• To identify and appraise published evidence of the measurement properties for epilepsy‐specific patient‐reported outcome measures (PROMs) of children's health‐related quality of life (HRQoL). (kcl.ac.uk)
  • This review identified two leading candidate epilepsy‐specific PROMs for measuring health‐related quality of life in children. (kcl.ac.uk)
  • abstract = "ObjectiveTo identify and appraise published evidence of the measurement properties for epilepsy‐specific patient‐reported outcome measures (PROMs) of children's health‐related quality of life (HRQoL).MethodsWe searched multiple databases for studies evaluating the measurement properties of English‐language epilepsy‐specific PROMs of children's HRQoL. (kcl.ac.uk)
  • This systematic review assesses the evidence for the measurement properties of patient-reported outcome measures (PROMs) used in the evaluation of adult patients with ankle fractures. (uib.no)
  • Randomisation and intervention All participants completed electronic Patient-Reported Outcome Measures (PROMs) prior to the annual diabetes consultation. (bmj.com)
  • Patient-reported outcome measures (PROMs) provide important information about the burden of disease and impact of treatment in affected patients. (whiterose.ac.uk)
  • Quality of life (QoL) assessments, or patient-reported outcome measures (PROMs), are becoming increasingly important in health care and have been associated with improved decision making, higher satisfaction, and better outcomes of care. (jmir.org)
  • CONCLUSIONS The MOOD is a practical and scientifically sound patient based measure which can be used in research and audit to evaluate outcomes following treatment for uveal melanoma. (bmj.com)
  • One hundred and eight patients with OSA undergoing a therapeutic assessment of NCPAP completed the three quality of life questionnaires before and 5 weeks after commencing treatment. (nih.gov)
  • He said that functional assessment was any systematic attempt to objectively measure the level at which a person is functioning in a variety of domains. (medscape.com)
  • In fact, during the 1970s, most clinicians regarded functional assessment as an effort to measure the unmeasurable. (medscape.com)
  • By the 1980s, however, outcome measurement started to gain general interest, and by the late 1980s, medical rehabilitation practitioners recognized functional assessment as a means for measuring outcomes in medical rehabilitation . (medscape.com)
  • Most functional assessment scales were created over the last few decades for adult and pediatric medical rehabilitation patients to measure disability and disease progression, and to monitor rehabilitation treatment progress. (medscape.com)
  • These guidelines state that the aims of follow-up after surgery are to perform quality assessment, provide support and improve survival. (biomedcentral.com)
  • Study selection, data extraction and quality assessment were undertaken independently by at least two researchers. (whiterose.ac.uk)
  • Participants completed either a CAT version of the World Health Organization Quality of Life assessment (WHOQOL-CAT) or the fixed-length WHOQOL-BREF, an abbreviated version of the WHOQOL-100. (jmir.org)
  • Services are under pressure to deliver timely and high-quality diagnosis, following National Institute and Care Excellence multidisciplinary assessment guidelines. (surrey.ac.uk)
  • Assessment of different methods or outcome measures can increase power and account for bias and other effects. (cdc.gov)
  • Title : Measuring healthy days : population assessment of health-related quality of life Personal Author(s) : Taylor, Virginia Ross Corporate Authors(s) : National Center for Chronic Disease Prevention and Health Promotion (U.S.). Division of Adult and Community Health. (cdc.gov)
  • In conclusion, this study has clearly shown considerable decrements in quality of life in patients with OSA, similar to other chronic disabling conditions. (nih.gov)
  • Furthermore, NCPAP therapy returns patients to a quality of life similar to the normal population. (nih.gov)
  • As none of the different treatments offer a survival advantage, a key factor in choosing among treatments is their differential impact on patients' quality of life. (bmj.com)
  • The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is a disease specific patient-reported outcome measure which assesses quality of life of patients with pulmonary hypertension (PH). (wikipedia.org)
  • However, this method of keeping records has lacked the consistency needed for making comparisons among patients and for tracking changes in patients over time to study their rehabilitation outcomes. (medscape.com)
  • We describe a multi-centre randomized controlled trial to test whether these patients can be followed up by their general practitioner (GP) without altering quality of life, cost effectiveness and/or the incidence of serious clinical events. (biomedcentral.com)
  • We hypothesize that postoperative follow-up of colon cancer patients (according to national guidelines) by GPs will not have any impact on patients' quality of life. (biomedcentral.com)
  • Patient-reported outcome measures as complementary information to clinician-reported outcome measures in patients with psoriasis. (jamanetwork.com)
  • Patient-reported outcome measures in patients with peripheral arterial disease: a systematic review of psychometric properties. (whiterose.ac.uk)
  • Patients are more likely to receive coordinated care that focuses on their specific needs, which can lead to a better overall experience and improved outcomes. (revenuexl.com)
  • Patients may receive more services than they need, which can lead to confusion, higher costs, and potential negative outcomes. (revenuexl.com)
  • Our objective was to systematically review the literature on clinical outcomes of diet and physical activity interventions conducted among adult African American populations in the United States. (cdc.gov)
  • We included studies of educational interventions with clinically relevant outcomes and excluded studies that dealt with nonadult populations or populations with pre-existing catabolic or other complicated disorders, that did not focus on African Americans, that provided no quantitative baseline or follow-up data, or that included no diet or physical activity education or intervention. (cdc.gov)
  • These studies described interventions for improving diet or physical activity as indicators of health promotion and disease prevention and that reported significant improvement in clinical outcomes. (cdc.gov)
  • Our review suggests that nutrition and physical activity educational interventions can be successful in improving clinically relevant outcomes among African Americans in the United States. (cdc.gov)
  • Our objective was to review available literature on the effect of educational interventions on clinical outcomes resulting from improved nutrition and increased physical activity among adult African Americans in the United States. (cdc.gov)
  • The common feature of successful interventions across all stages of the life cycle through adulthood is that they promote attachment and provide a secure base for exploration and learning for the child. (nber.org)
  • Patient-reported outcome measures in dermatology: a systematic review. (jamanetwork.com)
  • To allow comparison of NCPAP therapy with treatments for other conditions, measurements of quality of life before and after treatment using standard techniques are required. (nih.gov)
  • As none of these treatments has a survival advantage over the others, the treatment of choice should be guided by the effects on quality of life. (bmj.com)
  • The development of new clinical outcome assessments could lead to new treatments for the disease. (rand.org)
  • Acute/chronic pain management: Proposals should explore the osteopathic approaches to acute and chronic pain management, emphasizing treatments and patient outcomes. (osteopathic.org)
  • 12 However, people with dementia have poorer outcomes when admitted to hospital, including increased confusion, risk of infection, longer bed stays and lower quality of life. (cambridge.org)
  • People with disabilities face widespread barriers to accessing services, and experience poorer health outcomes, lower educational achievement, less economic participation and higher rates of poverty than people without disabilities. (who.int)
  • A short, patient based questionnaire was developed and validated for evaluating outcomes following treatment for uveal melanoma. (bmj.com)
  • METHODS The 21 item measure of outcome in ocular disease (MOOD) assesses the patient's view of outcome in terms of visual function and the impact of treatment. (bmj.com)
  • All measures of character and cognition are measures of performance on some task. (nber.org)
  • Many of them beneficially affect later-life outcomes without improving cognition. (nber.org)
  • Examples are the Barthel Index, which measures motor function and the FIM ® instrument (herein referred to as FIM), which is based on the Barthel Index and adds cognition items. (medscape.com)
  • It is important to assess quality of life in clinical trials as health professionals and researcher, and the patient often have different perceptions about the same topic - what the professional considers to be 'successful' is not always considered as such by the patient. (atlantiaclinicaltrials.com)
  • Understanding the patient perception about their condition and how it has already been impacting their lives can help in the management of multiple morbidities. (atlantiaclinicaltrials.com)
  • It was the first pulmonary hypertension specific questionnaire for assessing patient reported symptoms, quality of life and functioning. (wikipedia.org)
  • Benefits to patient care of electronically capturing patient-reported outcomes in dermatology. (jamanetwork.com)
  • Quality of life measurement in acne-position paper of the European Academy of Dermatology and Venereology task forces on quality of life and patient oriented outcomes and acne, rosacea and hidradenitis suppurativa. (jamanetwork.com)
  • COSMIN guideline for systematic reviews of patient-reported outcome measures. (jamanetwork.com)
  • COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. (jamanetwork.com)
  • Value-based care (VBC) is a healthcare delivery model that prioritizes the quality and outcomes of patient care over the volume of services provided and links health care payments to the quality, equity, and cost-effectiveness of care, rather than the number of procedures or services. (revenuexl.com)
  • To transform healthcare delivery by incentivizing quality, improving patient outcomes, and optimizing healthcare resources to create a more patient-centric, efficient, and sustainable healthcare system. (revenuexl.com)
  • Providers implementing value-based care models have reported significant improvements in patient outcomes and savings. (revenuexl.com)
  • Providers are incentivized to focus on quality and outcomes, which can lead to cost savings and improved patient outcomes. (revenuexl.com)
  • Providers must have the ability to collect, analyze, and report data on patient outcomes, quality of care, and other relevant metrics. (revenuexl.com)
  • Real-time Electronic Patient Outcome ReporTing of adverse events - is it feasible in UK cancer trials? (birmingham.ac.uk)
  • Diabetes-related clinical data, quality of life, patient reported beliefs, adherence and satisfaction with medicines information were collected with validated tools at baseline and 6 months postintervention. (bmj.com)
  • Initial data analysis showed potential for impact in the right direction for some outcomes measured including glycated haemoglobin, quality of life and patient satisfaction with information about medicines. (bmj.com)
  • The primary endpoints will be quality of life (QoL) (measured by the EORTC QLQ C-30 and the EQ-5D instruments), serious clinical events (SCEs), and costs. (biomedcentral.com)
  • Power calculations for a definitive trial were performed on the different outcome measures to identify the most appropriate primary outcome measure. (bmj.com)
  • The intervention was developed with significant stakeholder involvement, a range of primary outcome measures were tested for suitability and the process for collecting resource utilisation data was identified. (bmj.com)
  • However, we still should question whether the skills we are teaching these children will enhance their quality of life and lead to meaningful life and adult outcomes. (indiana.edu)
  • The authors review some issues that should be considered in relation to the implementation of a comprehensive performance measurement system that incorporates quality of life as one of the outcome measures. (waikato.ac.nz)
  • In this online program, Harvard's expert faculty in health outcomes research will guide you through the language and concepts needed to synthesize outcomes studies into useful knowledge for translation and implementation into practice. (harvard.edu)
  • To review evidence regarding the health-related quality of life (HRQoL) and cost-effectiveness of unilateral and bilateral cochlear implantation (CI) among children and adults with severe-to-profound hearing loss. (karger.com)
  • We assessed the methodological quality using the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) guidance. (kcl.ac.uk)
  • Methodological quality was variable. (kcl.ac.uk)
  • We estimated cost-effectiveness of annually vaccinating children not at high risk with inactivated influenza vaccine (IIV) to range from US $12,000 per quality-adjusted life year (QALY) saved for children ages 6-23 months to $119,000 per QALY saved for children ages 12-17 years. (cdc.gov)
  • Measuring Success: Improving the Effectiveness of Correctional Facilities Measuring Success: Improving the Effectiveness of Correctional Facilities ACKNOWLEDGEMENTS The Institute is grateful to the various correctional professionals who provided their input, including Wardens Jim Frawner, Greg Shirley, Rich Gansheimer, Scott Yates and Ray Terry. (prisonlegalnews.org)
  • Measuring Success: Improving the Effectiveness of Correctional Facilities Published by MTC Institute. (prisonlegalnews.org)
  • 9 MTC INSTITUTE Measuring Success: Improving the Effectiveness of Correctional Facilities INTRODUCTION While headlines are trumpeting decreased crime rates across America, a different and troubling story lies just beneath them: The number of people in prison has continued to rise. (prisonlegalnews.org)
  • Cost effectiveness -- An economic analysis assessed as a health outcome per cost expended. (cdc.gov)
  • Effectiveness -- The improvement in health outcome that a prevention strategy can produce in typical community-based settings. (cdc.gov)
  • 1 It is estimated that half the residents in RACFs have dementia, and ensuring that these vulnerable residents receive high quality care is complex. (mja.com.au)
  • Quality of Life is defined as ''an individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals,expectations, standards and concerns'' by The World Health Organization (THE WHOQOL GROUP, 1994). (atlantiaclinicaltrials.com)
  • Our job is to make sure these outcomes are meaningful and add to an individual's quality of life. (indiana.edu)
  • It is commonly criticized for a lack of focus on prevention and health outcomes. (revenuexl.com)
  • Efficacy -- The improvement in health-outcome effect that a prevention strategy can produce in expert hands under ideal circumstances. (cdc.gov)
  • Core sets of outcome measures include the domains of the illness under study considered crucial to assess in clinical trials. (jrheum.org)
  • This is the first study to include measures of health preferences that allow results to be calculated in quality-adjusted life years (QALYs). (cdc.gov)
  • A diverse and growing number of organizations - employers, health care delivery organizations, insurers, pharmaceutical companies, and governments - rely on health outcomes research for generating actionable data that will help them make better decisions about the value of different therapeutic and preventative options. (harvard.edu)
  • Health‐Related Quality of Life Measure for Children with Epilepsy (CHEQoL) has both child and parent‐reported versions and good evidence of content, structural, and construct validity. (kcl.ac.uk)
  • The relationship between symptoms and health-related quality of life has not been fully explored. (rand.org)
  • Clinic based assessments: forced expiratory volume in one second (FEV 1 ), quality of life, and mood. (bmj.com)
  • Diary based assessments: morning and evening peak expiratory flow, visual analogue scale of severity of asthma, quality of life, and daily mood. (bmj.com)
  • The QoL outcome metrics used in these articles were divided into 2 categories - generic and condition specific. (karger.com)
  • This article summarises the review conducted by our research team in order to evaluate the options when measuring Quality of Life in clinical trials. (atlantiaclinicaltrials.com)
  • Quality of Life Research. (wikipedia.org)
  • Quality-of-life research in acne vulgaris: current status and future directions. (jamanetwork.com)
  • Acne Core Outcomes Research Network (ACORN) Outcomes Identification Group. (jamanetwork.com)
  • Quality of Life Research, 24 (Suppl 1), 126. (birmingham.ac.uk)
  • This program is ideal for anyone interested in getting an intensive view of the fundamentals of health outcomes research. (harvard.edu)
  • Health outcomes research is the scientific inquiry that provides the evidence required for optimally developing new therapies, implementing quality of care improvement protocols, and enhancing public health system capacity and capability. (harvard.edu)
  • During this program you will learn the fundamentals for measuring, designing, and analyzing health outcomes research studies and data. (harvard.edu)
  • Outcomes research is highly valued in public health due to the breadth of issues it addresses. (harvard.edu)
  • His current research efforts focus on neurologic medical education, osteopathic examination rater reliability and the association between somatic dysfunction and stroke-related outcomes. (osteopathic.org)
  • The specific are the activities of daily living scales, which measure the performance of basic functional skills required to care for oneself independently, such as eating, grooming, bathing, dressing, locomotion, transfers, and continence, and may also measure cognitive abilities. (medscape.com)
  • This paper reviews the recent literature on measuring and boosting cognitive and noncognitive skills. (nber.org)
  • Measuring cognitive impairment along with motor impairment becomes important with certain medical conditions, especially brain injury/dysfunction and stroke. (medscape.com)
  • This work has led to the development, evaluation, validation, and endorsement, through the OMERACT consensus and validation processes, of a "core set" of outcome measurements for use in clinical trials of AAV. (jrheum.org)
  • Quality of life measurements were stable throughout the trial and were accompanied by a notable drop in disease progression. (naturalmedicinejournal.com)
  • Due to a wide range of follow-up programmes and paucity of randomized trials, it is impossible to draw conclusions about the best combination and frequency of clinic (or family practice) visits, blood tests, endoscopic procedures and radiological examinations that maximize the clinical outcome, quality of life and costs. (biomedcentral.com)
  • Evaluating the outcomes achieved by service providers who assist people with intellectual disabilities is extremely important in terms of ascertaining whether service providers achieve their goals. (waikato.ac.nz)
  • Sleepiness is an unusual symptom and its impact on conventional indices of quality of life has rarely been measured. (nih.gov)
  • The SF-36, the current gold standard generic measure of quality of life, has been shown to be sensitive to "blurred vision" as a symptom, but it may not be sensitive to other ocular symptoms or to a single eye disease. (bmj.com)
  • Gastrointestinal symptom severity and quality of life were evaluated at baseline, at 3 months follow-up and after 1 year. (researchgate.net)
  • The development of an acne quality of life scale: reliability, validity, and relation to subjective acne severity in mild to moderate acne vulgaris. (jamanetwork.com)
  • Only the Ankle Fracture Outcome of Rehabilitation Measure (A-FORM) presented some evidence on content validity. (uib.no)
  • 0000-0003-3531-4694 investigated psychometric properties (reliability, responsiveness and validity) of Paula Vanessa Peclat Flores quality of life instruments for individuals with elimination ostomies. (bvsalud.org)
  • The CAMPHOR is made up of 3 main dimensions which assess symptoms, functioning and quality of life (QoL). (wikipedia.org)
  • The Cambridge Pulmonary Hypertension Outcome Review has been a useful tool in clinical trials as it allows researchers to assess whether new medication or therapy is effective. (wikipedia.org)
  • The authors provide support for the emerging view that quality of life is an outcome measure that can be utilized to assess service providers' performance. (waikato.ac.nz)
  • The FLP data showed similar pre treatment decrements in quality of life and substantial improvements following NCPAP. (nih.gov)
  • The word "analysis" is used to highlight the fact that data is used to measure behavior change in an objective fashion. (indiana.edu)
  • Data included: hours of professional time, diagnostic outcome. (surrey.ac.uk)
  • Recruitment and attrition rates were determined plus the quality of the outcome data. (bmj.com)
  • Following such treatment the apnoeas disappear, sleep quality improves as apparently do daytime symptoms of sleepiness. (nih.gov)
  • Scores for QoL and symptoms range from 0-25, with higher scores indicating worse quality of life. (wikipedia.org)
  • The impact of symptoms on quality of life appeared to be the main trigger for seeking help for UI in both men and women. (who.int)
  • To compare the outcomes and costs of clustered domestic and standard Australian models of residential aged care. (mja.com.au)
  • The new A clustered, domestic model of residential aged care was associated with fewer hospitalisations and emergency department presentations and higher quality of life for residents, without increasing whole of system costs. (mja.com.au)
  • Publications related to quality of life (QoL) and costs of care in CI were acquired through searches in English-language databases. (karger.com)
  • Using standard software (TreeAge Pro 2004 Software, release 6, Treeage Software, Williamstown, MA, USA), we created a mathematical model (decision tree) to estimate the effect of influenza vaccination on outcomes and costs among children. (cdc.gov)
  • Background Measuring service use and costs is an important aspect of service delivery evaluation. (surrey.ac.uk)
  • The word "behavior" is used to highlight that we are focused on objective measures of behavioral change. (indiana.edu)
  • Ideas are also presented on other areas where a comprehensive stakeholder analysis, incorporating quality of life measures, could form part of a service provider's performance evaluation. (waikato.ac.nz)
  • The methods for developing the ACOVE quality indicators for the management of osteoporosis, including the literature review and expert panel consideration, are detailed elsewhere in this supplement. (rand.org)
  • Small, clustered domestic models of care are reported to perform well on standard quality of care indicators, such as numbers of re-hospitalisations, catheter use, and pressure ulcers. (mja.com.au)
  • Formative versus reflective indicators in organizational measure development: a comparison and empirical illustration. (jamanetwork.com)
  • Factor analysis, causal indicators and quality of life. (jamanetwork.com)
  • there is at least one validated outcome measurement instrument available for each domain. (jrheum.org)
  • Between specific and general are the instrumental activities of daily living scales, which measure abilities to accomplish secondary functional activities in the home, such as preparing meals, doing housework, and using a telephone. (medscape.com)
  • Often, governments commit to reform without identifying the outcomes they want to achieve. (mckinsey.com)
  • Adverse event (outcome) -- Any disease or injury, e.g., premature death or unnec essary morbidity. (cdc.gov)
  • Attributable risk -- The theoretical reduction in the rate or number of cases of an adverse outcome that can be achieved by elimination of a risk factor. (cdc.gov)
  • Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses" (PDF). (wikipedia.org)
  • In contrast the EQ-5D did not show significant improvements with therapy, presumably because of its failure to measure the aspects of quality of life related to severe sleep fragmentation and daytime sleepiness. (nih.gov)
  • Researchers have not fully addressed clinical outcomes. (cdc.gov)
  • Each health state in the model is associated with a cost and quality adjustment from Table 1 . (cdc.gov)
  • By focusing on quality over quantity, providers can reduce unnecessary tests, procedures, and hospital re-admissions, leading to significant cost savings. (revenuexl.com)
  • By focusing on quality and not quantity, unnecessary tests and procedures can be avoided, leading to cost savings. (revenuexl.com)
  • High-quality early childhood and elementary school programs improve character skills in a lasting and cost-effective way. (nber.org)
  • This program will be useful to anyone involved in improving health care cost, quality, or outcomes from across the health care industry. (harvard.edu)
  • In end-of-life care, there is heavy reliance on care by family/friends (informal carers) and this should be reflected in the total cost of care alongside formal services. (surrey.ac.uk)
  • The instant transparency into government performance made possible by the proliferation of online media, coupled with the innovation and improved value for money people see in other parts of their lives (such as online banking or low-cost air travel), raises expectations for public services. (mckinsey.com)
  • Cost utility -- An economic analysis assessed as a quality-adjusted outcome per net cost expended. (cdc.gov)
  • Disease activity encompasses remission (complete absence of disease activity), response (quantifiable improvement in disease activity), and relapse (increase in disease activity from a previous low or absent state), which are used as outcomes in clinical trials 1 , 2 , 3 , 4 , 5 . (jrheum.org)
  • 6 , 10 The World Health Organization has indicated that such models of care have advantages for older people, families, volunteers and care workers, and also improve the quality of care. (mja.com.au)
  • Individual placement and support has good potential to address the problem of vocational outcome in people with first-episode psychosis. (cambridge.org)
  • The first step, then, is to choose three to six priority outcomes-any more will be too many-that respond to what people most want and need government to deliver, and then stick with them for two or three years despite inevitable pressure to modify or expand their scope. (mckinsey.com)
  • For example, a recent review (10) examined physical activity outcomes (ie, increasing frequency of exercise) among African Americans but did not evaluate various health-related outcomes (ie, weight loss or improved lipid profile) resulting from increased exercise. (cdc.gov)
  • This increased clinical trial activity in vasculitis has been accompanied by the development and validation of new outcome measures - a challenging process for these complex, multiorgan system diseases. (jrheum.org)
  • Identifying what to measure in acne clinical trials: first steps towards development of a core outcome set. (jamanetwork.com)
  • Reference Crowther, Marshall, Bond and Huxley 5 However, there have been no published randomised controlled trials of this approach in those with first-episode psychosis, a group who also have high levels of unemployment and who are normally in a phase of life where vocational development typically occurs. (cambridge.org)
  • Nations system and Member States, a comprehensive action plan based on the evidence in the report, and in line with the Convention on the Rights of Persons with Disabilities and the outcome document of the High-level Meeting of the United Nations General Assembly on disability and development. (who.int)