tumor samples with researchers," he said. (aacr.org)
Is it narrowly focused on patient-facing publications, leaving all publications targeted at healthcare professionals, funders and researchers beyond it's remit? (ucb.com)
The remit of the PPSC will be to co-create a Publication Plan based on non-product specific publications such as manuscripts on disease burden, unmet need and the patient journey, however the audience will include HCPs, funders and researchers as the manuscripts will be published in the peer-reviewed medical literature. (ucb.com)
In only one study did the researchers offer those under care some kind of hearing assistance to see whether it would improve communication (That study found that offering hearing assistance improved patients' understanding). (hearingreview.com)
She also believed the patient perspective would eventually be welcomed on an equal footing with doctors, researchers, health care professionals and governments at local, provincial and federal levels. (arthritisresearch.ca)
During Pam's time with APAB her patient engagement extended to collaborating with researchers, generating letters of support, leading knowledge translation, helping create meaningful questionnaires for patients, co-authorship of some 19 publications and appearing at government policy hearings. (arthritisresearch.ca)
The synthesised results of this review alert researchers to options available for journey mapping research and provide preliminary guidance for elevating reporting quality. (bvsalud.org)

Ultimately, patients can help us reduce disparities, disseminate research back to their own communities, assess emerging technology, and really inform survivorship science. (aacr.org)
Although there are disparities in patient portal use, patients use portals to manage their medications, are enthusiastic about further leveraging portals to support medication management and adherence, and those who use a portal more frequently have better glycemic control. (jmir.org)

Death of a patient with a generally non-serious diagnosis or during a procedure that usually has a low number of deaths (mortality). (mayoclinic.org)
Diagnosis-Related Groups is a patient classification system. (mayoclinic.org)
When it comes to lung cancer - a very frightening diagnosis for a patient - bringing forward new therapies that can improve and extend people's lives is an urgent priority. (novartis.com)
The severity of the Pneumocystis jirovecii pneumonia is increased in patients with human immunodeficiency virus -, in whom the evolution is faster, with mechanical ventilation often required and higher mortality, requiring a fast and early diagnosis. (centerwatch.com)
Given the epidemic of metabolic syndrome and alcohol, consider excluding cirrhosis in your patient whom the presumptive diagnosis is dementia since they could have concomitant HE," he said. (medscape.com)
The research team then evaluated factors associated with having a diagnosis of dementia, adjusting for demographics, comorbid illnesses, cirrhosis etiology, and cirrhosis complications. (medscape.com)
Diagnosis depends on findings from patient history and physical examination, creatine kinase testing, muscle biopsy, electromyelography, and ischemic forearm testing. (medscape.com)

PCORI funds research studies that focus on patient-centered outcomes rather than only on CER alone. (wikipedia.org)
The institute's executive director is Nakela Cook, and Russell M. Howerton is the head of the Board of Governors Funding from PCORI enabled the development of PCORnet, a collaboration of several networks that support research using health data collected in the course of care through electronic health records, claims, and from patients. (wikipedia.org)

The nurses, physical and occupational therapists, speech pathologists, audiologists, pharmacists, and other clinicians who make up the Patient Services team are dedicated to improving quality and clinical effectiveness. (cincinnatichildrens.org)
We were surprised by the high proportion of patients with dementia who also had cirrhosis, and given the genuine difficulty that clinicians have with defining HE vs dementia, we were not very surprised at that overlap," Bajaj said. (medscape.com)
This type of methodology has significant potential to inform new, patient centred models of care and facilitate clinicians, patients and health professionals to better understand gaps and strategies in health services . (bvsalud.org)

The concept of value is hard to define in health care, unless you are a patient," said Roger Wilson, a patient advocate and founder of Sarcoma UK. (lionbridge.com)
His comment highlights how critical the patient's perspective is in developing patient-centric health care. (lionbridge.com)
Patients and families who engage with health care providers ask good questions and help reduce the risk of errors and hospital admissions. (ahrq.gov)
Students work together as teams with access to the latest knowledge, advanced research, and real-world simulation-based training to transform health care in our region, state, and nation. (usf.edu)
The Agency for Healthcare Research and Quality (AHRQ) is a federal agency for research on health care quality, costs, outcomes and patient safety. (mayoclinic.org)
Health Affairs is hosting a briefing called "New Era of Patient Engagement" that will examine the evidence of patient engagement in health care as well as the challenges and opportunities associated with it. (air.org)
The second article provides a policy framework for increasing the engagement of patients and their families in health care. (air.org)
This funding opportunity announcement (FOA) solicits Research Project Grant (R01) applications from institutions/organizations th at propose to conduct research to determine the barriers to optimal health care for obese patients, and to test innovations or modifications in care delivery to improve health outcomes for obese patients independent of weight loss. (nih.gov)
Patient-Centered Strategies in Health Care provides tips and strategies to improve communication and create a more affirming environment for transgender people. (cdc.gov)
That is why it is important for transgender people to be able to access health care that is patient-centered. (cdc.gov)
inside the institucional day and relantionships, It was possible to understand the necessity for health care proposals for patient companions, based in the humane complexity. (bvsalud.org)

The Presidential Select Symposium at the AACR Annual Meeting 2019 addressed these crucial roles in a session titled "Engaging Cancer Patients as Partners in the Research Process. (aacr.org)
As of 2019, there have been 65 research standards developed to support patient-centered outcomes research. (wikipedia.org)

We aim to be a leader in research designed to improve quality of care and clinical outcomes. (cincinnatichildrens.org)
Even physicians who choose not to conduct clinical trials but rather devote their practice to clinical care may have patients who consider volunteering for research. (nih.gov)
Our new USF Health Morsani College of Medicine, Taneja College of Pharmacy and Heart Institute will help build the future of health through transformative education, research and patient care. (usf.edu)
In the midst of growing interest in value-based payment models in cancer care, new research by Avalere Health points to the critical importance of ongoing work to close gaps in cancer quality measures in order to advance these new payment models. (phrma.org)
AHRQ has created software that screens billing records for potentially preventable complications (adverse events) that patients sometimes experience while receiving medical care. (mayoclinic.org)
We hope this innovative step forward will contribute to writing the next chapter in the history of patient-centred care. (ucb.com)
And for us, they think not only about your child, the patient, they think about you, the parents, and how you can take care of your child. (stjude.org)
Key research efforts such as these have established MemorialCare Heart & Vascular Institute as a leader in heart and vascular care. (memorialcare.org)
It's also an issue that's ripe for research: how can we attend to and improve hearing and understanding so that patients get the best quality care possible? (hearingreview.com)
Funding for a UPI would help reduce administrative costs and ensure efficient, timely care for patients. (healthdatamanagement.com)
It really does remind you of that pact between an individual and their physician and that it's a privilege to take care of patients. (stanford.edu)
NIHR Clinical Research Network Kent, Surrey and Sussex provides funding across the region to cover the service support costs of research and promote high quality research opportunities for patients in health and social care settings. (qvh.nhs.uk)
She led the way as a pioneer in the early days of patient engagement to ensure that the patient voice was heard at all levels that affect the lives of people with arthritis - education, clinical care, and research. (arthritisresearch.ca)
Patients in these communities are also less likely to have their primary care delivered by physicians, and they have been further impacted by the disproportionate closure of rural hospitals. (keele.ac.uk)
Research shows that patients who are more involved with their care tend to get better results. (medlineplus.gov)

Patient Services Research (PSR) is the research arm of the Department of Patient Services at Cincinnati Children's Hospital. (cincinnatichildrens.org)
MemorialCare Heart & Vascular Institute physicians are collecting information from patients who undergo a life-prolonging procedure for those who survive the journey to the hospital but remain in cardiac arrest. (memorialcare.org)
Another research project that targets those who experience cardiac arrests while in the hospital is called the ARISE-study. (memorialcare.org)
The American Hospital Association has called on leaders of the Senate Appropriations Committee to overturn a 20-year prohibition on using federal funding for a unique patient identifier to address the widespread problem of misidentification. (healthdatamanagement.com)
Of course, not every patient- especially one with a chronic illness - is going to bother logging onto an app to share data every day, said Yvonne Chan , MD, PhD, assistant professor of emergency medicine at Mount Sinai Hospital. (stanford.edu)
The research will be undertaken at the Queen Elizabeth Hospital, Birmingham, and the trial will be divided into two stages. (the-scientist.com)
The objective of this research was to identify the imagination of the patient companions of a pediatric ward about hospital space. (bvsalud.org)
This study aimed to characterize the common chronic respiratory diseases, along with their lung function and possible determinants in symptomatic patients attending clinics at Bishoftu General Hospital, Ethiopia. (who.int)

Patient families of St. Jude do not pay a penny for any visit or treatment. (whnt.com)
Create a custom virtual card for St. Jude patients like Lucas. (stjude.org)

One of Kluetz's counterparts at the National Institutes of Health, Louis Staudt, MD, PhD , noted that large-scale genomics programs should prove useful in gaining more information on a diverse range of patients. (aacr.org)
Experts with the American Institutes for Research (AIR) are co-authors of two articles appearing in the latest issue of Health Affairs, a leading journal of health policy thought and research. (air.org)

The award , sponsored by Sanofi, a multinational pharmaceutical and healthcare company, was created to celebrate a clinical research site that places patient experience at the center of its operations. (prnewswire.com)
This is the fifth piece in our new Patient Engagement series , where Lionbridge Life Sciences experts discuss the history and current status of participants in clinical studies and patients in the healthcare system. (lionbridge.com)
From that point onwards, the idea of patient engagement in healthcare provision has been gaining ever-increasing traction and acceptance. (lionbridge.com)
Presented in the form of standardized questionnaires, PRO measures are important instruments to help evaluate healthcare interventions from the patient's perspective, both in clinical research and clinical practice. (lionbridge.com)
Agency for Healthcare Research and Quality, Rockville, MD. (ahrq.gov)
This report was prepared by RAND Health under contract to the Agency for Healthcare Research and Quality (AHRQ), Rockville, MD (Contract No. 282-00-0005). (ahrq.gov)
No statement in this report should be construed as an official endorsement by the Agency for Healthcare Research and Quality or the U.S. Department of Health and Human Services. (ahrq.gov)
This could relate, for example, to disease burden and the patient healthcare journey. (ucb.com)
The findings suggest that research on communication between healthcare professionals and older adults has largely overlooked a highly prevalent, important, and remediable influence on the quality of communication. (hearingreview.com)
Lead author Professor Mamas said: "The widening of mortality in patients with diabetes between rural and urban areas is a cause for concern and highlights the challenges in delivering healthcare in deprived rural areas. (keele.ac.uk)
The aging of patients with cirrhosis leads us to encounter several individuals who may be prone to both of these diseases," senior author Jasmohan Bajaj, MD, a professor of gastroenterology, hepatology, and nutrition at Virginia Commonwealth University Medical Center and GI section of the Central Virginia Veterans Healthcare System in Richmond, told Medscape Medical Ne ws. (medscape.com)
The HD Center was formed at LU and Region Skåne with the aim to improve healthcare for families with HD and to bring research closer to the clinic. (lu.se)
Reporting and conducting patient journey mapping research in healthcare: A scoping review. (bvsalud.org)

All practicing physicians should be prepared to respond to requests from patients for advice about participating in clinical trials research. (nih.gov)
We discuss several ethical and practical challenges facing physicians who wish to help their patients make decisions about volunteering for clinical trials. (nih.gov)
Clinical trials, studying ocular disease, epidemiology, mobility and ADL and evidence-based practice also fall under patient-based research at the UAB School of Optometry. (uab.edu)
For example, in clinical trials, regulatory evaluators can use PRO data derived from PRO measures to determine whether a medical product has been shown to benefit patients. (lionbridge.com)
He told the audience that part of the center's mission is to ensure that clinical trials have robust, diverse enrollment, with increased access for underserved patients. (aacr.org)
Mark Bionci is a Cystic Fibrosis patient who has been participating in clinical trials his entire life. (uhhospitals.org)
Pilar Cazorla-Arratia, Global Trial Director at Novartis, uses insights collected from the Global Oncology Patient Insights Panels (GOPIPs) to improve lung cancer clinical trials. (novartis.com)
The insights gathered from GOPIP projects have also led to a better understanding of patient challenges, including requirements that make it difficult for them to enroll in trials, and the number, frequency and invasiveness of some tests, scans and other required monitoring. (novartis.com)
We're not the only biopharmaceutical company bringing patients into trials early, but Novartis does it in a very robust and sustained way," Hayes says. (novartis.com)
You will be guided through the basics of immunotherapy and the latest research, get a better understanding of clinical trials and whether they are a good option for you or a loved one, and gain perspective from other patients treated with immunotherapy. (cancerresearch.org)
ACRP is committed to supporting clinical research professionals as they navigate adoption of decentralized clinical trials (DCTs). (acrpnet.org)
What makes this even more tricky is that patients in trials may not be getting better, either because they're in a control group or because there's no proof of effectiveness of the intervention. (acrpnet.org)
In clinical trials, CAR T-cell therapy has shown impressive results, often helping as many as 90 percent of patients and saving people who would otherwise die from their cancer. (usc.edu)
This report included 13 trials and 5,369 patients (for a total of 51 trials and 13,611 patients) that had not been included in previous meta-analyses. (cancernetwork.com)

Learn more about our most significant findings and view grant funding and division statistics in this year's Research Annual Report. (cincinnatichildrens.org)
The findings of our review could help inform the development of patient-centred interventions and of interventions to address structural barriers to treatment adherence. (nih.gov)
Kristin Carman and Jill Mathews Yegian, co-directors of AIR's Health Policy and Research Group, will present their findings at the briefing. (air.org)
That our discovery could also lead to hope for thousands of patients affected by other Merlin-deficient tumours, adds yet more to the significance and excitement of our findings. (plymouth.ac.uk)

Changing an organization's culture to be more patient-centric requires reliable metrics and Key Performance Indicators (KPIs) to support real progress. (prnewswire.com)
Research Support, U.S. Gov't, P.H.S. (nih.gov)
This report identifies and examines the factors that purchasers and builders of patient self-management support programs should consider when they are deciding on program components. (ahrq.gov)
They provide feedback on research and development projects and other patient support initiatives. (novartis.com)
The growing adoption of patient portals represents an opportunity to support medication management and adherence more broadly, but virtually no data exist about the real and potential impact of existing portals on these outcomes. (jmir.org)
We sought to (1) understand who uses an existing patient portal and reasons for use and nonuse, (2) understand how portal users are using a portal to manage their medications, and (3) explore participants' ideas for improving portal functionality for medication management and adherence support. (jmir.org)
Lisa was so encouraged by Dr. Chaudhary's work that she decided to support his research philanthropically. (usc.edu)
Director of the study was Dr Sylwia Ammoun , Senior Research Fellow in Clinical Neurobiology, who had crucial support from PhD student Lucy Provenzano. (plymouth.ac.uk)
We are inspired to continue to encourage and support patient awareness and involvement in research to honour the amazing legacy left by our own remarkable Pam Montie. (arthritisresearch.ca)

Novartis is expanding its involvement with patients involved in clinical trial research through its Global Oncology Patient Insights Panels (GOPIPs). (novartis.com)
Finally, her medical team devised a treatment plan that together with Pam's sheer determination, enabled a return to daily activities and set her on a path of patient involvement and activism which spanned in excess of 20 years. (arthritisresearch.ca)
and a review of involvement of those donors supporting health research. (who.int)

and other experts sharing research updates and answering participant questions in a series of eleven breakout sessions focused on immunotherapy for some of the most common and deadliest cancer types. (cancerresearch.org)

A wide range of research communities have created initiatives to increase patient engagement in health outcomes research. (lionbridge.com)

The DM team streamlined communication channels and focused on individual patients' communications preferences - text, email or phone - as well as time to be contacted, and increased coverage hours to accommodate these preferences. (prnewswire.com)
To investigate, a team led by Joshua Chodosh, MD, MSHS, of New York University School of Medicine and Jan Blustein, MD, PhD, of New York University's Wagner School of Public Service reviewed the published medical literature on doctor-patient communication, selecting research studies that involved patients aged 60 years and older. (hearingreview.com)
And if a patient stops taking a daily walk, that provides the medical team with clues as well. (stanford.edu)
Through our gold-standard education, the most rigorous certification process in the industry, and strong comment connections - ACRP prepares clinical research professionals to be the study team members employers can trust to get it right. (acrpnet.org)
Using this model, the research team found for the first time that PrPC is over-produced in schwannoma compared with healthy Schwann cells. (plymouth.ac.uk)
The research team have already identified a range of existing drugs which could manage this protein overproduction and that are used currently for other non-NF2-related conditions, such as Creutzfeldt-Jakob disease, multiple myeloma (a type of bone marrow cancer) and Acute Myeloid Leukaemia (AML). (plymouth.ac.uk)
Both are members of Professor Oliver Hanemann 's internationally-recognised brain and nervous system cancer research team at Plymouth University Peninsula Schools of Medicine and Dentistry. (plymouth.ac.uk)
Also, a member of the research team will explain the study and answer any questions about the study. (childrenshospital.org)
To request a paper version of the survey, please contact the research team on 01342 414516. (qvh.nhs.uk)
Our team is contacting some patients with planned appointments or surgery during the period of the planned industrial action. (qvh.nhs.uk)
Making a firm commitment to become an educated patient advocate, Pam spent time working with The Arthritis Society, Patient Partners in Arthritis, the Canadian Arthritis Patient Alliance and eventually found the unique and welcoming team at Arthritis Research Canada (ARC) as a founding member of what is now known as the Arthritis Patient Advisory Board (APAB). (arthritisresearch.ca)
The team found that the age adjusted mortality rate (AAMR) of diabetes patients was higher in rural areas across all age, sex, and ethnicity groups and over the 20-year period, with no statistically significant change in the AAMR of diabetes as the underlying or contributing cause of death in rural areas. (keele.ac.uk)
As with all chronic medical conditions, effective management of obesity must be based on a partnership between a highly motivated patient and a committed team of health professionals. (medscape.com)
This team may include the physician, a psychologist or psychiatrist, physical and exercise therapists, dietitians, and other subspecialists, depending on the comorbidities of the individual patient. (medscape.com)

They work, they tend to their families, they travel … and many are inspired to play a role in the cancer research community. (aacr.org)
This process is driven by patients, survivors, and their families, and it's becoming an integral part of cancer research. (aacr.org)

Our mission is to take bold action to improve the lives of everyone impacted by pancreatic cancer by advancing scientific research, building community, sharing knowledge and advocating for patients. (pancan.org)
Give now to accelerate progress in pancreatic cancer and improve patient outcomes. (pancan.org)
We are witnessing a culture shift in how patients participate in cancer research," Jaffee said. (aacr.org)
Jaffee introduced a roster of panelists representing several different aspects of cancer research and survivorship. (aacr.org)
Staudt cited The Cancer Genome Atlas , a joint program of the National Cancer Institute and the National Human Genome Research Institute as well as the AACR's Project GENIE and Count Me In , administered by the Emerson Collective, the Broad Institute, the Biden Cancer Initiative, and Dana-Farber Cancer Institute. (aacr.org)
Receive the latest news, event invites, funding opportunities and more from the Ontario Institute for Cancer Research. (oicr.on.ca)
L'IORC est fier de travailler en partenariat avec les patients, les aidants et les membres de la famille pour vaincre le cancer. (oicr.on.ca)
Nous avons la conviction que de tels partenariats se traduiront par de meilleures recherches, une expérience bonifiée pour les patients et, ultimement, de meilleurs soins aux personnes atteintes de cancer. (oicr.on.ca)
Le CCPF fera part à l'IORC de son point de vue et de ses commentaires en plus de lui fournir une expertise sur des questions touchant la recherche sur le cancer et le partenariat patient. (oicr.on.ca)
The third grader at Loyal Heights Elementary wants to raise as much money as possible for cancer research. (myballard.com)
I don't usually share this, but I was a cancer patient when I was younger. (novartis.com)
And the insights shared by patients have been applied to the research and development of Novartis lung cancer treatments. (novartis.com)
In 2014, The University of Texas MD Anderson Cancer Center created a streamlined process for developing measure sets for patient-centered outcomes, including provider-generated and patient-reported outcomes, at an accelerated pace. (hbs.edu)
The answer is tied to how much we invest in cancer research. (usc.edu)
This is exactly why Lisa Cohen, who had her own battle with cancer, supports the research happening at USC Norris Comprehensive Cancer Center. (usc.edu)
Lisa's cancer journey inspired her to learn more about AML research and explore ways she could make a difference in the lives of others going through the same ordeal. (usc.edu)
With her two daughters enrolled as pre-med majors at USC, she looked at the research occurring at USC Norris Comprehensive Cancer Center. (usc.edu)
Scientists from the University of Plymouth and Plymouth Hospitals NHS Trust, supported by The Laura Crane Youth Cancer Trust and Brain Tumour Research, have revealed the role of the normal, cellular form of prion protein (PrPC) in the development of NF2-related tumours. (plymouth.ac.uk)
We are extremely proud to have funded such pioneering cancer research as carried out by Dr Ammoun and PhD student Lucy Provenzano and collaborators in the Professor Hanemann laboratory. (plymouth.ac.uk)
Their fantastic work is going to make a life-changing difference to the lives of so many young cancer patients and that their discovery could also lead to hope for thousands of patients affected by other Merlin-deficient tumours adds yet more to the significance and excitement of their finding. (plymouth.ac.uk)
The Laura Crane Youth Cancer Trust is delighted to have been able to play a part in making this research a reality. (plymouth.ac.uk)
Brain tumours kill more children and adults under the age of 40 than any other cancer, but lack of research funding over decades has meant that current treatments lag well behind those of leukaemia and many other cancers. (plymouth.ac.uk)
The initial laboratory debate focused largely on whether ESA toxicity in cancer patients results from hemoglobin levels greater than12 g/dL or if there is a more direct toxicity. (cancernetwork.com)
This new approach to treating millions of cancer patients around the world each year mobilizes the body's own immune system to seek out and eliminate cancer cells. (cancerresearch.org)
Some patients with breast cancer develop local recurrence after breast-conservation surgery despite postoperative radiotherapy, while others remain free of local recurrence even in the absence of radiotherapy. (lu.se)

Explore resources related to the Transplant Research Center and transplant treatment and patient procedures at Mayo Clinic in Arizona, Florida and Minnesota. (mayo.edu)
Mayo Clinic tracks and analyzes these events, called patient safety indicators (PSIs), in an effort to prevent future occurrences. (mayoclinic.org)
Find appointment contact information for the Mayo Clinic location near you, including toll-free telephone numbers and hours of operation, along with online request forms for both U.S. patients and international patients. (mayo.edu)
Medical professionals can request patient referrals to Mayo Clinic using the online physician referring system . (mayo.edu)

4 ings highlight the critical need for spirometry services to identify lung abnormalities in patients with chronic res- piratory symptoms. (who.int)

The company started by analyzing their patients' journeys by communicating directly with trial participants, where they discovered redundancies, confusion and discontinuities in communication. (prnewswire.com)
CERF is always in need of participants for a variety of research studies and is presently seeking subjects 18 years or older to enroll in a database for notification of current and future studies . (uab.edu)
There are benefits and risks for research participants. (childrenshospital.org)
The specific risks associated with a research protocol are described in detail in the informed consent document, which participants are asked to consider and sign before participating in research. (childrenshospital.org)
The Federal government has regulations and guidelines for clinical research to protect participants from unreasonable risks. (childrenshospital.org)

Patients may be especially driven when they start to experience the outcomes of being compliant, such as a reduction in disease symptoms. (acrpnet.org)
I did not fit any of the criteria or display any of the symptoms of a patient with AML. (usc.edu)
Most patients experience muscle symptoms, such as weakness and cramps, although certain GSDs manifest as specific syndromes, such as hypoglycemic seizures or cardiomegaly. (medscape.com)
Consecutive adult patients aged 18 and above with chronic respiratory symptoms (lasting more than 8 weeks) and no evidence of active tuberculosis were recruited. (who.int)
Conclusion: This study demonstrated a high burden of abnormal lung function in patients attending clinics due to chronic respiratory symptoms. (who.int)

A natural extension of this approach to research and innovation is to involve patients in the dissemination of our research. (ucb.com)

One approach that supports patient engagement is the use of patient-reported outcome (PRO) measures. (lionbridge.com)
The use of PRO measures truly enables the capture of the patient's voice and outcomes valued by patients. (lionbridge.com)

Pneumocystis jirovecii pneumonia also increasingly concerns immunocompromised human immunodeficiency virus negative patients, due to the increasing use of immunosuppressive therapies (including corticosteroids), of anticancer cytostatics and biotherapies, in the context of grafts, transplants, but also from autoimmune or inflammatory chronic diseases. (centerwatch.com)
To determine the pattern of bacterial pathogens and their antibiotic sensitivity profile in patients with infected chronic leg ulceration. (bvsalud.org)
Sixty swab specimens obtained from chronic leg ulcer (CLU) patients were cultured aerobically and the antibiotic sensitivity pattern of the recovered organisms determined by the modified Kirby -Bauer disc- diffusion method . (bvsalud.org)

They will strengthen our commitment to patient communities by involving them in our efforts to meet their needs and expectations more efficiently. (ucb.com)

In addition, we suggest how preparation for advising patients about clinical research participation can be incorporated into the medical education process. (nih.gov)
La participation des patients partenaires à l'IORC évoluera à mesure que l'organisme deviendra davantage axé sur le patient. (oicr.on.ca)
Whether you decide to complete the survey or not, your treatment or your participation in research won't be affected in any way. (qvh.nhs.uk)

Dementia frequently coexists with hepatic encephalopathy (HE) in patients with cirrhosis but doesn't correlate with other decompensating events, according to a new study involving US veterans. (medscape.com)
However, because of the aging population of patients with cirrhosis, it's important to differentiate HE from nonhepatic etiologies of cognitive impairment, such as dementia, the authors note. (medscape.com)
Future research should look at the characteristics of HE, including the number of episodes or breakthrough episodes, and should focus on objective biomarkers to differentiate dementia and HE, the study authors write. (medscape.com)

Nous sommes fiers de travailler avec ce groupe de représentants de patients passionnés et réfléchis. (oicr.on.ca)
Une étude rétrospective a été menée à Riyad (Arabie saoudite) pour connaître l'impact de la rééducation pulmonaire d'une part sur les paramètres respiratoires d'un groupe de patients en consultation externe pour des affections pulmonaires chroniques autres que la bronchopneumopathie chronique obstructive (BPCO) et d'autre part sur leur utilisation des soins de santé. (who.int)
Un groupe de 51 patients ayant reçu le diagnostic de maladie pulmonaire interstitielle, bronchectasie, asthme et scoliose a été étudié. (who.int)

The Melanoma Research Foundation (MRF) is leading the melanoma community to transform melanoma from one of the deadliest cancers to one of the most treatable through research. (melanoma.org)
Death of a patient who develops a treatable life-threatening complication after a surgical procedure. (mayoclinic.org)

Spark the scientific breakthroughs that innovate treatments to improve the lives of patients. (pancan.org)
We're able to give patients access to new techniques and treatments-and save lives. (memorialcare.org)

A subcommittee has been formed to look into this matter and ACHR members strongly supported the idea that the Secretariat should play a role in drawing up model contracts and codes of good practice for sponsors of research. (who.int)

And some accommodations (e.g. minimizing ambient noise, speaking face to face, creating patient education materials with large-print font) are so simple and potentially beneficial that they could be implemented universally. (hearingreview.com)

Le CCPF façonnera le plan de partenariat patient pour l'IORC, qui comprendra la mise sur pied d'une communauté de patients et d'associations de patients, l'inclusion de patients partenaires dans les comités directeurs et consultatifs et les principaux projets de recherche, la création de ressources éducatives axées sur le patient et d'autres priorités que le CCPF établira. (oicr.on.ca)

Patient Services Research was created in 2013 based on active research programs and faculty in a number of research areas. (cincinnatichildrens.org)

In 2011, Pam then added presenting at the EULAR (European League Against Rheumatism) conference to her portfolio and continued to push the boundaries on behalf of patients globally. (arthritisresearch.ca)

In advising patients about clinical research, physicians enhance the physician-patient relationship and contribute to the overall goals of evidence-based medicine. (nih.gov)
Carman will participate in a panel discussion on "An Overview of the Evidence and Potential for Patient Engagement" and Yegian in a panel on "Patient Engagement, Costs and Insurance. (air.org)
This study proposes analyzing scientific evidence of dental research in Brazilian patients with special needs. (bvsalud.org)
It was concluded that the level of scientific evidence published in the last ten years in the supplements of the the Brazilian Oral Research is in the average, with high frequency of observational studies, diversity of special needs assessed, growth in publications and superiority of Southeastern Brazil in amount of published papers. (bvsalud.org)
None of the patient without clinical evidence of wound infection had bacterial positive wound swab culture . (bvsalud.org)

Audiology , Communication Sciences Research Center , Nutrition Therapy , Nursing , Occupational Therapy & Physical Therapy , Pharmacy and Speech Language Pathology . (cincinnatichildrens.org)
Paul Kluetz, MD , is the acting associate director of patient outcomes at the center. (aacr.org)
As part of an academic health center within a Preeminent Research University, USF Health is dedicated to the academic success of more than 6,000 students annually who will be workforce ready in medicine, nursing, public health, pharmacy, and physical therapy. (usf.edu)

Initial National Priorities for Comparative Effectiveness Research. (wikipedia.org)
Comparative Effectiveness Research: Activities Funded by the Patient-Centered Outcomes Research Trust Fund" (GAO-18-311). (wikipedia.org)
The Institute is an independent nonprofit whose focus is on clinical effectiveness research. (eidebailly.com)

Les patients partenaires jouent un rôle important au sein du conseil d'administration de l'IORC et ils ont contribué à la planification stratégique de l'IORC pour les années 2021 à 2026. (oicr.on.ca)
En 2021, l'IORC a créé son conseil consultatif des patients et des familles (CCPF). (oicr.on.ca)

Anatomy1

Organisms1

Diseases6

Analytical, Diagnostic and Therapeutic Techniques and Equipment42

Psychiatry and Psychology34

Phenomena and Processes6

Disciplines and Occupations41

Anthropology, Education, Sociology and Social Phenomena49

Technology, Industry, Agriculture5

Humanities18

Information Science38

Named Groups6

Health Care110

Geographicals5

Caregivers8

20223

20172

20201

Centers2

Advocates9

Outcomes Research Institute5

Advocacy2

Organization6

Chemotherapy2

Researchers9

Disparities2

Diagnosis7

PCORI2

Clinicians3

Health care11

20192

Care15

Hospital8

Jude2

Institutes2

Healthcare13

Trials14

Findings4

Support9

Involvement3

Immunotherapy1

Engagement in health1

Team14

Families2

Cancer25

Mayo Clinic4

Abnormalities1

Participants5

Symptoms5

Innovation1

Measures2

Chronic3

Commitment1

Participation3

Dementia3

Groupe3

Treatable2

Treatments2

Practice1

Education1

D'une1

Faculty1

Globally1

Evidence5

Center3

Effectiveness3

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