my daughter has been diagnosed with Helicobacter heilmanni. we can't find a doctor to help bc it's so rare. Can u help

Question

My daughter has been diagnosed with Helicobacter heilmanni. The pylori is much more common, but the one she has isn't. We can't find a doctor to help teat her bc there is not medicine to treat it bc it's so rare. She is extremely sick and can't keep her food down. Do u know where we can get help ?! We have called so many doctors nation wide and no one can help us, some of the doctors haven't ever even herd of it !!