Multidisciplinary decisions in breast cancer: does the patient receive what the team has recommended? (57/80)

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Ethical, legal, and social implications of incorporating genomic information into electronic health records. (58/80)

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Online access to doctors' notes: patient concerns about privacy. (59/80)

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Giving patients granular control of personal health information: using an ethics 'Points to Consider' to inform informatics system designers. (60/80)

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Do health care users think electronic health records are important for themselves and their providers?: Exploring group differences in a national survey. (61/80)

Patient access to electronic health records (EHR) is expected to have a variety of benefits, including enhanced patient involvement in care and access to health information, yet little is known about potential demand. We used the 2007 Health Information and National Trends Survey, a national probability-based survey, to determine which health care users with Internet access are likely to report that electronic access to their health records is important for themselves and their providers. Respondents who represent populations that generally experience health and healthcare disparities (Blacks, Latina/os, and patients with psychological distress) were among the most likely to report that the EHR was very important for them, even after controlling for respondents' socio-economic status, health status, health care context, and disposition toward health information. Health policies and the designs of EHRs should consider these patterns, which may help address health and health care disparities.  (+info)

Adapting comparative effectiveness research summaries for delivery to patients and providers through a patient portal. (62/80)

Despite increases in the scientific evidence for a variety of medical treatments, a gap remains in the adoption of best medical practices. This manuscript describes a process for adapting published summary guides from comparative effectiveness research to render them concise, targeted to audience, and easily actionable; and a strategy for disseminating such evidence to patients and their physicians through a web-based portal and linked electronic health record. This project adapted summary guides about oral medications for adults with type 2 diabetes to a fifth-grade literacy level and modified the resulting materials based on evaluations with the Suitability Assessment of Materials instrument. Focus groups and individual interviews with patients, diabetes providers, and health literacy experts were employed to evaluate and enhance the adapted summary guide. We present the lessons learned as general guidelines for the creation of concise, targeted, and actionable evidence and its delivery to both patients and providers through increasingly prevalent health information technologies.  (+info)

Patients' access to personal health information.(63/80)

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The case against showing patients their records.(64/80)

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