Pilot study of low-income parents' perspectives of managing asthma in high-risk infants and toddlers.
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This pilot study describes the challenges low-income parents face in managing asthma in their infants and toddlers who are at high risk of morbidity due to asthma. Five families of children younger than 3 years and recently hospitalized for asthma were interviewed from 1 to 5 times and asked to give narratives about the everyday management of asthma in their high risk infants and toddlers. Interpretive phenomenology was used as the method to describe parents' perspectives on managing the illness. The parents, all single mothers, struggled to manage asthma in crowded conditions, with limited transportation for frequently needed emergency care, and in face of the complicating needs of other children and family members. Not knowing then knowing the diagnosis, and provider availability and lack of availability were two dichotomous challenges mothers faced when managing asthma in their very young children. (+info)
Using stories to disseminate research: the attributes of representative stories.
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When researchers communicate their findings to patients, clinicians, policy-makers, or media, they may find it helpful to supplement quantitative data with stories about individuals who represent themes in their research. Whether such stories are gathered during the research itself or identified from other sources, researchers must develop strategies for assessing their representativeness. This paper proposes 5 attributes of representative stories: (1) expression of important themes in the research, (2) explicit location in the "distribution" of stories that exemplify the theme, (3) verifiability, (4) acknowledgment of uncertainty, and (5) compelling narration. This paper summarizes research on substance abuse among physicians, and uses these 5 attributes to assess the representativeness of a published case report and a fictional short story about addicted physicians. While neither story is fully representative of the research, the process of evaluating these stories illustrates an approach to identifying representative stories for use in disseminating research. (+info)
Factors that influence engagement in collaborative practice: how 8 health professionals became advocates.
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OBJECTIVE: To generate hypotheses regarding factors that might influence engagement in collaborative practice. DESIGN: Qualitative study using in-depth interviews. SETTING: Participants interviewed each other in dyads. The pairing was based upon geographical location and proximity to each other. PARTICIPANTS: Eight professionals from the disciplines of medicine, nursing, occupational therapy, physical therapy, and massage therapy. METHOD: Semistructured interviews, lasting 30 to 45 minutes each, were recorded and transcribed verbatim. The transcripts were read by all research team members using independent content analysis for common words, phrases, statements, or units of text for key themes. At a subsequent face-to-face meeting, the team used an iterative process of comparing and contrasting key themes until consensus was reached. The transcripts were then analyzed further for subthemes using NVivo software. MAIN FINDINGS: Initial findings suggest that some common characteristics grounded in family history, school experiences, social interactions, and professional training might influence collaborative practice choices. The narrative form of the interview broke down interpersonal and interprofessional barriers, creating a new level of trust and respect that could improve professional collaboration. CONCLUSION: This study suggests that life experiences from childhood into later adulthood can and do influence professional choices. (+info)
Access to and use of research by rural nurses.
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INTRODUCTION: The use of relevant research findings to inform clinical practice is important for nurses, regardless of setting. Although there have been studies addressing the use of research among various practitioners, little is known about how nurses in rural areas access health information (specifically research findings), nor how such findings are incorporated into daily practice. The purpose of this study was to explore rural nurses' access, use and perceived usefulness of research for rural practice. METHODS: The study was conducted in a sparsely populated state located in the western part of the USA. An ethnographic method was chosen to answer the research questions for this descriptive study. Semi-structured interviews were conducted with 29 rural nurses from nine communities by graduate nursing students enrolled in a rural nursing course following in-class instruction and practice. Field notes taken by the students supplemented the interview data. The students' notes included a windshield survey or description of the context and location within which the participants lived and/or practiced as well as the interviewers' observations, thoughts and impressions about the research project. Interviews were audiotaped and transcribed verbatim. Once transcribed, the interview narratives, windshield data and field notes were analyzed by the students for common themes; the students then wrote and submitted papers to the faculty addressing the themes that emerged from their interviews. The analysis conducted by the faculty members included four sources of data: transcriptions of interviews; field notes; windshield data; and students' papers. The process of identifying themes was facilitated by using the software program NUD*IST (QSR International; Melbourne, VIC, Australia). Demographic information was entered into the Statistical Package for Social Scientists (SPSS Inc; Chicago, IL, USA) to compile descriptive information about the sample. FINDINGS: Twenty-seven female and two male nurses participated in the study. The nurses' ages ranged from 31-72 years and their experience in nursing spanned 3-50 years with a range of 1 to 35 years in rural nursing. The interviews revealed that most of the nurses used the term 'research' to mean 'gathering information'. When asked how often they used 'research' the responses ranged from 2-3 times per day to 2-3 times per month. The preferred means of obtaining information was asking a colleague. Additional resources included work-place journals, books, in-services, conferences and the internet. Twenty-three of the nurses reported having internet access at work; 25 had internet access at home. Supportive supervisors and articles in general nursing journals were identified as helpful. Barriers to using research included: lack of knowledge of research methods; lack of time at work or at home to look up information; and the lack of computers and internet access on the nursing units. When computers were available, the nurses reported that poor computer literacy decreased their ability to quickly find and evaluate information. Additional barriers included diminishing financial support from employers and the long travel distances required to attend conferences. The nurses reported finding little clinical research specifically related to rural practice. CONCLUSIONS: Education and mentorship is needed about how to evaluate the types and strength of evidence, access research using the internet, interpret findings, and incorporate evidence in clinical practice. Interventions that foster the appreciation and use of research by staff nurses and managers are needed in order to build an evidence based culture. Research is needed, specifically as related to rural clinical practice. (+info)
Almost 9: a personal essay on parenting, aniridia, and being a doctor.
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The author, a family physician, writes about her adoptive daughter being diagnosed with the rare genetic disorder aniridia and later with a central auditory processing disorder. Both mother and daughter learn about these disorders and develop coping strategies. (+info)
Individual resilience in rural people: a Queensland study, Australia.
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INTRODUCTION: This article reports the results of phase 1 of a study into community and individual resilience in rural Australians. The aim of the study was to develop, implement and evaluate a model that enhances psychological wellness in rural people and communities. The study used a critical participatory action research methodology to work in partnership with key individuals and groups in a rural community in Queensland which, anecdotally, was identified by its community representatives as having confronted and responded positively to and dealt with adversities such as drought, hailstorms and bushfire. A focus in the project was to identify vulnerable as well as resilient elements in individuals and the community, with an emphasis on identifying and then using existing individual, group and community resilience as exemplars for those who are less resilient. The study recognised that not all members of the community were resilient; clearly there are more and less resilient groups within this community. Additionally, it was acknowledged that resilience was not a steady state within an individual. Rather, an individual's level of resilience could vary over their lifetime. METHODS: A participatory action research design was chosen for this study which aimed to identify individual and community resilience factors in a community. The study is being undertaken in three phases. In phase 1 of the study (the focus of this article), 10 in-depth interviews and one focus group (with four participants) were conducted. Individuals identified by a network of community service providers as being particularly resilient were selected to participate in this phase, with the aim of identifying these individuals' perceptions of individual and community resilience. This article reports on the factors identified that impact on the individual resilience of rural people. RESULTS: Thematic analysis of the qualitative data surrounding individual resilience revealed three themes: images of resilience; characteristics of resilient people and shapers of resilience (environmental influences that increase personal resilience). CONCLUSIONS: The findings of this study support existing theoretical concepts of resilience, with an added dimension not previously reported. The major finding of this study is that connection to the land, which is strongly embedded in the literature on Indigenous peoples (eg human ecology) and acknowledged as part of Indigenous culture and cosmology, may also be a factor that enhances the resilience of non-Indigenous people who have built up a relationship with the land over time. The extent of this connection and its impact on individual and community resilience was, however, not established in this study, but should also be a major focus of future research. (+info)
Critical views on postpartum care expressed by new mothers.
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BACKGROUND: Women's evaluation of hospital postpartum care has consistently been more negative than their assessment of other types of maternity care. The need to further explore what is wrong with postpartum care, in order to stimulate changes and improvements, has been stressed. The principal aim of this study was to describe women's negative experiences of hospital postpartum care, expressed in their own words. Characteristics of the women who spontaneously gave negative comments about postpartum care were compared with those who did not. METHODS: Data were taken from a population-based prospective longitudinal study of 2783 Swedish-speaking women surveyed at three time points: in early pregnancy, at two months, and at one year postpartum. At the end of the two follow-up questionnaires, women were asked to add any comment they wished. Content analysis of their statements was performed. RESULTS: Altogether 150 women gave negative comments about postpartum care, and this sample was largely representative of the total population-based cohort. The women gave a diverse and detailed description of their experiences, for instance about lack of opportunity to rest and recover, difficulty in getting individualised information and breastfeeding support, and appropriate symptom management. The different statements were summarised in six categories: organisation and environment, staff attitudes and behaviour, breastfeeding support, information, the role of the father and attention to the mother. CONCLUSION: The findings of this study underline the need to further discuss and specify the aims of postpartum care. The challenge of providing high-quality follow-up after childbirth is discussed in the light of a development characterised by a continuous reduction in the length of hospital stay, in combination with increasing public demands for information and individualised care. (+info)
Caregiver traumatization adversely impacts young children's mental representations on the MacArthur Story Stem Battery.
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The aim of our study was to investigate the impact of maternal exposure to family violence, maltreatment, and related posttraumatic stress disorder (PTSD) on young children's mental representations of self and caregivers. Participant mothers (n=24) and children (n=25) were recruited from a referred sample when they were 4-7 years old. Maternal report and child story stem narratives were used. Mother's experience of domestic violence and severity of violence-related PTSD symptoms robustly predicted more dysregulated aggression, attentional bias to danger and distress, as well as more avoidance of and withdrawal from conflicts presented in the children's story stems. Less narrative coherence was also noted. Traumatized mothers experience and symptoms prior to their child's turning 4 years old adversely affected their child's mental representations from 4-7 years. (+info)